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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


7 years later and life looks bleak :(

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7 years later and life looks bleak :(

Post  RainyShay77 on Wed Dec 06, 2017 2:50 am

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, neurontin, lyrica, flexeril) to no avail. The only time I seem to get relief is if I take Diflucan. I mentioned this to my gyn and a few years ago I did a candida diet for 6 months...we did daily Diflucan for 2 weeks (at the end of the 2 weeks I honestly thought I was cured). Then we did 3 pills a week and then went down to 1 pill a week. By the 1 pill a week my symptoms were flared back up. We repeated the 2 weeks an additional 2 times. Sadly, each time the same thing would happen when I got to the 1 pill a week. My specialist now thinks it is nerve related, but I am becoming skeptical. None of the medications have eased the pain at all, only the Diflucan. I don't date, mostly because I don't want to saddle some poor guy with a 'broken' woman who could never be intimate. At this point, I feel like I'll have to spend forever alone. If anyone has ever experienced relief with Diflucan or could offer suggestions I'd be so happy to speak with you. Thank you.

RainyShay77

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Every woman on this forum with you!

Post  ekaterina1996 on Wed Dec 06, 2017 5:10 am

Hello, dear friend!
I understand you, I am in this condition for the last 2 year, I know what you mean about burning, itching and other kinds of terrible pain. Other women in this forum too. I want to tell you that you can not be in this state forever. No one can be in this state forever. Every woman has to go a long way to find her successful treatment. Have you tried botox injections? Laser? Surgery? You must continue finding of your own treatment, because every woman has various reasons for the pain. Be strong and read more literature about your illness, find research about your symptoms. You will be successful! (sorry for my English, it is my 2nd language)

ekaterina1996

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Wed Dec 06, 2017 5:25 am

I battled V for 15 years and I consider myself cured now. During that time I saw 15/20 western docs and 15+ alternative docs. It was ridiculous. I found a few things that helped and learned how to manage the pain but I never considered myself cured until Anthony William's protocols. Basically, according to him 90% of vaginal burning cases are caused by an unknown/currently undetectable strain of the strep. The other 10% are caused by unknown/currently undetectable strain of the shingles. I had both. FML. His strep protocol cured the internal/outer burning. Then his shingles protocol cured a rash I would sometimes get. Yeast infections are also caused by strep.

Go to my blog. Scroll down to the necessary reading section. Listen to all those shows listed. For you, I would start with the strep, candida and UTI shows. He actually mentions antifungal medications in the UTI show. He says they will help temporarily but will not fix the underlining problem. Don't worry, he explains how to fix it for good. His stuff works. It worked for me.

And yes, my vagina is back to her normal self. I can have wild sex and I'm totally fine, during and after. Sorry for TMI.... sex was always the ultimate test. Don't give up hope. You are not doing this alone. Let me know if you have any questions.

Sarah
sarahcamp20@gmail.com
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

sarisbaris

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Dec 06, 2017 11:57 pm

Thank you both for your responses Smile I'll look into your blog. If I ask my doctor to test for strep is there a certain strain I should mention to her?

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Thu Dec 07, 2017 12:37 am

Unfortunately, there are currently no tests for these strains. The reason I know that Anthony William's recommendations worked was because I tried the strep protocol and it worked. So I figured that I had strep. There was a remaining rash, so I tried the shingles protocol and that cleared up the rash. I did it backwards.

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Jan 10, 2018 12:51 am

How much is a bushel of cilantro - is that just what you normally get in a bunch at the grocery store?

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Jan 10, 2018 12:54 am

and can you use a juicer instead of a blender and nut bag?

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Thu Jan 11, 2018 1:24 am

At least a cup of cilantro. When I was really sick I would use at least 1/2 bunch to a whole bunch. Try listening to your body. Those small preferences are actually your body trying to communicate what it needs.

Yes, I just use a blender and a nut bag myself. Keep me posted!

sarahcamp20@gmail.com

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Re: 7 years later and life looks bleak :(

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