Log in

I forgot my password

Latest topics
» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Am I on the Right Track?

Go down

Am I on the Right Track?

Post  leoscc on Fri Sep 01, 2017 3:46 pm

Hello,

Not too long ago I posted about my recent diagnosis with secondary vulvodynia. I am very thankful that I do not have it as bad as it could be, but of course, it is still very frustrating. I'm even more depressed since my boyfriend of 3 years left me a week after telling him about this condition. I'm trying to channel my energy into getting down to the bottom of all of this. Unfortunately, I won't know if I ever fix it until I ever have sex again, whenever that is now, haha!

Anyway, my OBGYN has me on 6 months (1x) diflucan to combat yeast infections. I don't think this will help at all but I am doing it anyway. I have decided to stop taking birth control, as I feel my hormones can be causing this. I've also read a lot of papers/posts on how birth control can be linked to this due to the fluctuation of hormones.
Here is where I am confused. I started taking birth control roughly 2.5 years ago. Originally, birth control did not affect my sex life in any way. No pain, no burning, no itching. I have switched pills due to spotting issues (which were fixed). Around the time I switched pills, I also damaged my lower back. I'm 21, and used to participate in powerlifting. One day I lifted more than I could handle and dislodged my SI joint, and suffered from a lot of muscle spasm for a period of my life. I've also read some people having back issues linked to vulvodynia. Could this be a part of the cause? It is so hard to pin point because I switched pills around the same time this injury happened. Regardless, I went to physical therapy for 6 months to get my hips back in line. Lo and behold, they are out again, but even when I was in PT I still had issues with sex.

Can someone shed some light on this so I have an idea of what actions to take next? I've tried talking to doctors of back pain linked to vulvar pain and they basically scoffed at me. So far, stopping my birth control and possibly getting my hormones checked are the only big plans I have. I am considering resuming PT as well to help realign my pelvis, even though I have no chronic back pain at the moment.... Just vagina pain! -_-

Thanks in advance <3

leoscc

Posts : 5
Join date : 2017-08-14

View user profile

Back to top Go down

Hormone levels

Post  amyhp on Fri Sep 01, 2017 8:13 pm

Have your free testosterone and estrogen levels tested. If those are off you will need to go on an estrogen/testosterone compounded gel.

amyhp

Posts : 34
Join date : 2015-09-22

View user profile

Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum