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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Could do with some advise

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Could do with some advise

Post  EnglishStudent on Fri Mar 30, 2018 10:39 am

So this is what has happened to me. I'd love some advice from some ladies that know their stuff. Smile

About 2 years ago I moved away to uni, met a boy, got on the progesterone only contraceptive pill and then I got thrush. I knew it was thrush. Without being TMI (but let's be honest we are talking about our vagina's here aha) I could physically see it when I took a mirror down there. The pain was so unbearable I would use a pessary and the pill maybe twice per infection because it was such a strong attack. Whenever I went for a swab it never came back with anything because I had so much discomfort I had to treat it. I was convinced this was because of the pill so after 5 months I just stopped taking it but symptoms persisted.

Long story short after maybe 10 infections I went on the 6 months antifungal medication and that totally fixed my issue. But I was continuing to have terribly painful sex in the process. With the thrush gone. I was diagnosed with vaginismus and with some physiotherapy I was able to control my pelvic muscles really well. But sex was still painful!!!!

After about 2 months of the medication, I would have a thrush infection after my period without fail. Well, I think it was thrush. I was always too scared to get swabbed because of my vaginismus and some terrible past experiences but it wasn't like before the treatment. I had no discharge just a very painful ich. So I can't say 100% it was thrush. I had the itching and the burning. I would treat it with the pessary and cream and I got a level of relief. It stayed irritated between treatments but I just assumed it was thrush.

When I was at my last appointment with my physiotherapist (I have since been discharged because I am a master of my pelvic floor Wink) she suggested that it could be vulvodynia. I have mild discomfort when I sit down sometimes and major discomfort during penetration at the beginning. Certain lubes really sting and burn. I'm okay most of the time to be fair but it flares up awfully right after my period. I'm not sure if it is thrush or not. I have pain on a touch of the entrance towards the urethra mainly. The doctors I've seen have been pretty useless, to be honest. At my last appointment, he said he would like to put the coil in to stop my periods so then I would have no problem ..... A coil with vaginismus...I just don't think it's a long-term solution.

Moistueristers and emollients to wash tend to help a bit but only slightly. Could it be that I just have dryness? I have had my hormones tested after my period and they all came back normal and I am not diabetic. I also have a long-running heart condition so I am unable to take oestrogen for clotting reasons.

I have been given the vagasil numbing stuff but I'm trying not to just depend on that. I want to solve the problem if I can. I know from reading the other women's stories on this forum I don't have half of the symptoms of the other women so for that I am very lucky.

I have been taking probiotics for a month now and after my last period although I got a lot of discomfort that has eased slightly with no thrush treatment. My questions to you are....

1)Is it vulvadynia?
2)Is it caused by thrush?
3)Why is it worse after my period?
4)Do you guys suggest boric acid capsules?
5)Coconut oil?
6)Calcium citrate and a low oxalate diet?
7)Will this be with me forever because I'm at that point where I'm started to lose hope?
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me?
9)If I go back on the 6 months medication do you think my symptoms will go away?


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Re: Could do with some advise

Post  Coop on Sat Mar 31, 2018 8:46 pm

Sorry, I haven't checked the site for a while,so only just read this!

Have you ever heard of Honeymoon Cystitis? Worth a read! I don't know the cure, but understand that the longer with your current partner,the more you'll get "used" to him, and the less the likelihood of repeat infections. maybe a nutritionist could help, but maybe not. It depends whether they have experience in your area or not!

Gynaes can be hit and miss. I once saw one who didn't believe in vulvodynia, and thought "great, someone who will find the cause, rather than palm me off with amitriptyline, and hope for the best" but after her hapless diagnosis of "dermatitis" I saw a specialist who confirmed vulvodynia is real, and the gynae had tried to fob me off because she was out her comfort zone.


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Re: Could do with some advise

Post  sarisbaris on Thu Apr 05, 2018 9:37 pm

I had vulvodynia for 15 years. I'm cured now. I followed the protocol by Anthony William. Now I troll the internet trying to help women heal themselves. Here's my blog and some answers for you.

1)Is it vulvadynia? Vulvodynia just means vagina pain. If you're vagina hurts and the conventional doctors don't know then congrats! You have vulvodynia. Wink Don't believe their labels. I can explain what's really going on.
2)Is it caused by thrush? According to Anthony William, thrush is caused by unknown/currently undetectable strain of strep, if the rash is really thrush. If they or you think it was Lichen Sclerosus, then that can be caused by shingles. The protocols to kill strep and shingles are similar.
3)Why is it worse after my period? Because during the time of your period 80% of your immunity goes to your reproductive system leaving the rest of your body with only 20% of your immunity to handles the rest of the viruses.
4)Do you guys suggest boric acid capsules? Nope
5)Coconut oil? It actually did help one woman I'm helping, it depends. It didn't help me. I can recommend more productive things to do as well. Coconut oil is anti-bacteria and since strep is a bacteria then it might help your case. But it would kill the virus, you need to kill it in your organs to really flush the virus out.
6)Calcium citrate and a low oxalate diet? Nope.
7)Will this be with me forever because I'm at that point where I'm started to lose hope? Nope, definitely not. Read my blog. I'm cured and mine was insanely painful.
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me? Not sure what you mean here. I would wait a little longer for sex. You can mess around but don't worry, once you kill the viruses you can enjoy sex as much as you want. I can give you advice in this area but I can talk about it over the phone.
9)If I go back on the 6 months medication do you think my symptoms will go away? Nope. Right now conventional docs don't know yet what's going on. They are great at detecting life threatening things... cancer, tumors, etc but not this problem, not yet.

If you want my help, check out my blog. I found that the protocol choices can be a bit overwhelming since everyone's case is slightly different and chronic pain messes with your head. Once I had a conversation with each woman and made them a plan, then they started to see some results and their pain went down. This is how the healing process begins. Just keep following the protocol and little by little it gets better until it's gone.

Email me your medical history, lady part medical history, current diet (breakfast, lunch, dinner, snacks, drinks, prescriptions then I'll send you some times I'm available to talk.

Don't give up!


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