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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


All knew to me!

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All knew to me!

Post  Guest on Thu Feb 17, 2011 3:45 pm

Sad Hi everyone.

Am knew to the forum and this is all very new to me and by reading other peoples stories, slightly different.

Havent been diagnosed with anything yet, but am very swollen, red and sore.

This all started for me in September of last year when stupidly I left a Tampon in and didnt know about it Embarassed It was in for two weeks and had been pushed right up to the top! Awful. Went to the GUM clinic who found it and pulled it out. Was kept in over night as i felt unwell and very sore and irritated down below. Was given strong anti biotics through a drip to clear up any infection. Still wasnt feeling completely right after a week on anti biotics so went back to the gp who put me on more anti biotics that made me really poorly and ended up back in hospital with fever and pain in my stomach. Was put on yet more anti biotics through a drip even though my blood results showed no infection! Finally they stopped all anti biotics and was told to go home and use just water for the inflamation down below.
Took me a couple of months to recover from the effects of all the anti biotics and was weak for ages and very swollen and sore down below. Couldnt walk sit or wear any under wear. After various steroid ointments, thrush creams, pesseries etc still not much better.
This whole experience has turned my world upside down and i feel very depressed. I have gone from an active 35 year old full of life to being stuck indoors in my pj bottoms. I feel like every time i walk i am making the swelling worse.
I am now under a gynaecologist and a dermatologist and waiting for a vulval clinic appointment in March (which i have waited 4 months for).
The steroid ointments made everything worse. Was perscribed Trimovate by the dermatolgist which i have been using for a week and so far i think it has taken some of the swelling down but can only use it for another 7 days max as it is so strong.
Just cant see a light at the end of the tunnel at the moment and have forgotten what life used to be like. This has taken over my life and bothers me 24/7. Just dread everytime of the month as this irritates me even more.
The doctors have said that one of the anti biotics i was on can give you an allergic reaction like this or the tampon itself being in for so long has irritated everything. Just hope in time it heals itself!
I am glad i have found this website to read everybody elses experiences and share stories.
Am also taking anti allergy tablets.
Sad Sad Sad Sad Sad Sad Sad

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Re: All knew to me!

Post  Sarah001 on Thu Feb 17, 2011 3:51 pm

Hi Joanne, have the doctors made sure you don't have a bacterial imbalance after the tampon incident? I'm assuming they have swabbed and checked for bacterial vaginosis? And cultured a swab and let it grow in the lab to see if it's ok? It wouldn't necessarily show in blood tests if it's an imbalance of the normal bacteria down there. Also get them to check your ph if you can persuade them, if that gets out of whack it can cause alot of problems. If they haven't tried the above things get a bit pushy and make them. Also take plenty of acidophilus to help your body get back on track. It may well sort itself out over time.
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Re: All knew to me!

Post  Guest on Thu Feb 17, 2011 4:00 pm

Hey!

Yes had swabs done about 5 times, whilst in hospital and by the gyni i saw 4 weeks ago. How would they check for ph, Had a swab done for thrush that came back negative. Gyni has said that the inside has all healed up because that was all so swollen too. Just the outside that is taking its time.

Thank you for your advice, so nice to have someone to talk to!


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Re: All knew to me!

Post  naomi on Thu Feb 17, 2011 4:30 pm

hey hun!

well there's a few regular girls on here and we will be here for you. Pick our brains to see if we can work something positive out.

Have they tested you for DIV? Desquimitive Inflammtory vaginitis (excuse the spelling...long day). Google that. I thought it could have been that at first and they tried some treatment for that (i forget the medication but have got it written down somewhere). It helped with the heavy discharge etc.

Also, sounds crap but i used Predfoam at one point (in the liust of diff medications)...its a steriod foam that folk usually use up their bums Smile but i had to up my Lady La-la.

Just it sounds more like infection from ur description. Have they taken biopsies?

Try to keep calm (pot, kettle, black!) and rest up. We're all here for you

Nai xxx
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Re: All knew to me!

Post  Guest on Thu Feb 17, 2011 4:56 pm

Thank you so much for all the information! Will look that up!
So far they have only said its an allergic reaction to the anti biotics, all swabs came back clear.

Have good days where i am really positive and other really dark days when i think i will be like this forever! I get really disapointed when the creams i am given dont work and actually make it worse! I am looking forward to seeing the vulval specialist in March! Think my doctors are sick of the sight of me. Sure they think im loosing my marbles, always cry when im in there!

Has any of the medicines worked for you?

Jo x


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Re: All knew to me!

Post  Sebby (Admin) on Thu Feb 17, 2011 7:36 pm


Hi Joanne and welcome to the forum..i've just said hello to you on our facebook group Smile

I was on antibiotics for years when younger for acne and I reallly do believe that this did contribute to the V as they kill the good bacteria as well as the bad.

Acidolphilis is a great idea, I've started to take it myself

Also cut down on sugars and up your B viatmins..I keep getting low folic acid levels and just recently read that uping this is one of the natural remidies for Vulval irritations

Vulval clinic is deff the way to go, Im going to get refered on Tues...down the drs again, I dont know why they just dont let me move in!

Hope we can help you find a solution and we are all here to virtually hold your hand Smile

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Re: All knew to me!

Post  Guest on Thu Feb 17, 2011 7:46 pm

Thank you so much! Will try everything you have suggested! The antibiotics made me so ill! Took everything out of me! Its so annoying because i didnt need them all anyway! At one point i was on a cocktail of three at a time! Awful! Definitely think this has what has triggered this off in me! Just wish it would boreoff now!

So nice to know that this is here for so many people feeling so alone and depressed in it!

Cant give up hope Very Happy

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Re: All knew to me!

Post  noni on Thu Feb 17, 2011 9:30 pm

Hey Joanne!! Smile

You will get the advice and support u need on here!

Just as many of us have had to self diagnose ....you might need to self medicate, meaning....what some of us have done is actually do the research and bring it to our GPs to get prescriptions...etc etc

Im on Ami now...brought the Vulvodynia survival guide to my GP showed her the page on tricyclics and she wrote up 20 mg a day for me!

We;re all really guinea pigs on here and its a crap shoot!

But...fuck it...you are in good company here!!

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Re: All knew to me!

Post  Guest on Fri Feb 18, 2011 8:19 am

Hi

Are they anti depresents?

Cant beleive how many people live with this! Before this started for me i had never heard of it! If i was ever sore down there or had thrush i would use cream and it would go! Just cant beleive im stuck with it for now!

Thanks for all the info

x

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Re: All knew to me!

Post  noni on Fri Feb 18, 2011 11:55 pm

check out my web site www.livingwithvulvodynia.ca

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Re: All knew to me!

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