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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Laser or Botox Injections for treating vulvodynia

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Laser or Botox Injections for treating vulvodynia

Post  mhhh on Sun Nov 26, 2017 12:10 pm

Hello everyone!
It is great to find a support group for vulvodynia. I am 26 years old and recently married. Been a virgin until my wedding, the point at which I realized I have a problem in my lady land. I've experienced alot of pain during intercourse and my gyno insisted that it is because I have a thick hymen (I never tried using tampons and inserting anything down there). I believed that, but months have passed and the pain persisted and obviously was not a hymen issue. I changed my gyno and found a doctor who did a Q-tip test and diagnosed my with vulvodynia and vaginismus which resulted from vulvodynia. I overcame vaginismus by perfoming kegel exercises and learning to relax during intercourse.
However, vulvodynia is not stress related and no matter how calm and ready I am for intercourse, the pain is just there. My gyno prescribed Amitriptyline as a first solution. Started off with a low dose of 12.5mg each night, then increased to 25mg. I found relief for a few weeks at 25mg, but the pain re-emerged out of the blue. I increased my dose up to 50mg (been on that for 6 weeks now), pain subsided a little and I am able to have less painful intercourse. I have some good days and some bad painful days. I do not know why it is like this and why the pain reoccurs. The 50mg dose is also causing me terrible constipation and a little increase in my weight (which no amount of exercise is bringing it back to original). I hate the fact that I need to be on meds and taking pills every night with the side effects. And what makes it all worse is the pain recurring on some days for no reason. I am looking for an alternative option that does not require taking pills or meds for the rest of my life.

In this regard, my gyno has suggested laser therapy and mentioned Botox injections at the areas that hurt (around and at the entrance of the vaginal opening). I am waiting for more details from her (as she is currently on her vacation). Meanwhile, I am starting to consider one of these options, mainly laser. Has anyone tried laser and had success with it? What about Botox injections? I would really appreciate some insight into this. I've read several research articles on this, but I would love to hear from you ladies who have performed any of these procedures and found relief.

It sucks not being able to enjoy sex and having to "plan" intimate times with my husband instead of being spontaneous. But am lucky that my husband is extremely supportive, optimistic, and empathetic. It even sucks more that vulvodynia is a very unknown condition to women (maybe because we do not discuss it openly with each other cause we feel ashamed to be suffering in bed when sex is supposed to be something pleasurable and enjoyable).

I will be awaiting response and feedback from anyone who has more info on laser and botox injections whether you have tried them, heard of them, or know of someone who has tried them.


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Re: Laser or Botox Injections for treating vulvodynia

Post  x_chelss@live.com on Sun Nov 26, 2017 8:41 pm

Hey, I’m sorry you’re going through this

I had vulvodynia since I was 15, and in 2015 I had surgery. I suffered for 2 and a half years wiith different treatments 3 of them being what you are wanting answers for.

I was on amitripyline for around 6 months, I upped my dosage gradually weekly but I had to come off it quite suddenly because it made me so unhinged.

I also had the laser treatment but that didn’t work for me, they also tried to laser off 2 of my glands either side of my urethra to try and help with the pain but it didn’t help.

Finally... the Botox was by far the most beneficial treatment I had a side from the surgery. I had Botox injected into my pelvic floor muscle to stop my vagina from “scrunching up” every time I tried to enter something inside me.
I had Botox in 2015, and haven’t had it since. I now have no issues with my muscle anymore now.

I hope you find something that helps for you. Xx


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Re: Laser or Botox Injections for treating vulvodynia

Post  mhhh on Tue Nov 28, 2017 5:48 pm

Hello! Thank you for your feedback Smile
Was your pain due to your vaginal muscles just crunching up and contracting upon penetration or was it pain in the skin at the vaginal opening as a result of touch and friction? May I ask you what kind of laser was used (is it low level laser or something else). Would appreciate it if you can specify the laser type. Also, how many sessions did you have of laser treatment and to whoch areas specifically. At the vaginal entrance? Was it to treat your muscle spasm or your vulva burning pain upon touch?? Where there any side effects from your laser therapy such as scarring..or none?
Can you also let me know about the botox injections? Amount..how many rounds did you need...?
Sharing your experience would be really helpful Smile


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Re: Laser or Botox Injections for treating vulvodynia

Post  sarisbaris on Wed Dec 06, 2017 6:04 am

I battled V for 15 years and I consider myself cured now. During that time I saw 15/20 western docs and 15+ alternative docs. It was ridiculous. I found a few things that helped and learned how to manage the pain but I never considered myself cured until Anthony William's protocols. Basically, according to him 90% of vaginal burning cases are caused by an unknown/currently undetectable strain of the strep. The other 10% are caused by unknown/currently undetectable strain of the shingles. I had both. FML. His strep protocol cured the internal/outer burning. Then his shingles protocol cured a rash I would sometimes get. Go to my blog. Scroll down to the necessary reading section. Listen to all those shows listed. For you, I would start with the strep, epstein and UTI shows. His stuff works. It worked for me.

My vagina is back to her normal self. I can have wild sex and I'm totally fine, during and after. Even with spontaneous sex Wink It might take some time to heal unless you opt to do the raw veggie cleanse. He mentions this cleanse in his first book titled Medical Medium. My pain was like a chemical burn. I basically just made sex impossible or at least not very enjoyable, even when it didn't flair. Since I saw so many doctors until I found Anthony William and have been with my husband the whole time, I found some tricks. We've been together for 20 years. Start with a foot massage. Have him rub your feet. Find a spot that hurts, in a good way. Like a someone massaging a knot out of your back. Rub this spot out. Your whole body is connected. (I went acupuncturists for years) If you want to get real sexual healing, have him hold down on a painful (yet good) spot while he makes you orgasm. You can actually feel the energy go to this spot as well your lady parts. It's real sexual healing. No joke.

Also, my acupuncturist recommended Shuangliao Houfeng San which I list on my blog. It's a powder and it will cool your vagina down. But I'm not sure what type of pain you have so I'm not sure if it will help. It was a godsend for us and saved our sex life. I was instructed to have some coconut oil on my finger, sprinkle the powder on my finger and rub it inside the vagina walls. Its like a cool shower right up your vagina, it was such a relief. I was planning to do this one day and my husband suggested that he put the powder on himself. OMG. We had sex this way for more than 10 years. For me, it really helped the medicine reach deep inside and cooled down my whole vagina. Can I get an amen? But I recommend first trying a little on yourself before you ask your partner to get involved. It smells like holy hell but I doubt your partner will mind since he will be having sex Wink

I would highly recommend curing your body rather than using botox. I'm part of an online community that follow Anthony William and some of the woman had horrible reactions to botox and now are trying to cure the side effects. I'm sure these women were just using it on their face though.

The virus that we have feeds on the hormones during pregnancy. So before you start building a family, I highly suggest fixing this first. You can truly fix it. Mine wasn't too bad for a few years, sex wasn't the best but I still got pregnant. At 4 months pregnant the burning began. It just jumped to levels 8/9 of burning. It was a nightmare. My doctor tried to give me prozac (which was later discovered to cause birth defects) because she was afraid that I was going to commit suicide. Vulvodynia sufferers have a high rate of suicide Sad This is when I was led to some of the things Anthony William talks about which alleviated the pain. Now with his information, you have a straight forward plan to fix this.

You are not alone. Let me know if you have any questions.



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