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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Could do with some advise

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Could do with some advise

Post  EnglishStudent on Fri Mar 30, 2018 10:39 am

So this is what has happened to me. I'd love some advice from some ladies that know their stuff. Smile

About 2 years ago I moved away to uni, met a boy, got on the progesterone only contraceptive pill and then I got thrush. I knew it was thrush. Without being TMI (but let's be honest we are talking about our vagina's here aha) I could physically see it when I took a mirror down there. The pain was so unbearable I would use a pessary and the pill maybe twice per infection because it was such a strong attack. Whenever I went for a swab it never came back with anything because I had so much discomfort I had to treat it. I was convinced this was because of the pill so after 5 months I just stopped taking it but symptoms persisted.

Long story short after maybe 10 infections I went on the 6 months antifungal medication and that totally fixed my issue. But I was continuing to have terribly painful sex in the process. With the thrush gone. I was diagnosed with vaginismus and with some physiotherapy I was able to control my pelvic muscles really well. But sex was still painful!!!!

After about 2 months of the medication, I would have a thrush infection after my period without fail. Well, I think it was thrush. I was always too scared to get swabbed because of my vaginismus and some terrible past experiences but it wasn't like before the treatment. I had no discharge just a very painful ich. So I can't say 100% it was thrush. I had the itching and the burning. I would treat it with the pessary and cream and I got a level of relief. It stayed irritated between treatments but I just assumed it was thrush.

When I was at my last appointment with my physiotherapist (I have since been discharged because I am a master of my pelvic floor Wink) she suggested that it could be vulvodynia. I have mild discomfort when I sit down sometimes and major discomfort during penetration at the beginning. Certain lubes really sting and burn. I'm okay most of the time to be fair but it flares up awfully right after my period. I'm not sure if it is thrush or not. I have pain on a touch of the entrance towards the urethra mainly. The doctors I've seen have been pretty useless, to be honest. At my last appointment, he said he would like to put the coil in to stop my periods so then I would have no problem ..... A coil with vaginismus...I just don't think it's a long-term solution.

Moistueristers and emollients to wash tend to help a bit but only slightly. Could it be that I just have dryness? I have had my hormones tested after my period and they all came back normal and I am not diabetic. I also have a long-running heart condition so I am unable to take oestrogen for clotting reasons.

I have been given the vagasil numbing stuff but I'm trying not to just depend on that. I want to solve the problem if I can. I know from reading the other women's stories on this forum I don't have half of the symptoms of the other women so for that I am very lucky.

I have been taking probiotics for a month now and after my last period although I got a lot of discomfort that has eased slightly with no thrush treatment. My questions to you are....

1)Is it vulvadynia?
2)Is it caused by thrush?
3)Why is it worse after my period?
4)Do you guys suggest boric acid capsules?
5)Coconut oil?
6)Calcium citrate and a low oxalate diet?
7)Will this be with me forever because I'm at that point where I'm started to lose hope?
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me?
9)If I go back on the 6 months medication do you think my symptoms will go away?

EnglishStudent

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Re: Could do with some advise

Post  Coop on Sat Mar 31, 2018 8:46 pm

Sorry, I haven't checked the site for a while,so only just read this!

Have you ever heard of Honeymoon Cystitis? Worth a read! I don't know the cure, but understand that the longer with your current partner,the more you'll get "used" to him, and the less the likelihood of repeat infections. maybe a nutritionist could help, but maybe not. It depends whether they have experience in your area or not!

Gynaes can be hit and miss. I once saw one who didn't believe in vulvodynia, and thought "great, someone who will find the cause, rather than palm me off with amitriptyline, and hope for the best" but after her hapless diagnosis of "dermatitis" I saw a specialist who confirmed vulvodynia is real, and the gynae had tried to fob me off because she was out her comfort zone.

Coop

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Re: Could do with some advise

Post  sarisbaris on Thu Apr 05, 2018 9:37 pm

I had vulvodynia for 15 years. I'm cured now. I followed the protocol by Anthony William. Now I troll the internet trying to help women heal themselves. Here's my blog and some answers for you.

1)Is it vulvadynia? Vulvodynia just means vagina pain. If you're vagina hurts and the conventional doctors don't know then congrats! You have vulvodynia. Wink Don't believe their labels. I can explain what's really going on.
2)Is it caused by thrush? According to Anthony William, thrush is caused by unknown/currently undetectable strain of strep, if the rash is really thrush. If they or you think it was Lichen Sclerosus, then that can be caused by shingles. The protocols to kill strep and shingles are similar.
3)Why is it worse after my period? Because during the time of your period 80% of your immunity goes to your reproductive system leaving the rest of your body with only 20% of your immunity to handles the rest of the viruses.
4)Do you guys suggest boric acid capsules? Nope
5)Coconut oil? It actually did help one woman I'm helping, it depends. It didn't help me. I can recommend more productive things to do as well. Coconut oil is anti-bacteria and since strep is a bacteria then it might help your case. But it would kill the virus, you need to kill it in your organs to really flush the virus out.
6)Calcium citrate and a low oxalate diet? Nope.
7)Will this be with me forever because I'm at that point where I'm started to lose hope? Nope, definitely not. Read my blog. I'm cured and mine was insanely painful.
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me? Not sure what you mean here. I would wait a little longer for sex. You can mess around but don't worry, once you kill the viruses you can enjoy sex as much as you want. I can give you advice in this area but I can talk about it over the phone.
9)If I go back on the 6 months medication do you think my symptoms will go away? Nope. Right now conventional docs don't know yet what's going on. They are great at detecting life threatening things... cancer, tumors, etc but not this problem, not yet.

If you want my help, check out my blog. I found that the protocol choices can be a bit overwhelming since everyone's case is slightly different and chronic pain messes with your head. Once I had a conversation with each woman and made them a plan, then they started to see some results and their pain went down. This is how the healing process begins. Just keep following the protocol and little by little it gets better until it's gone.

http://myvulvodyniacure.blogspot.com/
sarisbaris40@gmail.com
Email me your medical history, lady part medical history, current diet (breakfast, lunch, dinner, snacks, drinks, prescriptions then I'll send you some times I'm available to talk.

Don't give up!
Sarah

sarisbaris

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Re: Could do with some advise

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