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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

I Recovered

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I Recovered

Post  breekee on Sun May 06, 2018 3:13 am

I want to share my story because back when I was suffering I swore to myself that I would if I ever recovered. I used to spend countless hours searching the internet (and this site) looking for a glimmer of hope tha things could get better. My issues started with a yeast infection. It was the first yeast infection I ever had (at age 29) and I had no idea what was going on until I finally went to the doctor and got diagnosed after about 2 weeks of symptoms that gradually got worse. Once the doc told me it was a yeast infection, I used 3 day Monistat to get rid of it. This worked...until a week later when the symptoms returned. I searched online and realized I may need a longer course, so I tried the 7-day treatment. Another week later and the symptoms were back. I went back to the doc and they confirmed that it was still a yeast infection and gave me Diflucan. This did absolutely nothing. I went back and got another Diflucan 1 week later. Again, nothing. At this point I ordered boric acid tablets on Amazon and started freaking out a little after reading about chronic yeast infections. I used the boric acid for 1 week (1 600 mg capsule per night). This seemed to work. Then 3 days later I had a slight burning sensation and though, oh no, its BACK! The symptoms were a bit different this time (more burning than itching), but I thought it had to be the yeast, cause what else would it be? At this point I was convinced I had a rare strain of yeast and nothing would get rid of it. I decided to use boric acid for a month (read this online and there were research papers to back it up). The odd thing is, when I was using the boric acid each night, the pain wasn't there, but when I stopped, it would be back within 2-3 days.

After the month of boric acid was over, the pain came back! I was completely losing my mind at this point and had no idea what to do. Several doctors later (gyno, dermatologist, sexual health clinic..etc.) I was told I dont have a yeast infection, but Vulvodynia. I stopped all treatment and the pain would come intermittently. I would have a week of really bad pain (always worse later in the day and worse with sitting/running) and then I would have a week with very minimal pain. This went on for about 5 months until each time the came back it was less intense. I should note that through this time I tried physical therapy (muscles were fine though), amitriptyline (taken for a couple months), and acupuncture. Not sure if any of these attributed to the cure. This was all about 6 months ago now. The last pain I had was maybe a month ago and it was just slight irritation after sex. I am more relieved than I ever have been in my life! It is possible for it to just go away!

When I was in the thick of it, I was such a mess that I couldn't think about anything else. I literally thought my life was over. I read so many stories on here about women who have suffered for years and I literally dont know how you do it. You are so strong. This is truly an awful condition and I dont understand how no one is talking about it. I confided in 3 of my close friends and my 2 sisters and they couldn't believe something like this even existed. They felt so bad for me and horrified that one day this could happen to them. For everyone out there desperately looking for answers...keep looking! go to every doctor until you find one who listens. I was prepared to do anything to beat this. I hope this story helps someone.


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