Log in

I forgot my password

Latest topics
» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Go down

Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  Hopeitworks on Sat Sep 16, 2017 7:03 pm

This is going to be a long post and I thank you now for reading it. But I need some advice! My vulvodynia started 10 years ago along with nerve pain in my thighs. I never connected the two until recently. I was scheduled for a vestibulectomy July 28th. On July 20th I started to get what I think persistent genital arousal symptoms (PGAD). I felt constantly aroused for no reason. Even achieving orgasm didn't relieve the feeling. I thought maybe this was connected to vulvodynia, but since I have vulvodynia for 10 years and never felt these symptoms I didn't think there was a connection. So I thought about what changed in my life and I remembered I stopped taking Spironolactone (I take it for acne and oily skin and it works by lowering testosterone levels, been on it for 8 years). I discontinued Spiro on July 4th and PGAD symptoms due to my testosterone levels being really low, and arousal (mostly just tingling in my clitoris)started July 20th. So I thought it had to be because my testosterone level went up and it caused my Libdo to go crazy. So I started taking Spiro again on July 20th, but at a lower dose than I was currently taking. I had the vestibulectomy and the PGAD seemed to disappear. The vestibulectomy was a success I have zero Vulvodynia pain. PGAD symptoms suddenly started back up, but not as intense therefore I upped my Sprio dose and it seems like they are getting less and less everyday. However by down I would have assumed they'd be gone by now. Thinking that I started doing research on the Pundendal nerve and bang I had all the symptoms. I am scheduled to see a specialist next week. But I am curious if anyone else has tinging in clitoris? Let me mention that I am not experiencing spontaneous orgasms and I can control myself from playing down there. I feel like I am going crazy!

Hopeitworks

Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  Katiej on Tue Nov 21, 2017 5:13 pm

I have the clitoris thing with vulvodynia. Sometimes it hurts sometimes its a tingling itch. U said u have vulvodynia for ten years but never had symptoms???. I get so upset reading ppl having it for so many years. Ive been told mine will go in a few months as it came after loads of antibiotics for a bad infection so the whole pelvic area is oversensetized. Id imagine I was clenching alot being sore with the infection for a while.

Katiej

Posts : 19
Join date : 2017-11-14

View user profile

Back to top Go down

Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  Hopeitworks on Wed Nov 22, 2017 6:11 pm

I had Vulvodynia pain for 10 years, but 8 days before my vestibuectomy I started getting arousal type feelings in my Clitoris. I have been diagnosed with PGAD. My MRI showed that my S2 nerve is trapped in my pirifomis muscle. I am getting a 2nd MRI on Friday. My new doctor says my nerve entrapment probably caused the vulvodynia also. Even though my vestiblectomy worked they go hand and hand. I use to have unprovoked vulvodynia and now it is provoked. And the PGAD symptoms come and go. But I found an amazing online forum and am headed in the right direction to cure my problem.

Hopeitworks

Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  sarisbaris on Sun Nov 26, 2017 5:57 am

I had V for 15 years. I consider myself cured. I followed the recommendations by Anthony William. Before, I have seen 25+ docs (western/alternative/specialists). Only a few alternative docs helped manage the pain but it was never cured until Anthony William.

I'm really not sure what to recommend in your case. Read my blog. I'm not sure if it would help you.
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

He also did a show on the nervous system. And since his advice cured my V maybe his advice will help you.
http://www.medicalmedium.com/blog/healing-your-neurological-system

sarisbaris

Posts : 69
Join date : 2014-02-17

View user profile

Back to top Go down

Re: Anyone with Vulvodynia and tingling feeling in clitoris? Plus vestibulctomy success

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum