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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Vestibulectomy today and no pain

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Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 9:45 pm

So I just had my full vestibulectomy this morning 4.5 hours ago. I feel no pain whatsoever. My throat hurts, but that is it. While this is a good thing, I'm confused. When I read women's blogs to get an idea of what to expect, they said they couldn't get out of bed the first day. They talked about intense pain, which was nothing like how my doctor described it. But just to be prepared, I lined up babysitters for this week.

When I talked with doctor, he said you'll be able to get out of bed. You could even go to work the next day, but you'll be sore....just take pain meds and sitz baths, and you'll be fine.

So doctors version was way less intense that what is on those blogs.

But I'm not even experiencing any soreness or pain at all...not even to level doctor described. Is it because I'm still dumb or pain meds given during surgery. ...will the pain come later?

Dsrt16

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Re: Vestibulectomy today and no pain

Post  Dsrt16 on Tue Nov 14, 2017 10:03 pm

I'm trYing to determine if I should tell my sitter I don't need her tomorrow. ...

Dsrt16

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Re: Vestibulectomy today and no pain

Post  VVSSufferer on Fri Nov 17, 2017 10:14 am

Hey girl! How you feeling? x

VVSSufferer

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Re: Vestibulectomy today and no pain

Post  Dsrt16 on Fri Nov 17, 2017 3:28 pm

The past few days have brought minor pain--some burning and stinging. But nothing so bad that I need the pain meds I was prescribed. I just use ibuprofen.

Wearing jeans hurt. (I wore them for a,few hours when I wenter to an appointment) bUT that's east to avoid.

I'm not sure how much bleeding is normal, but this morning while going pee, I bled bright red blood the entire time I peed. (So the toilet was just a sea I'd bright red). And I'm still bleeding quite steadily with custant stinging--not that painful just annoying.

I was expecting so much worse.

Dsrt16

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How are you?

Post  ekaterina1996 on Sat Dec 02, 2017 11:24 pm

Hey, friend!
I want to ask you, how are you? Did your bleeding stop? It sounded very frightening, because I am afraid of blood!
I plan to have vestibulectomy, and I would like to collect as much information about the condition before and after the operation!
I hope your condition will be better and better! Like a Star @ heaven


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Doing well

Post  Dsrt16 on Sat Dec 02, 2017 11:50 pm

I probably am not the right person to give you information about the surgery. I had a very, very EASY recovery. I experienced some burning and stinging for about a week and a half, but that was it. It wasn't painful, just uncomfortable. I only need ibuprofen not the strong stuff they gave me.

The peeing tons of blood only happened because I overdid the first few days after my surgery. Since I didn't feel any pain, I just did everything I normally do. My body didn't like that and reacted, so I rested the next day and bleeding stopped.

I saw the doctor yesterday, and he said it is still healing so not to use tampon or have sex for another 4 weeks, but I am 100% fine in terms of how I feel. I don't need a donut to sit, and I don't feel any burning or stinging anymore and my surgery was only 2 weeks ago.

From what I understand on this facebook group for women having a vestibulectomy, my experience was abnormal. Many of them discuss being bed ridden or in tons of pain.

I suggest going to the facebook group to gather more information: Vestibulectomy Surgery and Vestibulodynia Support Group. (Just type that into the search bar)

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Great news!

Post  ekaterina1996 on Sun Dec 03, 2017 12:22 am

Oh, I am so happy for you! (crossed fingers, so you will be okay more and more)
You are really unusual that you started doing everyday things so quickly. But it's very wonderful!
Thank you for your advice, I'm going to this group right now! I love you

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Good News

Post  Sandra4372 on Thu Jan 18, 2018 4:53 am

I'm so glad you are doing well. This is great to hear!!

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Re: Vestibulectomy today and no pain

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