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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Recently Diagnosed.... Help!

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Recently Diagnosed.... Help!

Post  leoscc on Mon Aug 14, 2017 10:00 pm

Hello everyone. I'm so happy I have found this page. I'm new so I am hoping this gets
posted to the right place, haha. Today I was diagnosed with provoked vulvodynia. I've been having painful intercourse for the last 1.5 years. Super burning, a lot of raw/irritation after, even ocassionally bleeding. The pain makes sex almost unbearable. Sometimes I can't at all. It's destroying my mentallity and my relationship with my boyfriend of 3 years. This never was an issue before and suddenly happened. He is very supportive but for me, as a once very sexual being, am super depressed. Luckily it's not as worse as some cases where you cannot walk or sit. I'm just so frustrated and sad that this has happened. I recently got over a 7 year struggle with anorexia. I am 21 and things finally have turned around for me, until this. I feel so doomed.

I feel it may have started with a yeast infection that I thought cleared up but never did. My gyn is putting me on a 6 month oral yeast treatment, and I'm hoping for results. He recommended antidepressants, but when I was sick with my eating disorder these were like deadly for me, so I am hesitant.

What do you guys do you help?? Will this ever get better/be normal again, or anchor I doomed? I just need some hope. I'm so distraught over this.

Side question: could birth control pills lead to this? I've tried switching brands and no help Sad

leoscc

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Re: Recently Diagnosed.... Help!

Post  Hopeitworks on Mon Aug 14, 2017 10:20 pm

Hi,

I am sorry your going through this experience. It's not fair to any of us. Since you have provoked vulvodynia just get the surgery. You having provoked makes you an excellent candidate for the vestibuletcomy. None the meds every worked for me. I am still recovering from my vestibuletcomy but I already feel better than I did before. I have provoked and non- provoked.

Find yourself a specialist and do research to ensure they are good at dealing/treating Vulvodynia.

You probably don't have a yeast infection. When my symptoms first started they told me the same thing. Had be on yeast pills for 6 months and boric acid suppositories. Again none of that helped.

I'm glad your boyfriend is supportive during this struggling time in your life. That's the kind of guy you want to keep.

Please don't allow this condition to jeopardize how far you've come with your eating disorder.

If your going to take any meds I would take something for anxiety and maybe Gabapante.

We are here for you if you need us.

Hopeitworks

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Re: Recently Diagnosed.... Help!

Post  infinitelywondering on Mon Aug 14, 2017 10:31 pm

Hi there,

Please don't rush to get the surgery just yet. From what you've described, this pain hasn't always existed? Therefore, it sounds like you have secondary vulvodynia- where you've not had it all your life. I had primary, so since birth.

From my experience, people like me with primary have no massive options other than surgery, and even that hasn't got 100% success rates. I do believe that yours could be due to something else. It's incredibly likely it's down to the pill, perhaps try coming off it altogether for a while if you can?

Studies have shown that some women suffer due to the bath products they use, so you could just be badly allergic to something you are using in the shower. I'd try and reduce this if you can

I hope this helps- I'm no expert but believe me, the surgery is a big ordeal and it's definitely worth trying other things out first. Every woman is different so it's best o find something that works for you.

Please message me for any more help/advice or info if you need it x

infinitelywondering

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Re: Recently Diagnosed.... Help!

Post  leoscc on Mon Aug 14, 2017 10:53 pm

The thought of a surgery does intimidate me, especially due to my career field and my last year of school for my degree... but yes you are correct, it is secondary, which makes it all the more confusing and random for me. It's odd because I can use tampons comfortably for the most part, or even Monistat applicators. However, sex is just a no go and it is driving me nuts. Thank you so much for your advice though. It is just comforting to hear from other people. I've been on the pill for about 3 years. The first year or so we're completely fine, then this developed out of nowhere. I tried switching but it didn't need help. I've read that hormonal changes can contribute so I am willing to stop the pill completely... I do us every pH balanced soaps and wear cotton bottoms. It does help if I am sore afterwards but certainly isn't no the cure, haha. Thank you again.



infinitelywondering wrote:Hi there,

Please don't rush to get the surgery just yet. From what you've described, this pain hasn't always existed? Therefore, it sounds like you have secondary vulvodynia- where you've not had it all your life. I had primary, so since birth.

From my experience, people like me with primary have no massive options other than surgery, and even that hasn't got 100% success rates. I do believe that yours could be due to something else. It's incredibly likely it's down to the pill, perhaps try coming off it altogether for a while if you can?

Studies have shown that some women suffer due to the bath products they use, so you could just be badly allergic to something you are using in the shower. I'd try and reduce this if you can

I hope this helps- I'm no expert but believe me, the surgery is a big ordeal and it's definitely worth trying other things out first. Every woman is different so it's best o find something that works for you.

Please message me for any more help/advice or info if you need it x

leoscc

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Re: Recently Diagnosed.... Help!

Post  Hopeitworks on Mon Aug 14, 2017 10:56 pm

You may just need physical therapy. I wasn't born with vulvodynia. It started 10 years ago for no reason. But try PT I've hears it helps many.

Hopeitworks

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The Pill

Post  amyhp on Tue Aug 15, 2017 2:57 pm

The birth control pill is what caused my pain. I was perfectly fine, never experiencing pain for 20 years of my life, but then it all started once I went on the pill.

amyhp

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Re: Recently Diagnosed.... Help!

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