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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Is Purdenal nerve entrapment the cause of vulvodynia?

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Is Purdenal nerve entrapment the cause of vulvodynia?

Post  Hopeitworks on Mon Sep 04, 2017 12:16 am

I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?

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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  tinkerbelle2 on Sat Sep 16, 2017 12:36 pm

10 years Sad No I really feel for you there. I've had mine 7 years. It's an awful upsetting thing to live with, but I believe with positivity and support we will all get there. Even if we have some good days, we all deserve to have a good life despite this.
I have heard a few women mention the pudendal nerve but I haven't done a lot of research about it myself. One thing I have noticed which is odd, is that often after a bowel movement (sorry TMI!) I am like on fire!! So I have wonder if there is some sort of link there with the muscles/nerves being strained/tensed...
Have you tried physio?
best wishes, xox
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  mary jane on Sat Sep 16, 2017 8:24 pm

Hopeitworks wrote:I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?


Hi, I really REALLY doubt you have pudendal nerve entrapment. It's extremely RARE, so unless you've had multi-level surgery or some type of congenital issue it's highly unlikely you have PNE. Most likely you have mild neuralgia. Also, very few people have been cured by that pudendal decompression surgery. It's simply a bunch of QUACKS mutilating people. I have read of no cases being cured, not even in Nantes. They have a low success rate and they stopped performing this surgery in MayoClynic.

Try and read up more reviews on Antolak and co as well, and see just how many have been made far worse.


I also have itching and sharp pains around my abdomen. It's nothing more but referred pain from the vulval nerves.
I also had coccyx pain and full blown sciatica at some point. It's a central nervous system problem.

Sigh.


Nerve pain is a complex beast and different things work for different people. I hope one day someone can find a solution for all of this


there is a VERY interesting story from a forum user on TMS forums called "ezer". He got PN pain from falling on a marble floor, had 2 PN surgeries and in the end he found success using TMS work
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

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