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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Recently Diagnosed.... Help!

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Recently Diagnosed.... Help!

Post  leoscc on Mon Aug 14, 2017 10:00 pm

Hello everyone. I'm so happy I have found this page. I'm new so I am hoping this gets
posted to the right place, haha. Today I was diagnosed with provoked vulvodynia. I've been having painful intercourse for the last 1.5 years. Super burning, a lot of raw/irritation after, even ocassionally bleeding. The pain makes sex almost unbearable. Sometimes I can't at all. It's destroying my mentallity and my relationship with my boyfriend of 3 years. This never was an issue before and suddenly happened. He is very supportive but for me, as a once very sexual being, am super depressed. Luckily it's not as worse as some cases where you cannot walk or sit. I'm just so frustrated and sad that this has happened. I recently got over a 7 year struggle with anorexia. I am 21 and things finally have turned around for me, until this. I feel so doomed.

I feel it may have started with a yeast infection that I thought cleared up but never did. My gyn is putting me on a 6 month oral yeast treatment, and I'm hoping for results. He recommended antidepressants, but when I was sick with my eating disorder these were like deadly for me, so I am hesitant.

What do you guys do you help?? Will this ever get better/be normal again, or anchor I doomed? I just need some hope. I'm so distraught over this.

Side question: could birth control pills lead to this? I've tried switching brands and no help Sad

leoscc

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Re: Recently Diagnosed.... Help!

Post  Hopeitworks on Mon Aug 14, 2017 10:20 pm

Hi,

I am sorry your going through this experience. It's not fair to any of us. Since you have provoked vulvodynia just get the surgery. You having provoked makes you an excellent candidate for the vestibuletcomy. None the meds every worked for me. I am still recovering from my vestibuletcomy but I already feel better than I did before. I have provoked and non- provoked.

Find yourself a specialist and do research to ensure they are good at dealing/treating Vulvodynia.

You probably don't have a yeast infection. When my symptoms first started they told me the same thing. Had be on yeast pills for 6 months and boric acid suppositories. Again none of that helped.

I'm glad your boyfriend is supportive during this struggling time in your life. That's the kind of guy you want to keep.

Please don't allow this condition to jeopardize how far you've come with your eating disorder.

If your going to take any meds I would take something for anxiety and maybe Gabapante.

We are here for you if you need us.

Hopeitworks

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Re: Recently Diagnosed.... Help!

Post  infinitelywondering on Mon Aug 14, 2017 10:31 pm

Hi there,

Please don't rush to get the surgery just yet. From what you've described, this pain hasn't always existed? Therefore, it sounds like you have secondary vulvodynia- where you've not had it all your life. I had primary, so since birth.

From my experience, people like me with primary have no massive options other than surgery, and even that hasn't got 100% success rates. I do believe that yours could be due to something else. It's incredibly likely it's down to the pill, perhaps try coming off it altogether for a while if you can?

Studies have shown that some women suffer due to the bath products they use, so you could just be badly allergic to something you are using in the shower. I'd try and reduce this if you can

I hope this helps- I'm no expert but believe me, the surgery is a big ordeal and it's definitely worth trying other things out first. Every woman is different so it's best o find something that works for you.

Please message me for any more help/advice or info if you need it x

infinitelywondering

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Re: Recently Diagnosed.... Help!

Post  leoscc on Mon Aug 14, 2017 10:53 pm

The thought of a surgery does intimidate me, especially due to my career field and my last year of school for my degree... but yes you are correct, it is secondary, which makes it all the more confusing and random for me. It's odd because I can use tampons comfortably for the most part, or even Monistat applicators. However, sex is just a no go and it is driving me nuts. Thank you so much for your advice though. It is just comforting to hear from other people. I've been on the pill for about 3 years. The first year or so we're completely fine, then this developed out of nowhere. I tried switching but it didn't need help. I've read that hormonal changes can contribute so I am willing to stop the pill completely... I do us every pH balanced soaps and wear cotton bottoms. It does help if I am sore afterwards but certainly isn't no the cure, haha. Thank you again.



infinitelywondering wrote:Hi there,

Please don't rush to get the surgery just yet. From what you've described, this pain hasn't always existed? Therefore, it sounds like you have secondary vulvodynia- where you've not had it all your life. I had primary, so since birth.

From my experience, people like me with primary have no massive options other than surgery, and even that hasn't got 100% success rates. I do believe that yours could be due to something else. It's incredibly likely it's down to the pill, perhaps try coming off it altogether for a while if you can?

Studies have shown that some women suffer due to the bath products they use, so you could just be badly allergic to something you are using in the shower. I'd try and reduce this if you can

I hope this helps- I'm no expert but believe me, the surgery is a big ordeal and it's definitely worth trying other things out first. Every woman is different so it's best o find something that works for you.

Please message me for any more help/advice or info if you need it x

leoscc

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Re: Recently Diagnosed.... Help!

Post  Hopeitworks on Mon Aug 14, 2017 10:56 pm

You may just need physical therapy. I wasn't born with vulvodynia. It started 10 years ago for no reason. But try PT I've hears it helps many.

Hopeitworks

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The Pill

Post  amyhp on Tue Aug 15, 2017 2:57 pm

The birth control pill is what caused my pain. I was perfectly fine, never experiencing pain for 20 years of my life, but then it all started once I went on the pill.

amyhp

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Re: Recently Diagnosed.... Help!

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