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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Gonna stop the dilators till im settled with the Pregabalin..

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Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Mon Feb 14, 2011 10:31 pm


Well I thought today bugger the dilators! well not literally Shocked

As ive only tried them a handfull of times and they are setting off some flare ups as they do at first..

I figured I want to give the Lyrica a real go and seeing how it stops my general pain without me setting it off regularly!

Does this make sense? Rolling Eyes


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Tue Feb 15, 2011 1:33 am

the lyrica helped me a lot. i hope it does the same for you. it makes sense to me.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Tue Feb 15, 2011 12:18 pm

Makes perfect sense, you don't have to rush these things and if you can get some pain relief it will make the dilators easier to use.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Tue Feb 15, 2011 11:17 pm


Thanks girls thats what I was thinking, get some pain relief and then begin again :)I do hope it works..I read on an online patient leaflet that lyrica can take a month at a steady dose before you know how properly effective it is.

How long did it take for you jules?


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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  noni on Thu Feb 17, 2011 2:10 am

Good luck Sebby!

Im hoping each one of us finds something that gives back our sense of health, well being, and everything else that shines and sparkles!

Smile We deserve it, dammnit.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  jules on Thu Feb 17, 2011 4:38 am

hmmm...i can't remember how long it took for the Lyrica to start helping. i started w/ a lower dose..maybe 50 mgs..then made my way to 150 mgs. at the same time i was on gabepentin..about 2700 mgs. i noticed a different w/ 150 mgs. really helped..after awhile, i had a flare up so i went up to 300 mgs....i think that helped then i noticed i had gained weight..but, it could have easily been a result of me not working out and drinking more than usual. so..i am not just at 150 mgs. as you know, i have good times and not great times...but nothing like that horrific pain i had in the beginning. i sure hope it helps you. how many mgs are you on right now? I believe 450 is the max amount. I can't remember.

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 7:47 pm


Im currently on 200mg been on that for about a week. Pain is still bad Sad but its early days I guess

Im very dizzy and woozy but for a highly strung person like me its not such a negative thing lol feel like I start the day with a few shots of vodka!

Im going to the dr on tues to ask for 50mg pills as I dont think I can up it to 300mg just like that without swinging off the lamposts or something equally as nutty!

Im quite scared as the pain is so bad at the moment a real shitty flare up so am getting fears of it all getting worse rather than better...hence me stopping dilators as I cant cope with it right now

ARRGGGHHH fuck it!!

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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sarah001 on Thu Feb 17, 2011 9:52 pm

Funny you should say that Sebby, when the Lyrica wears off in between doses I feel like my pain is worse than it was before. I'm still really dizzy and woozy on it too, I thought it would pass but it hasn't and it's not great because I live out in the sticks so need to be able to drive safely. I actually like the sensation when I have nowhere to drive to but think I may have to skip tablets when I need to drive if it doesn't calm down. Have you tried drinking on it yet? I did and 2 glasses of wine had me trolleyed! (Obviously I'm not recommending drinking as the leaflet says not to but normally I have a high alcohol tolerance so thought I'd try it!) I'm not even up to 150mg yet, I've only made it to 100mg daily so far. I'm not sure if it's interacting with the 50mg Ami in my case, I'm going to ask the vulvar specialist when I go back next month.
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Re: Gonna stop the dilators till im settled with the Pregabalin..

Post  Sebby (Admin) on Thu Feb 17, 2011 10:19 pm


Havent tried drinking yet but I'll have a glass of wine tomorrow for an experiment! prepare for silly posts! lol

Yes I do like the woozey feeling but when it wears off the pain does feel worse! my pain is deff worse at the moment it was almost impossible to sit at work..dont bloody know how im gonna manage tomorrow. I have a cushion and I folded it over and sat on the edge which was better..

I really do think the lyrica is playing havoc with the nerves and they are all going mental! Im hoping this is a kind of worse before it gets better thing..certainly does prove to me in some sense that nerves do have a part to play in V even if the meds are making it worse at the moment!

I can't deny the use of the dilators last weekend has caused a bloody flare up..I over did it Shocked

Also the woozy feeling is worse during the morning til about 2pm and then it wears off..but when I take it in the evening the woozy feeling is not as strong! odd!

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Re: Gonna stop the dilators till im settled with the Pregabalin..

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