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» Did going off antidepressants cause this?
Yesterday at 2:08 am by ryn207

» 7 months since the diagnosis
Tue Aug 14, 2018 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Reviews on Amy Stein's Book and Methods

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Reviews on Amy Stein's Book and Methods

Post  Soccer17 on Sun Dec 31, 2017 6:03 pm

Hi everyone,

I am new to this forum as an official member, but I have been reading some of your posts for a while now as I have been searching for treatment suggestions and new methods to try to heal my case of vulvodynia. I have had burning on my vulva and pain in my vestibule almost a year now. The burning and pain started after using lube during sex for the first time which stung my skin, and the burning hasn't stopped since. I've been tested for infections which have all come back negative, and used treatments such as steroid ointments, anti fungal pills and creams, estrogen cream, and low dose amitriptyline for a little while to no relief. However, from my research and the latest doctor I saw, who confirmed she believes I have vulvodynia based on my story, I think my pain is nerve issue related and was probably caused and made worse by all the stress I had when the pain first started. Additionally, the burning sensation is less intense when I lay down and it doesn't bother me as much when I go to bed.

I am a student so it is not easy for me to see my regular doctor or arrange for appointments where I go to school. As a result, I am considering buying Amy Stein's book Heal Pelvic Pain to try and help me as I have not tried pelvic stretching/exercises. I am wondering if some of you have found her advice and methods helpful and if it is worth a try.

I wish everyone a happy new year and thank you so much for sharing your stories! Having place to ask questions, read suggestions, and understand I am not alone in this is incredibly helpful!

Soccer17

Soccer17

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Re: Reviews on Amy Stein's Book and Methods

Post  PainBlogger on Thu Jan 04, 2018 1:21 pm

It's probably about 18 months or so since I've looked at the book (because I've been so much improved) so I can't remember what was in that book compared to a couple of others I've read. But I do remember finding it helpful and certainly worth the £7 or similar amount I paid for it. To do some of the internal exercises (if you go down that route) you might need to also invest in some dilators. Those are a little more expensive but again well worth it I found.

I definitely recommend buying the book and you can decide from there which of the suggestions in it to try first. Good luck. I hope you get some relief soon.

PainBlogger

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Liked the book

Post  Sandra4372 on Thu Jan 18, 2018 4:51 am

I really enjoyed this book.

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Re: Reviews on Amy Stein's Book and Methods

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