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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I Recovered

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I Recovered

Post  breekee on Sun May 06, 2018 3:13 am

I want to share my story because back when I was suffering I swore to myself that I would if I ever recovered. I used to spend countless hours searching the internet (and this site) looking for a glimmer of hope tha things could get better. My issues started with a yeast infection. It was the first yeast infection I ever had (at age 29) and I had no idea what was going on until I finally went to the doctor and got diagnosed after about 2 weeks of symptoms that gradually got worse. Once the doc told me it was a yeast infection, I used 3 day Monistat to get rid of it. This worked...until a week later when the symptoms returned. I searched online and realized I may need a longer course, so I tried the 7-day treatment. Another week later and the symptoms were back. I went back to the doc and they confirmed that it was still a yeast infection and gave me Diflucan. This did absolutely nothing. I went back and got another Diflucan 1 week later. Again, nothing. At this point I ordered boric acid tablets on Amazon and started freaking out a little after reading about chronic yeast infections. I used the boric acid for 1 week (1 600 mg capsule per night). This seemed to work. Then 3 days later I had a slight burning sensation and though, oh no, its BACK! The symptoms were a bit different this time (more burning than itching), but I thought it had to be the yeast, cause what else would it be? At this point I was convinced I had a rare strain of yeast and nothing would get rid of it. I decided to use boric acid for a month (read this online and there were research papers to back it up). The odd thing is, when I was using the boric acid each night, the pain wasn't there, but when I stopped, it would be back within 2-3 days.

After the month of boric acid was over, the pain came back! I was completely losing my mind at this point and had no idea what to do. Several doctors later (gyno, dermatologist, sexual health clinic..etc.) I was told I dont have a yeast infection, but Vulvodynia. I stopped all treatment and the pain would come intermittently. I would have a week of really bad pain (always worse later in the day and worse with sitting/running) and then I would have a week with very minimal pain. This went on for about 5 months until each time the came back it was less intense. I should note that through this time I tried physical therapy (muscles were fine though), amitriptyline (taken for a couple months), and acupuncture. Not sure if any of these attributed to the cure. This was all about 6 months ago now. The last pain I had was maybe a month ago and it was just slight irritation after sex. I am more relieved than I ever have been in my life! It is possible for it to just go away!

When I was in the thick of it, I was such a mess that I couldn't think about anything else. I literally thought my life was over. I read so many stories on here about women who have suffered for years and I literally dont know how you do it. You are so strong. This is truly an awful condition and I dont understand how no one is talking about it. I confided in 3 of my close friends and my 2 sisters and they couldn't believe something like this even existed. They felt so bad for me and horrified that one day this could happen to them. For everyone out there desperately looking for answers...keep looking! go to every doctor until you find one who listens. I was prepared to do anything to beat this. I hope this story helps someone.


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