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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Is Purdenal nerve entrapment the cause of vulvodynia?

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Is Purdenal nerve entrapment the cause of vulvodynia?

Post  Hopeitworks on Mon Sep 04, 2017 12:16 am

I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?

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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  tinkerbelle2 on Sat Sep 16, 2017 12:36 pm

10 years Sad No I really feel for you there. I've had mine 7 years. It's an awful upsetting thing to live with, but I believe with positivity and support we will all get there. Even if we have some good days, we all deserve to have a good life despite this.
I have heard a few women mention the pudendal nerve but I haven't done a lot of research about it myself. One thing I have noticed which is odd, is that often after a bowel movement (sorry TMI!) I am like on fire!! So I have wonder if there is some sort of link there with the muscles/nerves being strained/tensed...
Have you tried physio?
best wishes, xox
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  mary jane on Sat Sep 16, 2017 8:24 pm

Hopeitworks wrote:I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?


Hi, I really REALLY doubt you have pudendal nerve entrapment. It's extremely RARE, so unless you've had multi-level surgery or some type of congenital issue it's highly unlikely you have PNE. Most likely you have mild neuralgia. Also, very few people have been cured by that pudendal decompression surgery. It's simply a bunch of QUACKS mutilating people. I have read of no cases being cured, not even in Nantes. They have a low success rate and they stopped performing this surgery in MayoClynic.

Try and read up more reviews on Antolak and co as well, and see just how many have been made far worse.


I also have itching and sharp pains around my abdomen. It's nothing more but referred pain from the vulval nerves.
I also had coccyx pain and full blown sciatica at some point. It's a central nervous system problem.

Sigh.


Nerve pain is a complex beast and different things work for different people. I hope one day someone can find a solution for all of this


there is a VERY interesting story from a forum user on TMS forums called "ezer". He got PN pain from falling on a marble floor, had 2 PN surgeries and in the end he found success using TMS work
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

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