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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Vestibulectomy today and no pain
4 posters
Page 1 of 1
Vestibulectomy today and no pain
So I just had my full vestibulectomy this morning 4.5 hours ago. I feel no pain whatsoever. My throat hurts, but that is it. While this is a good thing, I'm confused. When I read women's blogs to get an idea of what to expect, they said they couldn't get out of bed the first day. They talked about intense pain, which was nothing like how my doctor described it. But just to be prepared, I lined up babysitters for this week.
When I talked with doctor, he said you'll be able to get out of bed. You could even go to work the next day, but you'll be sore....just take pain meds and sitz baths, and you'll be fine.
So doctors version was way less intense that what is on those blogs.
But I'm not even experiencing any soreness or pain at all...not even to level doctor described. Is it because I'm still dumb or pain meds given during surgery. ...will the pain come later?
When I talked with doctor, he said you'll be able to get out of bed. You could even go to work the next day, but you'll be sore....just take pain meds and sitz baths, and you'll be fine.
So doctors version was way less intense that what is on those blogs.
But I'm not even experiencing any soreness or pain at all...not even to level doctor described. Is it because I'm still dumb or pain meds given during surgery. ...will the pain come later?
Dsrt16- Posts : 5
Join date : 2017-11-14
Re: Vestibulectomy today and no pain
I'm trYing to determine if I should tell my sitter I don't need her tomorrow. ...
Dsrt16- Posts : 5
Join date : 2017-11-14
Re: Vestibulectomy today and no pain
Hey girl! How you feeling? x
VVSSufferer- Posts : 6
Join date : 2017-10-10
Re: Vestibulectomy today and no pain
The past few days have brought minor pain--some burning and stinging. But nothing so bad that I need the pain meds I was prescribed. I just use ibuprofen.
Wearing jeans hurt. (I wore them for a,few hours when I wenter to an appointment) bUT that's east to avoid.
I'm not sure how much bleeding is normal, but this morning while going pee, I bled bright red blood the entire time I peed. (So the toilet was just a sea I'd bright red). And I'm still bleeding quite steadily with custant stinging--not that painful just annoying.
I was expecting so much worse.
Wearing jeans hurt. (I wore them for a,few hours when I wenter to an appointment) bUT that's east to avoid.
I'm not sure how much bleeding is normal, but this morning while going pee, I bled bright red blood the entire time I peed. (So the toilet was just a sea I'd bright red). And I'm still bleeding quite steadily with custant stinging--not that painful just annoying.
I was expecting so much worse.
Dsrt16- Posts : 5
Join date : 2017-11-14
How are you?
Hey, friend!
I want to ask you, how are you? Did your bleeding stop? It sounded very frightening, because I am afraid of blood!
I plan to have vestibulectomy, and I would like to collect as much information about the condition before and after the operation!
I hope your condition will be better and better!
I want to ask you, how are you? Did your bleeding stop? It sounded very frightening, because I am afraid of blood!
I plan to have vestibulectomy, and I would like to collect as much information about the condition before and after the operation!
I hope your condition will be better and better!
ekaterina1996- Posts : 6
Join date : 2017-11-03
Doing well
I probably am not the right person to give you information about the surgery. I had a very, very EASY recovery. I experienced some burning and stinging for about a week and a half, but that was it. It wasn't painful, just uncomfortable. I only need ibuprofen not the strong stuff they gave me.
The peeing tons of blood only happened because I overdid the first few days after my surgery. Since I didn't feel any pain, I just did everything I normally do. My body didn't like that and reacted, so I rested the next day and bleeding stopped.
I saw the doctor yesterday, and he said it is still healing so not to use tampon or have sex for another 4 weeks, but I am 100% fine in terms of how I feel. I don't need a donut to sit, and I don't feel any burning or stinging anymore and my surgery was only 2 weeks ago.
From what I understand on this facebook group for women having a vestibulectomy, my experience was abnormal. Many of them discuss being bed ridden or in tons of pain.
I suggest going to the facebook group to gather more information: Vestibulectomy Surgery and Vestibulodynia Support Group. (Just type that into the search bar)
The peeing tons of blood only happened because I overdid the first few days after my surgery. Since I didn't feel any pain, I just did everything I normally do. My body didn't like that and reacted, so I rested the next day and bleeding stopped.
I saw the doctor yesterday, and he said it is still healing so not to use tampon or have sex for another 4 weeks, but I am 100% fine in terms of how I feel. I don't need a donut to sit, and I don't feel any burning or stinging anymore and my surgery was only 2 weeks ago.
From what I understand on this facebook group for women having a vestibulectomy, my experience was abnormal. Many of them discuss being bed ridden or in tons of pain.
I suggest going to the facebook group to gather more information: Vestibulectomy Surgery and Vestibulodynia Support Group. (Just type that into the search bar)
Dsrt16- Posts : 5
Join date : 2017-11-14
Great news!
Oh, I am so happy for you! (crossed fingers, so you will be okay more and more)
You are really unusual that you started doing everyday things so quickly. But it's very wonderful!
Thank you for your advice, I'm going to this group right now!
You are really unusual that you started doing everyday things so quickly. But it's very wonderful!
Thank you for your advice, I'm going to this group right now!
ekaterina1996- Posts : 6
Join date : 2017-11-03
Good News
I'm so glad you are doing well. This is great to hear!!
Sandra4372- Posts : 9
Join date : 2016-09-14
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer