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    » I think I've developed vulvodynia?? Please help!
    Yesterday at 9:10 pm by Necromeowncer

    » MY STORY & Vestibulectomy 2/8/17
    Yesterday at 12:38 pm by Mel T

    » New w/ Secondary Provoked Vestibuldynia
    Sun Oct 22, 2017 3:47 am by Birdy

    » Newly diagnosed
    Sat Oct 21, 2017 9:50 pm by sarisbaris

    » Prednisone Injections?
    Wed Oct 18, 2017 5:07 am by sarisbaris

    » Has anyone had continued success with gabapentin or Botox injections?
    Wed Oct 18, 2017 4:47 am by sarisbaris

    » Recent "Poke" Pain - So Confused/Losing My Mind
    Wed Oct 18, 2017 2:37 am by sarisbaris

    » What is Vulvodynia?
    Tue Oct 17, 2017 11:57 pm by Jenjen

    » CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
    Mon Oct 16, 2017 2:22 am by Sagewoman

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1


    Ever hopeful!

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    Ever hopeful!

    Post  CamperUK on Thu Feb 17, 2011 7:51 pm

    It was in the July of 2009 and that I first experienced discomfort during sex. I thought it would go away so ignored it for a while, but noticed a small lump. The doctor assured me it was a harmless cyst that would go away in time. Indeed it did but the pain did not. My doctor referred me to the Gynae Clinic where I was diagnosed with vulvodynia. Great, I thought, a diagnosis so the treatment can start straight away. But as we all know,there is no cure for this horrid condition. I did try Canesten cream but it made the condition much worse.

    My symptoms:
    Discomfort, sometimes intense.
    Constant burning sensation, this I can live with day to day, only during sex is it almost unbearable.
    Stinging sensation at the perineum.
    During sex the pain is similar to stabbing and burning.
    Treatments offered:
    Lidocaine. Does not help.
    Dilators. Have not even tried, seems futile?
    Self-help:
    I do not use any perfumed toiletries. Only Simple soap.
    White cotton undies from M & S. Laundered in Fairy non-bio on a hot wash. No fabric conditioner.
    Only use white toilet paper, not perfumed or patterned.
    I am already taking Fluoxetine (Prozac) which is a different kind of anti-depressant to the type sometimes offered to V sufferers and I dare not change as it works for me.
    Currently, I am using Vaseline but there is no change to my condition.

    I'm so pleased that I have found this forum to share experiences and hopefully mutual help and support. One thing I would really like to know is what happened to start my Vulvodynia off. Was it the menopause, the cyst, could it have been a minor trauma when I had a bikini wax? Off to read through the threads now and get some ideas to alleviate the discomfort until someone finds a miracle cure and we can all get on with our lives!

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    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 9:26 pm

    Hey! Smile

    Thats just it camper...WTF has caused this????

    For me...I speculate about several things...but really its important to see this in the big picture.

    My health has always been the weakest out of all my family...I was always getting sick, getting eczema, tonsilitis....you name it.

    I think this V stuff is one part derme, one part inflammatory, one part neurological. Its a combo of things and as a result a combo of treatments are required for this...in other words it requires a multi disciplinary appraoch.

    Thanks for sharing Smile

    You will find the support you need on here...
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    Re: Ever hopeful!

    Post  Sebby (Admin) on Thu Feb 17, 2011 9:50 pm

    Its really hard to pin point what causes it, I think a number of things contributed to my eventual full blown constant pain:

    Long term antibiotics - for acne for years when younger
    Senstive skin - in general any perfumed products in the bath over time set off pain and thrush infections.
    Tight pelvic area and Vaginismus - since I was 13 I couldnt even use tampons and I have always been tight - also a sexual assult at 15 made this a lot worse
    Ongoing back problems - it seems many women with vulval pain have back pain, I have had this since I was a child. Was even given an xray on my back but they couldnt find anything wrong?
    Nerves? - im unsure about the whole over active nerve firing thing which is why im testing this and have started taking pregabalin.

    Cor dear right now I really hate my vulvar! think i might exchange it for a chocolate orange Smile
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    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 10:28 pm

    Yeah Sebby...I think its a combo of things that set us up for this...Im sure sooner or later »I would have developed this...

    1. My Usage of antibiotics for tonsil issues
    2. Skin sensitivities
    3. Maybe some neurological issues?
    4. WTF who knows

    Problem is...we all need to act as our own docs!

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    Re: Ever hopeful!

    Post  Sebby (Admin) on Thu Feb 17, 2011 10:32 pm


    Well if we all dont get honorary doctorates in a few years time I will be mighty pissed!

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    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 10:34 pm

    Haha...I think were over qualified for doc status...we are specialists!
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    Re: Ever hopeful!

    Post  Mouse on Thu Feb 17, 2011 10:52 pm

    I think it's that bloody pudendal nerve then the muscles on the pelvic floor bunch up in reaction to perceived pain. Well for me anyway.

    Mine kicked off after surgery down there... hmmmm one year ago this week. What no champagne???

    All those anti depressents are to rewire the brains reaction to pain. Who knows maybe an electric current would work better.

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    Re: Ever hopeful!

    Post  CamperUK on Fri Feb 18, 2011 9:34 am

    Thanks all! Back pain, Sebby? I hurt my back a few years ago while moving furniture and get a flare up now and again (gardening usually sets it off) but I never made the link with V. Stress seems to make it worse or is it that when you feel stressed other feelings are heightened? Can someone find a cure please I would rather chat about chocolate oranges!!!

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    Re: Ever hopeful!

    Post  Sarah001 on Fri Feb 18, 2011 12:06 pm

    Hey Mouse snap, I'm also at my one year anniversary now. If someone had told me I'd still have the problem in a years time I'd never have believed them back then.
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    mmmm chocolate oranges

    Post  saskatownv on Fri Feb 18, 2011 4:27 pm

    All of my problems started after an abortion. I had never had any problems before then. First it was reccuring yeast infections for years, and finally when that was cured (by a naturopath I might add, not a gyno). I guess from all of the yeast infection creams etc. that I was using I was left with V.

    What I have learned. Never put any cream, steroids etc on your vulva without talking to someone first. I used tea tree oil as an anti fungal and it probably did a lot of damage to the nerve endings.

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    Re: Ever hopeful!

    Post  Mouse on Sat Feb 19, 2011 12:48 am

    Interesting you say that Sally, my physio was very keen to attribute mine to some trauma down there. I've had 3 fairly uneventful deliveries. She says the body remembers trauma. I did have some of that when I was younger and haven't had the courage to mention it yet. It's my aim to do it when I see her on Tuesday. I have my therapist Wednesday and she suggested I share... so I'm on a time limit with my homework :\


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    Re: Ever hopeful!

    Post  Sebby (Admin) on Sun Feb 20, 2011 1:19 pm


    Yes Camper I have always had a dodgy back and pain since I was a little girl. I remember when we would all sit in the TV roomm to watch crap the teachers thought was educational and I was probably the only 7-8 year old who had to sit up straight and think about my posture. My back would ache terribly.

    I used to pull the back muscles quite frequently too and be laid out on the sofa. Drs couldnt find a reason, did and x ray and said I was ok.

    I guess I just saw it as part of my life, had to be careful doing the garden, hoovering etc I put my back out hoovering loads of times!

    yes I really do think I need a physio! or a chocolate orange...either/or Laughing

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    Re: Ever hopeful!

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