Vulvodynia Support
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» Hope to all my suffering ladies
Am I crazy? Am I making this up? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Am I crazy? Am I making this up? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Am I crazy? Am I making this up? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Am I crazy? Am I making this up? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Am I crazy? Am I making this up? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Am I crazy? Am I making this up? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Am I crazy? Am I making this up? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Am I crazy? Am I making this up? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Am I crazy? Am I making this up? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Am I crazy? Am I making this up?

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Post  Keliza Fri Apr 27, 2018 9:01 pm

I went in for my annual exam this month, but didn't need a pap smear (thankfully). My doctor asked how my vulvar pain was, and I said the lidocaine cream wasn't work as well as it used to, and that I was thinking of going back to the specialist to ask about any other medication. She said, ok. Then we moved on. After I left, I checked my online chart and saw that she had canceled my prescription of lidocaine. I was so upset so I emailed and explained that without the cream I am in so much pain. I had just meant to convey that I wished I could find something better. She replied that I could have one refill but that was it, and that I needed to see the specialist. But it takes months to get an appointment with the specialist! Why would she do this to me? It took years of pain, several humiliating doctors appointments where I was either misdiagnosed or ignored, to get even just the cream. Is my pain of so little consequence? Is this my fault, where if I could just eat a better diet or something, that it would go away? I hate that I am always being made to feel like I just need to get over it and live with the pain, or that it's all in my head. So now I am trying to get the earliest appointment I can and hope the refill lasts me long enough. I will be ok. I have lived with this untreated for a long time, so I know i can handle it, but still. Going backwards feels so, so depressing.

Keliza

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Join date : 2018-04-27

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Post  sarisbaris Fri Apr 27, 2018 10:15 pm

My heart hurts reading this. I had V for 15 years and left the doctors office countless times in tears. I found them cruel and uncaring. Only to find that the specialists who were familiar with V were very caring because they were more experienced but could still do nothing. To cut to the chase, I'm cured. Not joking. After 20+ conventional doc and countless alternative ones and years of tears, my battle with V is done.

Ok... I followed the protocol by Anthony William. According to him vaginal burning is caused by an unknown and currently undetectable strains of shingles or strep. Here's my blog. You have to eliminate foods that feed the virus and eat the foods/herbs the kill the virus. These viruses aren't strong but women just don't know what they are fighting.

If you find my blog overwhelming you're not alone. Women started to reach out to me because they didn't know where to begin. Each person is different. V is probably not your only problem physically. Your body has probably been sick for some time. I was able to help them narrow down what they are fighting and coach them through the beginning steps. It's been a blessing because I get to witness their pain reducing and hold their hands while they heal. It's hard do this alone and isolated. It's hard to do this without the help of someone whose been there. It's hard to see through the pain because chronic pain and lack of hope make the world blurry. I know. I'm trying to be the person I wish I had when I was sick.

http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

Don't lose hope and don't settle for nothing more than a healthy body!



sarisbaris

Posts : 69
Join date : 2014-02-17

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Post  Keliza Fri Apr 27, 2018 10:38 pm

Thank you so much for your words of encouragement. I am in tears just reading your post. It feels so good to be heard and understood. I have started reading your blog and will work on the things you have written.

Keliza

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Join date : 2018-04-27

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Post  sarisbaris Fri Apr 27, 2018 10:46 pm

I would love to help you! Read this page and send me your answers. Women have been reaching out to me the past months. I talk to a few each week now. I can help you start. The conversation usually takes about an hour. Here's all the info you need to know.

http://myvulvodyniacure.blogspot.com/2018/04/do-you-need-help.html


sarisbaris

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