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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

My Personal Journey with Vaginismus/Vulvodynia

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My Personal Journey with Vaginismus/Vulvodynia

Post  stillinpain on Fri May 04, 2018 3:10 am

I've been struggling with this since age 12, but have probably had it forever. I got my Vaginismus from a traumatizing pelvic exam at 12 and recently discovered that my Vulvodynia is Nueroproliferative, which means it came from the way I was formed in the womb. This revelation led me to get a Vestibulectomy in Nov to remove the painful area at the perineum. Unfortunately when my gyno poked me with the Qtip by my clit right before the surgery I screamed quite shocked at how much it hurt so she ended up giving me a full instead of a partial. Now, 5 months later, my vagina looks completely different (more folds at the top and it's like she removed a bunch of skin from the bottom, leaving it more curved) and the Botox injections have just worn off so I have a really bad infection that won't go away. My bf said I was taking too long to recover and left me. I only have one session of physical therapy left but I keep pushing it back due to this infection preventing me from dilating. I use the dilators from vaginismus.com with the set of 5 and I'm stuck on D2. Now I don't know what to do. I have all of these bumps, I guess from the stitches, that really hurt and hard to avoid when inserting anything. I also got a cyst on Valentine's Day (great timing) which is still there. It feels like one thing after another.

I joined the Vaginismus program 5 years ago and went through it all in 2 years but couldn't get my ex inside no matter how hard I tried. After that I had several short relationships that I couldn't make last long enough to make any progress. They would try with me and then leave because they didn't have patience for the situation (I was in my late 20's then). I saw a psych, 2 sex therapists, and several gynos. I tried vaginal Valium, Lidocaine, Baclofen, estrogen cream, you name it I did it. I've only had any success with sex with 3 of my exes, and by success I mean I could get them in and have slight movement for a few mins before the pain is too much, they get soft and fall out. I really thought I would have a regular partner in my last bf and was completely shocked that he bailed on me. I'm feeling pretty low and trying to find the will to keep moving forward and not go back to just pretending I don't have a problem like I did in college. I'm 31 and just don't see the light at the end of the tunnel right now. Some people tell me not to give up while others tell me to find a man who will be ok with me as I am and not holding out for penetrative sex. Lately even outercourse and oral have been hurting me so my spirits are sinking. Can anyone give me advice on how to get through this slump?


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