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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Looking for advice!

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Looking for advice!

Post  KB365 on Thu May 10, 2018 8:50 pm

I'm new to this site but so lovely to be able to talk and share with other people working through VD. I have recently been diagnosed with VD after a urine infection and 4 months of antiobiotics, a multitude of creams and thrush pessaries whilst the gp 'guessed' I had thrush or urine infections. My VD is unprovoked and varies greatly in pain levels from 1 hour to the next.
A specialist put me onto imipramine- after just 1 week of 10mg and then another on 20mg my pain had reduced greatly. Then i began to get pins and needles in my feet and hands and pains in the arches of my feet and hands. The pain from this still outweighed the VD so I went to 30mg as directed. After 3 days the pains in my feet increased massively and then I began to panic- which probably made the symptoms worse. My gp then swapped this to amitriptyline. After 3 days on 10mg my head felt like it had been shoved with cotton wool and my ears felt full and began ringing. Out of desperation I saw an out of hours gp who took me off of the AMI and said I was congested- 2 days of inhaling an anti congestant and that resolved.
I'm really nervous of taking any meds as my cousin died of Steven Johnson's syndrome after taking epilepsy meds- I know this is extremely rare but has obviously made me more psycho sensitive.
I'm trying hard to take back some control over my life but don't really know the best way forward. Has anyone had pains in feet from imipramine or ear/head issues when starting out....have I given in too early on the side effects? Do ones like this go away after a while or was I right to come off and protect myself from other long term health issues? Apart from the feet issues imipramine was working well. I've been off all meds for a week now and the pains have lessened although still there and I have a lovely itchy rash which I'm guessing is down to withdrawal?
Also, did anyone experience hair loss/ thinning from AMI or imipramine- I'm really paranoid this could happen!


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