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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success
3 posters
Page 1 of 1
Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success
This is going to be a long post and I thank you now for reading it. But I need some advice! My vulvodynia started 10 years ago along with nerve pain in my thighs. I never connected the two until recently. I was scheduled for a vestibulectomy July 28th. On July 20th I started to get what I think persistent genital arousal symptoms (PGAD). I felt constantly aroused for no reason. Even achieving orgasm didn't relieve the feeling. I thought maybe this was connected to vulvodynia, but since I have vulvodynia for 10 years and never felt these symptoms I didn't think there was a connection. So I thought about what changed in my life and I remembered I stopped taking Spironolactone (I take it for acne and oily skin and it works by lowering testosterone levels, been on it for 8 years). I discontinued Spiro on July 4th and PGAD symptoms due to my testosterone levels being really low, and arousal (mostly just tingling in my clitoris)started July 20th. So I thought it had to be because my testosterone level went up and it caused my Libdo to go crazy. So I started taking Spiro again on July 20th, but at a lower dose than I was currently taking. I had the vestibulectomy and the PGAD seemed to disappear. The vestibulectomy was a success I have zero Vulvodynia pain. PGAD symptoms suddenly started back up, but not as intense therefore I upped my Sprio dose and it seems like they are getting less and less everyday. However by down I would have assumed they'd be gone by now. Thinking that I started doing research on the Pundendal nerve and bang I had all the symptoms. I am scheduled to see a specialist next week. But I am curious if anyone else has tinging in clitoris? Let me mention that I am not experiencing spontaneous orgasms and I can control myself from playing down there. I feel like I am going crazy!
Hopeitworks- Posts : 36
Join date : 2017-08-01
Location : United States
Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success
I have the clitoris thing with vulvodynia. Sometimes it hurts sometimes its a tingling itch. U said u have vulvodynia for ten years but never had symptoms???. I get so upset reading ppl having it for so many years. Ive been told mine will go in a few months as it came after loads of antibiotics for a bad infection so the whole pelvic area is oversensetized. Id imagine I was clenching alot being sore with the infection for a while.
Katiej- Posts : 19
Join date : 2017-11-14
Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success
I had Vulvodynia pain for 10 years, but 8 days before my vestibuectomy I started getting arousal type feelings in my Clitoris. I have been diagnosed with PGAD. My MRI showed that my S2 nerve is trapped in my pirifomis muscle. I am getting a 2nd MRI on Friday. My new doctor says my nerve entrapment probably caused the vulvodynia also. Even though my vestiblectomy worked they go hand and hand. I use to have unprovoked vulvodynia and now it is provoked. And the PGAD symptoms come and go. But I found an amazing online forum and am headed in the right direction to cure my problem.
Hopeitworks- Posts : 36
Join date : 2017-08-01
Location : United States
Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success
I had V for 15 years. I consider myself cured. I followed the recommendations by Anthony William. Before, I have seen 25+ docs (western/alternative/specialists). Only a few alternative docs helped manage the pain but it was never cured until Anthony William.
I'm really not sure what to recommend in your case. Read my blog. I'm not sure if it would help you.
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html
He also did a show on the nervous system. And since his advice cured my V maybe his advice will help you.
http://www.medicalmedium.com/blog/healing-your-neurological-system
I'm really not sure what to recommend in your case. Read my blog. I'm not sure if it would help you.
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html
He also did a show on the nervous system. And since his advice cured my V maybe his advice will help you.
http://www.medicalmedium.com/blog/healing-your-neurological-system
sarisbaris- Posts : 69
Join date : 2014-02-17
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer