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» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

Vestibulectomy today and no pain

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Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 9:45 pm

So I just had my full vestibulectomy this morning 4.5 hours ago. I feel no pain whatsoever. My throat hurts, but that is it. While this is a good thing, I'm confused. When I read women's blogs to get an idea of what to expect, they said they couldn't get out of bed the first day. They talked about intense pain, which was nothing like how my doctor described it. But just to be prepared, I lined up babysitters for this week.

When I talked with doctor, he said you'll be able to get out of bed. You could even go to work the next day, but you'll be sore....just take pain meds and sitz baths, and you'll be fine.

So doctors version was way less intense that what is on those blogs.

But I'm not even experiencing any soreness or pain at all...not even to level doctor described. Is it because I'm still dumb or pain meds given during surgery. ...will the pain come later?


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Re: Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 10:03 pm

I'm trYing to determine if I should tell my sitter I don't need her tomorrow. ...


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Re: Vestibulectomy today and no pain

Post  VVSSufferer on Fri Nov 17, 2017 10:14 am

Hey girl! How you feeling? x


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Re: Vestibulectomy today and no pain

Post  Dsrt16 on Fri Nov 17, 2017 3:28 pm

The past few days have brought minor pain--some burning and stinging. But nothing so bad that I need the pain meds I was prescribed. I just use ibuprofen.

Wearing jeans hurt. (I wore them for a,few hours when I wenter to an appointment) bUT that's east to avoid.

I'm not sure how much bleeding is normal, but this morning while going pee, I bled bright red blood the entire time I peed. (So the toilet was just a sea I'd bright red). And I'm still bleeding quite steadily with custant stinging--not that painful just annoying.

I was expecting so much worse.


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How are you?

Post  ekaterina1996 on Sat Dec 02, 2017 11:24 pm

Hey, friend!
I want to ask you, how are you? Did your bleeding stop? It sounded very frightening, because I am afraid of blood!
I plan to have vestibulectomy, and I would like to collect as much information about the condition before and after the operation!
I hope your condition will be better and better! Like a Star @ heaven


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Doing well

Post  Dsrt16 on Sat Dec 02, 2017 11:50 pm

I probably am not the right person to give you information about the surgery. I had a very, very EASY recovery. I experienced some burning and stinging for about a week and a half, but that was it. It wasn't painful, just uncomfortable. I only need ibuprofen not the strong stuff they gave me.

The peeing tons of blood only happened because I overdid the first few days after my surgery. Since I didn't feel any pain, I just did everything I normally do. My body didn't like that and reacted, so I rested the next day and bleeding stopped.

I saw the doctor yesterday, and he said it is still healing so not to use tampon or have sex for another 4 weeks, but I am 100% fine in terms of how I feel. I don't need a donut to sit, and I don't feel any burning or stinging anymore and my surgery was only 2 weeks ago.

From what I understand on this facebook group for women having a vestibulectomy, my experience was abnormal. Many of them discuss being bed ridden or in tons of pain.

I suggest going to the facebook group to gather more information: Vestibulectomy Surgery and Vestibulodynia Support Group. (Just type that into the search bar)


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Great news!

Post  ekaterina1996 on Sun Dec 03, 2017 12:22 am

Oh, I am so happy for you! (crossed fingers, so you will be okay more and more)
You are really unusual that you started doing everyday things so quickly. But it's very wonderful!
Thank you for your advice, I'm going to this group right now! I love you


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Good News

Post  Sandra4372 on Thu Jan 18, 2018 4:53 am

I'm so glad you are doing well. This is great to hear!!


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Re: Vestibulectomy today and no pain

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