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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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What do you call yours?

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What do you call yours?

Post  CamperUK on Fri Feb 18, 2011 9:53 am

This may have been asked before but I'm new, bear with me, please!
I've seen some lovely names on here:
Hoo haa
Lady bits
Lady garden
I call mine my Fanula
I don't like the word Vulvodynia so I get Fanula-itis.
Take care, ladies, have a pain-free day.

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Re: What do you call yours?

Post  saskatownv on Fri Feb 18, 2011 4:28 pm

Depends what day it is!

Hoo hoo on good days
Curse on bad ones

Sally

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Re: What do you call yours?

Post  Sarah001 on Fri Feb 18, 2011 6:35 pm

I'm the lady bits person! Sounds quite polite I think. Wink
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Re: What do you call yours?

Post  Mouse on Sat Feb 19, 2011 12:21 am

I go with girl bits. I'm not mature enough to use correct names.

I got burned year ago when I had my eldest daughter on my hip (boney in those days) in the queue at the supermarket. She was 2 or 3 and bellowed out "You're hurting my vagina".

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Re: What do you call yours?

Post  Sebby (Admin) on Sun Feb 20, 2011 1:27 pm


LOL Mouse Laughing kids are great for showing their parents up!

Erm I must admit I do say vulvar! lol Im a bit technical.

On shy days its 'down there' Embarassed

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Re: What do you call yours?

Post  naomi on Mon Feb 21, 2011 8:49 pm

mines called 'Lady La-la'

Smile
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Re: What do you call yours?

Post  Sebby (Admin) on Mon Feb 21, 2011 10:14 pm


Love that 'lady la la' name Laughing gonna have to think of something to beat that!

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Re: What do you call yours?

Post  Chinchilla on Wed Feb 23, 2011 2:46 am

Yeah, for me it's pretty much just "down there". This is a great topic though, lol Smile
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The Flaming Lips

Post  saskatownv on Fri Feb 25, 2011 4:23 pm

I totally forgot that when i heard of that band years ago I adopted its name for my lady bits for a while. The Flaming Lips! LOL. I crack myself up!

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Re: What do you call yours?

Post  GizmoVette83 on Fri Feb 25, 2011 4:40 pm

These names are so creative, I just call mine "her" or "she", on bad days "she's being a b***h" on good days I just call it "her". Iv'e heard other names such as "cookie", "lady parts", and "girl".
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Re: What do you call yours?

Post  GizmoVette83 on Fri Feb 25, 2011 4:42 pm

Saskatownv, your post is hilarious! I think I may have to borrow this name on bad days! Thanks for the humor, it made my day Very Happy
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Re: What do you call yours?

Post  Sebby (Admin) on Sat Feb 26, 2011 10:43 pm


LOL 'The Flaming Lips' luv it Laughing

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Re: What do you call yours?

Post  julesywoolsy on Wed Aug 24, 2011 10:29 am

Laughing

I like the name Fairy but then again it doesn't really suit on a bad day!

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Re: What do you call yours?

Post  Heidi on Wed Aug 24, 2011 7:15 pm

I have two science degrees and am working on my Ph.D., so I admit I'm very medical/scientific in my names. Everything else feels "too cute" for me and I don't feel cute when I talk about my pain. I do like "Flaming Lips" though because that really sums it up, doesn't it?

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Re: What do you call yours?

Post  JemimaSurrender on Sun Dec 04, 2011 12:39 am

The Flaming Lips is brilliant! So appropriate.

If I'm talking to my boyrfriend, I tend to say pussy. It's a word he uses (he's a hippy type, not a vulgar bloke, just to clarify haha). And I refer to 'it' as "she" most of the time. And when necessary I always fall back on Front Bottom. Nice and easy, and everyone knows what you're talking about!

When it's period time though it's... My Poorly Week. Another BF invention.

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..

Post  lavrose on Thu Mar 14, 2013 3:59 am

I like to refer to my vag as "flowers"..like hey! Something aint right with my flowers, lol rabbit
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Re: What do you call yours?

Post  Mvp123 on Fri May 20, 2016 8:09 pm

Weirdly, I call mine my "tummy". It started as a way to tell my bf that my vagina hurt without saying my vagina hurts in front of people. It took me a long time to explain it to friend and family. Still, not all my friends/family know. So, i tell my bf - "Oh, I want to go home. My tummy hurts." He knows what I mean. And now it's just taken hold and it's what I always call it to everyone who knows about it.

Haha thinking about it though, having a grown woman complain about her tummy and needing to go home because of it sounds just as weird as saying my vagina hurts.

Oh well, at this point, my vag is now my tummy.

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What do you call yours?

Post  Antaea on Sat May 21, 2016 11:01 am

Well, that depends on the language I use.

"Muschi" (pronounced Mooshi) in German, but that is the name of my cat too, even he is a real big boy. And it is the northern German expression for a female cat in general. So, that may be a little bit confusing!
In Norwegian, the official expression is "genitals", "Kjønnsdeler" in Norwegian. None uses it. There are similar, partly very negativ words in German. So I normally refer to this region as "my basement", ("kjelleretagen") or, in the best new Norwegian style, using a lot of adapted English words, as "downstairs". Or I only point at the region. Here, from all the English expressions, I like "lady parts" best.
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Re: What do you call yours?

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