Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Gonna stop the dilators till im settled with the Pregabalin..

Go down

Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Mon Feb 14, 2011 10:31 pm


Well I thought today bugger the dilators! well not literally Shocked

As ive only tried them a handfull of times and they are setting off some flare ups as they do at first..

I figured I want to give the Lyrica a real go and seeing how it stops my general pain without me setting it off regularly!

Does this make sense? Rolling Eyes


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Tue Feb 15, 2011 1:33 am

the lyrica helped me a lot. i hope it does the same for you. it makes sense to me.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Tue Feb 15, 2011 12:18 pm

Makes perfect sense, you don't have to rush these things and if you can get some pain relief it will make the dilators easier to use.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Tue Feb 15, 2011 11:17 pm


Thanks girls thats what I was thinking, get some pain relief and then begin again :)I do hope it works..I read on an online patient leaflet that lyrica can take a month at a steady dose before you know how properly effective it is.

How long did it take for you jules?


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  noni on Thu Feb 17, 2011 2:10 am

Good luck Sebby!

Im hoping each one of us finds something that gives back our sense of health, well being, and everything else that shines and sparkles!

Smile We deserve it, dammnit.
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Thu Feb 17, 2011 4:38 am

hmmm...i can't remember how long it took for the Lyrica to start helping. i started w/ a lower dose..maybe 50 mgs..then made my way to 150 mgs. at the same time i was on gabepentin..about 2700 mgs. i noticed a different w/ 150 mgs. really helped..after awhile, i had a flare up so i went up to 300 mgs....i think that helped then i noticed i had gained weight..but, it could have easily been a result of me not working out and drinking more than usual. so..i am not just at 150 mgs. as you know, i have good times and not great times...but nothing like that horrific pain i had in the beginning. i sure hope it helps you. how many mgs are you on right now? I believe 450 is the max amount. I can't remember.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 7:47 pm


Im currently on 200mg been on that for about a week. Pain is still bad Sad but its early days I guess

Im very dizzy and woozy but for a highly strung person like me its not such a negative thing lol feel like I start the day with a few shots of vodka!

Im going to the dr on tues to ask for 50mg pills as I dont think I can up it to 300mg just like that without swinging off the lamposts or something equally as nutty!

Im quite scared as the pain is so bad at the moment a real shitty flare up so am getting fears of it all getting worse rather than better...hence me stopping dilators as I cant cope with it right now

ARRGGGHHH fuck it!!

_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Thu Feb 17, 2011 9:52 pm

Funny you should say that Sebby, when the Lyrica wears off in between doses I feel like my pain is worse than it was before. I'm still really dizzy and woozy on it too, I thought it would pass but it hasn't and it's not great because I live out in the sticks so need to be able to drive safely. I actually like the sensation when I have nowhere to drive to but think I may have to skip tablets when I need to drive if it doesn't calm down. Have you tried drinking on it yet? I did and 2 glasses of wine had me trolleyed! (Obviously I'm not recommending drinking as the leaflet says not to but normally I have a high alcohol tolerance so thought I'd try it!) I'm not even up to 150mg yet, I've only made it to 100mg daily so far. I'm not sure if it's interacting with the 50mg Ami in my case, I'm going to ask the vulvar specialist when I go back next month.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 10:19 pm


Havent tried drinking yet but I'll have a glass of wine tomorrow for an experiment! prepare for silly posts! lol

Yes I do like the woozey feeling but when it wears off the pain does feel worse! my pain is deff worse at the moment it was almost impossible to sit at work..dont bloody know how im gonna manage tomorrow. I have a cushion and I folded it over and sat on the edge which was better..

I really do think the lyrica is playing havoc with the nerves and they are all going mental! Im hoping this is a kind of worse before it gets better thing..certainly does prove to me in some sense that nerves do have a part to play in V even if the meds are making it worse at the moment!

I can't deny the use of the dilators last weekend has caused a bloody flare up..I over did it Shocked

Also the woozy feeling is worse during the morning til about 2pm and then it wears off..but when I take it in the evening the woozy feeling is not as strong! odd!

_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum