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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


7 years later and life looks bleak :(

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7 years later and life looks bleak :(

Post  RainyShay77 on Wed Dec 06, 2017 2:50 am

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, neurontin, lyrica, flexeril) to no avail. The only time I seem to get relief is if I take Diflucan. I mentioned this to my gyn and a few years ago I did a candida diet for 6 months...we did daily Diflucan for 2 weeks (at the end of the 2 weeks I honestly thought I was cured). Then we did 3 pills a week and then went down to 1 pill a week. By the 1 pill a week my symptoms were flared back up. We repeated the 2 weeks an additional 2 times. Sadly, each time the same thing would happen when I got to the 1 pill a week. My specialist now thinks it is nerve related, but I am becoming skeptical. None of the medications have eased the pain at all, only the Diflucan. I don't date, mostly because I don't want to saddle some poor guy with a 'broken' woman who could never be intimate. At this point, I feel like I'll have to spend forever alone. If anyone has ever experienced relief with Diflucan or could offer suggestions I'd be so happy to speak with you. Thank you.

RainyShay77

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Every woman on this forum with you!

Post  ekaterina1996 on Wed Dec 06, 2017 5:10 am

Hello, dear friend!
I understand you, I am in this condition for the last 2 year, I know what you mean about burning, itching and other kinds of terrible pain. Other women in this forum too. I want to tell you that you can not be in this state forever. No one can be in this state forever. Every woman has to go a long way to find her successful treatment. Have you tried botox injections? Laser? Surgery? You must continue finding of your own treatment, because every woman has various reasons for the pain. Be strong and read more literature about your illness, find research about your symptoms. You will be successful! (sorry for my English, it is my 2nd language)

ekaterina1996

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Wed Dec 06, 2017 5:25 am

I battled V for 15 years and I consider myself cured now. During that time I saw 15/20 western docs and 15+ alternative docs. It was ridiculous. I found a few things that helped and learned how to manage the pain but I never considered myself cured until Anthony William's protocols. Basically, according to him 90% of vaginal burning cases are caused by an unknown/currently undetectable strain of the strep. The other 10% are caused by unknown/currently undetectable strain of the shingles. I had both. FML. His strep protocol cured the internal/outer burning. Then his shingles protocol cured a rash I would sometimes get. Yeast infections are also caused by strep.

Go to my blog. Scroll down to the necessary reading section. Listen to all those shows listed. For you, I would start with the strep, candida and UTI shows. He actually mentions antifungal medications in the UTI show. He says they will help temporarily but will not fix the underlining problem. Don't worry, he explains how to fix it for good. His stuff works. It worked for me.

And yes, my vagina is back to her normal self. I can have wild sex and I'm totally fine, during and after. Sorry for TMI.... sex was always the ultimate test. Don't give up hope. You are not doing this alone. Let me know if you have any questions.

Sarah
sarahcamp20@gmail.com
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

sarisbaris

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Dec 06, 2017 11:57 pm

Thank you both for your responses Smile I'll look into your blog. If I ask my doctor to test for strep is there a certain strain I should mention to her?

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Thu Dec 07, 2017 12:37 am

Unfortunately, there are currently no tests for these strains. The reason I know that Anthony William's recommendations worked was because I tried the strep protocol and it worked. So I figured that I had strep. There was a remaining rash, so I tried the shingles protocol and that cleared up the rash. I did it backwards.

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Jan 10, 2018 12:51 am

How much is a bushel of cilantro - is that just what you normally get in a bunch at the grocery store?

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Jan 10, 2018 12:54 am

and can you use a juicer instead of a blender and nut bag?

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Thu Jan 11, 2018 1:24 am

At least a cup of cilantro. When I was really sick I would use at least 1/2 bunch to a whole bunch. Try listening to your body. Those small preferences are actually your body trying to communicate what it needs.

Yes, I just use a blender and a nut bag myself. Keep me posted!

sarahcamp20@gmail.com

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Re: 7 years later and life looks bleak :(

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