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» New and need some help
Today at 4:30 pm by LindafromNJ

» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Reviews on Amy Stein's Book and Methods

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Reviews on Amy Stein's Book and Methods

Post  Soccer17 on Sun Dec 31, 2017 6:03 pm

Hi everyone,

I am new to this forum as an official member, but I have been reading some of your posts for a while now as I have been searching for treatment suggestions and new methods to try to heal my case of vulvodynia. I have had burning on my vulva and pain in my vestibule almost a year now. The burning and pain started after using lube during sex for the first time which stung my skin, and the burning hasn't stopped since. I've been tested for infections which have all come back negative, and used treatments such as steroid ointments, anti fungal pills and creams, estrogen cream, and low dose amitriptyline for a little while to no relief. However, from my research and the latest doctor I saw, who confirmed she believes I have vulvodynia based on my story, I think my pain is nerve issue related and was probably caused and made worse by all the stress I had when the pain first started. Additionally, the burning sensation is less intense when I lay down and it doesn't bother me as much when I go to bed.

I am a student so it is not easy for me to see my regular doctor or arrange for appointments where I go to school. As a result, I am considering buying Amy Stein's book Heal Pelvic Pain to try and help me as I have not tried pelvic stretching/exercises. I am wondering if some of you have found her advice and methods helpful and if it is worth a try.

I wish everyone a happy new year and thank you so much for sharing your stories! Having place to ask questions, read suggestions, and understand I am not alone in this is incredibly helpful!

Soccer17

Soccer17

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Re: Reviews on Amy Stein's Book and Methods

Post  PainBlogger on Thu Jan 04, 2018 1:21 pm

It's probably about 18 months or so since I've looked at the book (because I've been so much improved) so I can't remember what was in that book compared to a couple of others I've read. But I do remember finding it helpful and certainly worth the £7 or similar amount I paid for it. To do some of the internal exercises (if you go down that route) you might need to also invest in some dilators. Those are a little more expensive but again well worth it I found.

I definitely recommend buying the book and you can decide from there which of the suggestions in it to try first. Good luck. I hope you get some relief soon.

PainBlogger

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Liked the book

Post  Sandra4372 on Thu Jan 18, 2018 4:51 am

I really enjoyed this book.

Sandra4372

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Re: Reviews on Amy Stein's Book and Methods

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