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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

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I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

Post  acameron on Fri Dec 22, 2017 4:03 am

Let me start with this disclaimer: I suffer from chronic pelvic pain as well, specifically vulvodynia. I am not regarding anyone interested in participating as a "test subject." We are peers sharing experiences.

My name is Annalise and I am a senior at the University of Oregon doing research for an honors thesis. I am conducting a study on the emotional experiences of women with chronic pelvic pain.

For this study to be successful, I am looking for women who suffer from chronic pelvic pain who would be interested in talking to me about their experiences. I can conduct interviews with you over the phone, skype, or in person if possible. Any identifying information will be kept confidential. If you wish to only provide me with your screen name that is okay too, I will only contact you on this platform and with your consent. This is on a voluntary basis so there will be no compensation, but I hope that this research will benefit women like us by alleviating some of the isolating effects of the pain.

I am looking for cisgender females 18 years or older who suffer from chronic pelvic pain originating from a genetically female reproductive system or the bladder/urinary system. In order to participate in this study you must have seen at least one doctor for your pain, and have experienced your pain for more than 50% of one year either consistently or episodically. You do not have to be diagnosed by a doctor with anything specific to participate, but it is okay if you are. Chronic pelvic pain includes, but is not limited to: vulvodynia, ovarian cysts, interstitial cystitis, vulvar vestibulitis, uterine fibroids, lichen sclerosis, pelvic inflammatory disorder, etc.

I am looking to complete an in-depth analysis on the emotional experiences of women who deal with chronic pelvic pain. I will be asking questions that span topics like interactions with medical professionals, experiences with sex and intimacy, coping strategies, and the physical and emotional effects of chronic pain.

If you are interested in participating in this study please let me know and we will go from there, thank you.

acameron

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Re: I am a sufferer of vulvodynia doing a sociological study on the experiences of women with chronic pelvic pain

Post  sarisbaris on Tue Jan 02, 2018 11:00 pm

I'd be happy to help but I consider myself cured now. And yes, I know that is rare. I battled V and UTIs for 15 years. So I've seen at least 20 western docs over the years and countless alternative including TCM and acupuncturists. I'm married and I have a toddler. So I have plenty of experience that I can talk about. Here's my blog. I really need to add more about personal testimony but I haven't found the time yet Wink
http://myvulvodyniacure.blogspot.com/


sarisbaris

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