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Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Could do with some advise

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Could do with some advise

Post  EnglishStudent on Fri Mar 30, 2018 10:39 am

So this is what has happened to me. I'd love some advice from some ladies that know their stuff. Smile

About 2 years ago I moved away to uni, met a boy, got on the progesterone only contraceptive pill and then I got thrush. I knew it was thrush. Without being TMI (but let's be honest we are talking about our vagina's here aha) I could physically see it when I took a mirror down there. The pain was so unbearable I would use a pessary and the pill maybe twice per infection because it was such a strong attack. Whenever I went for a swab it never came back with anything because I had so much discomfort I had to treat it. I was convinced this was because of the pill so after 5 months I just stopped taking it but symptoms persisted.

Long story short after maybe 10 infections I went on the 6 months antifungal medication and that totally fixed my issue. But I was continuing to have terribly painful sex in the process. With the thrush gone. I was diagnosed with vaginismus and with some physiotherapy I was able to control my pelvic muscles really well. But sex was still painful!!!!

After about 2 months of the medication, I would have a thrush infection after my period without fail. Well, I think it was thrush. I was always too scared to get swabbed because of my vaginismus and some terrible past experiences but it wasn't like before the treatment. I had no discharge just a very painful ich. So I can't say 100% it was thrush. I had the itching and the burning. I would treat it with the pessary and cream and I got a level of relief. It stayed irritated between treatments but I just assumed it was thrush.

When I was at my last appointment with my physiotherapist (I have since been discharged because I am a master of my pelvic floor Wink) she suggested that it could be vulvodynia. I have mild discomfort when I sit down sometimes and major discomfort during penetration at the beginning. Certain lubes really sting and burn. I'm okay most of the time to be fair but it flares up awfully right after my period. I'm not sure if it is thrush or not. I have pain on a touch of the entrance towards the urethra mainly. The doctors I've seen have been pretty useless, to be honest. At my last appointment, he said he would like to put the coil in to stop my periods so then I would have no problem ..... A coil with vaginismus...I just don't think it's a long-term solution.

Moistueristers and emollients to wash tend to help a bit but only slightly. Could it be that I just have dryness? I have had my hormones tested after my period and they all came back normal and I am not diabetic. I also have a long-running heart condition so I am unable to take oestrogen for clotting reasons.

I have been given the vagasil numbing stuff but I'm trying not to just depend on that. I want to solve the problem if I can. I know from reading the other women's stories on this forum I don't have half of the symptoms of the other women so for that I am very lucky.

I have been taking probiotics for a month now and after my last period although I got a lot of discomfort that has eased slightly with no thrush treatment. My questions to you are....

1)Is it vulvadynia?
2)Is it caused by thrush?
3)Why is it worse after my period?
4)Do you guys suggest boric acid capsules?
5)Coconut oil?
6)Calcium citrate and a low oxalate diet?
7)Will this be with me forever because I'm at that point where I'm started to lose hope?
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me?
9)If I go back on the 6 months medication do you think my symptoms will go away?

EnglishStudent

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Re: Could do with some advise

Post  Coop on Sat Mar 31, 2018 8:46 pm

Sorry, I haven't checked the site for a while,so only just read this!

Have you ever heard of Honeymoon Cystitis? Worth a read! I don't know the cure, but understand that the longer with your current partner,the more you'll get "used" to him, and the less the likelihood of repeat infections. maybe a nutritionist could help, but maybe not. It depends whether they have experience in your area or not!

Gynaes can be hit and miss. I once saw one who didn't believe in vulvodynia, and thought "great, someone who will find the cause, rather than palm me off with amitriptyline, and hope for the best" but after her hapless diagnosis of "dermatitis" I saw a specialist who confirmed vulvodynia is real, and the gynae had tried to fob me off because she was out her comfort zone.

Coop

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Re: Could do with some advise

Post  sarisbaris on Thu Apr 05, 2018 9:37 pm

I had vulvodynia for 15 years. I'm cured now. I followed the protocol by Anthony William. Now I troll the internet trying to help women heal themselves. Here's my blog and some answers for you.

1)Is it vulvadynia? Vulvodynia just means vagina pain. If you're vagina hurts and the conventional doctors don't know then congrats! You have vulvodynia. Wink Don't believe their labels. I can explain what's really going on.
2)Is it caused by thrush? According to Anthony William, thrush is caused by unknown/currently undetectable strain of strep, if the rash is really thrush. If they or you think it was Lichen Sclerosus, then that can be caused by shingles. The protocols to kill strep and shingles are similar.
3)Why is it worse after my period? Because during the time of your period 80% of your immunity goes to your reproductive system leaving the rest of your body with only 20% of your immunity to handles the rest of the viruses.
4)Do you guys suggest boric acid capsules? Nope
5)Coconut oil? It actually did help one woman I'm helping, it depends. It didn't help me. I can recommend more productive things to do as well. Coconut oil is anti-bacteria and since strep is a bacteria then it might help your case. But it would kill the virus, you need to kill it in your organs to really flush the virus out.
6)Calcium citrate and a low oxalate diet? Nope.
7)Will this be with me forever because I'm at that point where I'm started to lose hope? Nope, definitely not. Read my blog. I'm cured and mine was insanely painful.
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me? Not sure what you mean here. I would wait a little longer for sex. You can mess around but don't worry, once you kill the viruses you can enjoy sex as much as you want. I can give you advice in this area but I can talk about it over the phone.
9)If I go back on the 6 months medication do you think my symptoms will go away? Nope. Right now conventional docs don't know yet what's going on. They are great at detecting life threatening things... cancer, tumors, etc but not this problem, not yet.

If you want my help, check out my blog. I found that the protocol choices can be a bit overwhelming since everyone's case is slightly different and chronic pain messes with your head. Once I had a conversation with each woman and made them a plan, then they started to see some results and their pain went down. This is how the healing process begins. Just keep following the protocol and little by little it gets better until it's gone.

http://myvulvodyniacure.blogspot.com/
sarisbaris40@gmail.com
Email me your medical history, lady part medical history, current diet (breakfast, lunch, dinner, snacks, drinks, prescriptions then I'll send you some times I'm available to talk.

Don't give up!
Sarah

sarisbaris

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Re: Could do with some advise

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