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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35


    Loneliness

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    Loneliness

    Post  Licii on Sat Apr 07, 2018 7:01 pm

    Hi,

    I'm new to the forum and I joined in to feel a little bit less lonely in this nightmare. I'm well aware of the fact that there are lots of women struggling with vulvodynia, but I don't really know any, so it feels as if I'm the only one.
    Anyway, my name is Alice, I'm 19 and my vulvodynia started when I was just 17, but worsened a lot when I was 18.
    Luckily I've found a gynaecologist who has lots of patients with vulvodynia and has cured or strongly helped many of them, but so far I haven't yet seen noticeable improvments on myself.
    My burnig pain is pretty strong everyday, all the time, and depression is hitting real hard.
    I was hoping to find someone in my same situation and gain a little comfort from sharing our experiences :/

    Good luck to eveybody out there struggling everyday <3

    Licii

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    Join date : 2018-04-07

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    Re: Loneliness

    Post  sophiarp on Wed Apr 11, 2018 11:36 am

    Hey Licii,

    Welcome to the forum - sorry that you have to be here Sad I definitely share your feeling of isolation and have found that my diagnosis has taken a huge toll on my self esteem and mental health. I'm 23 and have had vulvodynia my whole life but only received a diagnosis last year (it's a long story!). You're certainly not alone in feeling this way, even though it feels sometimes like you are. It's so tough being the only one you know with this condition.. I hate having to constantly explain why my legs are cold (because tights and pants hurt!), why I need to sit on a cushion sometimes, why I can't use tampons etc. Tonight at a party my friend asked me if I could have penetrative sex yet. I told him that I can't and that this is a long journey and I don't know if I ever will. He told me that he admired my boyfriend because he (the friend) could never put up with being in a relationship with someone with my condition. It's so depressing, and the constant burning is only a consistent reminder of how bad it feels emotionally.

    Alas, it sounds like you've got a great gyno. It seems to me like treatment is all trial and error, which sucks, but it's nice to have someone on your side who gets it.

    Sending you love!

    sophiarp

    Posts : 8
    Join date : 2018-01-07

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