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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured


    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35


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    Post  Licii on Sat Apr 07, 2018 7:01 pm


    I'm new to the forum and I joined in to feel a little bit less lonely in this nightmare. I'm well aware of the fact that there are lots of women struggling with vulvodynia, but I don't really know any, so it feels as if I'm the only one.
    Anyway, my name is Alice, I'm 19 and my vulvodynia started when I was just 17, but worsened a lot when I was 18.
    Luckily I've found a gynaecologist who has lots of patients with vulvodynia and has cured or strongly helped many of them, but so far I haven't yet seen noticeable improvments on myself.
    My burnig pain is pretty strong everyday, all the time, and depression is hitting real hard.
    I was hoping to find someone in my same situation and gain a little comfort from sharing our experiences :/

    Good luck to eveybody out there struggling everyday <3


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    Re: Loneliness

    Post  sophiarp on Wed Apr 11, 2018 11:36 am

    Hey Licii,

    Welcome to the forum - sorry that you have to be here Sad I definitely share your feeling of isolation and have found that my diagnosis has taken a huge toll on my self esteem and mental health. I'm 23 and have had vulvodynia my whole life but only received a diagnosis last year (it's a long story!). You're certainly not alone in feeling this way, even though it feels sometimes like you are. It's so tough being the only one you know with this condition.. I hate having to constantly explain why my legs are cold (because tights and pants hurt!), why I need to sit on a cushion sometimes, why I can't use tampons etc. Tonight at a party my friend asked me if I could have penetrative sex yet. I told him that I can't and that this is a long journey and I don't know if I ever will. He told me that he admired my boyfriend because he (the friend) could never put up with being in a relationship with someone with my condition. It's so depressing, and the constant burning is only a consistent reminder of how bad it feels emotionally.

    Alas, it sounds like you've got a great gyno. It seems to me like treatment is all trial and error, which sucks, but it's nice to have someone on your side who gets it.

    Sending you love!


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