Log in

I forgot my password

Latest topics
» Did going off antidepressants cause this?
Yesterday at 2:08 am by ryn207

» 7 months since the diagnosis
Tue Aug 14, 2018 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Vestibulectomy today and no pain

Go down

Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 9:45 pm

So I just had my full vestibulectomy this morning 4.5 hours ago. I feel no pain whatsoever. My throat hurts, but that is it. While this is a good thing, I'm confused. When I read women's blogs to get an idea of what to expect, they said they couldn't get out of bed the first day. They talked about intense pain, which was nothing like how my doctor described it. But just to be prepared, I lined up babysitters for this week.

When I talked with doctor, he said you'll be able to get out of bed. You could even go to work the next day, but you'll be sore....just take pain meds and sitz baths, and you'll be fine.

So doctors version was way less intense that what is on those blogs.

But I'm not even experiencing any soreness or pain at all...not even to level doctor described. Is it because I'm still dumb or pain meds given during surgery. ...will the pain come later?

Dsrt16

Posts : 5
Join date : 2017-11-14

View user profile

Back to top Go down

Re: Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 10:03 pm

I'm trYing to determine if I should tell my sitter I don't need her tomorrow. ...

Dsrt16

Posts : 5
Join date : 2017-11-14

View user profile

Back to top Go down

Re: Vestibulectomy today and no pain

Post  VVSSufferer on Fri Nov 17, 2017 10:14 am

Hey girl! How you feeling? x

VVSSufferer

Posts : 5
Join date : 2017-10-10

View user profile

Back to top Go down

Re: Vestibulectomy today and no pain

Post  Dsrt16 on Fri Nov 17, 2017 3:28 pm

The past few days have brought minor pain--some burning and stinging. But nothing so bad that I need the pain meds I was prescribed. I just use ibuprofen.

Wearing jeans hurt. (I wore them for a,few hours when I wenter to an appointment) bUT that's east to avoid.

I'm not sure how much bleeding is normal, but this morning while going pee, I bled bright red blood the entire time I peed. (So the toilet was just a sea I'd bright red). And I'm still bleeding quite steadily with custant stinging--not that painful just annoying.

I was expecting so much worse.

Dsrt16

Posts : 5
Join date : 2017-11-14

View user profile

Back to top Go down

How are you?

Post  ekaterina1996 on Sat Dec 02, 2017 11:24 pm

Hey, friend!
I want to ask you, how are you? Did your bleeding stop? It sounded very frightening, because I am afraid of blood!
I plan to have vestibulectomy, and I would like to collect as much information about the condition before and after the operation!
I hope your condition will be better and better! Like a Star @ heaven


ekaterina1996

Posts : 6
Join date : 2017-11-03

View user profile

Back to top Go down

Doing well

Post  Dsrt16 on Sat Dec 02, 2017 11:50 pm

I probably am not the right person to give you information about the surgery. I had a very, very EASY recovery. I experienced some burning and stinging for about a week and a half, but that was it. It wasn't painful, just uncomfortable. I only need ibuprofen not the strong stuff they gave me.

The peeing tons of blood only happened because I overdid the first few days after my surgery. Since I didn't feel any pain, I just did everything I normally do. My body didn't like that and reacted, so I rested the next day and bleeding stopped.

I saw the doctor yesterday, and he said it is still healing so not to use tampon or have sex for another 4 weeks, but I am 100% fine in terms of how I feel. I don't need a donut to sit, and I don't feel any burning or stinging anymore and my surgery was only 2 weeks ago.

From what I understand on this facebook group for women having a vestibulectomy, my experience was abnormal. Many of them discuss being bed ridden or in tons of pain.

I suggest going to the facebook group to gather more information: Vestibulectomy Surgery and Vestibulodynia Support Group. (Just type that into the search bar)

Dsrt16

Posts : 5
Join date : 2017-11-14

View user profile

Back to top Go down

Great news!

Post  ekaterina1996 on Sun Dec 03, 2017 12:22 am

Oh, I am so happy for you! (crossed fingers, so you will be okay more and more)
You are really unusual that you started doing everyday things so quickly. But it's very wonderful!
Thank you for your advice, I'm going to this group right now! I love you

ekaterina1996

Posts : 6
Join date : 2017-11-03

View user profile

Back to top Go down

Good News

Post  Sandra4372 on Thu Jan 18, 2018 4:53 am

I'm so glad you are doing well. This is great to hear!!

Sandra4372

Posts : 9
Join date : 2016-09-14

View user profile

Back to top Go down

Re: Vestibulectomy today and no pain

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum