Log in

I forgot my password

Latest topics
I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


Vestibulectomy

Go down

Vestibulectomy

Post  infinitelywondering on Sat Jul 29, 2017 6:50 pm

Hi ladies,

My vestibulectomy operation is scheduled for Wednesday the 2nd August; I'm really scared!
I'm going to post updates throughout the healing process- I keep having second thoughts but I've tried so many different medications that have failed me, this is my last chance. I'm only 17 so I am pretty young for this sort of operation AND I have exams to get into Med School this year - terrible timing!!

I'm super passionate about battling all types of chronic vulval pains such as vulvodynia and I hear it is something not widely recognised amongst medical professionals. My own GP told me that I am completely 'normal' and the pain is merely psychological Evil or Very Mad . It seriously saddens me that people don't understand and are not supporting us....

I know it sounds crazy and idealistic but I have been working my arse off to get good grades so I can get to medical school and kick some ass about chronic vulval pain. It cannot be ignored for much longer

I am lucky that I found Miss Gabrielle Downey, who I have mentioned before; she is a gynaecologist who specialises in this stuff and she is honestly as frustrated as me about it all. She works at BMI hospital in Edgbaston(private) and Birmingham City Hospital (NHS). I really think she is fantastic so if you are suffering and can make it up to Birmingham, I would recommend that you do. If you want to be treated quickly like me, I had a consultation privately for diagnosis and then was referred to NHS for surgery.

I have a very supportive family and a very supportive boyfriend- I won't let this get me down even though it is constantly at the back of my mind. I am excited yet terrified for the surgery and if anyone has any tips to help me, I'd be really grateful!!

Love,
infinitelywondering

infinitelywondering

Posts : 34
Join date : 2016-12-04

View user profile

Back to top Go down

Good luck!

Post  jungleclover on Sat Aug 05, 2017 7:36 am

Hey man, good luck! That sounds so scary but I'm glad you're working on things, have a great medical team, and the support of your family. It's really hard having this problem when you have goals like med school. I'm trying to get into PT school and sometimes I wonder how I'll do it. Like how am I going to have a career where I have to walk around all of the time. Some days I feel great but others I want to curl up in a ball and not move. Either way, I really hope all goes well. Know that you aren't alone! Maybe you'll end up in the research field after med school and can help all of us ladies out <3

jungleclover

Posts : 14
Join date : 2017-07-19

View user profile

Back to top Go down

Re: Vestibulectomy

Post  sj17 on Mon Aug 07, 2017 5:24 pm

<3 <3 Brave brave lady.

sj17

Posts : 32
Join date : 2017-05-06

View user profile

Back to top Go down

Re: Vestibulectomy

Post  infinitelywondering on Wed Aug 09, 2017 11:34 pm

Hi ladies I'm really worried...

I've started having this horrific burning since my vestibulectomy. I had a look and it appears that I must have some sort of infection as on one side my skin is bright red and burning hot Sad shall I contact my GP asap?

X

infinitelywondering

Posts : 34
Join date : 2016-12-04

View user profile

Back to top Go down

Re: Vestibulectomy

Post  sj17 on Thu Aug 10, 2017 12:51 am

you probably have a yeast infection or a UTI. contact your gp immediately tomorrow. Nothing to worry about though, they're quite common post surgery xx

sj17

Posts : 32
Join date : 2017-05-06

View user profile

Back to top Go down

Re: Vestibulectomy

Post  Ilya on Sat Aug 12, 2017 4:34 pm

Hello,
I hope you contacted your doctor and are feeling better already. Thanks for sharing your story with us Smile
I am sure with this positive attitude of yours you will overcome this pain ans will be a successful dr and will help a lot of women

Ilya

Posts : 4
Join date : 2017-08-09

View user profile

Back to top Go down

Re: Vestibulectomy

Post  Hopeitworks on Sat Aug 12, 2017 4:56 pm

I hope you contacted your doctor and it's going away. I had a Vestibelctomy recently also and I'm so worried it will get infected. Thanks for sharing your story!

Hopeitworks

Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:29 am

Hi ladies,

Thank you all for your lovely and kind responses.

The burning has calmed down, I'm not entirely sure what it was ? I'm feeling fantastic at the moment, I'm back to driving, my normal life style and going out again- one week after surgery!

I'm still taking things slowly though but I do seem to be healing really nicely. I think for me the thing that has helped lots is bathing in a bidet and recently I've been using salt water to help the wound (I thought that would hurt but it didn't). I've continued using the manuka honey and I'm sure it's working.

I've been off my pain killers for two days now and I feel great. I don't know why I've suddenly started feeling better but I am certainly not complaining ! Who knows if the surgery has worked, but at least for now everything is looking good

Thank you!

X

infinitelywondering

Posts : 34
Join date : 2016-12-04

View user profile

Back to top Go down

Re: Vestibulectomy

Post  Hopeitworks on Sun Aug 13, 2017 1:33 am

I am so happy for you!

Hopeitworks

Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:40 am

How are you? X

How is your recovery going ?
I hope it's all okay Smile

infinitelywondering

Posts : 34
Join date : 2016-12-04

View user profile

Back to top Go down

Re: Vestibulectomy

Post  Hopeitworks on Sun Aug 13, 2017 1:50 am

I'm doing well! The only pain I have is from healing. I have been taking it easy but I did go to dinner and lunch with my husband. We went shopping and it was nice to get out. But when I overdo it I start to feel it. I'm still walking slow. Still hurts if I sit directly on it. If that makes sense. I sit kinda on one but cheek. But I am so happy I don't have V pain! After 10 yrs of constant pain I am speechless! I stopped the pain meds 4 days ago. It still hurts to wipe when using the bathroom. I'm still taking baths or sitz baths at least 2 to 3 a day. I have no signs of infection but itchiness comes and goes.


Hopeitworks

Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Vestibulectomy

Post  Ilya on Sun Aug 13, 2017 3:53 am

Very happy to hear both of you doing better. Keep us posted

Love

Ilya

Posts : 4
Join date : 2017-08-09

View user profile

Back to top Go down

Re: Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 9:54 am

That's absolutely brilliant, you're right to keep taking things slow.

I hope this positivity continues for us
Smile

infinitelywondering

Posts : 34
Join date : 2016-12-04

View user profile

Back to top Go down

Re: Vestibulectomy

Post  infinitelywondering on Fri Aug 18, 2017 10:50 am

Hi guys,

I think I have an infection because I've experienced lots of swelling and yellow-green discharge from the wound....

Shall I contact my GP for antibiotics?

Thank you x

infinitelywondering

Posts : 34
Join date : 2016-12-04

View user profile

Back to top Go down

Re: Vestibulectomy

Post  Hopeitworks on Fri Aug 18, 2017 12:39 pm

Oh No! Keep us posted.

Hopeitworks

Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Vestibulectomy

Post  sj17 on Sat Aug 26, 2017 3:55 pm

How is the infection now? X

sj17

Posts : 32
Join date : 2017-05-06

View user profile

Back to top Go down

Infection update

Post  infinitelywondering on Sun Aug 27, 2017 9:42 am

I've been taking augmentin and had quite bad side effects ! However the infection has cleared up and I feel much better now Smile

infinitelywondering

Posts : 34
Join date : 2016-12-04

View user profile

Back to top Go down

Re: Vestibulectomy

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum