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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Vulvodynia help

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Vulvodynia help

Post  Katiej on Tue Nov 14, 2017 4:27 pm

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a very anxious person so I dont wanna hear about the sidee effects thanks ha). So the last few days my symptoms are the following.. :prickling and stabbing nerves all over vulva. Changing from clit to vastibule to vagina. Feels like a trapped nerve actually. I habr itchy perineum and anus. Not much burning reallu anymore. Mostly sharp nerves and almost like theres a foreign body down there and like something needs to be released hence the trapped nerve feeling. I have been told by all docs this will go as the nerves need a chance to calm down. I saw a chiropractor today who told me that my pelvis was misaligned and that my coxyc is inturned meaning it could ve causing impinged nerves. Im just so confused. Can someone tell me if they experience any of these symptoms and their thoughts. I never had anything like this till the bv last year. Please help. And no.scarey stories please im already off work a month scared shitless.

Katiej

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Re: Vulvodynia help

Post  ekaterina1996 on Wed Nov 15, 2017 8:37 am

Hello Katiej!
I have similar symptoms. My itching is from the clitoris to the rectal area. I have already gone a long way about my condition. I have a few questions to you:
1. Have you tried an antifungal cream throughout your area with oral pills?
2. Also I have to find out if you had anal sex? if it is true you need to check with your doctor if you have anal HPV and condyloma. It can cause itching and you should treat it.
3. Do you have anal fissures? If the answer is yes, the vaginal secretions that fall in them cauased the itching.
If you excluded these factors, I think the pudendal nerve causes our condition. I'm treating the coccyx with my neurologist, although I've never had a problem with it.
Also, you should observe where your symptoms begin.
If they appear in your vagina first, then the proximity of the organs can provoke a burning sensation in the areas near your vagina. It is very important to understand where your symptoms begin.
You can write to me, I am from Russia and I will be happy to talk with you about it. May be I will be able to give you some advice!

ekaterina1996

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Re: Vulvodynia help

Post  Katiej on Wed Nov 15, 2017 9:40 am

Hi there thanks for your reply. I have ruled out any possible std or infection. I dont have anal fissures. I had anal sex once but thats not causing this. I had the hpv vaccine years ago so im pretty sure im clear of that. My symptoms dont begin anywhere they are there 24/7 and constantly change. I am very sore all over vulva. Like its raw then burning then itching. Sometimes just sharp stabbing knife like nerve pain with no itching. I have been told its the nerves firing all over vagina and anus and that they need to calm down as they think there is still trauma goin on. I had about ten antibiotics in a row at one stage and lots of antifungal cream. My swabs are also all negative. To look at there is no redness. My discharge is normal. And no cuts or marks or anything at all. I just wanna know im not stuck like this forever and that even if I am someone or something can be done to reduce the discomfort.

Katiej

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I think you need more lactobacteria

Post  ekaterina1996 on Wed Nov 15, 2017 1:04 pm

Our symptoms are very similar.
Okay, I'm very pleased that you are vaccinated from HPV, this is great news!
Also, I assure you, nothing can be forever, we just got the most uncomfortable disease.

That's what can help you (this helped me):

1) Buy two types of candles: to enhance local immunity and with lactobacilli. Alternate these candles. I mean today you put a candle to improve immunity, and tomorrow you will put candle to restore lactobacilli. Do a one-week course and review the result. This made for me the first small remission. If therapy helps, continue, you can add oral probiotics. It means that in your vagina conditionally pathogenic microorganisms are rampant, which you can cure only with large doses of lactobacilli. This is called "dysbiosis" in Russia. I think this is a very bad disease.

2) Lubricate the burning area with coconut oil. I do not know why this works, but coconut oil really helps us. Also this will reduce the risk of candidiasis

3) Use only soap with lactic acid. It will also help to work your vagina.

4) Give up coffee. It also made my vulva less burning.

These things really helped me. Most of all, point 1, pay attention to it. These procedures are performed behind of your basic treatment. They will not make you worse, moreover, I am sure that they will improve your condition!

ekaterina1996

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Re: Vulvodynia help

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