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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


No diagnosis yet

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No diagnosis yet

Post  Lill83 on Sun Apr 01, 2018 6:43 pm

Hi guys,

I wonder if anyone can help. I have not had a diagnosis of Vulvodynia yet but I’m positive it is what I’m experiencing. I can’t believe how suddenly and unexpectedly this has taken over my life. I’m 35 years old and have been single for around a year. I have just started seeing someone and at the beginning of feb I decided to go to my gp and start bc. I had been taking it for around 2 weeks when I was suddenly struck with a bad case of tonsillitis which is normal during stressful times (which lately has been stressful with one thing and another). I went to my GP and was prescribed antibiotics. I was also prescribed treatment for vaginal thrush as I always get thrush when I am on antibiotics. Sure enough thrush appeared but it was so severe I needed three lots of treatment to get rid of it. Ever since I have been burning and sometimes itching but it does not feel like thrush. It comes and goes and having sex with my new partner is almost impossible. I just feel like I’m on fire down below and in some areas quite painful too. I don’t know if this is some after effect of ready bad thrush or because of my bc. Any advice ladies. Thank you

Lill83

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Re: No diagnosis yet

Post  Warrior2010 on Wed Apr 04, 2018 5:58 am

I developped vulvodynia after a pretty bad UTI in 2010. A few days after there was massive buning from the vulvar tissue and the doctor said it was a yeast infection and I took one of those OTC treatments. It made it worse! I went back and ahe said "It will just go away " ???? So instead  I got a gyne appoint through another doc, did those insertable probiotic ovules etc- after 1week of that it was worse- the highest pain I've ever had. It was the acid from the lactibacillis that further "burned the skin". So I went back to this gyne and I was prescribed a steroid cream for 6 weeks because he thought I had lichen sclerosis. Let's just say the most I could do was 2 weeks because the cream made even worse again! By then I'm in agony and decide to go to an acupuncturist to help with the pain. It brought it down by 30-40%. So acupuncture could help regulate any circulation and pain issues.  That would be my best suggestion to start with.  Also thwre is a probiotic tablet called RePhresh ( that's how it's spelled- not a typo...). It's just for women. Then please consider seeing a pelvic physiotherapist that's what saved me really. I still have issues but the problem all along was screwed up connective tissue and muscle dysfunction. Good luck and take care.

Warrior2010

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Re: No diagnosis yet

Post  sarisbaris on Thu Apr 05, 2018 11:28 pm

Ok.. so I had unprovoked vulvodynia and provoked vulvodynia, chronic UTI, chronic yeast, lichen sclerosis, etc. I'm cured from it all. I followed the protocol by Anthony William.

According to Anthony, UTIs are caused by an unknown/currently undetectable strain of strep. Thrush is also caused by strep. It's a little confusing but lichen sclerosis is sometimes not recognized completely and that's caused by shingles. I think you're batting strep since of the UTI issues.

In my blog, under "necessary reading" I would listen to the shows on strep, lichen sclerosis and UTI (the UTI show covers more than just UTI)
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

If this is too much, I started coaching women and helping them create a protocol and it's really been working for them. So that's exciting. I'm not a practitioner, I don't charge. It's just the right thing to do since no one else has been helping. At least no one could help me except his info. And chronic pain really messes with your head so it's hard to see straight when you're in pain. I get it.

My email is on the bottom of my blog.

Don't give up!
Sarah

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Re: No diagnosis yet

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