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» New and need some help
Today at 4:30 pm by LindafromNJ

» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Botox---- I am pregnant!

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Botox---- I am pregnant!

Post  Mll2013 on Sat Jan 06, 2018 12:35 am

It has been a while since I have been on this site, but I wanted to share my story with you all in case it could help someone!
I have been diagnosed with Vestibulydinia/ Vulvydinia, pelvic floor dysfunction, endometriosis, and PCOS. I have pain with any touching or insertion at the opening... I have literally tired everything. Every medication, cream, gel, phyriscal therapy (2 rounds with 2 different therapists), bio feedback, even a vestibulectomy. The surgery was extremely painful, and it took a few weeks before I could sit up. It was a few months before I tried to have sex, and I was so optimistic... It was unfortunately still very painful. (I am one of the few that it did not work all the way) Thankfully my Dr. did not give up on me What eventually really did HELP were Botox injections!!! My insurance did not cover it... so we had to save up, but it was worth every penny in my opinion!! My doctor went in to give me a laporoscopy for my endometriosis and while he was in there he gave me Botox and steroid injections. About 2 weeks after we tried to have sex and it was relatively pain free! I cried because I was so happy to have that experience with my husband! That was this past summer, and we had been married over 4 years at the point (To say it has been a VERY LONG emotional, financial, and painful journey would be an understatement...) The only bad thing about the Botox is it typically only numbs the nerves for about 3 months. Since we knew we didn't have much time I went off birth control right away and we actually got pregnant the 2nd month! I was afraid this would NEVER be a possibility! The Botox has now worn off so sex is back to being painful, Sad so we have not done it in a while, and I cannot get anymore Boxtox right now because the potential harm to the baby. Baby is due in March and I plan to get some again this summer. (Delivery of the baby will be complicated too due to the nerve pain...! So we are going to have a C-Section) Doctor said the more injections you get the longer they typically last and eventually I probably wont need to have them.
It is not ideal circumstances, but I am so grateful to finally to been able to have sex with my husband and get pregnant and welcome in a baby boy in 9 weeks!


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