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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Freaking out because I don't think surgery worked HELP!!!!

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Freaking out because I don't think surgery worked HELP!!!!

Post  Hopeitworks on Fri Aug 25, 2017 4:42 pm

I had a partial vestibelctomy on July 28 and everything was going great. Up until yesterday I have been Vulvodynia pain free. It's been about 4 weeks since surgery and I'm worried that the surgery didn't work. Has this happened to anyone else? I was pain free and out of no where V pain hits. I'm trying to remain calm, but that's hard to do. There is no sign of infection or yeast. I hope the surgery worked but as of today it doesn't feel like it does. Please share with me if you had this same experience and if it got better or worse.

Thanks ladies your the best!

Hopeitworks

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Re: Freaking out because I don't think surgery worked HELP!!!!

Post  tinkerbelle2 on Sat Sep 16, 2017 12:32 pm

Hey there!! I've not had the surgery myself but try and give it a little longer. Keep resting. I imagine that the surgery would cause some soreness and tenderness at first until it heals, so it could just be that. Don't despair and just get lots of rest. Take care of yourself. I love you
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Re: Freaking out because I don't think surgery worked HELP!!!!

Post  Hopeitworks on Sat Sep 16, 2017 12:40 pm

tinkerbelle2 wrote:Hey there!! I've not had the surgery myself but try and give it a little longer. Keep resting. I imagine that the surgery would cause some soreness and tenderness at first until it heals, so it could just be that. Don't despair and just get lots of rest. Take care of yourself. I love you

The surgery worked I just had to give it time like you said!

Hopeitworks

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Re: Freaking out because I don't think surgery worked HELP!!!!

Post  tinkerbelle2 on Sun Sep 17, 2017 7:01 pm

Ah that's amazing to hear! all the best to you lovely Smile x
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Re: Freaking out because I don't think surgery worked HELP!!!!

Post  Jgreen81 on Thu Nov 16, 2017 12:01 am

Hello I had a vestibulectomy 6 weeks ago and now I’m having pain and burning.. I thought it was yeast but it is not. I’m scared my vestiulitis has returned. Did u experience anything like this?

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Re: Freaking out because I don't think surgery worked HELP!!!!

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