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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Gonna stop the dilators till im settled with the Pregabalin..

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Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Mon Feb 14, 2011 10:31 pm


Well I thought today bugger the dilators! well not literally Shocked

As ive only tried them a handfull of times and they are setting off some flare ups as they do at first..

I figured I want to give the Lyrica a real go and seeing how it stops my general pain without me setting it off regularly!

Does this make sense? Rolling Eyes


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Tue Feb 15, 2011 1:33 am

the lyrica helped me a lot. i hope it does the same for you. it makes sense to me.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Tue Feb 15, 2011 12:18 pm

Makes perfect sense, you don't have to rush these things and if you can get some pain relief it will make the dilators easier to use.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Tue Feb 15, 2011 11:17 pm


Thanks girls thats what I was thinking, get some pain relief and then begin again :)I do hope it works..I read on an online patient leaflet that lyrica can take a month at a steady dose before you know how properly effective it is.

How long did it take for you jules?


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  noni on Thu Feb 17, 2011 2:10 am

Good luck Sebby!

Im hoping each one of us finds something that gives back our sense of health, well being, and everything else that shines and sparkles!

Smile We deserve it, dammnit.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Thu Feb 17, 2011 4:38 am

hmmm...i can't remember how long it took for the Lyrica to start helping. i started w/ a lower dose..maybe 50 mgs..then made my way to 150 mgs. at the same time i was on gabepentin..about 2700 mgs. i noticed a different w/ 150 mgs. really helped..after awhile, i had a flare up so i went up to 300 mgs....i think that helped then i noticed i had gained weight..but, it could have easily been a result of me not working out and drinking more than usual. so..i am not just at 150 mgs. as you know, i have good times and not great times...but nothing like that horrific pain i had in the beginning. i sure hope it helps you. how many mgs are you on right now? I believe 450 is the max amount. I can't remember.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 7:47 pm


Im currently on 200mg been on that for about a week. Pain is still bad Sad but its early days I guess

Im very dizzy and woozy but for a highly strung person like me its not such a negative thing lol feel like I start the day with a few shots of vodka!

Im going to the dr on tues to ask for 50mg pills as I dont think I can up it to 300mg just like that without swinging off the lamposts or something equally as nutty!

Im quite scared as the pain is so bad at the moment a real shitty flare up so am getting fears of it all getting worse rather than better...hence me stopping dilators as I cant cope with it right now

ARRGGGHHH fuck it!!

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Thu Feb 17, 2011 9:52 pm

Funny you should say that Sebby, when the Lyrica wears off in between doses I feel like my pain is worse than it was before. I'm still really dizzy and woozy on it too, I thought it would pass but it hasn't and it's not great because I live out in the sticks so need to be able to drive safely. I actually like the sensation when I have nowhere to drive to but think I may have to skip tablets when I need to drive if it doesn't calm down. Have you tried drinking on it yet? I did and 2 glasses of wine had me trolleyed! (Obviously I'm not recommending drinking as the leaflet says not to but normally I have a high alcohol tolerance so thought I'd try it!) I'm not even up to 150mg yet, I've only made it to 100mg daily so far. I'm not sure if it's interacting with the 50mg Ami in my case, I'm going to ask the vulvar specialist when I go back next month.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 10:19 pm


Havent tried drinking yet but I'll have a glass of wine tomorrow for an experiment! prepare for silly posts! lol

Yes I do like the woozey feeling but when it wears off the pain does feel worse! my pain is deff worse at the moment it was almost impossible to sit at work..dont bloody know how im gonna manage tomorrow. I have a cushion and I folded it over and sat on the edge which was better..

I really do think the lyrica is playing havoc with the nerves and they are all going mental! Im hoping this is a kind of worse before it gets better thing..certainly does prove to me in some sense that nerves do have a part to play in V even if the meds are making it worse at the moment!

I can't deny the use of the dilators last weekend has caused a bloody flare up..I over did it Shocked

Also the woozy feeling is worse during the morning til about 2pm and then it wears off..but when I take it in the evening the woozy feeling is not as strong! odd!

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