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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Am I on the Right Track?

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Am I on the Right Track?

Post  leoscc on Fri Sep 01, 2017 3:46 pm

Hello,

Not too long ago I posted about my recent diagnosis with secondary vulvodynia. I am very thankful that I do not have it as bad as it could be, but of course, it is still very frustrating. I'm even more depressed since my boyfriend of 3 years left me a week after telling him about this condition. I'm trying to channel my energy into getting down to the bottom of all of this. Unfortunately, I won't know if I ever fix it until I ever have sex again, whenever that is now, haha!

Anyway, my OBGYN has me on 6 months (1x) diflucan to combat yeast infections. I don't think this will help at all but I am doing it anyway. I have decided to stop taking birth control, as I feel my hormones can be causing this. I've also read a lot of papers/posts on how birth control can be linked to this due to the fluctuation of hormones.
Here is where I am confused. I started taking birth control roughly 2.5 years ago. Originally, birth control did not affect my sex life in any way. No pain, no burning, no itching. I have switched pills due to spotting issues (which were fixed). Around the time I switched pills, I also damaged my lower back. I'm 21, and used to participate in powerlifting. One day I lifted more than I could handle and dislodged my SI joint, and suffered from a lot of muscle spasm for a period of my life. I've also read some people having back issues linked to vulvodynia. Could this be a part of the cause? It is so hard to pin point because I switched pills around the same time this injury happened. Regardless, I went to physical therapy for 6 months to get my hips back in line. Lo and behold, they are out again, but even when I was in PT I still had issues with sex.

Can someone shed some light on this so I have an idea of what actions to take next? I've tried talking to doctors of back pain linked to vulvar pain and they basically scoffed at me. So far, stopping my birth control and possibly getting my hormones checked are the only big plans I have. I am considering resuming PT as well to help realign my pelvis, even though I have no chronic back pain at the moment.... Just vagina pain! -_-

Thanks in advance <3

leoscc

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Hormone levels

Post  amyhp on Fri Sep 01, 2017 8:13 pm

Have your free testosterone and estrogen levels tested. If those are off you will need to go on an estrogen/testosterone compounded gel.

amyhp

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