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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Hi there, I'm new :)

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Hi there, I'm new :)

Post  ZippyZo on Wed Dec 27, 2017 2:44 pm

Hi guys,

I'm here because I just need to vent to someone who will take me seriously! Unfortunately I don't think there's anything unique about my story.

I'm 24, nearly 25 and I was diagnosed only last month. I started seeing a guy in May and we began sleeping with each other in August. Around a week after I thought I had thrush, so I treated myself. Every time I thought it had cleared up, it came back again. I was finally diagnosed in September with a staff infection, so I was given antibiotics. The pain had become unbearable from the first day of taking the antibiotics to the point where I found myself crying at work because I couldn't sit down. The doctors gave me the 'wear cotton underwear, don't use fragrant soaps etc' talk and told me to get tested for STDs at a clinic. I was clear of all infections, and was finally prescribed with Amitriptyline and referred to a gyno where she diagnosed me with vulvodynia.

After being on Amitriptyline for a month, I was beginning to feel normal. I could touch myself without fear of pain, so I thought I'd give it a go with the guy I'm seeing. Only now, the pain is back and I'm anxious because I can't be sure if he's reinfected me or if it's still vulvodynia. I'm so anxious and depressed that I feel I need to end this relationship because of the grief it's causing me. I can't even be sure if it was him that infected me in the first place... I just feel like giving up sex at least for the time being because I don't think it's fair on either of us - I want him to have a happy sex life too and I don't think he can have it with me. I've been prescribed lidocaine (really hard to get hold of!) Has anyone found this useful?

I'm finding it hard to keep my emotions under control when it's all I can think about. My boss is worried about me and she said she understands if I don't want to talk about it, but I do feel like I owe her an explanation.

I have so much to get off my chest, but this post is long enough as it is! Any advice would be really appreciated Smile


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Re: Hi there, I'm new :)

Post  fairlight10 on Sat Dec 30, 2017 1:05 pm

Hi zippy zo. I am glad the amitryptyline is helping you. It will settle back down again. Make sure your partner has nothing on his skin that could irritate your delicate area. A gentle lube called yes may help. The drug you are on is desensitising that area. This takes time and you need to give it more time. I have found that getting upset will also unsettle your nerves down there. I hope this will help and it can get better.


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Re: Hi there, I'm new :)

Post  sarisbaris on Tue Jan 02, 2018 10:53 pm

Hang in there! I battled V for 15 years. I consider myself cured now. And to clarify, it didn't take 15 years to cure. It actually didn't take long once, I found right advice that truely understood what was going on. First, can you describe you symptom more? It could be two possibilities. An unknown and currently undetectable strain of strep virus or shingles virus. Don't worry, I had both and cured both of them.

Here's my blog. Let me know if you have any questions.


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