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Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Hi there, I'm new :)

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Hi there, I'm new :)

Post  ZippyZo on Wed Dec 27, 2017 2:44 pm

Hi guys,

I'm here because I just need to vent to someone who will take me seriously! Unfortunately I don't think there's anything unique about my story.

I'm 24, nearly 25 and I was diagnosed only last month. I started seeing a guy in May and we began sleeping with each other in August. Around a week after I thought I had thrush, so I treated myself. Every time I thought it had cleared up, it came back again. I was finally diagnosed in September with a staff infection, so I was given antibiotics. The pain had become unbearable from the first day of taking the antibiotics to the point where I found myself crying at work because I couldn't sit down. The doctors gave me the 'wear cotton underwear, don't use fragrant soaps etc' talk and told me to get tested for STDs at a clinic. I was clear of all infections, and was finally prescribed with Amitriptyline and referred to a gyno where she diagnosed me with vulvodynia.

After being on Amitriptyline for a month, I was beginning to feel normal. I could touch myself without fear of pain, so I thought I'd give it a go with the guy I'm seeing. Only now, the pain is back and I'm anxious because I can't be sure if he's reinfected me or if it's still vulvodynia. I'm so anxious and depressed that I feel I need to end this relationship because of the grief it's causing me. I can't even be sure if it was him that infected me in the first place... I just feel like giving up sex at least for the time being because I don't think it's fair on either of us - I want him to have a happy sex life too and I don't think he can have it with me. I've been prescribed lidocaine (really hard to get hold of!) Has anyone found this useful?

I'm finding it hard to keep my emotions under control when it's all I can think about. My boss is worried about me and she said she understands if I don't want to talk about it, but I do feel like I owe her an explanation.

I have so much to get off my chest, but this post is long enough as it is! Any advice would be really appreciated Smile


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Re: Hi there, I'm new :)

Post  fairlight10 on Sat Dec 30, 2017 1:05 pm

Hi zippy zo. I am glad the amitryptyline is helping you. It will settle back down again. Make sure your partner has nothing on his skin that could irritate your delicate area. A gentle lube called yes may help. The drug you are on is desensitising that area. This takes time and you need to give it more time. I have found that getting upset will also unsettle your nerves down there. I hope this will help and it can get better.


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Re: Hi there, I'm new :)

Post  sarisbaris on Tue Jan 02, 2018 10:53 pm

Hang in there! I battled V for 15 years. I consider myself cured now. And to clarify, it didn't take 15 years to cure. It actually didn't take long once, I found right advice that truely understood what was going on. First, can you describe you symptom more? It could be two possibilities. An unknown and currently undetectable strain of strep virus or shingles virus. Don't worry, I had both and cured both of them.

Here's my blog. Let me know if you have any questions.


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Re: Hi there, I'm new :)

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