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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Hi there, I'm new :)

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Hi there, I'm new :)

Post  ZippyZo on Wed Dec 27, 2017 2:44 pm

Hi guys,

I'm here because I just need to vent to someone who will take me seriously! Unfortunately I don't think there's anything unique about my story.

I'm 24, nearly 25 and I was diagnosed only last month. I started seeing a guy in May and we began sleeping with each other in August. Around a week after I thought I had thrush, so I treated myself. Every time I thought it had cleared up, it came back again. I was finally diagnosed in September with a staff infection, so I was given antibiotics. The pain had become unbearable from the first day of taking the antibiotics to the point where I found myself crying at work because I couldn't sit down. The doctors gave me the 'wear cotton underwear, don't use fragrant soaps etc' talk and told me to get tested for STDs at a clinic. I was clear of all infections, and was finally prescribed with Amitriptyline and referred to a gyno where she diagnosed me with vulvodynia.

After being on Amitriptyline for a month, I was beginning to feel normal. I could touch myself without fear of pain, so I thought I'd give it a go with the guy I'm seeing. Only now, the pain is back and I'm anxious because I can't be sure if he's reinfected me or if it's still vulvodynia. I'm so anxious and depressed that I feel I need to end this relationship because of the grief it's causing me. I can't even be sure if it was him that infected me in the first place... I just feel like giving up sex at least for the time being because I don't think it's fair on either of us - I want him to have a happy sex life too and I don't think he can have it with me. I've been prescribed lidocaine (really hard to get hold of!) Has anyone found this useful?

I'm finding it hard to keep my emotions under control when it's all I can think about. My boss is worried about me and she said she understands if I don't want to talk about it, but I do feel like I owe her an explanation.

I have so much to get off my chest, but this post is long enough as it is! Any advice would be really appreciated Smile


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Re: Hi there, I'm new :)

Post  fairlight10 on Sat Dec 30, 2017 1:05 pm

Hi zippy zo. I am glad the amitryptyline is helping you. It will settle back down again. Make sure your partner has nothing on his skin that could irritate your delicate area. A gentle lube called yes may help. The drug you are on is desensitising that area. This takes time and you need to give it more time. I have found that getting upset will also unsettle your nerves down there. I hope this will help and it can get better.


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Re: Hi there, I'm new :)

Post  sarisbaris on Tue Jan 02, 2018 10:53 pm

Hang in there! I battled V for 15 years. I consider myself cured now. And to clarify, it didn't take 15 years to cure. It actually didn't take long once, I found right advice that truely understood what was going on. First, can you describe you symptom more? It could be two possibilities. An unknown and currently undetectable strain of strep virus or shingles virus. Don't worry, I had both and cured both of them.

Here's my blog. Let me know if you have any questions.


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Re: Hi there, I'm new :)

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