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» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

» Dose HAVING VULVODYNIA MEANS YOU HAVE LUPUS?? HELP IM FREAKING OUT!
Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Reviews on Amy Stein's Book and Methods

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Reviews on Amy Stein's Book and Methods

Post  Soccer17 on Sun Dec 31, 2017 6:03 pm

Hi everyone,

I am new to this forum as an official member, but I have been reading some of your posts for a while now as I have been searching for treatment suggestions and new methods to try to heal my case of vulvodynia. I have had burning on my vulva and pain in my vestibule almost a year now. The burning and pain started after using lube during sex for the first time which stung my skin, and the burning hasn't stopped since. I've been tested for infections which have all come back negative, and used treatments such as steroid ointments, anti fungal pills and creams, estrogen cream, and low dose amitriptyline for a little while to no relief. However, from my research and the latest doctor I saw, who confirmed she believes I have vulvodynia based on my story, I think my pain is nerve issue related and was probably caused and made worse by all the stress I had when the pain first started. Additionally, the burning sensation is less intense when I lay down and it doesn't bother me as much when I go to bed.

I am a student so it is not easy for me to see my regular doctor or arrange for appointments where I go to school. As a result, I am considering buying Amy Stein's book Heal Pelvic Pain to try and help me as I have not tried pelvic stretching/exercises. I am wondering if some of you have found her advice and methods helpful and if it is worth a try.

I wish everyone a happy new year and thank you so much for sharing your stories! Having place to ask questions, read suggestions, and understand I am not alone in this is incredibly helpful!

Soccer17

Soccer17

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Re: Reviews on Amy Stein's Book and Methods

Post  PainBlogger on Thu Jan 04, 2018 1:21 pm

It's probably about 18 months or so since I've looked at the book (because I've been so much improved) so I can't remember what was in that book compared to a couple of others I've read. But I do remember finding it helpful and certainly worth the £7 or similar amount I paid for it. To do some of the internal exercises (if you go down that route) you might need to also invest in some dilators. Those are a little more expensive but again well worth it I found.

I definitely recommend buying the book and you can decide from there which of the suggestions in it to try first. Good luck. I hope you get some relief soon.

PainBlogger

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Liked the book

Post  Sandra4372 on Thu Jan 18, 2018 4:51 am

I really enjoyed this book.

Sandra4372

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Re: Reviews on Amy Stein's Book and Methods

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