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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Help please

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Help please

Post  phronesis on Sun Nov 05, 2017 6:12 am

I'm truly going insane.
I started living this hell the month of March this year. Everything was more or less ok-ish (I was suffering from a huge depression at that time, but I was feeling a lot better). I had sex and from then on everything went straight downhill.
I started feeling weird, like if my vagina was burning. It was something truly horrible, but I guess if you're here reading this you already know. I went to the hospital and the doctor that saw me there gave me this kinda pills that you gotta put down there for seven days; you know, to set the pH alright and restore the "normal state" that vaginas are supposed to have, idk how to say all this stuff English isn't my main language but this is how desperate I am.
Those thingies didn't do too much, I felt sorta relieved because I think they got some kind of painkiller in them but that was it.
I run one of these tests where they take like a sample from your vagina (is it called vaginal culture???) to see if I had some sort of bacteria or fungi. Nothing alike, all results were negative.
I went back to the hospital, the same doctor saw me again. This time she thought it might be herpes, so she gave me new pills (this time like, the ones you take orally or whatever it is called I'm so sorry). I took the pills and once again the symptoms sort of faded.
At the same time I was seeing my gynecologist, I explained her what I felt but she sorta dismissed my words telling that if I was already taking pills (whether it was the ones for the pH or the ones for the herpes) there was nothing she could do.
Several months passed after that, I didn't enjoy them fully because of these annoying sensations I felt down there, however they usually weren't /that/ bad so I managed. Peeing was no fun at all, every night I felt uncomfortable; idk if this happens to you all but I've read that it's quite common that you wake up feeling alright and it gets worse through the day? But I could tolerate it, somehow.
The thing is, the past few weeks (like, the past 5/6 weeks? idk) it's been true hell. It's become unbearable. It's like something is burning down there and I'm truly going insane. I went back to the hospital, a new doctor saw me there and gave me some medication to kill bacteria and another one to kill fungi. Nothing happened, as you might have noticed. I went to the gynecologist again and after explaining my symptoms she concluded that it's all in my head. I'm running lots of tests right now -blood, vaginal culture, urinalysis- but I already know they all will probably be negative 'cause they already did back then! This lady said that if all of them (and the pap that i'll get done later) are negative, then it's all in my head and i'll just have to talk about it with my therapist until it heals by itself somehow.
Incapable of accepting this, I searched for my symptoms on the internet until I found this. "Vulvodynia". At first I was happy; how could I not be? What I had, had an actual name! It wasn't just me! But the more I read about this disease, the more desperate I get. I guess you understand why: nobody really knows why it happens, there isn't a 100% effective method to get rid of it, even if you do it might come back again. Most doctors ignore that this disease even exists, and idk on your country but I'm from Argentina and here doctors usually get really upset when you tell them about something you've read on the internet because "they've studied and you haven't" so to them you basically dont know shit. I will tell my gynecologist about this when I see her again, but I'm 99% sure that she won't give a shit nor offer my no solutions of any kind. I'm already using jelly lidocaine 2% and most of the time it doesn't do nothing, only if I lay on my bed covered and watch something to distract myself (the only method I've discovered that calms my symptoms since this whole hell started).

I'm truly, truly going crazy. It's so frustrating because I was just starting to enjoy life (you know, after dealing with depression and after my psychiatrist decided I could stop taking antidepressants), and now I want to die all over again. I'm crying every night because of this, I just can't deal with it anymore. I'm having exams in two weeks and I don't know what to do anymore because when the pain starts I can't concentrate nor even sit down (and please don't tell me this has something to do with stress because I already had exams like a month and a half ago and everything was more or less fine, I wasn't suffering like I am now, it's not that). I don't want to suffer from this forever. I don't want to deal with this anymore. I want it to be over as soon as possible, I don't care what it takes. I can't even go out nor see my friends because I'm always feeling uncomfortable. I just need this to stop so I can actually live again. I've just had mi 21st birthday, I've got so much to live and this hell of a disease is restraining me from doing it. Please someone help me. I'm begging here.


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Re: Help please

Post  fairlight10 on Mon Nov 06, 2017 5:44 pm

Hi phronesis. Sorry to hear you also have this horrible condition. It is not in your head. It is real pain in your vulvar. Possibly neuropathic. I have been diagnosed with vulvar vestibulitis more than 5 years ago. Went to different doctors and told I had thrush, then atrophic vaginitis. The medications for these conditions made the pain worse. Found a gynaecologist who told me I had vulvodynia. Which just translates to pain in the vulvar. He prescribed a low dose of the antidepressant Nortriptyline 20mgs. This has worked for me and given me my life back.I was off work for 3months until I felt comfortable enough to function in the workplace. I also had acupuncture. Do not understate your feelings and emotions they definatly have an impact on this condition. Go back to your doctor and tell him about this condition and if need be tell him/her about this forum. Understate should read underestimate. You have found this forum, read as many as you can.I did not find it at the beginning and I wish I had. Good luck and know you are not alone.


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