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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi there, I'm new :)

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Hi there, I'm new :)

Post  ZippyZo on Wed Dec 27, 2017 2:44 pm

Hi guys,

I'm here because I just need to vent to someone who will take me seriously! Unfortunately I don't think there's anything unique about my story.

I'm 24, nearly 25 and I was diagnosed only last month. I started seeing a guy in May and we began sleeping with each other in August. Around a week after I thought I had thrush, so I treated myself. Every time I thought it had cleared up, it came back again. I was finally diagnosed in September with a staff infection, so I was given antibiotics. The pain had become unbearable from the first day of taking the antibiotics to the point where I found myself crying at work because I couldn't sit down. The doctors gave me the 'wear cotton underwear, don't use fragrant soaps etc' talk and told me to get tested for STDs at a clinic. I was clear of all infections, and was finally prescribed with Amitriptyline and referred to a gyno where she diagnosed me with vulvodynia.

After being on Amitriptyline for a month, I was beginning to feel normal. I could touch myself without fear of pain, so I thought I'd give it a go with the guy I'm seeing. Only now, the pain is back and I'm anxious because I can't be sure if he's reinfected me or if it's still vulvodynia. I'm so anxious and depressed that I feel I need to end this relationship because of the grief it's causing me. I can't even be sure if it was him that infected me in the first place... I just feel like giving up sex at least for the time being because I don't think it's fair on either of us - I want him to have a happy sex life too and I don't think he can have it with me. I've been prescribed lidocaine (really hard to get hold of!) Has anyone found this useful?

I'm finding it hard to keep my emotions under control when it's all I can think about. My boss is worried about me and she said she understands if I don't want to talk about it, but I do feel like I owe her an explanation.

I have so much to get off my chest, but this post is long enough as it is! Any advice would be really appreciated Smile


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Re: Hi there, I'm new :)

Post  fairlight10 on Sat Dec 30, 2017 1:05 pm

Hi zippy zo. I am glad the amitryptyline is helping you. It will settle back down again. Make sure your partner has nothing on his skin that could irritate your delicate area. A gentle lube called yes may help. The drug you are on is desensitising that area. This takes time and you need to give it more time. I have found that getting upset will also unsettle your nerves down there. I hope this will help and it can get better.


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Re: Hi there, I'm new :)

Post  sarisbaris on Tue Jan 02, 2018 10:53 pm

Hang in there! I battled V for 15 years. I consider myself cured now. And to clarify, it didn't take 15 years to cure. It actually didn't take long once, I found right advice that truely understood what was going on. First, can you describe you symptom more? It could be two possibilities. An unknown and currently undetectable strain of strep virus or shingles virus. Don't worry, I had both and cured both of them.

Here's my blog. Let me know if you have any questions.


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