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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Vestibulectomy today and no pain

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Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 9:45 pm

So I just had my full vestibulectomy this morning 4.5 hours ago. I feel no pain whatsoever. My throat hurts, but that is it. While this is a good thing, I'm confused. When I read women's blogs to get an idea of what to expect, they said they couldn't get out of bed the first day. They talked about intense pain, which was nothing like how my doctor described it. But just to be prepared, I lined up babysitters for this week.

When I talked with doctor, he said you'll be able to get out of bed. You could even go to work the next day, but you'll be sore....just take pain meds and sitz baths, and you'll be fine.

So doctors version was way less intense that what is on those blogs.

But I'm not even experiencing any soreness or pain at all...not even to level doctor described. Is it because I'm still dumb or pain meds given during surgery. ...will the pain come later?

Dsrt16

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Re: Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 10:03 pm

I'm trYing to determine if I should tell my sitter I don't need her tomorrow. ...

Dsrt16

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Re: Vestibulectomy today and no pain

Post  VVSSufferer on Fri Nov 17, 2017 10:14 am

Hey girl! How you feeling? x

VVSSufferer

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Re: Vestibulectomy today and no pain

Post  Dsrt16 on Fri Nov 17, 2017 3:28 pm

The past few days have brought minor pain--some burning and stinging. But nothing so bad that I need the pain meds I was prescribed. I just use ibuprofen.

Wearing jeans hurt. (I wore them for a,few hours when I wenter to an appointment) bUT that's east to avoid.

I'm not sure how much bleeding is normal, but this morning while going pee, I bled bright red blood the entire time I peed. (So the toilet was just a sea I'd bright red). And I'm still bleeding quite steadily with custant stinging--not that painful just annoying.

I was expecting so much worse.

Dsrt16

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How are you?

Post  ekaterina1996 on Sat Dec 02, 2017 11:24 pm

Hey, friend!
I want to ask you, how are you? Did your bleeding stop? It sounded very frightening, because I am afraid of blood!
I plan to have vestibulectomy, and I would like to collect as much information about the condition before and after the operation!
I hope your condition will be better and better! Like a Star @ heaven


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Doing well

Post  Dsrt16 on Sat Dec 02, 2017 11:50 pm

I probably am not the right person to give you information about the surgery. I had a very, very EASY recovery. I experienced some burning and stinging for about a week and a half, but that was it. It wasn't painful, just uncomfortable. I only need ibuprofen not the strong stuff they gave me.

The peeing tons of blood only happened because I overdid the first few days after my surgery. Since I didn't feel any pain, I just did everything I normally do. My body didn't like that and reacted, so I rested the next day and bleeding stopped.

I saw the doctor yesterday, and he said it is still healing so not to use tampon or have sex for another 4 weeks, but I am 100% fine in terms of how I feel. I don't need a donut to sit, and I don't feel any burning or stinging anymore and my surgery was only 2 weeks ago.

From what I understand on this facebook group for women having a vestibulectomy, my experience was abnormal. Many of them discuss being bed ridden or in tons of pain.

I suggest going to the facebook group to gather more information: Vestibulectomy Surgery and Vestibulodynia Support Group. (Just type that into the search bar)

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Great news!

Post  ekaterina1996 on Sun Dec 03, 2017 12:22 am

Oh, I am so happy for you! (crossed fingers, so you will be okay more and more)
You are really unusual that you started doing everyday things so quickly. But it's very wonderful!
Thank you for your advice, I'm going to this group right now! I love you

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Good News

Post  Sandra4372 on Thu Jan 18, 2018 4:53 am

I'm so glad you are doing well. This is great to hear!!

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Re: Vestibulectomy today and no pain

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