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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

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Vulvodynia help

Post  Katiej on Tue Nov 14, 2017 4:27 pm

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a very anxious person so I dont wanna hear about the sidee effects thanks ha). So the last few days my symptoms are the following.. :prickling and stabbing nerves all over vulva. Changing from clit to vastibule to vagina. Feels like a trapped nerve actually. I habr itchy perineum and anus. Not much burning reallu anymore. Mostly sharp nerves and almost like theres a foreign body down there and like something needs to be released hence the trapped nerve feeling. I have been told by all docs this will go as the nerves need a chance to calm down. I saw a chiropractor today who told me that my pelvis was misaligned and that my coxyc is inturned meaning it could ve causing impinged nerves. Im just so confused. Can someone tell me if they experience any of these symptoms and their thoughts. I never had anything like this till the bv last year. Please help. And no.scarey stories please im already off work a month scared shitless.


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Re: Vulvodynia help

Post  ekaterina1996 on Wed Nov 15, 2017 8:37 am

Hello Katiej!
I have similar symptoms. My itching is from the clitoris to the rectal area. I have already gone a long way about my condition. I have a few questions to you:
1. Have you tried an antifungal cream throughout your area with oral pills?
2. Also I have to find out if you had anal sex? if it is true you need to check with your doctor if you have anal HPV and condyloma. It can cause itching and you should treat it.
3. Do you have anal fissures? If the answer is yes, the vaginal secretions that fall in them cauased the itching.
If you excluded these factors, I think the pudendal nerve causes our condition. I'm treating the coccyx with my neurologist, although I've never had a problem with it.
Also, you should observe where your symptoms begin.
If they appear in your vagina first, then the proximity of the organs can provoke a burning sensation in the areas near your vagina. It is very important to understand where your symptoms begin.
You can write to me, I am from Russia and I will be happy to talk with you about it. May be I will be able to give you some advice!


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Re: Vulvodynia help

Post  Katiej on Wed Nov 15, 2017 9:40 am

Hi there thanks for your reply. I have ruled out any possible std or infection. I dont have anal fissures. I had anal sex once but thats not causing this. I had the hpv vaccine years ago so im pretty sure im clear of that. My symptoms dont begin anywhere they are there 24/7 and constantly change. I am very sore all over vulva. Like its raw then burning then itching. Sometimes just sharp stabbing knife like nerve pain with no itching. I have been told its the nerves firing all over vagina and anus and that they need to calm down as they think there is still trauma goin on. I had about ten antibiotics in a row at one stage and lots of antifungal cream. My swabs are also all negative. To look at there is no redness. My discharge is normal. And no cuts or marks or anything at all. I just wanna know im not stuck like this forever and that even if I am someone or something can be done to reduce the discomfort.


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I think you need more lactobacteria

Post  ekaterina1996 on Wed Nov 15, 2017 1:04 pm

Our symptoms are very similar.
Okay, I'm very pleased that you are vaccinated from HPV, this is great news!
Also, I assure you, nothing can be forever, we just got the most uncomfortable disease.

That's what can help you (this helped me):

1) Buy two types of candles: to enhance local immunity and with lactobacilli. Alternate these candles. I mean today you put a candle to improve immunity, and tomorrow you will put candle to restore lactobacilli. Do a one-week course and review the result. This made for me the first small remission. If therapy helps, continue, you can add oral probiotics. It means that in your vagina conditionally pathogenic microorganisms are rampant, which you can cure only with large doses of lactobacilli. This is called "dysbiosis" in Russia. I think this is a very bad disease.

2) Lubricate the burning area with coconut oil. I do not know why this works, but coconut oil really helps us. Also this will reduce the risk of candidiasis

3) Use only soap with lactic acid. It will also help to work your vagina.

4) Give up coffee. It also made my vulva less burning.

These things really helped me. Most of all, point 1, pay attention to it. These procedures are performed behind of your basic treatment. They will not make you worse, moreover, I am sure that they will improve your condition!


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Re: Vulvodynia help

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