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» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Vulvodynia is a secret

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Vulvodynia is a secret

Post  Hopeitworks on Sat Aug 05, 2017 8:25 pm

Hello everyone,
Vulvodynia is my secret because how do you tell friends and family. I can't picture going to lunch with friends and just blurting out "my V burns all day". I can imagine the looks I may get. The only people I've ever told are the many doctors I've seen, my husband, and you all. It's not like I can walk into a meeting at work and say today's a bad day my V hurts. Like you can do with a headache. I recently had vesectobltmy surgery and had to lie about what kind of surgery I was having to my work. I don't like to lie, but what other choice did I have. The stigma that comes with any type of symptom that involves burning of V equals infection in most people's minds. This is why thus condition makes us feel so alone and worthless. Please share your comments about telling others.

Hopeitworks

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Re: Vulvodynia is a secret

Post  tinkerbelle2 on Sat Sep 16, 2017 1:22 pm

I know exactly what you mean! It's not the kind of thing you feel you can casually just drop into a conversation. I have told a few close friends about it and they have been empathetic but it can still be a bit awkward. A couple of them have even had a similar thing, but theirs usually went away on it's own. I feel like I don't really wanna bring it up again and be like "you know that thing I told you I had years ago? well , I've still got it!!" I think it's a difficult thing for people to advise you on or even offer words of encouragement if they don't relate or understand it themselves. But sometimes even just being there to listen can be enough.
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Re: Vulvodynia is a secret

Post  aspaceodyssey on Fri Jan 19, 2018 5:03 pm

absolutely. it is such a lonely condition and that makes it all the more difficult. but know that you are never alone. there are many of us out there dealing with the same and we all have your back in spirit, even if we sadly can't be there in person. most people in my life including my parents have no clue that I've been dealing with this for almost 15 years now...crazy. but I have a supportive partner and a couple close friends who do know and that's all you need. I recently contributed to a book that included women's personal experiences of vulvodynia as well and talked about the lonely, isolating side of this journey. it was scary to even write about it anonymously, but so cathartic, and I felt proud knowing my words might help others like us feel less alone. I'm not sure if the book was published yet...now I want to follow up with the author and find out!

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Re: Vulvodynia is a secret

Post  ryn207 on Sat Jan 20, 2018 1:59 am

I totally know what you mean. I'm lucky to have some friends, family, and a boyfriend that I can talk to, but I do feel like I'm being a downer sometimes. I'm an open book when it comes to a lot of things so while I felt I could tell those that I'm close with, it still feels a bit awkward. They're sympathetic, but they can't imagine what it's like so they typically don't know how to respond after a minute or two into the discussion. Most aren't comfortable with asking questions so you're the one that has to always bring it up if you want to vent which makes you feel like a bother. I might go months without speaking about it to friends (even though I feel the symptoms everyday) so when I do bring it up it's like they forgot I even have this and can't believe I'm still in pain! They're always shocked because they've also never heard of something like this.

You should definitely keep using this website since it's filled with women who know exactly what you're going through. Everyone needs to vent at some point in order to stay sane.

ryn207

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Re: Vulvodynia is a secret

Post  fairlight10 on Sat Jan 20, 2018 11:45 am

This forum is so valuable for women with this condition. We can all speak openly without being embarassed. When I found this forum, I didn't feel so alone.

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Re: Vulvodynia is a secret

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