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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Gonna stop the dilators till im settled with the Pregabalin..

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Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Mon Feb 14, 2011 10:31 pm


Well I thought today bugger the dilators! well not literally Shocked

As ive only tried them a handfull of times and they are setting off some flare ups as they do at first..

I figured I want to give the Lyrica a real go and seeing how it stops my general pain without me setting it off regularly!

Does this make sense? Rolling Eyes


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Tue Feb 15, 2011 1:33 am

the lyrica helped me a lot. i hope it does the same for you. it makes sense to me.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Tue Feb 15, 2011 12:18 pm

Makes perfect sense, you don't have to rush these things and if you can get some pain relief it will make the dilators easier to use.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Tue Feb 15, 2011 11:17 pm


Thanks girls thats what I was thinking, get some pain relief and then begin again :)I do hope it works..I read on an online patient leaflet that lyrica can take a month at a steady dose before you know how properly effective it is.

How long did it take for you jules?


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  noni on Thu Feb 17, 2011 2:10 am

Good luck Sebby!

Im hoping each one of us finds something that gives back our sense of health, well being, and everything else that shines and sparkles!

Smile We deserve it, dammnit.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Thu Feb 17, 2011 4:38 am

hmmm...i can't remember how long it took for the Lyrica to start helping. i started w/ a lower dose..maybe 50 mgs..then made my way to 150 mgs. at the same time i was on gabepentin..about 2700 mgs. i noticed a different w/ 150 mgs. really helped..after awhile, i had a flare up so i went up to 300 mgs....i think that helped then i noticed i had gained weight..but, it could have easily been a result of me not working out and drinking more than usual. so..i am not just at 150 mgs. as you know, i have good times and not great times...but nothing like that horrific pain i had in the beginning. i sure hope it helps you. how many mgs are you on right now? I believe 450 is the max amount. I can't remember.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 7:47 pm


Im currently on 200mg been on that for about a week. Pain is still bad Sad but its early days I guess

Im very dizzy and woozy but for a highly strung person like me its not such a negative thing lol feel like I start the day with a few shots of vodka!

Im going to the dr on tues to ask for 50mg pills as I dont think I can up it to 300mg just like that without swinging off the lamposts or something equally as nutty!

Im quite scared as the pain is so bad at the moment a real shitty flare up so am getting fears of it all getting worse rather than better...hence me stopping dilators as I cant cope with it right now

ARRGGGHHH fuck it!!

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Thu Feb 17, 2011 9:52 pm

Funny you should say that Sebby, when the Lyrica wears off in between doses I feel like my pain is worse than it was before. I'm still really dizzy and woozy on it too, I thought it would pass but it hasn't and it's not great because I live out in the sticks so need to be able to drive safely. I actually like the sensation when I have nowhere to drive to but think I may have to skip tablets when I need to drive if it doesn't calm down. Have you tried drinking on it yet? I did and 2 glasses of wine had me trolleyed! (Obviously I'm not recommending drinking as the leaflet says not to but normally I have a high alcohol tolerance so thought I'd try it!) I'm not even up to 150mg yet, I've only made it to 100mg daily so far. I'm not sure if it's interacting with the 50mg Ami in my case, I'm going to ask the vulvar specialist when I go back next month.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 10:19 pm


Havent tried drinking yet but I'll have a glass of wine tomorrow for an experiment! prepare for silly posts! lol

Yes I do like the woozey feeling but when it wears off the pain does feel worse! my pain is deff worse at the moment it was almost impossible to sit at work..dont bloody know how im gonna manage tomorrow. I have a cushion and I folded it over and sat on the edge which was better..

I really do think the lyrica is playing havoc with the nerves and they are all going mental! Im hoping this is a kind of worse before it gets better thing..certainly does prove to me in some sense that nerves do have a part to play in V even if the meds are making it worse at the moment!

I can't deny the use of the dilators last weekend has caused a bloody flare up..I over did it Shocked

Also the woozy feeling is worse during the morning til about 2pm and then it wears off..but when I take it in the evening the woozy feeling is not as strong! odd!

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