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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


VULVODYNIA AND SUICIDE

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VULVODYNIA AND SUICIDE

Post  rockylife on Sun Feb 04, 2018 8:33 am

I was just diagnosed last 2 days ago with vulvodynia. This pain started Dec 17 2017. Until now the pain lasts all day. I have anxiety and panic attack disorder too so it's very hard for me to cope. I'm afraid my boyfriend will leave me due to this condition. suicide is the only way to end this suffering. what to do?

rockylife

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Join date : 2018-02-04
Age : 23

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Re: VULVODYNIA AND SUICIDE

Post  fairlight10 on Sun Feb 04, 2018 10:06 am

Hi Rockylife. I know your feeling desperate right now but do not do anything to hurt yourself please. What have you been prescribed for the condition? I am on 20 mgs Nortriptyline every night for nearly 6 years. It gave me my life back.l was off work for 4 months before l felt ready to go back. There are other meds for pain out there. Well done for finding this support forum. It is full of information to help you through this tough time. If your boyfriend does not support you then he is not the one for you. You mention your anxiety and panic disorder. This could be connected. I have found stress and anxiety aggravates this condition. Research as much information as you can. When I found this site I read every post. It was such a relief to know I was not the only one with this painful condition. My first thought when diagnosed was WHAT THE BLOODY HELL IS THAT. I was angry, tearful and did not want to live anymore. Then the meds gradually started to work. I have tried to drop to 10mgs Nortriptyline but after 24 hrs l start to feel an irritation down their. I have vulvar vestibulitis and have had to accept this otherwise I would have gone mad. My husband and family have been a great support. This is what you also need. So, keep in touch with this site. Good luck.

fairlight10

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Re: VULVODYNIA AND SUICIDE

Post  rockylife on Sun Feb 04, 2018 11:15 am

Thank you fairlight10, it's just depressing to think that at a young age I already have to deal with this awful condition that affects the way I live especially my day to day activities. What's sad about it is, I live in the Philippines, my gyne doesn't even know much about Vulvodynia. She told me that it's all in my mind and try to relax. I know it's not because I feel something painful down there without visible lesions. It's painful even if no pressure is applied, all day everyday. She prescribed me with Etericoxib and Vitamin B complex. I haven't taken these meds yet, maybe tomorrow. I have read some articles that Primrose oil can help in the remission of Vulvodynia and Pregabalin is effective too. I would like to try them, but without prescription, I can't buy them. Any thoughts about these meds? I'm frustrated because it seem that I'm the only person in the Philippines who suffers from this illness plus no medical professional who's duly experienced with this kind of condition is available. Help is too far to reach. My boyfriend has changed a little on how he treats he after knowing my condition. I dont wanna deal with this problem all throughout my life. With this pain, I can't seem to have excitement about life. Feels like I wanna isolate myself away from everyone. This is so depressing. Suicidal thoughts are still active.

rockylife

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Age : 23

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Re: VULVODYNIA AND SUICIDE

Post  fairlight10 on Sun Feb 04, 2018 1:25 pm

Hi Rockylife I have not read of Etericoxib being used for vulvodynia. I have heard of prebagablin and gabapentin. These are usually used for epilepsy but have been useful for nerve pain. Also, trycyclic antidepressants are gold standard for vulvodynia namely amitriptyline and nortriptyline in low doses. There are many more. Sounds like you have unprovoked vulvodynia but it is possible to have both provoked and unprovoked. It makes me so cross when doctors say its all in the mind. It isn't but your stress and worry do exacerbate the condition. Best you can do is take the meds she has prescribed and if they don't help mention those you have heard of being used for vulvodynia. Do your own research and read the posts on this support forum. We will be their to support you.

fairlight10

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Re: VULVODYNIA AND SUICIDE

Post  sarisbaris on Tue Feb 13, 2018 5:48 am

Rockylife,
I'm so sorry! My heart goes out to you. I am cured. I battled V for 15 years. In those years, I tried so so many things. I followed the protocol by Anthony William and it worked. Here's my blog. http://myvulvodyniacure.blogspot.com/

Please email me if you want to chat. sarahcamp20@gmail.com

Just an FYI... according to him vaginal burning is caused by a strep or shingles virus. I had both. They are both currently undetectable by docs. Metals in our system (we all have them now) feed these viruses. (Cilantro would always calm down my flare. Cilantro is a powerful metal detoxer. I had a lot of metals back then.) And according to Anthony William, anxiety attacks are caused by too many metals in our bodies. It's all related.

https://soundcloud.com/medicalmedium/conquering-anxiety
http://www.medicalmedium.com/blog/heavy-metal-detox

Please don't lose hope. Yes, the doctors don't understand but that doesn't mean there isn't healing. My western doctor was astonished by my healing and told me to get online and spread my healing testimony. So here I am.

sarisbaris

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Re: VULVODYNIA AND SUICIDE

Post  Faezeh on Sat Feb 24, 2018 11:20 pm

Hi rocky life
Do you have constipation and urinary hesitancy and pain when siitting in your buttock?if so , you may have pudendal neuralgia and you must go to the site : pudendalhope.info to get help.goodluck

Faezeh

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Re: VULVODYNIA AND SUICIDE

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