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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Sore after using dilator

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Sore after using dilator

Post  NewNicola on Sun Feb 04, 2018 4:20 pm

Hi everyone,

It took ages but I was eventually diagnosed with vestibulitis a couple of years ago. I was suffering from unprovoked pain on a regular basis and sex was completely out of the question. It was miserable as you can imagine. I've eventually managed to get the daily discomfort (minus the sex issue) pretty much under control thanks to a brilliant physical therapist who identified tight muscles as the root of my problem and taught me about deep tissue massage. I did do some work with dilators while seeing her but then went through a bad spell of anxiety which meant the dilators got buried in the back of a drawer. I just couldn't deal with the added stress of trying to use these as well as overcome the anxiety issues. For the first time in almost a year i plucked up the courage yesterday to try inserting the smallest dilator. I managed with very little discomfort which i was over the moon about! Today though i feel quite sore and everything feels tingly. I'm freaking out a bit as it reminds me of UTI symptons. There's no burning or urgency though so my logical mind is saying that its probably just my vaginal muscles reacting to having something inside after such a long time! Has anybody here experienced this after using a dilator for the first time or moving up a size? I shouldn't overreact but this whole process has been so emotionally draining that any sign of pain makes me feel worried and emotional. Thanks for any advice or words of wisdom x

NewNicola

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Re: Sore after using dilator

Post  ryn207 on Tue Feb 06, 2018 1:02 am

Hi there!

I understand the freak out. Whenever I feel tingly/itchy and sore I get terrified that I have a yeast infection which is what I think caused this all. My PT told me that those symptoms are normal when doing new stretches or using the dilator since your skin and nerves are adjusting to it. I'd wait a couple days before worrying about a UTI. In the meantime you could do preventative measures like drinking cranberry juice.

Good luck!

ryn207

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Re: Sore after using dilator

Post  NewNicola on Wed Feb 07, 2018 7:55 am

Thanks so much for this! It made me feel very reassured. The soreness disappeared after a couple of days so it must have been my muscles and nerves overreacting. It's difficult not to freak out when things like this happen though!

NewNicola

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Re: Sore after using dilator

Post  ryn207 on Fri Feb 09, 2018 11:41 pm

I totally understand. I'm feeling slightly itching today so now I'm freaking out that I'm getting a yeast infection. Maybe I should take my own advice haha

ryn207

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Re: Sore after using dilator

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