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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Gonna stop the dilators till im settled with the Pregabalin..

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Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Mon Feb 14, 2011 10:31 pm


Well I thought today bugger the dilators! well not literally Shocked

As ive only tried them a handfull of times and they are setting off some flare ups as they do at first..

I figured I want to give the Lyrica a real go and seeing how it stops my general pain without me setting it off regularly!

Does this make sense? Rolling Eyes


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Tue Feb 15, 2011 1:33 am

the lyrica helped me a lot. i hope it does the same for you. it makes sense to me.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Tue Feb 15, 2011 12:18 pm

Makes perfect sense, you don't have to rush these things and if you can get some pain relief it will make the dilators easier to use.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Tue Feb 15, 2011 11:17 pm


Thanks girls thats what I was thinking, get some pain relief and then begin again :)I do hope it works..I read on an online patient leaflet that lyrica can take a month at a steady dose before you know how properly effective it is.

How long did it take for you jules?


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  noni on Thu Feb 17, 2011 2:10 am

Good luck Sebby!

Im hoping each one of us finds something that gives back our sense of health, well being, and everything else that shines and sparkles!

Smile We deserve it, dammnit.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Thu Feb 17, 2011 4:38 am

hmmm...i can't remember how long it took for the Lyrica to start helping. i started w/ a lower dose..maybe 50 mgs..then made my way to 150 mgs. at the same time i was on gabepentin..about 2700 mgs. i noticed a different w/ 150 mgs. really helped..after awhile, i had a flare up so i went up to 300 mgs....i think that helped then i noticed i had gained weight..but, it could have easily been a result of me not working out and drinking more than usual. so..i am not just at 150 mgs. as you know, i have good times and not great times...but nothing like that horrific pain i had in the beginning. i sure hope it helps you. how many mgs are you on right now? I believe 450 is the max amount. I can't remember.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 7:47 pm


Im currently on 200mg been on that for about a week. Pain is still bad Sad but its early days I guess

Im very dizzy and woozy but for a highly strung person like me its not such a negative thing lol feel like I start the day with a few shots of vodka!

Im going to the dr on tues to ask for 50mg pills as I dont think I can up it to 300mg just like that without swinging off the lamposts or something equally as nutty!

Im quite scared as the pain is so bad at the moment a real shitty flare up so am getting fears of it all getting worse rather than better...hence me stopping dilators as I cant cope with it right now

ARRGGGHHH fuck it!!

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Thu Feb 17, 2011 9:52 pm

Funny you should say that Sebby, when the Lyrica wears off in between doses I feel like my pain is worse than it was before. I'm still really dizzy and woozy on it too, I thought it would pass but it hasn't and it's not great because I live out in the sticks so need to be able to drive safely. I actually like the sensation when I have nowhere to drive to but think I may have to skip tablets when I need to drive if it doesn't calm down. Have you tried drinking on it yet? I did and 2 glasses of wine had me trolleyed! (Obviously I'm not recommending drinking as the leaflet says not to but normally I have a high alcohol tolerance so thought I'd try it!) I'm not even up to 150mg yet, I've only made it to 100mg daily so far. I'm not sure if it's interacting with the 50mg Ami in my case, I'm going to ask the vulvar specialist when I go back next month.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 10:19 pm


Havent tried drinking yet but I'll have a glass of wine tomorrow for an experiment! prepare for silly posts! lol

Yes I do like the woozey feeling but when it wears off the pain does feel worse! my pain is deff worse at the moment it was almost impossible to sit at work..dont bloody know how im gonna manage tomorrow. I have a cushion and I folded it over and sat on the edge which was better..

I really do think the lyrica is playing havoc with the nerves and they are all going mental! Im hoping this is a kind of worse before it gets better thing..certainly does prove to me in some sense that nerves do have a part to play in V even if the meds are making it worse at the moment!

I can't deny the use of the dilators last weekend has caused a bloody flare up..I over did it Shocked

Also the woozy feeling is worse during the morning til about 2pm and then it wears off..but when I take it in the evening the woozy feeling is not as strong! odd!

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Re: Gonna stop the dilators till im settled with the Pregabalin..

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