Log in

I forgot my password

Similar topics
    Latest topics
    » Post Vestibulectomy
    Tue Aug 22, 2017 6:48 pm by JGD13

    » Vestibulectomy
    Fri Aug 18, 2017 12:39 pm by Hopeitworks

    » Anyone been to see Dr.Claire Bailey in Birmingham?
    Tue Aug 15, 2017 6:36 pm by Kezz

    » Recently Diagnosed.... Help!
    Tue Aug 15, 2017 2:57 pm by amyhp

    » Discomfort from my own liquids
    Sun Aug 13, 2017 4:27 am by Hopeitworks

    » Anyone else have burning on the front of thighs?
    Sun Aug 13, 2017 2:20 am by Hopeitworks

    » Partial Vestibulectomy
    Sun Aug 13, 2017 1:38 am by infinitelywondering

    » Anyone being treated by Drexel University???
    Sat Aug 12, 2017 8:50 pm by Hopeitworks

    » Post Vestibulectomy Pain !!!
    Sat Aug 12, 2017 8:00 pm by sj17

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 1

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 1

    New to the site and just had a vestibulectomy

    Fri Aug 04, 2017 12:19 am by Hopeitworks

    Hello Everyone,

    I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

    Comments: 2

    can anyone recommend a good dermatologist in LA?

    Thu Jul 27, 2017 4:17 pm by saffron

    Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

    I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

    Comments: 3

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 0


    Ever hopeful!

    View previous topic View next topic Go down

    Ever hopeful!

    Post  CamperUK on Thu Feb 17, 2011 7:51 pm

    It was in the July of 2009 and that I first experienced discomfort during sex. I thought it would go away so ignored it for a while, but noticed a small lump. The doctor assured me it was a harmless cyst that would go away in time. Indeed it did but the pain did not. My doctor referred me to the Gynae Clinic where I was diagnosed with vulvodynia. Great, I thought, a diagnosis so the treatment can start straight away. But as we all know,there is no cure for this horrid condition. I did try Canesten cream but it made the condition much worse.

    My symptoms:
    Discomfort, sometimes intense.
    Constant burning sensation, this I can live with day to day, only during sex is it almost unbearable.
    Stinging sensation at the perineum.
    During sex the pain is similar to stabbing and burning.
    Treatments offered:
    Lidocaine. Does not help.
    Dilators. Have not even tried, seems futile?
    Self-help:
    I do not use any perfumed toiletries. Only Simple soap.
    White cotton undies from M & S. Laundered in Fairy non-bio on a hot wash. No fabric conditioner.
    Only use white toilet paper, not perfumed or patterned.
    I am already taking Fluoxetine (Prozac) which is a different kind of anti-depressant to the type sometimes offered to V sufferers and I dare not change as it works for me.
    Currently, I am using Vaseline but there is no change to my condition.

    I'm so pleased that I have found this forum to share experiences and hopefully mutual help and support. One thing I would really like to know is what happened to start my Vulvodynia off. Was it the menopause, the cyst, could it have been a minor trauma when I had a bikini wax? Off to read through the threads now and get some ideas to alleviate the discomfort until someone finds a miracle cure and we can all get on with our lives!

    CamperUK

    Posts : 15
    Join date : 2011-02-15

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 9:26 pm

    Hey! Smile

    Thats just it camper...WTF has caused this????

    For me...I speculate about several things...but really its important to see this in the big picture.

    My health has always been the weakest out of all my family...I was always getting sick, getting eczema, tonsilitis....you name it.

    I think this V stuff is one part derme, one part inflammatory, one part neurological. Its a combo of things and as a result a combo of treatments are required for this...in other words it requires a multi disciplinary appraoch.

    Thanks for sharing Smile

    You will find the support you need on here...
    avatar
    noni

    Posts : 242
    Join date : 2011-01-10
    Age : 30
    Location : Ontario

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  Sebby (Admin) on Thu Feb 17, 2011 9:50 pm

    Its really hard to pin point what causes it, I think a number of things contributed to my eventual full blown constant pain:

    Long term antibiotics - for acne for years when younger
    Senstive skin - in general any perfumed products in the bath over time set off pain and thrush infections.
    Tight pelvic area and Vaginismus - since I was 13 I couldnt even use tampons and I have always been tight - also a sexual assult at 15 made this a lot worse
    Ongoing back problems - it seems many women with vulval pain have back pain, I have had this since I was a child. Was even given an xray on my back but they couldnt find anything wrong?
    Nerves? - im unsure about the whole over active nerve firing thing which is why im testing this and have started taking pregabalin.

    Cor dear right now I really hate my vulvar! think i might exchange it for a chocolate orange Smile
    avatar
    Sebby (Admin)
    Admin

    Posts : 750
    Join date : 2009-12-03
    Age : 36
    Location : London UK

    View user profile http://vulvodyniasupport.forumotion.net

    Back to top Go down

    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 10:28 pm

    Yeah Sebby...I think its a combo of things that set us up for this...Im sure sooner or later »I would have developed this...

    1. My Usage of antibiotics for tonsil issues
    2. Skin sensitivities
    3. Maybe some neurological issues?
    4. WTF who knows

    Problem is...we all need to act as our own docs!

    avatar
    noni

    Posts : 242
    Join date : 2011-01-10
    Age : 30
    Location : Ontario

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  Sebby (Admin) on Thu Feb 17, 2011 10:32 pm


    Well if we all dont get honorary doctorates in a few years time I will be mighty pissed!

    _________________
    Sebby
    XxX

    admin@vulvodyniasupportforum.com
    avatar
    Sebby (Admin)
    Admin

    Posts : 750
    Join date : 2009-12-03
    Age : 36
    Location : London UK

    View user profile http://vulvodyniasupport.forumotion.net

    Back to top Go down

    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 10:34 pm

    Haha...I think were over qualified for doc status...we are specialists!
    avatar
    noni

    Posts : 242
    Join date : 2011-01-10
    Age : 30
    Location : Ontario

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  Mouse on Thu Feb 17, 2011 10:52 pm

    I think it's that bloody pudendal nerve then the muscles on the pelvic floor bunch up in reaction to perceived pain. Well for me anyway.

    Mine kicked off after surgery down there... hmmmm one year ago this week. What no champagne???

    All those anti depressents are to rewire the brains reaction to pain. Who knows maybe an electric current would work better.

    Mouse

    Posts : 303
    Join date : 2010-09-09
    Location : New Zealand

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  CamperUK on Fri Feb 18, 2011 9:34 am

    Thanks all! Back pain, Sebby? I hurt my back a few years ago while moving furniture and get a flare up now and again (gardening usually sets it off) but I never made the link with V. Stress seems to make it worse or is it that when you feel stressed other feelings are heightened? Can someone find a cure please I would rather chat about chocolate oranges!!!

    CamperUK

    Posts : 15
    Join date : 2011-02-15

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  Sarah001 on Fri Feb 18, 2011 12:06 pm

    Hey Mouse snap, I'm also at my one year anniversary now. If someone had told me I'd still have the problem in a years time I'd never have believed them back then.
    avatar
    Sarah001

    Posts : 1163
    Join date : 2010-06-11
    Age : 44
    Location : UK

    View user profile

    Back to top Go down

    mmmm chocolate oranges

    Post  saskatownv on Fri Feb 18, 2011 4:27 pm

    All of my problems started after an abortion. I had never had any problems before then. First it was reccuring yeast infections for years, and finally when that was cured (by a naturopath I might add, not a gyno). I guess from all of the yeast infection creams etc. that I was using I was left with V.

    What I have learned. Never put any cream, steroids etc on your vulva without talking to someone first. I used tea tree oil as an anti fungal and it probably did a lot of damage to the nerve endings.

    saskatownv

    Posts : 15
    Join date : 2011-02-07

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  Mouse on Sat Feb 19, 2011 12:48 am

    Interesting you say that Sally, my physio was very keen to attribute mine to some trauma down there. I've had 3 fairly uneventful deliveries. She says the body remembers trauma. I did have some of that when I was younger and haven't had the courage to mention it yet. It's my aim to do it when I see her on Tuesday. I have my therapist Wednesday and she suggested I share... so I'm on a time limit with my homework :\


    Mouse

    Posts : 303
    Join date : 2010-09-09
    Location : New Zealand

    View user profile

    Back to top Go down

    Re: Ever hopeful!

    Post  Sebby (Admin) on Sun Feb 20, 2011 1:19 pm


    Yes Camper I have always had a dodgy back and pain since I was a little girl. I remember when we would all sit in the TV roomm to watch crap the teachers thought was educational and I was probably the only 7-8 year old who had to sit up straight and think about my posture. My back would ache terribly.

    I used to pull the back muscles quite frequently too and be laid out on the sofa. Drs couldnt find a reason, did and x ray and said I was ok.

    I guess I just saw it as part of my life, had to be careful doing the garden, hoovering etc I put my back out hoovering loads of times!

    yes I really do think I need a physio! or a chocolate orange...either/or Laughing

    _________________
    Sebby
    XxX

    admin@vulvodyniasupportforum.com
    avatar
    Sebby (Admin)
    Admin

    Posts : 750
    Join date : 2009-12-03
    Age : 36
    Location : London UK

    View user profile http://vulvodyniasupport.forumotion.net

    Back to top Go down

    Re: Ever hopeful!

    Post  Sponsored content


    Sponsored content


    Back to top Go down

    View previous topic View next topic Back to top

    - Similar topics

     
    Permissions in this forum:
    You cannot reply to topics in this forum