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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

My Personal Journey with Vaginismus/Vulvodynia

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My Personal Journey with Vaginismus/Vulvodynia

Post  stillinpain on Fri May 04, 2018 3:10 am

I've been struggling with this since age 12, but have probably had it forever. I got my Vaginismus from a traumatizing pelvic exam at 12 and recently discovered that my Vulvodynia is Nueroproliferative, which means it came from the way I was formed in the womb. This revelation led me to get a Vestibulectomy in Nov to remove the painful area at the perineum. Unfortunately when my gyno poked me with the Qtip by my clit right before the surgery I screamed quite shocked at how much it hurt so she ended up giving me a full instead of a partial. Now, 5 months later, my vagina looks completely different (more folds at the top and it's like she removed a bunch of skin from the bottom, leaving it more curved) and the Botox injections have just worn off so I have a really bad infection that won't go away. My bf said I was taking too long to recover and left me. I only have one session of physical therapy left but I keep pushing it back due to this infection preventing me from dilating. I use the dilators from vaginismus.com with the set of 5 and I'm stuck on D2. Now I don't know what to do. I have all of these bumps, I guess from the stitches, that really hurt and hard to avoid when inserting anything. I also got a cyst on Valentine's Day (great timing) which is still there. It feels like one thing after another.

I joined the Vaginismus program 5 years ago and went through it all in 2 years but couldn't get my ex inside no matter how hard I tried. After that I had several short relationships that I couldn't make last long enough to make any progress. They would try with me and then leave because they didn't have patience for the situation (I was in my late 20's then). I saw a psych, 2 sex therapists, and several gynos. I tried vaginal Valium, Lidocaine, Baclofen, estrogen cream, you name it I did it. I've only had any success with sex with 3 of my exes, and by success I mean I could get them in and have slight movement for a few mins before the pain is too much, they get soft and fall out. I really thought I would have a regular partner in my last bf and was completely shocked that he bailed on me. I'm feeling pretty low and trying to find the will to keep moving forward and not go back to just pretending I don't have a problem like I did in college. I'm 31 and just don't see the light at the end of the tunnel right now. Some people tell me not to give up while others tell me to find a man who will be ok with me as I am and not holding out for penetrative sex. Lately even outercourse and oral have been hurting me so my spirits are sinking. Can anyone give me advice on how to get through this slump?


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