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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

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Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  Hopeitworks on Sat Sep 16, 2017 7:03 pm

This is going to be a long post and I thank you now for reading it. But I need some advice! My vulvodynia started 10 years ago along with nerve pain in my thighs. I never connected the two until recently. I was scheduled for a vestibulectomy July 28th. On July 20th I started to get what I think persistent genital arousal symptoms (PGAD). I felt constantly aroused for no reason. Even achieving orgasm didn't relieve the feeling. I thought maybe this was connected to vulvodynia, but since I have vulvodynia for 10 years and never felt these symptoms I didn't think there was a connection. So I thought about what changed in my life and I remembered I stopped taking Spironolactone (I take it for acne and oily skin and it works by lowering testosterone levels, been on it for 8 years). I discontinued Spiro on July 4th and PGAD symptoms due to my testosterone levels being really low, and arousal (mostly just tingling in my clitoris)started July 20th. So I thought it had to be because my testosterone level went up and it caused my Libdo to go crazy. So I started taking Spiro again on July 20th, but at a lower dose than I was currently taking. I had the vestibulectomy and the PGAD seemed to disappear. The vestibulectomy was a success I have zero Vulvodynia pain. PGAD symptoms suddenly started back up, but not as intense therefore I upped my Sprio dose and it seems like they are getting less and less everyday. However by down I would have assumed they'd be gone by now. Thinking that I started doing research on the Pundendal nerve and bang I had all the symptoms. I am scheduled to see a specialist next week. But I am curious if anyone else has tinging in clitoris? Let me mention that I am not experiencing spontaneous orgasms and I can control myself from playing down there. I feel like I am going crazy!

Hopeitworks

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Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  Katiej on Tue Nov 21, 2017 5:13 pm

I have the clitoris thing with vulvodynia. Sometimes it hurts sometimes its a tingling itch. U said u have vulvodynia for ten years but never had symptoms???. I get so upset reading ppl having it for so many years. Ive been told mine will go in a few months as it came after loads of antibiotics for a bad infection so the whole pelvic area is oversensetized. Id imagine I was clenching alot being sore with the infection for a while.

Katiej

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Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  Hopeitworks Yesterday at 6:11 pm

I had Vulvodynia pain for 10 years, but 8 days before my vestibuectomy I started getting arousal type feelings in my Clitoris. I have been diagnosed with PGAD. My MRI showed that my S2 nerve is trapped in my pirifomis muscle. I am getting a 2nd MRI on Friday. My new doctor says my nerve entrapment probably caused the vulvodynia also. Even though my vestiblectomy worked they go hand and hand. I use to have unprovoked vulvodynia and now it is provoked. And the PGAD symptoms come and go. But I found an amazing online forum and am headed in the right direction to cure my problem.

Hopeitworks

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Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

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