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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Is Purdenal nerve entrapment the cause of vulvodynia?

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Is Purdenal nerve entrapment the cause of vulvodynia?

Post  Hopeitworks on Mon Sep 04, 2017 12:16 am

I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?

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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  tinkerbelle2 on Sat Sep 16, 2017 12:36 pm

10 years Sad No I really feel for you there. I've had mine 7 years. It's an awful upsetting thing to live with, but I believe with positivity and support we will all get there. Even if we have some good days, we all deserve to have a good life despite this.
I have heard a few women mention the pudendal nerve but I haven't done a lot of research about it myself. One thing I have noticed which is odd, is that often after a bowel movement (sorry TMI!) I am like on fire!! So I have wonder if there is some sort of link there with the muscles/nerves being strained/tensed...
Have you tried physio?
best wishes, xox
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

Post  mary jane on Sat Sep 16, 2017 8:24 pm

Hopeitworks wrote:I have had vulvodynia for 10 years and just had a thought. Maybe my thigh pain is causing my pelvic pain. I have burning sensations on my thighs and around my waist. The more research I do makes me believe I have Purdenal Nerve entrapment. I've never had an MRI but I'm going to fight for one.

Anyone on here figure out an entrapped nerve was the cause of vulvodynia?


Hi, I really REALLY doubt you have pudendal nerve entrapment. It's extremely RARE, so unless you've had multi-level surgery or some type of congenital issue it's highly unlikely you have PNE. Most likely you have mild neuralgia. Also, very few people have been cured by that pudendal decompression surgery. It's simply a bunch of QUACKS mutilating people. I have read of no cases being cured, not even in Nantes. They have a low success rate and they stopped performing this surgery in MayoClynic.

Try and read up more reviews on Antolak and co as well, and see just how many have been made far worse.


I also have itching and sharp pains around my abdomen. It's nothing more but referred pain from the vulval nerves.
I also had coccyx pain and full blown sciatica at some point. It's a central nervous system problem.

Sigh.


Nerve pain is a complex beast and different things work for different people. I hope one day someone can find a solution for all of this


there is a VERY interesting story from a forum user on TMS forums called "ezer". He got PN pain from falling on a marble floor, had 2 PN surgeries and in the end he found success using TMS work
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Re: Is Purdenal nerve entrapment the cause of vulvodynia?

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