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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Botox---- I am pregnant!

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Botox---- I am pregnant!

Post  Mll2013 on Sat Jan 06, 2018 12:35 am

It has been a while since I have been on this site, but I wanted to share my story with you all in case it could help someone!
I have been diagnosed with Vestibulydinia/ Vulvydinia, pelvic floor dysfunction, endometriosis, and PCOS. I have pain with any touching or insertion at the opening... I have literally tired everything. Every medication, cream, gel, phyriscal therapy (2 rounds with 2 different therapists), bio feedback, even a vestibulectomy. The surgery was extremely painful, and it took a few weeks before I could sit up. It was a few months before I tried to have sex, and I was so optimistic... It was unfortunately still very painful. (I am one of the few that it did not work all the way) Thankfully my Dr. did not give up on me What eventually really did HELP were Botox injections!!! My insurance did not cover it... so we had to save up, but it was worth every penny in my opinion!! My doctor went in to give me a laporoscopy for my endometriosis and while he was in there he gave me Botox and steroid injections. About 2 weeks after we tried to have sex and it was relatively pain free! I cried because I was so happy to have that experience with my husband! That was this past summer, and we had been married over 4 years at the point (To say it has been a VERY LONG emotional, financial, and painful journey would be an understatement...) The only bad thing about the Botox is it typically only numbs the nerves for about 3 months. Since we knew we didn't have much time I went off birth control right away and we actually got pregnant the 2nd month! I was afraid this would NEVER be a possibility! The Botox has now worn off so sex is back to being painful, Sad so we have not done it in a while, and I cannot get anymore Boxtox right now because the potential harm to the baby. Baby is due in March and I plan to get some again this summer. (Delivery of the baby will be complicated too due to the nerve pain...! So we are going to have a C-Section) Doctor said the more injections you get the longer they typically last and eventually I probably wont need to have them.
It is not ideal circumstances, but I am so grateful to finally to been able to have sex with my husband and get pregnant and welcome in a baby boy in 9 weeks!

Mll2013

Posts : 5
Join date : 2016-05-13

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