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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

Looking for advice!

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Looking for advice!

Post  KB365 on Thu May 10, 2018 8:50 pm

I'm new to this site but so lovely to be able to talk and share with other people working through VD. I have recently been diagnosed with VD after a urine infection and 4 months of antiobiotics, a multitude of creams and thrush pessaries whilst the gp 'guessed' I had thrush or urine infections. My VD is unprovoked and varies greatly in pain levels from 1 hour to the next.
A specialist put me onto imipramine- after just 1 week of 10mg and then another on 20mg my pain had reduced greatly. Then i began to get pins and needles in my feet and hands and pains in the arches of my feet and hands. The pain from this still outweighed the VD so I went to 30mg as directed. After 3 days the pains in my feet increased massively and then I began to panic- which probably made the symptoms worse. My gp then swapped this to amitriptyline. After 3 days on 10mg my head felt like it had been shoved with cotton wool and my ears felt full and began ringing. Out of desperation I saw an out of hours gp who took me off of the AMI and said I was congested- 2 days of inhaling an anti congestant and that resolved.
I'm really nervous of taking any meds as my cousin died of Steven Johnson's syndrome after taking epilepsy meds- I know this is extremely rare but has obviously made me more psycho sensitive.
I'm trying hard to take back some control over my life but don't really know the best way forward. Has anyone had pains in feet from imipramine or ear/head issues when starting out....have I given in too early on the side effects? Do ones like this go away after a while or was I right to come off and protect myself from other long term health issues? Apart from the feet issues imipramine was working well. I've been off all meds for a week now and the pains have lessened although still there and I have a lovely itchy rash which I'm guessing is down to withdrawal?
Also, did anyone experience hair loss/ thinning from AMI or imipramine- I'm really paranoid this could happen!


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