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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


I Recovered

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I Recovered

Post  breekee on Sun May 06, 2018 3:13 am

I want to share my story because back when I was suffering I swore to myself that I would if I ever recovered. I used to spend countless hours searching the internet (and this site) looking for a glimmer of hope tha things could get better. My issues started with a yeast infection. It was the first yeast infection I ever had (at age 29) and I had no idea what was going on until I finally went to the doctor and got diagnosed after about 2 weeks of symptoms that gradually got worse. Once the doc told me it was a yeast infection, I used 3 day Monistat to get rid of it. This worked...until a week later when the symptoms returned. I searched online and realized I may need a longer course, so I tried the 7-day treatment. Another week later and the symptoms were back. I went back to the doc and they confirmed that it was still a yeast infection and gave me Diflucan. This did absolutely nothing. I went back and got another Diflucan 1 week later. Again, nothing. At this point I ordered boric acid tablets on Amazon and started freaking out a little after reading about chronic yeast infections. I used the boric acid for 1 week (1 600 mg capsule per night). This seemed to work. Then 3 days later I had a slight burning sensation and though, oh no, its BACK! The symptoms were a bit different this time (more burning than itching), but I thought it had to be the yeast, cause what else would it be? At this point I was convinced I had a rare strain of yeast and nothing would get rid of it. I decided to use boric acid for a month (read this online and there were research papers to back it up). The odd thing is, when I was using the boric acid each night, the pain wasn't there, but when I stopped, it would be back within 2-3 days.

After the month of boric acid was over, the pain came back! I was completely losing my mind at this point and had no idea what to do. Several doctors later (gyno, dermatologist, sexual health clinic..etc.) I was told I dont have a yeast infection, but Vulvodynia. I stopped all treatment and the pain would come intermittently. I would have a week of really bad pain (always worse later in the day and worse with sitting/running) and then I would have a week with very minimal pain. This went on for about 5 months until each time the came back it was less intense. I should note that through this time I tried physical therapy (muscles were fine though), amitriptyline (taken for a couple months), and acupuncture. Not sure if any of these attributed to the cure. This was all about 6 months ago now. The last pain I had was maybe a month ago and it was just slight irritation after sex. I am more relieved than I ever have been in my life! It is possible for it to just go away!

When I was in the thick of it, I was such a mess that I couldn't think about anything else. I literally thought my life was over. I read so many stories on here about women who have suffered for years and I literally dont know how you do it. You are so strong. This is truly an awful condition and I dont understand how no one is talking about it. I confided in 3 of my close friends and my 2 sisters and they couldn't believe something like this even existed. They felt so bad for me and horrified that one day this could happen to them. For everyone out there desperately looking for answers...keep looking! go to every doctor until you find one who listens. I was prepared to do anything to beat this. I hope this story helps someone.

breekee

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