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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Yesterday at 1:29 am by ryn207

    » So frustrating!!
    Yesterday at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Yesterday at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Mon Jan 15, 2018 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1


    Ever hopeful!

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    Ever hopeful!

    Post  CamperUK on Thu Feb 17, 2011 7:51 pm

    It was in the July of 2009 and that I first experienced discomfort during sex. I thought it would go away so ignored it for a while, but noticed a small lump. The doctor assured me it was a harmless cyst that would go away in time. Indeed it did but the pain did not. My doctor referred me to the Gynae Clinic where I was diagnosed with vulvodynia. Great, I thought, a diagnosis so the treatment can start straight away. But as we all know,there is no cure for this horrid condition. I did try Canesten cream but it made the condition much worse.

    My symptoms:
    Discomfort, sometimes intense.
    Constant burning sensation, this I can live with day to day, only during sex is it almost unbearable.
    Stinging sensation at the perineum.
    During sex the pain is similar to stabbing and burning.
    Treatments offered:
    Lidocaine. Does not help.
    Dilators. Have not even tried, seems futile?
    Self-help:
    I do not use any perfumed toiletries. Only Simple soap.
    White cotton undies from M & S. Laundered in Fairy non-bio on a hot wash. No fabric conditioner.
    Only use white toilet paper, not perfumed or patterned.
    I am already taking Fluoxetine (Prozac) which is a different kind of anti-depressant to the type sometimes offered to V sufferers and I dare not change as it works for me.
    Currently, I am using Vaseline but there is no change to my condition.

    I'm so pleased that I have found this forum to share experiences and hopefully mutual help and support. One thing I would really like to know is what happened to start my Vulvodynia off. Was it the menopause, the cyst, could it have been a minor trauma when I had a bikini wax? Off to read through the threads now and get some ideas to alleviate the discomfort until someone finds a miracle cure and we can all get on with our lives!

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    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 9:26 pm

    Hey! Smile

    Thats just it camper...WTF has caused this????

    For me...I speculate about several things...but really its important to see this in the big picture.

    My health has always been the weakest out of all my family...I was always getting sick, getting eczema, tonsilitis....you name it.

    I think this V stuff is one part derme, one part inflammatory, one part neurological. Its a combo of things and as a result a combo of treatments are required for this...in other words it requires a multi disciplinary appraoch.

    Thanks for sharing Smile

    You will find the support you need on here...
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    Re: Ever hopeful!

    Post  Sebby (Admin) on Thu Feb 17, 2011 9:50 pm

    Its really hard to pin point what causes it, I think a number of things contributed to my eventual full blown constant pain:

    Long term antibiotics - for acne for years when younger
    Senstive skin - in general any perfumed products in the bath over time set off pain and thrush infections.
    Tight pelvic area and Vaginismus - since I was 13 I couldnt even use tampons and I have always been tight - also a sexual assult at 15 made this a lot worse
    Ongoing back problems - it seems many women with vulval pain have back pain, I have had this since I was a child. Was even given an xray on my back but they couldnt find anything wrong?
    Nerves? - im unsure about the whole over active nerve firing thing which is why im testing this and have started taking pregabalin.

    Cor dear right now I really hate my vulvar! think i might exchange it for a chocolate orange Smile
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    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 10:28 pm

    Yeah Sebby...I think its a combo of things that set us up for this...Im sure sooner or later »I would have developed this...

    1. My Usage of antibiotics for tonsil issues
    2. Skin sensitivities
    3. Maybe some neurological issues?
    4. WTF who knows

    Problem is...we all need to act as our own docs!

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    Re: Ever hopeful!

    Post  Sebby (Admin) on Thu Feb 17, 2011 10:32 pm


    Well if we all dont get honorary doctorates in a few years time I will be mighty pissed!

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    Re: Ever hopeful!

    Post  noni on Thu Feb 17, 2011 10:34 pm

    Haha...I think were over qualified for doc status...we are specialists!
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    Re: Ever hopeful!

    Post  Mouse on Thu Feb 17, 2011 10:52 pm

    I think it's that bloody pudendal nerve then the muscles on the pelvic floor bunch up in reaction to perceived pain. Well for me anyway.

    Mine kicked off after surgery down there... hmmmm one year ago this week. What no champagne???

    All those anti depressents are to rewire the brains reaction to pain. Who knows maybe an electric current would work better.

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    Re: Ever hopeful!

    Post  CamperUK on Fri Feb 18, 2011 9:34 am

    Thanks all! Back pain, Sebby? I hurt my back a few years ago while moving furniture and get a flare up now and again (gardening usually sets it off) but I never made the link with V. Stress seems to make it worse or is it that when you feel stressed other feelings are heightened? Can someone find a cure please I would rather chat about chocolate oranges!!!

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    Re: Ever hopeful!

    Post  Sarah001 on Fri Feb 18, 2011 12:06 pm

    Hey Mouse snap, I'm also at my one year anniversary now. If someone had told me I'd still have the problem in a years time I'd never have believed them back then.
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    mmmm chocolate oranges

    Post  saskatownv on Fri Feb 18, 2011 4:27 pm

    All of my problems started after an abortion. I had never had any problems before then. First it was reccuring yeast infections for years, and finally when that was cured (by a naturopath I might add, not a gyno). I guess from all of the yeast infection creams etc. that I was using I was left with V.

    What I have learned. Never put any cream, steroids etc on your vulva without talking to someone first. I used tea tree oil as an anti fungal and it probably did a lot of damage to the nerve endings.

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    Re: Ever hopeful!

    Post  Mouse on Sat Feb 19, 2011 12:48 am

    Interesting you say that Sally, my physio was very keen to attribute mine to some trauma down there. I've had 3 fairly uneventful deliveries. She says the body remembers trauma. I did have some of that when I was younger and haven't had the courage to mention it yet. It's my aim to do it when I see her on Tuesday. I have my therapist Wednesday and she suggested I share... so I'm on a time limit with my homework :\


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    Re: Ever hopeful!

    Post  Sebby (Admin) on Sun Feb 20, 2011 1:19 pm


    Yes Camper I have always had a dodgy back and pain since I was a little girl. I remember when we would all sit in the TV roomm to watch crap the teachers thought was educational and I was probably the only 7-8 year old who had to sit up straight and think about my posture. My back would ache terribly.

    I used to pull the back muscles quite frequently too and be laid out on the sofa. Drs couldnt find a reason, did and x ray and said I was ok.

    I guess I just saw it as part of my life, had to be careful doing the garden, hoovering etc I put my back out hoovering loads of times!

    yes I really do think I need a physio! or a chocolate orange...either/or Laughing

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    Re: Ever hopeful!

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