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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Vulvadynia

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Vulvadynia

Post  Linda Williams on Fri Jul 21, 2017 11:53 pm

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These are the medications my doctor has prescribed: nystatin, clobetasol, topiciort. Also lidocaine which insurance would not cover, purchased over the counter which had alcohol in it which was not listed in the ingredients which in turn caused even more burning!! When I saw him last week I was told to stop the topiciort & had a speciality pharmacy make a compound of baclofen, amitripriptine, & gabapentin. I knew it would burn more than likely and it does. This afternoon I discovered one side of the vulva...the edge was very red even a place on my leg. Again not covered by insurane. Anyway I called both my doctor & pharmacy. The nurse said it did not sound like an allergy since the entire vulva was not involved. I was also told other patients use it with no problems. The pharmacy had to consult with the other pharmacy. I do no soaps down there, dye free laundry soap double rinse, no panties at home, loose clothes, well you know the drill. Have any of you ladies used a medication like this??? Sex is not an issue as I am a widow, evenot if I attempted to I couldn't. I like all of you am sick of ice packs &! medication that doesn't help. I do trust my doctor, he is OB/GYN.specialist in urology. He said last resort vaginal injections, talked about biopsy at one time. In the back of my mind wonder if my bladder repair surgery plays into it although he said no. I have 2 slings on my bladder & urethra plush see real other proceures.
Hope to get some good advice!!!

Linda Williams

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Re: Vulvadynia

Post  mary jane on Sat Jul 22, 2017 9:20 pm

Recurring infections like UTIs or bartholin cysts can sensitize the area according to my pain consultant circa 2014 when I saw her. It's not known why.
It sounds like you have either some minor nerve damage from the bladder surgeries or sensitized nerves. I recommend you do a lot of mindfulness and stress reduction to calm your central nervous system down, avoid any other further surgeries if you can and keep taking the medications and/or creams. Nerve pain can and does get better so don't give up hope Smile
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mary jane

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Re: Vulvadynia

Post  Linda Williams on Sun Jul 23, 2017 2:44 am

Thanks for your advice! I have asked if my surgrey could playa part, the 2nd urology doc said no. I also have mesh in there. Silly question how do you accomplish stress reduction? I'be seen many people talk about physical therapy too.
How long have been dealing with this if I might ask and what treatments. Thanks Mary jane.

Linda Williams

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Re: Vulvadynia

Post  mary jane on Sun Jul 23, 2017 7:45 am

Linda Williams wrote:Thanks for your advice!  I have asked if my surgrey could playa part, the 2nd urology doc said no.  I also have mesh in there.  Silly question how do you accomplish stress reduction?  I'be seen many people talk about physical therapy too.
How long have been dealing with this if I might ask and what treatments.  Thanks Mary jane.


MESH? Well no wonder you are in such trouble, poor you. In UK there has been a HUGE scandal revolving around mesh surgeries, they have caused pudendal neuralgia in a lot of women as a result of nerve damage from the surgery. I would go down the medication route if I were you, ..and show your "smart" OBGYN this article:

https://www.theguardian.com/commentisfree/2017/apr/27/vaginal-mesh-women-health-bladders-bowels-sex-lives-nhs-operations

http://www.bbc.co.uk/news/health-39567240


I personally have zero respect for OBGYNs and GPs, I think they should be thrown in a bunker and burnt alive
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Re: Vulvadynia

Post  Linda Williams on Mon Jul 24, 2017 11:35 pm

Does anyone have good questions to ask my doctor about treatment options for this
vulvadynia?
I am really beginning to wonder if my bladder repair, slings, cadaver tissue. The pharmacy that made my compound is remaking it since I had 2 very red places after applications.
I am so tired of doing everything the doc says and still in pain. I feel like I am being experimenting on! I know I am not alone! Would appreciate any input!

Linda Williams

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Re: Vulvadynia

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