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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

I Recovered

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I Recovered

Post  breekee on Sun May 06, 2018 3:13 am

I want to share my story because back when I was suffering I swore to myself that I would if I ever recovered. I used to spend countless hours searching the internet (and this site) looking for a glimmer of hope tha things could get better. My issues started with a yeast infection. It was the first yeast infection I ever had (at age 29) and I had no idea what was going on until I finally went to the doctor and got diagnosed after about 2 weeks of symptoms that gradually got worse. Once the doc told me it was a yeast infection, I used 3 day Monistat to get rid of it. This worked...until a week later when the symptoms returned. I searched online and realized I may need a longer course, so I tried the 7-day treatment. Another week later and the symptoms were back. I went back to the doc and they confirmed that it was still a yeast infection and gave me Diflucan. This did absolutely nothing. I went back and got another Diflucan 1 week later. Again, nothing. At this point I ordered boric acid tablets on Amazon and started freaking out a little after reading about chronic yeast infections. I used the boric acid for 1 week (1 600 mg capsule per night). This seemed to work. Then 3 days later I had a slight burning sensation and though, oh no, its BACK! The symptoms were a bit different this time (more burning than itching), but I thought it had to be the yeast, cause what else would it be? At this point I was convinced I had a rare strain of yeast and nothing would get rid of it. I decided to use boric acid for a month (read this online and there were research papers to back it up). The odd thing is, when I was using the boric acid each night, the pain wasn't there, but when I stopped, it would be back within 2-3 days.

After the month of boric acid was over, the pain came back! I was completely losing my mind at this point and had no idea what to do. Several doctors later (gyno, dermatologist, sexual health clinic..etc.) I was told I dont have a yeast infection, but Vulvodynia. I stopped all treatment and the pain would come intermittently. I would have a week of really bad pain (always worse later in the day and worse with sitting/running) and then I would have a week with very minimal pain. This went on for about 5 months until each time the came back it was less intense. I should note that through this time I tried physical therapy (muscles were fine though), amitriptyline (taken for a couple months), and acupuncture. Not sure if any of these attributed to the cure. This was all about 6 months ago now. The last pain I had was maybe a month ago and it was just slight irritation after sex. I am more relieved than I ever have been in my life! It is possible for it to just go away!

When I was in the thick of it, I was such a mess that I couldn't think about anything else. I literally thought my life was over. I read so many stories on here about women who have suffered for years and I literally dont know how you do it. You are so strong. This is truly an awful condition and I dont understand how no one is talking about it. I confided in 3 of my close friends and my 2 sisters and they couldn't believe something like this even existed. They felt so bad for me and horrified that one day this could happen to them. For everyone out there desperately looking for answers...keep looking! go to every doctor until you find one who listens. I was prepared to do anything to beat this. I hope this story helps someone.


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