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» Vulvadynia
Yesterday at 11:53 pm by Linda Williams

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Constant pain, I want to die.
Wed Jul 19, 2017 10:55 pm by jungleclover

» What is Vulvodynia?
Wed Jul 19, 2017 10:42 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

» Surgery Success - Still early days, but going well so far!
Sun Jul 16, 2017 8:42 pm by sarahjane1332343

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3


What do you call yours?

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What do you call yours?

Post  CamperUK on Fri Feb 18, 2011 9:53 am

This may have been asked before but I'm new, bear with me, please!
I've seen some lovely names on here:
Hoo haa
Lady bits
Lady garden
I call mine my Fanula
I don't like the word Vulvodynia so I get Fanula-itis.
Take care, ladies, have a pain-free day.

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Re: What do you call yours?

Post  saskatownv on Fri Feb 18, 2011 4:28 pm

Depends what day it is!

Hoo hoo on good days
Curse on bad ones

Sally

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Re: What do you call yours?

Post  Sarah001 on Fri Feb 18, 2011 6:35 pm

I'm the lady bits person! Sounds quite polite I think. Wink
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Re: What do you call yours?

Post  Mouse on Sat Feb 19, 2011 12:21 am

I go with girl bits. I'm not mature enough to use correct names.

I got burned year ago when I had my eldest daughter on my hip (boney in those days) in the queue at the supermarket. She was 2 or 3 and bellowed out "You're hurting my vagina".

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Re: What do you call yours?

Post  Sebby (Admin) on Sun Feb 20, 2011 1:27 pm


LOL Mouse Laughing kids are great for showing their parents up!

Erm I must admit I do say vulvar! lol Im a bit technical.

On shy days its 'down there' Embarassed

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Re: What do you call yours?

Post  naomi on Mon Feb 21, 2011 8:49 pm

mines called 'Lady La-la'

Smile
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Re: What do you call yours?

Post  Sebby (Admin) on Mon Feb 21, 2011 10:14 pm


Love that 'lady la la' name Laughing gonna have to think of something to beat that!

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Re: What do you call yours?

Post  Chinchilla on Wed Feb 23, 2011 2:46 am

Yeah, for me it's pretty much just "down there". This is a great topic though, lol Smile
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The Flaming Lips

Post  saskatownv on Fri Feb 25, 2011 4:23 pm

I totally forgot that when i heard of that band years ago I adopted its name for my lady bits for a while. The Flaming Lips! LOL. I crack myself up!

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Re: What do you call yours?

Post  GizmoVette83 on Fri Feb 25, 2011 4:40 pm

These names are so creative, I just call mine "her" or "she", on bad days "she's being a b***h" on good days I just call it "her". Iv'e heard other names such as "cookie", "lady parts", and "girl".
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Re: What do you call yours?

Post  GizmoVette83 on Fri Feb 25, 2011 4:42 pm

Saskatownv, your post is hilarious! I think I may have to borrow this name on bad days! Thanks for the humor, it made my day Very Happy
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Re: What do you call yours?

Post  Sebby (Admin) on Sat Feb 26, 2011 10:43 pm


LOL 'The Flaming Lips' luv it Laughing

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Re: What do you call yours?

Post  julesywoolsy on Wed Aug 24, 2011 10:29 am

Laughing

I like the name Fairy but then again it doesn't really suit on a bad day!

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Re: What do you call yours?

Post  Heidi on Wed Aug 24, 2011 7:15 pm

I have two science degrees and am working on my Ph.D., so I admit I'm very medical/scientific in my names. Everything else feels "too cute" for me and I don't feel cute when I talk about my pain. I do like "Flaming Lips" though because that really sums it up, doesn't it?

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Re: What do you call yours?

Post  JemimaSurrender on Sun Dec 04, 2011 12:39 am

The Flaming Lips is brilliant! So appropriate.

If I'm talking to my boyrfriend, I tend to say pussy. It's a word he uses (he's a hippy type, not a vulgar bloke, just to clarify haha). And I refer to 'it' as "she" most of the time. And when necessary I always fall back on Front Bottom. Nice and easy, and everyone knows what you're talking about!

When it's period time though it's... My Poorly Week. Another BF invention.

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..

Post  lavrose on Thu Mar 14, 2013 3:59 am

I like to refer to my vag as "flowers"..like hey! Something aint right with my flowers, lol rabbit
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Re: What do you call yours?

Post  Mvp123 on Fri May 20, 2016 8:09 pm

Weirdly, I call mine my "tummy". It started as a way to tell my bf that my vagina hurt without saying my vagina hurts in front of people. It took me a long time to explain it to friend and family. Still, not all my friends/family know. So, i tell my bf - "Oh, I want to go home. My tummy hurts." He knows what I mean. And now it's just taken hold and it's what I always call it to everyone who knows about it.

Haha thinking about it though, having a grown woman complain about her tummy and needing to go home because of it sounds just as weird as saying my vagina hurts.

Oh well, at this point, my vag is now my tummy.

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What do you call yours?

Post  Antaea on Sat May 21, 2016 11:01 am

Well, that depends on the language I use.

"Muschi" (pronounced Mooshi) in German, but that is the name of my cat too, even he is a real big boy. And it is the northern German expression for a female cat in general. So, that may be a little bit confusing!
In Norwegian, the official expression is "genitals", "KjĂžnnsdeler" in Norwegian. None uses it. There are similar, partly very negativ words in German. So I normally refer to this region as "my basement", ("kjelleretagen") or, in the best new Norwegian style, using a lot of adapted English words, as "downstairs". Or I only point at the region. Here, from all the English expressions, I like "lady parts" best.
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Re: What do you call yours?

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