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» Did going off antidepressants cause this?
Yesterday at 2:08 am by ryn207

» 7 months since the diagnosis
Tue Aug 14, 2018 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Is Purdenal nerve entrapment the cause of vulvodynia?

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Is Purdenal nerve entrapment the cause of vulvodynia?

Post  Hopeitworks on Mon Sep 04, 2017 12:16 am

I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?

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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  tinkerbelle2 on Sat Sep 16, 2017 12:36 pm

10 years Sad No I really feel for you there. I've had mine 7 years. It's an awful upsetting thing to live with, but I believe with positivity and support we will all get there. Even if we have some good days, we all deserve to have a good life despite this.
I have heard a few women mention the pudendal nerve but I haven't done a lot of research about it myself. One thing I have noticed which is odd, is that often after a bowel movement (sorry TMI!) I am like on fire!! So I have wonder if there is some sort of link there with the muscles/nerves being strained/tensed...
Have you tried physio?
best wishes, xox
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  mary jane on Sat Sep 16, 2017 8:24 pm

Hopeitworks wrote:I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?


Hi, I really REALLY doubt you have pudendal nerve entrapment. It's extremely RARE, so unless you've had multi-level surgery or some type of congenital issue it's highly unlikely you have PNE. Most likely you have mild neuralgia. Also, very few people have been cured by that pudendal decompression surgery. It's simply a bunch of QUACKS mutilating people. I have read of no cases being cured, not even in Nantes. They have a low success rate and they stopped performing this surgery in MayoClynic.

Try and read up more reviews on Antolak and co as well, and see just how many have been made far worse.


I also have itching and sharp pains around my abdomen. It's nothing more but referred pain from the vulval nerves.
I also had coccyx pain and full blown sciatica at some point. It's a central nervous system problem.

Sigh.


Nerve pain is a complex beast and different things work for different people. I hope one day someone can find a solution for all of this


there is a VERY interesting story from a forum user on TMS forums called "ezer". He got PN pain from falling on a marble floor, had 2 PN surgeries and in the end he found success using TMS work
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

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