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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Could do with some advise

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Could do with some advise

Post  EnglishStudent on Fri Mar 30, 2018 10:39 am

So this is what has happened to me. I'd love some advice from some ladies that know their stuff. Smile

About 2 years ago I moved away to uni, met a boy, got on the progesterone only contraceptive pill and then I got thrush. I knew it was thrush. Without being TMI (but let's be honest we are talking about our vagina's here aha) I could physically see it when I took a mirror down there. The pain was so unbearable I would use a pessary and the pill maybe twice per infection because it was such a strong attack. Whenever I went for a swab it never came back with anything because I had so much discomfort I had to treat it. I was convinced this was because of the pill so after 5 months I just stopped taking it but symptoms persisted.

Long story short after maybe 10 infections I went on the 6 months antifungal medication and that totally fixed my issue. But I was continuing to have terribly painful sex in the process. With the thrush gone. I was diagnosed with vaginismus and with some physiotherapy I was able to control my pelvic muscles really well. But sex was still painful!!!!

After about 2 months of the medication, I would have a thrush infection after my period without fail. Well, I think it was thrush. I was always too scared to get swabbed because of my vaginismus and some terrible past experiences but it wasn't like before the treatment. I had no discharge just a very painful ich. So I can't say 100% it was thrush. I had the itching and the burning. I would treat it with the pessary and cream and I got a level of relief. It stayed irritated between treatments but I just assumed it was thrush.

When I was at my last appointment with my physiotherapist (I have since been discharged because I am a master of my pelvic floor Wink) she suggested that it could be vulvodynia. I have mild discomfort when I sit down sometimes and major discomfort during penetration at the beginning. Certain lubes really sting and burn. I'm okay most of the time to be fair but it flares up awfully right after my period. I'm not sure if it is thrush or not. I have pain on a touch of the entrance towards the urethra mainly. The doctors I've seen have been pretty useless, to be honest. At my last appointment, he said he would like to put the coil in to stop my periods so then I would have no problem ..... A coil with vaginismus...I just don't think it's a long-term solution.

Moistueristers and emollients to wash tend to help a bit but only slightly. Could it be that I just have dryness? I have had my hormones tested after my period and they all came back normal and I am not diabetic. I also have a long-running heart condition so I am unable to take oestrogen for clotting reasons.

I have been given the vagasil numbing stuff but I'm trying not to just depend on that. I want to solve the problem if I can. I know from reading the other women's stories on this forum I don't have half of the symptoms of the other women so for that I am very lucky.

I have been taking probiotics for a month now and after my last period although I got a lot of discomfort that has eased slightly with no thrush treatment. My questions to you are....

1)Is it vulvadynia?
2)Is it caused by thrush?
3)Why is it worse after my period?
4)Do you guys suggest boric acid capsules?
5)Coconut oil?
6)Calcium citrate and a low oxalate diet?
7)Will this be with me forever because I'm at that point where I'm started to lose hope?
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me?
9)If I go back on the 6 months medication do you think my symptoms will go away?

EnglishStudent

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Re: Could do with some advise

Post  Coop on Sat Mar 31, 2018 8:46 pm

Sorry, I haven't checked the site for a while,so only just read this!

Have you ever heard of Honeymoon Cystitis? Worth a read! I don't know the cure, but understand that the longer with your current partner,the more you'll get "used" to him, and the less the likelihood of repeat infections. maybe a nutritionist could help, but maybe not. It depends whether they have experience in your area or not!

Gynaes can be hit and miss. I once saw one who didn't believe in vulvodynia, and thought "great, someone who will find the cause, rather than palm me off with amitriptyline, and hope for the best" but after her hapless diagnosis of "dermatitis" I saw a specialist who confirmed vulvodynia is real, and the gynae had tried to fob me off because she was out her comfort zone.

Coop

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Re: Could do with some advise

Post  sarisbaris on Thu Apr 05, 2018 9:37 pm

I had vulvodynia for 15 years. I'm cured now. I followed the protocol by Anthony William. Now I troll the internet trying to help women heal themselves. Here's my blog and some answers for you.

1)Is it vulvadynia? Vulvodynia just means vagina pain. If you're vagina hurts and the conventional doctors don't know then congrats! You have vulvodynia. Wink Don't believe their labels. I can explain what's really going on.
2)Is it caused by thrush? According to Anthony William, thrush is caused by unknown/currently undetectable strain of strep, if the rash is really thrush. If they or you think it was Lichen Sclerosus, then that can be caused by shingles. The protocols to kill strep and shingles are similar.
3)Why is it worse after my period? Because during the time of your period 80% of your immunity goes to your reproductive system leaving the rest of your body with only 20% of your immunity to handles the rest of the viruses.
4)Do you guys suggest boric acid capsules? Nope
5)Coconut oil? It actually did help one woman I'm helping, it depends. It didn't help me. I can recommend more productive things to do as well. Coconut oil is anti-bacteria and since strep is a bacteria then it might help your case. But it would kill the virus, you need to kill it in your organs to really flush the virus out.
6)Calcium citrate and a low oxalate diet? Nope.
7)Will this be with me forever because I'm at that point where I'm started to lose hope? Nope, definitely not. Read my blog. I'm cured and mine was insanely painful.
8)The implant? So then I don't have to use condoms and can use oil-based lube which doesn't hurt me? Not sure what you mean here. I would wait a little longer for sex. You can mess around but don't worry, once you kill the viruses you can enjoy sex as much as you want. I can give you advice in this area but I can talk about it over the phone.
9)If I go back on the 6 months medication do you think my symptoms will go away? Nope. Right now conventional docs don't know yet what's going on. They are great at detecting life threatening things... cancer, tumors, etc but not this problem, not yet.

If you want my help, check out my blog. I found that the protocol choices can be a bit overwhelming since everyone's case is slightly different and chronic pain messes with your head. Once I had a conversation with each woman and made them a plan, then they started to see some results and their pain went down. This is how the healing process begins. Just keep following the protocol and little by little it gets better until it's gone.

http://myvulvodyniacure.blogspot.com/
sarisbaris40@gmail.com
Email me your medical history, lady part medical history, current diet (breakfast, lunch, dinner, snacks, drinks, prescriptions then I'll send you some times I'm available to talk.

Don't give up!
Sarah

sarisbaris

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Re: Could do with some advise

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