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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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What do you call yours?

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What do you call yours?

Post  CamperUK on Fri Feb 18, 2011 9:53 am

This may have been asked before but I'm new, bear with me, please!
I've seen some lovely names on here:
Hoo haa
Lady bits
Lady garden
I call mine my Fanula
I don't like the word Vulvodynia so I get Fanula-itis.
Take care, ladies, have a pain-free day.

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Re: What do you call yours?

Post  saskatownv on Fri Feb 18, 2011 4:28 pm

Depends what day it is!

Hoo hoo on good days
Curse on bad ones

Sally

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Re: What do you call yours?

Post  Sarah001 on Fri Feb 18, 2011 6:35 pm

I'm the lady bits person! Sounds quite polite I think. Wink
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Re: What do you call yours?

Post  Mouse on Sat Feb 19, 2011 12:21 am

I go with girl bits. I'm not mature enough to use correct names.

I got burned year ago when I had my eldest daughter on my hip (boney in those days) in the queue at the supermarket. She was 2 or 3 and bellowed out "You're hurting my vagina".

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Re: What do you call yours?

Post  Sebby (Admin) on Sun Feb 20, 2011 1:27 pm


LOL Mouse Laughing kids are great for showing their parents up!

Erm I must admit I do say vulvar! lol Im a bit technical.

On shy days its 'down there' Embarassed

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Re: What do you call yours?

Post  naomi on Mon Feb 21, 2011 8:49 pm

mines called 'Lady La-la'

Smile
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Re: What do you call yours?

Post  Sebby (Admin) on Mon Feb 21, 2011 10:14 pm


Love that 'lady la la' name Laughing gonna have to think of something to beat that!

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Re: What do you call yours?

Post  Chinchilla on Wed Feb 23, 2011 2:46 am

Yeah, for me it's pretty much just "down there". This is a great topic though, lol Smile
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The Flaming Lips

Post  saskatownv on Fri Feb 25, 2011 4:23 pm

I totally forgot that when i heard of that band years ago I adopted its name for my lady bits for a while. The Flaming Lips! LOL. I crack myself up!

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Re: What do you call yours?

Post  GizmoVette83 on Fri Feb 25, 2011 4:40 pm

These names are so creative, I just call mine "her" or "she", on bad days "she's being a b***h" on good days I just call it "her". Iv'e heard other names such as "cookie", "lady parts", and "girl".
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Re: What do you call yours?

Post  GizmoVette83 on Fri Feb 25, 2011 4:42 pm

Saskatownv, your post is hilarious! I think I may have to borrow this name on bad days! Thanks for the humor, it made my day Very Happy
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Re: What do you call yours?

Post  Sebby (Admin) on Sat Feb 26, 2011 10:43 pm


LOL 'The Flaming Lips' luv it Laughing

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Re: What do you call yours?

Post  julesywoolsy on Wed Aug 24, 2011 10:29 am

Laughing

I like the name Fairy but then again it doesn't really suit on a bad day!

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Re: What do you call yours?

Post  Heidi on Wed Aug 24, 2011 7:15 pm

I have two science degrees and am working on my Ph.D., so I admit I'm very medical/scientific in my names. Everything else feels "too cute" for me and I don't feel cute when I talk about my pain. I do like "Flaming Lips" though because that really sums it up, doesn't it?

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Re: What do you call yours?

Post  JemimaSurrender on Sun Dec 04, 2011 12:39 am

The Flaming Lips is brilliant! So appropriate.

If I'm talking to my boyrfriend, I tend to say pussy. It's a word he uses (he's a hippy type, not a vulgar bloke, just to clarify haha). And I refer to 'it' as "she" most of the time. And when necessary I always fall back on Front Bottom. Nice and easy, and everyone knows what you're talking about!

When it's period time though it's... My Poorly Week. Another BF invention.

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..

Post  lavrose on Thu Mar 14, 2013 3:59 am

I like to refer to my vag as "flowers"..like hey! Something aint right with my flowers, lol rabbit
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Re: What do you call yours?

Post  Mvp123 on Fri May 20, 2016 8:09 pm

Weirdly, I call mine my "tummy". It started as a way to tell my bf that my vagina hurt without saying my vagina hurts in front of people. It took me a long time to explain it to friend and family. Still, not all my friends/family know. So, i tell my bf - "Oh, I want to go home. My tummy hurts." He knows what I mean. And now it's just taken hold and it's what I always call it to everyone who knows about it.

Haha thinking about it though, having a grown woman complain about her tummy and needing to go home because of it sounds just as weird as saying my vagina hurts.

Oh well, at this point, my vag is now my tummy.

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What do you call yours?

Post  Antaea on Sat May 21, 2016 11:01 am

Well, that depends on the language I use.

"Muschi" (pronounced Mooshi) in German, but that is the name of my cat too, even he is a real big boy. And it is the northern German expression for a female cat in general. So, that may be a little bit confusing!
In Norwegian, the official expression is "genitals", "Kjønnsdeler" in Norwegian. None uses it. There are similar, partly very negativ words in German. So I normally refer to this region as "my basement", ("kjelleretagen") or, in the best new Norwegian style, using a lot of adapted English words, as "downstairs". Or I only point at the region. Here, from all the English expressions, I like "lady parts" best.
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Re: What do you call yours?

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