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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Recently Diagnosed.... Help!

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Recently Diagnosed.... Help!

Post  leoscc on Mon Aug 14, 2017 10:00 pm

Hello everyone. I'm so happy I have found this page. I'm new so I am hoping this gets
posted to the right place, haha. Today I was diagnosed with provoked vulvodynia. I've been having painful intercourse for the last 1.5 years. Super burning, a lot of raw/irritation after, even ocassionally bleeding. The pain makes sex almost unbearable. Sometimes I can't at all. It's destroying my mentallity and my relationship with my boyfriend of 3 years. This never was an issue before and suddenly happened. He is very supportive but for me, as a once very sexual being, am super depressed. Luckily it's not as worse as some cases where you cannot walk or sit. I'm just so frustrated and sad that this has happened. I recently got over a 7 year struggle with anorexia. I am 21 and things finally have turned around for me, until this. I feel so doomed.

I feel it may have started with a yeast infection that I thought cleared up but never did. My gyn is putting me on a 6 month oral yeast treatment, and I'm hoping for results. He recommended antidepressants, but when I was sick with my eating disorder these were like deadly for me, so I am hesitant.

What do you guys do you help?? Will this ever get better/be normal again, or anchor I doomed? I just need some hope. I'm so distraught over this.

Side question: could birth control pills lead to this? I've tried switching brands and no help Sad

leoscc

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Re: Recently Diagnosed.... Help!

Post  Hopeitworks on Mon Aug 14, 2017 10:20 pm

Hi,

I am sorry your going through this experience. It's not fair to any of us. Since you have provoked vulvodynia just get the surgery. You having provoked makes you an excellent candidate for the vestibuletcomy. None the meds every worked for me. I am still recovering from my vestibuletcomy but I already feel better than I did before. I have provoked and non- provoked.

Find yourself a specialist and do research to ensure they are good at dealing/treating Vulvodynia.

You probably don't have a yeast infection. When my symptoms first started they told me the same thing. Had be on yeast pills for 6 months and boric acid suppositories. Again none of that helped.

I'm glad your boyfriend is supportive during this struggling time in your life. That's the kind of guy you want to keep.

Please don't allow this condition to jeopardize how far you've come with your eating disorder.

If your going to take any meds I would take something for anxiety and maybe Gabapante.

We are here for you if you need us.

Hopeitworks

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Re: Recently Diagnosed.... Help!

Post  infinitelywondering on Mon Aug 14, 2017 10:31 pm

Hi there,

Please don't rush to get the surgery just yet. From what you've described, this pain hasn't always existed? Therefore, it sounds like you have secondary vulvodynia- where you've not had it all your life. I had primary, so since birth.

From my experience, people like me with primary have no massive options other than surgery, and even that hasn't got 100% success rates. I do believe that yours could be due to something else. It's incredibly likely it's down to the pill, perhaps try coming off it altogether for a while if you can?

Studies have shown that some women suffer due to the bath products they use, so you could just be badly allergic to something you are using in the shower. I'd try and reduce this if you can

I hope this helps- I'm no expert but believe me, the surgery is a big ordeal and it's definitely worth trying other things out first. Every woman is different so it's best o find something that works for you.

Please message me for any more help/advice or info if you need it x

infinitelywondering

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Re: Recently Diagnosed.... Help!

Post  leoscc on Mon Aug 14, 2017 10:53 pm

The thought of a surgery does intimidate me, especially due to my career field and my last year of school for my degree... but yes you are correct, it is secondary, which makes it all the more confusing and random for me. It's odd because I can use tampons comfortably for the most part, or even Monistat applicators. However, sex is just a no go and it is driving me nuts. Thank you so much for your advice though. It is just comforting to hear from other people. I've been on the pill for about 3 years. The first year or so we're completely fine, then this developed out of nowhere. I tried switching but it didn't need help. I've read that hormonal changes can contribute so I am willing to stop the pill completely... I do us every pH balanced soaps and wear cotton bottoms. It does help if I am sore afterwards but certainly isn't no the cure, haha. Thank you again.



infinitelywondering wrote:Hi there,

Please don't rush to get the surgery just yet. From what you've described, this pain hasn't always existed? Therefore, it sounds like you have secondary vulvodynia- where you've not had it all your life. I had primary, so since birth.

From my experience, people like me with primary have no massive options other than surgery, and even that hasn't got 100% success rates. I do believe that yours could be due to something else. It's incredibly likely it's down to the pill, perhaps try coming off it altogether for a while if you can?

Studies have shown that some women suffer due to the bath products they use, so you could just be badly allergic to something you are using in the shower. I'd try and reduce this if you can

I hope this helps- I'm no expert but believe me, the surgery is a big ordeal and it's definitely worth trying other things out first. Every woman is different so it's best o find something that works for you.

Please message me for any more help/advice or info if you need it x

leoscc

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Re: Recently Diagnosed.... Help!

Post  Hopeitworks on Mon Aug 14, 2017 10:56 pm

You may just need physical therapy. I wasn't born with vulvodynia. It started 10 years ago for no reason. But try PT I've hears it helps many.

Hopeitworks

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The Pill

Post  amyhp on Tue Aug 15, 2017 2:57 pm

The birth control pill is what caused my pain. I was perfectly fine, never experiencing pain for 20 years of my life, but then it all started once I went on the pill.

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Re: Recently Diagnosed.... Help!

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