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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


7 years later and life looks bleak :(

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7 years later and life looks bleak :(

Post  RainyShay77 on Wed Dec 06, 2017 2:50 am

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, neurontin, lyrica, flexeril) to no avail. The only time I seem to get relief is if I take Diflucan. I mentioned this to my gyn and a few years ago I did a candida diet for 6 months...we did daily Diflucan for 2 weeks (at the end of the 2 weeks I honestly thought I was cured). Then we did 3 pills a week and then went down to 1 pill a week. By the 1 pill a week my symptoms were flared back up. We repeated the 2 weeks an additional 2 times. Sadly, each time the same thing would happen when I got to the 1 pill a week. My specialist now thinks it is nerve related, but I am becoming skeptical. None of the medications have eased the pain at all, only the Diflucan. I don't date, mostly because I don't want to saddle some poor guy with a 'broken' woman who could never be intimate. At this point, I feel like I'll have to spend forever alone. If anyone has ever experienced relief with Diflucan or could offer suggestions I'd be so happy to speak with you. Thank you.

RainyShay77

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Every woman on this forum with you!

Post  ekaterina1996 on Wed Dec 06, 2017 5:10 am

Hello, dear friend!
I understand you, I am in this condition for the last 2 year, I know what you mean about burning, itching and other kinds of terrible pain. Other women in this forum too. I want to tell you that you can not be in this state forever. No one can be in this state forever. Every woman has to go a long way to find her successful treatment. Have you tried botox injections? Laser? Surgery? You must continue finding of your own treatment, because every woman has various reasons for the pain. Be strong and read more literature about your illness, find research about your symptoms. You will be successful! (sorry for my English, it is my 2nd language)

ekaterina1996

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Wed Dec 06, 2017 5:25 am

I battled V for 15 years and I consider myself cured now. During that time I saw 15/20 western docs and 15+ alternative docs. It was ridiculous. I found a few things that helped and learned how to manage the pain but I never considered myself cured until Anthony William's protocols. Basically, according to him 90% of vaginal burning cases are caused by an unknown/currently undetectable strain of the strep. The other 10% are caused by unknown/currently undetectable strain of the shingles. I had both. FML. His strep protocol cured the internal/outer burning. Then his shingles protocol cured a rash I would sometimes get. Yeast infections are also caused by strep.

Go to my blog. Scroll down to the necessary reading section. Listen to all those shows listed. For you, I would start with the strep, candida and UTI shows. He actually mentions antifungal medications in the UTI show. He says they will help temporarily but will not fix the underlining problem. Don't worry, he explains how to fix it for good. His stuff works. It worked for me.

And yes, my vagina is back to her normal self. I can have wild sex and I'm totally fine, during and after. Sorry for TMI.... sex was always the ultimate test. Don't give up hope. You are not doing this alone. Let me know if you have any questions.

Sarah
sarahcamp20@gmail.com
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

sarisbaris

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Dec 06, 2017 11:57 pm

Thank you both for your responses Smile I'll look into your blog. If I ask my doctor to test for strep is there a certain strain I should mention to her?

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Thu Dec 07, 2017 12:37 am

Unfortunately, there are currently no tests for these strains. The reason I know that Anthony William's recommendations worked was because I tried the strep protocol and it worked. So I figured that I had strep. There was a remaining rash, so I tried the shingles protocol and that cleared up the rash. I did it backwards.

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Jan 10, 2018 12:51 am

How much is a bushel of cilantro - is that just what you normally get in a bunch at the grocery store?

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Re: 7 years later and life looks bleak :(

Post  RainyShay77 on Wed Jan 10, 2018 12:54 am

and can you use a juicer instead of a blender and nut bag?

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Re: 7 years later and life looks bleak :(

Post  sarisbaris on Thu Jan 11, 2018 1:24 am

At least a cup of cilantro. When I was really sick I would use at least 1/2 bunch to a whole bunch. Try listening to your body. Those small preferences are actually your body trying to communicate what it needs.

Yes, I just use a blender and a nut bag myself. Keep me posted!

sarahcamp20@gmail.com

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Re: 7 years later and life looks bleak :(

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