Vulvodynia Support
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» Hope to all my suffering ladies
What do you call yours? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
What do you call yours? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
What do you call yours? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
What do you call yours? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
What do you call yours? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
What do you call yours? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
What do you call yours? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
What do you call yours? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
What do you call yours? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


What do you call yours?

+10
Heidi
julesywoolsy
GizmoVette83
Chinchilla
naomi
Sebby (Admin)
Mouse
Sarah001
saskatownv
CamperUK
14 posters

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What do you call yours? Empty What do you call yours?

Post  CamperUK Fri Feb 18, 2011 9:53 am

This may have been asked before but I'm new, bear with me, please!
I've seen some lovely names on here:
Hoo haa
Lady bits
Lady garden
I call mine my Fanula
I don't like the word Vulvodynia so I get Fanula-itis.
Take care, ladies, have a pain-free day.

CamperUK

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Post  saskatownv Fri Feb 18, 2011 4:28 pm

Depends what day it is!

Hoo hoo on good days
Curse on bad ones

Sally

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Post  Sarah001 Fri Feb 18, 2011 6:35 pm

I'm the lady bits person! Sounds quite polite I think. Wink
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Post  Mouse Sat Feb 19, 2011 12:21 am

I go with girl bits. I'm not mature enough to use correct names.

I got burned year ago when I had my eldest daughter on my hip (boney in those days) in the queue at the supermarket. She was 2 or 3 and bellowed out "You're hurting my vagina".

Mouse

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Post  Sebby (Admin) Sun Feb 20, 2011 1:27 pm


LOL Mouse Laughing kids are great for showing their parents up!

Erm I must admit I do say vulvar! lol Im a bit technical.

On shy days its 'down there' Embarassed
Sebby (Admin)
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Post  naomi Mon Feb 21, 2011 8:49 pm

mines called 'Lady La-la'

Smile
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Post  Sebby (Admin) Mon Feb 21, 2011 10:14 pm


Love that 'lady la la' name Laughing gonna have to think of something to beat that!
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Post  Chinchilla Wed Feb 23, 2011 2:46 am

Yeah, for me it's pretty much just "down there". This is a great topic though, lol Smile
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What do you call yours? Empty The Flaming Lips

Post  saskatownv Fri Feb 25, 2011 4:23 pm

I totally forgot that when i heard of that band years ago I adopted its name for my lady bits for a while. The Flaming Lips! LOL. I crack myself up!

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Post  GizmoVette83 Fri Feb 25, 2011 4:40 pm

These names are so creative, I just call mine "her" or "she", on bad days "she's being a b***h" on good days I just call it "her". Iv'e heard other names such as "cookie", "lady parts", and "girl".
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Post  GizmoVette83 Fri Feb 25, 2011 4:42 pm

Saskatownv, your post is hilarious! I think I may have to borrow this name on bad days! Thanks for the humor, it made my day Very Happy
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Post  Sebby (Admin) Sat Feb 26, 2011 10:43 pm


LOL 'The Flaming Lips' luv it Laughing
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Post  julesywoolsy Wed Aug 24, 2011 10:29 am

Laughing

I like the name Fairy but then again it doesn't really suit on a bad day!

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Post  Heidi Wed Aug 24, 2011 7:15 pm

I have two science degrees and am working on my Ph.D., so I admit I'm very medical/scientific in my names. Everything else feels "too cute" for me and I don't feel cute when I talk about my pain. I do like "Flaming Lips" though because that really sums it up, doesn't it?

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Post  JemimaSurrender Sun Dec 04, 2011 12:39 am

The Flaming Lips is brilliant! So appropriate.

If I'm talking to my boyrfriend, I tend to say pussy. It's a word he uses (he's a hippy type, not a vulgar bloke, just to clarify haha). And I refer to 'it' as "she" most of the time. And when necessary I always fall back on Front Bottom. Nice and easy, and everyone knows what you're talking about!

When it's period time though it's... My Poorly Week. Another BF invention.

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Post  lavrose Thu Mar 14, 2013 3:59 am

I like to refer to my vag as "flowers"..like hey! Something aint right with my flowers, lol rabbit
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Post  Mvp123 Fri May 20, 2016 8:09 pm

Weirdly, I call mine my "tummy". It started as a way to tell my bf that my vagina hurt without saying my vagina hurts in front of people. It took me a long time to explain it to friend and family. Still, not all my friends/family know. So, i tell my bf - "Oh, I want to go home. My tummy hurts." He knows what I mean. And now it's just taken hold and it's what I always call it to everyone who knows about it.

Haha thinking about it though, having a grown woman complain about her tummy and needing to go home because of it sounds just as weird as saying my vagina hurts.

Oh well, at this point, my vag is now my tummy.

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Post  Antaea Sat May 21, 2016 11:01 am

Well, that depends on the language I use.

"Muschi" (pronounced Mooshi) in German, but that is the name of my cat too, even he is a real big boy. And it is the northern German expression for a female cat in general. So, that may be a little bit confusing!
In Norwegian, the official expression is "genitals", "Kjønnsdeler" in Norwegian. None uses it. There are similar, partly very negativ words in German. So I normally refer to this region as "my basement", ("kjelleretagen") or, in the best new Norwegian style, using a lot of adapted English words, as "downstairs". Or I only point at the region. Here, from all the English expressions, I like "lady parts" best.
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