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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Vestibulectomy

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Vestibulectomy

Post  infinitelywondering on Sat Jul 29, 2017 6:50 pm

Hi ladies,

My vestibulectomy operation is scheduled for Wednesday the 2nd August; I'm really scared!
I'm going to post updates throughout the healing process- I keep having second thoughts but I've tried so many different medications that have failed me, this is my last chance. I'm only 17 so I am pretty young for this sort of operation AND I have exams to get into Med School this year - terrible timing!!

I'm super passionate about battling all types of chronic vulval pains such as vulvodynia and I hear it is something not widely recognised amongst medical professionals. My own GP told me that I am completely 'normal' and the pain is merely psychological Evil or Very Mad . It seriously saddens me that people don't understand and are not supporting us....

I know it sounds crazy and idealistic but I have been working my arse off to get good grades so I can get to medical school and kick some ass about chronic vulval pain. It cannot be ignored for much longer

I am lucky that I found Miss Gabrielle Downey, who I have mentioned before; she is a gynaecologist who specialises in this stuff and she is honestly as frustrated as me about it all. She works at BMI hospital in Edgbaston(private) and Birmingham City Hospital (NHS). I really think she is fantastic so if you are suffering and can make it up to Birmingham, I would recommend that you do. If you want to be treated quickly like me, I had a consultation privately for diagnosis and then was referred to NHS for surgery.

I have a very supportive family and a very supportive boyfriend- I won't let this get me down even though it is constantly at the back of my mind. I am excited yet terrified for the surgery and if anyone has any tips to help me, I'd be really grateful!!

Love,
infinitelywondering

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Good luck!

Post  jungleclover on Sat Aug 05, 2017 7:36 am

Hey man, good luck! That sounds so scary but I'm glad you're working on things, have a great medical team, and the support of your family. It's really hard having this problem when you have goals like med school. I'm trying to get into PT school and sometimes I wonder how I'll do it. Like how am I going to have a career where I have to walk around all of the time. Some days I feel great but others I want to curl up in a ball and not move. Either way, I really hope all goes well. Know that you aren't alone! Maybe you'll end up in the research field after med school and can help all of us ladies out <3

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Re: Vestibulectomy

Post  sj17 on Mon Aug 07, 2017 5:24 pm

<3 <3 Brave brave lady.

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Re: Vestibulectomy

Post  infinitelywondering on Wed Aug 09, 2017 11:34 pm

Hi ladies I'm really worried...

I've started having this horrific burning since my vestibulectomy. I had a look and it appears that I must have some sort of infection as on one side my skin is bright red and burning hot Sad shall I contact my GP asap?

X

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Re: Vestibulectomy

Post  sj17 on Thu Aug 10, 2017 12:51 am

you probably have a yeast infection or a UTI. contact your gp immediately tomorrow. Nothing to worry about though, they're quite common post surgery xx

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Re: Vestibulectomy

Post  Ilya on Sat Aug 12, 2017 4:34 pm

Hello,
I hope you contacted your doctor and are feeling better already. Thanks for sharing your story with us Smile
I am sure with this positive attitude of yours you will overcome this pain ans will be a successful dr and will help a lot of women

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Re: Vestibulectomy

Post  Hopeitworks on Sat Aug 12, 2017 4:56 pm

I hope you contacted your doctor and it's going away. I had a Vestibelctomy recently also and I'm so worried it will get infected. Thanks for sharing your story!

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Re: Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:29 am

Hi ladies,

Thank you all for your lovely and kind responses.

The burning has calmed down, I'm not entirely sure what it was ? I'm feeling fantastic at the moment, I'm back to driving, my normal life style and going out again- one week after surgery!

I'm still taking things slowly though but I do seem to be healing really nicely. I think for me the thing that has helped lots is bathing in a bidet and recently I've been using salt water to help the wound (I thought that would hurt but it didn't). I've continued using the manuka honey and I'm sure it's working.

I've been off my pain killers for two days now and I feel great. I don't know why I've suddenly started feeling better but I am certainly not complaining ! Who knows if the surgery has worked, but at least for now everything is looking good

Thank you!

X

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Re: Vestibulectomy

Post  Hopeitworks on Sun Aug 13, 2017 1:33 am

I am so happy for you!

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Re: Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 1:40 am

How are you? X

How is your recovery going ?
I hope it's all okay Smile

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Re: Vestibulectomy

Post  Hopeitworks on Sun Aug 13, 2017 1:50 am

I'm doing well! The only pain I have is from healing. I have been taking it easy but I did go to dinner and lunch with my husband. We went shopping and it was nice to get out. But when I overdo it I start to feel it. I'm still walking slow. Still hurts if I sit directly on it. If that makes sense. I sit kinda on one but cheek. But I am so happy I don't have V pain! After 10 yrs of constant pain I am speechless! I stopped the pain meds 4 days ago. It still hurts to wipe when using the bathroom. I'm still taking baths or sitz baths at least 2 to 3 a day. I have no signs of infection but itchiness comes and goes.


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Re: Vestibulectomy

Post  Ilya on Sun Aug 13, 2017 3:53 am

Very happy to hear both of you doing better. Keep us posted

Love

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Re: Vestibulectomy

Post  infinitelywondering on Sun Aug 13, 2017 9:54 am

That's absolutely brilliant, you're right to keep taking things slow.

I hope this positivity continues for us
Smile

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Re: Vestibulectomy

Post  infinitelywondering on Fri Aug 18, 2017 10:50 am

Hi guys,

I think I have an infection because I've experienced lots of swelling and yellow-green discharge from the wound....

Shall I contact my GP for antibiotics?

Thank you x

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Re: Vestibulectomy

Post  Hopeitworks on Fri Aug 18, 2017 12:39 pm

Oh No! Keep us posted.

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Re: Vestibulectomy

Post  sj17 on Sat Aug 26, 2017 3:55 pm

How is the infection now? X

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Infection update

Post  infinitelywondering on Sun Aug 27, 2017 9:42 am

I've been taking augmentin and had quite bad side effects ! However the infection has cleared up and I feel much better now Smile

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Re: Vestibulectomy

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