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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

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I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

Post  acameron on Fri Dec 22, 2017 2:42 am

Let me start with this disclaimer: I suffer from chronic pelvic pain as well, specifically vulvodynia. I am not regarding anyone interested in participating as a "test subject." We are peers sharing experiences.

My name is Annalise and I am a senior at the University of Oregon doing research for an honors thesis. I am conducting a study on the emotional experiences of women with chronic pelvic pain.

For this study to be successful, I am looking for women who suffer from chronic pelvic pain who would be interested in talking to me about their experiences. I can conduct interviews with you over the phone, skype, or in person if possible. Any identifying information will be kept confidential. If you wish to only provide me with your screen name that is okay too, I will only contact you on this platform and with your consent. This is on a voluntary basis so there will be no compensation, but I hope that this research will benefit women like us by alleviating some of the isolating effects of the pain.

I am looking for cisgender females 18 years or older who suffer from chronic pelvic pain originating from a genetically female reproductive system or the bladder/urinary system. In order to participate in this study you must have seen at least one doctor for your pain, and have experienced your pain for more than 50% of one year either consistently or episodically. You do not have to be diagnosed by a doctor with anything specific to participate, but it is okay if you are. Chronic pelvic pain includes, but is not limited to: vulvodynia, ovarian cysts, interstitial cystitis, vulvar vestibulitis, uterine fibroids, lichen sclerosis, pelvic inflammatory disorder, etc.

I am looking to complete an in-depth analysis on the emotional experiences of women who deal with chronic pelvic pain. I will be asking questions that span topics like interactions with medical professionals, experiences with sex and intimacy, coping strategies, and the physical and emotional effects of chronic pain.

If you are interested in participating in this study please let me know and we will go from there, thank you.

acameron

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Join date : 2017-12-22

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