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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Hi there, I'm new :)

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Hi there, I'm new :)

Post  ZippyZo on Wed Dec 27, 2017 2:44 pm

Hi guys,

I'm here because I just need to vent to someone who will take me seriously! Unfortunately I don't think there's anything unique about my story.

I'm 24, nearly 25 and I was diagnosed only last month. I started seeing a guy in May and we began sleeping with each other in August. Around a week after I thought I had thrush, so I treated myself. Every time I thought it had cleared up, it came back again. I was finally diagnosed in September with a staff infection, so I was given antibiotics. The pain had become unbearable from the first day of taking the antibiotics to the point where I found myself crying at work because I couldn't sit down. The doctors gave me the 'wear cotton underwear, don't use fragrant soaps etc' talk and told me to get tested for STDs at a clinic. I was clear of all infections, and was finally prescribed with Amitriptyline and referred to a gyno where she diagnosed me with vulvodynia.

After being on Amitriptyline for a month, I was beginning to feel normal. I could touch myself without fear of pain, so I thought I'd give it a go with the guy I'm seeing. Only now, the pain is back and I'm anxious because I can't be sure if he's reinfected me or if it's still vulvodynia. I'm so anxious and depressed that I feel I need to end this relationship because of the grief it's causing me. I can't even be sure if it was him that infected me in the first place... I just feel like giving up sex at least for the time being because I don't think it's fair on either of us - I want him to have a happy sex life too and I don't think he can have it with me. I've been prescribed lidocaine (really hard to get hold of!) Has anyone found this useful?

I'm finding it hard to keep my emotions under control when it's all I can think about. My boss is worried about me and she said she understands if I don't want to talk about it, but I do feel like I owe her an explanation.

I have so much to get off my chest, but this post is long enough as it is! Any advice would be really appreciated Smile


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Re: Hi there, I'm new :)

Post  fairlight10 on Sat Dec 30, 2017 1:05 pm

Hi zippy zo. I am glad the amitryptyline is helping you. It will settle back down again. Make sure your partner has nothing on his skin that could irritate your delicate area. A gentle lube called yes may help. The drug you are on is desensitising that area. This takes time and you need to give it more time. I have found that getting upset will also unsettle your nerves down there. I hope this will help and it can get better.


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Re: Hi there, I'm new :)

Post  sarisbaris on Tue Jan 02, 2018 10:53 pm

Hang in there! I battled V for 15 years. I consider myself cured now. And to clarify, it didn't take 15 years to cure. It actually didn't take long once, I found right advice that truely understood what was going on. First, can you describe you symptom more? It could be two possibilities. An unknown and currently undetectable strain of strep virus or shingles virus. Don't worry, I had both and cured both of them.

Here's my blog. Let me know if you have any questions.


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Re: Hi there, I'm new :)

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