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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Am I on the Right Track?

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Am I on the Right Track?

Post  leoscc on Fri Sep 01, 2017 3:46 pm

Hello,

Not too long ago I posted about my recent diagnosis with secondary vulvodynia. I am very thankful that I do not have it as bad as it could be, but of course, it is still very frustrating. I'm even more depressed since my boyfriend of 3 years left me a week after telling him about this condition. I'm trying to channel my energy into getting down to the bottom of all of this. Unfortunately, I won't know if I ever fix it until I ever have sex again, whenever that is now, haha!

Anyway, my OBGYN has me on 6 months (1x) diflucan to combat yeast infections. I don't think this will help at all but I am doing it anyway. I have decided to stop taking birth control, as I feel my hormones can be causing this. I've also read a lot of papers/posts on how birth control can be linked to this due to the fluctuation of hormones.
Here is where I am confused. I started taking birth control roughly 2.5 years ago. Originally, birth control did not affect my sex life in any way. No pain, no burning, no itching. I have switched pills due to spotting issues (which were fixed). Around the time I switched pills, I also damaged my lower back. I'm 21, and used to participate in powerlifting. One day I lifted more than I could handle and dislodged my SI joint, and suffered from a lot of muscle spasm for a period of my life. I've also read some people having back issues linked to vulvodynia. Could this be a part of the cause? It is so hard to pin point because I switched pills around the same time this injury happened. Regardless, I went to physical therapy for 6 months to get my hips back in line. Lo and behold, they are out again, but even when I was in PT I still had issues with sex.

Can someone shed some light on this so I have an idea of what actions to take next? I've tried talking to doctors of back pain linked to vulvar pain and they basically scoffed at me. So far, stopping my birth control and possibly getting my hormones checked are the only big plans I have. I am considering resuming PT as well to help realign my pelvis, even though I have no chronic back pain at the moment.... Just vagina pain! -_-

Thanks in advance <3

leoscc

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Hormone levels

Post  amyhp on Fri Sep 01, 2017 8:13 pm

Have your free testosterone and estrogen levels tested. If those are off you will need to go on an estrogen/testosterone compounded gel.

amyhp

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