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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Laser or Botox Injections for treating vulvodynia

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Laser or Botox Injections for treating vulvodynia

Post  mhhh on Sun Nov 26, 2017 12:10 pm

Hello everyone!
It is great to find a support group for vulvodynia. I am 26 years old and recently married. Been a virgin until my wedding, the point at which I realized I have a problem in my lady land. I've experienced alot of pain during intercourse and my gyno insisted that it is because I have a thick hymen (I never tried using tampons and inserting anything down there). I believed that, but months have passed and the pain persisted and obviously was not a hymen issue. I changed my gyno and found a doctor who did a Q-tip test and diagnosed my with vulvodynia and vaginismus which resulted from vulvodynia. I overcame vaginismus by perfoming kegel exercises and learning to relax during intercourse.
However, vulvodynia is not stress related and no matter how calm and ready I am for intercourse, the pain is just there. My gyno prescribed Amitriptyline as a first solution. Started off with a low dose of 12.5mg each night, then increased to 25mg. I found relief for a few weeks at 25mg, but the pain re-emerged out of the blue. I increased my dose up to 50mg (been on that for 6 weeks now), pain subsided a little and I am able to have less painful intercourse. I have some good days and some bad painful days. I do not know why it is like this and why the pain reoccurs. The 50mg dose is also causing me terrible constipation and a little increase in my weight (which no amount of exercise is bringing it back to original). I hate the fact that I need to be on meds and taking pills every night with the side effects. And what makes it all worse is the pain recurring on some days for no reason. I am looking for an alternative option that does not require taking pills or meds for the rest of my life.

In this regard, my gyno has suggested laser therapy and mentioned Botox injections at the areas that hurt (around and at the entrance of the vaginal opening). I am waiting for more details from her (as she is currently on her vacation). Meanwhile, I am starting to consider one of these options, mainly laser. Has anyone tried laser and had success with it? What about Botox injections? I would really appreciate some insight into this. I've read several research articles on this, but I would love to hear from you ladies who have performed any of these procedures and found relief.

It sucks not being able to enjoy sex and having to "plan" intimate times with my husband instead of being spontaneous. But am lucky that my husband is extremely supportive, optimistic, and empathetic. It even sucks more that vulvodynia is a very unknown condition to women (maybe because we do not discuss it openly with each other cause we feel ashamed to be suffering in bed when sex is supposed to be something pleasurable and enjoyable).

I will be awaiting response and feedback from anyone who has more info on laser and botox injections whether you have tried them, heard of them, or know of someone who has tried them.

mhhh

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Re: Laser or Botox Injections for treating vulvodynia

Post  x_chelss@live.com on Sun Nov 26, 2017 8:41 pm

Hey, I’m sorry you’re going through this

I had vulvodynia since I was 15, and in 2015 I had surgery. I suffered for 2 and a half years wiith different treatments 3 of them being what you are wanting answers for.

I was on amitripyline for around 6 months, I upped my dosage gradually weekly but I had to come off it quite suddenly because it made me so unhinged.

I also had the laser treatment but that didn’t work for me, they also tried to laser off 2 of my glands either side of my urethra to try and help with the pain but it didn’t help.

Finally... the Botox was by far the most beneficial treatment I had a side from the surgery. I had Botox injected into my pelvic floor muscle to stop my vagina from “scrunching up” every time I tried to enter something inside me.
I had Botox in 2015, and haven’t had it since. I now have no issues with my muscle anymore now.

I hope you find something that helps for you. Xx

x_chelss@live.com

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Re: Laser or Botox Injections for treating vulvodynia

Post  mhhh on Tue Nov 28, 2017 5:48 pm

Hello! Thank you for your feedback Smile
Was your pain due to your vaginal muscles just crunching up and contracting upon penetration or was it pain in the skin at the vaginal opening as a result of touch and friction? May I ask you what kind of laser was used (is it low level laser or something else). Would appreciate it if you can specify the laser type. Also, how many sessions did you have of laser treatment and to whoch areas specifically. At the vaginal entrance? Was it to treat your muscle spasm or your vulva burning pain upon touch?? Where there any side effects from your laser therapy such as scarring..or none?
Can you also let me know about the botox injections? Amount..how many rounds did you need...?
Sharing your experience would be really helpful Smile

mhhh

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Re: Laser or Botox Injections for treating vulvodynia

Post  sarisbaris on Wed Dec 06, 2017 6:04 am

I battled V for 15 years and I consider myself cured now. During that time I saw 15/20 western docs and 15+ alternative docs. It was ridiculous. I found a few things that helped and learned how to manage the pain but I never considered myself cured until Anthony William's protocols. Basically, according to him 90% of vaginal burning cases are caused by an unknown/currently undetectable strain of the strep. The other 10% are caused by unknown/currently undetectable strain of the shingles. I had both. FML. His strep protocol cured the internal/outer burning. Then his shingles protocol cured a rash I would sometimes get. Go to my blog. Scroll down to the necessary reading section. Listen to all those shows listed. For you, I would start with the strep, epstein and UTI shows. His stuff works. It worked for me.

My vagina is back to her normal self. I can have wild sex and I'm totally fine, during and after. Even with spontaneous sex Wink It might take some time to heal unless you opt to do the raw veggie cleanse. He mentions this cleanse in his first book titled Medical Medium. My pain was like a chemical burn. I basically just made sex impossible or at least not very enjoyable, even when it didn't flair. Since I saw so many doctors until I found Anthony William and have been with my husband the whole time, I found some tricks. We've been together for 20 years. Start with a foot massage. Have him rub your feet. Find a spot that hurts, in a good way. Like a someone massaging a knot out of your back. Rub this spot out. Your whole body is connected. (I went acupuncturists for years) If you want to get real sexual healing, have him hold down on a painful (yet good) spot while he makes you orgasm. You can actually feel the energy go to this spot as well your lady parts. It's real sexual healing. No joke.

Also, my acupuncturist recommended Shuangliao Houfeng San which I list on my blog. It's a powder and it will cool your vagina down. But I'm not sure what type of pain you have so I'm not sure if it will help. It was a godsend for us and saved our sex life. I was instructed to have some coconut oil on my finger, sprinkle the powder on my finger and rub it inside the vagina walls. Its like a cool shower right up your vagina, it was such a relief. I was planning to do this one day and my husband suggested that he put the powder on himself. OMG. We had sex this way for more than 10 years. For me, it really helped the medicine reach deep inside and cooled down my whole vagina. Can I get an amen? But I recommend first trying a little on yourself before you ask your partner to get involved. It smells like holy hell but I doubt your partner will mind since he will be having sex Wink

I would highly recommend curing your body rather than using botox. I'm part of an online community that follow Anthony William and some of the woman had horrible reactions to botox and now are trying to cure the side effects. I'm sure these women were just using it on their face though.

The virus that we have feeds on the hormones during pregnancy. So before you start building a family, I highly suggest fixing this first. You can truly fix it. Mine wasn't too bad for a few years, sex wasn't the best but I still got pregnant. At 4 months pregnant the burning began. It just jumped to levels 8/9 of burning. It was a nightmare. My doctor tried to give me prozac (which was later discovered to cause birth defects) because she was afraid that I was going to commit suicide. Vulvodynia sufferers have a high rate of suicide Sad This is when I was led to some of the things Anthony William talks about which alleviated the pain. Now with his information, you have a straight forward plan to fix this.

You are not alone. Let me know if you have any questions.

Sarah
sarahcamp20@gmail.com
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

sarisbaris

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