Vulvodynia Support
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» Hope to all my suffering ladies
difficult to treat vaginal infections, un-understanding docotrs EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
difficult to treat vaginal infections, un-understanding docotrs EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
difficult to treat vaginal infections, un-understanding docotrs EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
difficult to treat vaginal infections, un-understanding docotrs EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
difficult to treat vaginal infections, un-understanding docotrs EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
difficult to treat vaginal infections, un-understanding docotrs EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
difficult to treat vaginal infections, un-understanding docotrs EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
difficult to treat vaginal infections, un-understanding docotrs EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
difficult to treat vaginal infections, un-understanding docotrs EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


difficult to treat vaginal infections, un-understanding docotrs

5 posters

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Post  mushroomvisionlala Mon Oct 07, 2013 6:11 pm

Even a simple yeast infection can be hard to treat especially if you have a condition called CANDIDA. please google..please research...

and even Bacterial Vaginosis, and Vaginitis can be hard to get rid of, and doctors can sometimes be backwards and uncaring. Bacterial and fungal resistance is also a problem now these days.
If you google "bacterial vaginosis that wont go away", or "yeast infection from Hell that never goes away", you'll see countless posts from women who have this problem.
Doctors dont like to do aggressive treatment, and will give you the brush off before trying.

mushroomvisionlala

Posts : 10
Join date : 2013-09-27

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difficult to treat vaginal infections, un-understanding docotrs Empty probiotics, threelac, Femdophilus

Post  mushroomvisionlala Mon Oct 07, 2013 6:17 pm

Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.

mushroomvisionlala

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Join date : 2013-09-27

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difficult to treat vaginal infections, un-understanding docotrs Empty Re: difficult to treat vaginal infections, un-understanding docotrs

Post  tinkerbelle2 Mon Oct 07, 2013 6:48 pm

mushroomvisionlala wrote:Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.
Hey girl, have you managed to get rid of it now? And is there a way to find if you do have this in your gut.

I hate when swabs come back negative and they don't think anything is wrong so they kind of sit there looking at you awkwardly and have nothing to suggest. If one doctor saw all of us women, they'd realise something has to be done! Shocked 
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  Alana3 Mon Oct 07, 2013 7:47 pm

Most yeast infections are candida... I got rid of mine by process of elimination I tried everything finally I removed my probiotic and havent had one knock on wood in a few weeks was literally getting them once a week they wouldnt go away

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  mary jane Tue Oct 29, 2013 7:37 pm

I agree with you mushroom, I've also always wondered if it was normal to have pain upon entry with sex.
I'll try the anti-candida diet plus some optibac
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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difficult to treat vaginal infections, un-understanding docotrs Empty Re: Mis-Diagnosis?

Post  RainyShay77 Wed Dec 06, 2017 2:52 am

Did yours go away after using Diflucan? That seems to be the only thing that ever takes my symptoms away, but once I stop using it they come back. I used it three separate times daily for 2 weeks and felt 90% better...until about a week or so after then the symptoms came back.

RainyShay77

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Join date : 2017-12-06

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