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» Finally found a place for me...
Yesterday at 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Reviews on Amy Stein's Book and Methods

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Reviews on Amy Stein's Book and Methods

Post  Soccer17 on Sun Dec 31, 2017 6:03 pm

Hi everyone,

I am new to this forum as an official member, but I have been reading some of your posts for a while now as I have been searching for treatment suggestions and new methods to try to heal my case of vulvodynia. I have had burning on my vulva and pain in my vestibule almost a year now. The burning and pain started after using lube during sex for the first time which stung my skin, and the burning hasn't stopped since. I've been tested for infections which have all come back negative, and used treatments such as steroid ointments, anti fungal pills and creams, estrogen cream, and low dose amitriptyline for a little while to no relief. However, from my research and the latest doctor I saw, who confirmed she believes I have vulvodynia based on my story, I think my pain is nerve issue related and was probably caused and made worse by all the stress I had when the pain first started. Additionally, the burning sensation is less intense when I lay down and it doesn't bother me as much when I go to bed.

I am a student so it is not easy for me to see my regular doctor or arrange for appointments where I go to school. As a result, I am considering buying Amy Stein's book Heal Pelvic Pain to try and help me as I have not tried pelvic stretching/exercises. I am wondering if some of you have found her advice and methods helpful and if it is worth a try.

I wish everyone a happy new year and thank you so much for sharing your stories! Having place to ask questions, read suggestions, and understand I am not alone in this is incredibly helpful!

Soccer17

Soccer17

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Re: Reviews on Amy Stein's Book and Methods

Post  PainBlogger on Thu Jan 04, 2018 1:21 pm

It's probably about 18 months or so since I've looked at the book (because I've been so much improved) so I can't remember what was in that book compared to a couple of others I've read. But I do remember finding it helpful and certainly worth the £7 or similar amount I paid for it. To do some of the internal exercises (if you go down that route) you might need to also invest in some dilators. Those are a little more expensive but again well worth it I found.

I definitely recommend buying the book and you can decide from there which of the suggestions in it to try first. Good luck. I hope you get some relief soon.

PainBlogger

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Liked the book

Post  Sandra4372 on Thu Jan 18, 2018 4:51 am

I really enjoyed this book.

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Re: Reviews on Amy Stein's Book and Methods

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