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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Burning redness and vulvodynia

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Burning redness and vulvodynia

Post  Bluenuddle on Mon May 28, 2018 11:34 am

Hi. I am looking to see if someone can give me hope or advice. I have self diagnosed vulvodynia. Doctors here do not have a clue. I been feeling it all my life but was mostly for a couple of days specially after peeing in the morning. I always thought is was an uti coming and going but I always tested negative for utis. About 2 months ago I had a flare that doesn't want to leave. You all know the misery and discomfort. The thing is for the first time it occurred me to look down there. I have an irritation in the vulva it is red just on one side. It burns like hell. Pee is my number one trigger. I don't have yeast or infection as I had tests done. I had antibiotics vaginal, creams, cortisone... You name it... nothing seems to help. The redness doesn't heal. Did anyone else had red add burning irritation? As i read vulvodynia is an inexplicable pain. The reason of my pain is the irritation... I guess. Thanks for taking the time to read my post. Very depressed...

Last edited by Bluenuddle on Wed May 30, 2018 8:31 am; edited 1 time in total


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I'm in the same boat as you!

Post  anikita on Wed May 30, 2018 6:46 am


I wish I could give you an answer to your problem but I just wanted to reach out and say that I'm in the same exact boat as you. I used to always have this burning pain during intercourse - burns but was manageable until one point (in August, it wasn't). Switched doctors two times until one tested me positive for Ureaplasma - YAY, I thought. Everything will be solved. Things were better for a month. I would burn VERY slightly at the start of intercourse but with a great amount of lube, I would become desensitized to the pain and all was well.

I started burning again a month ago and now the idea of sex is just awful. Like you, I decided to take a look and realized that I have these red spots around the entrance. They BURN to the touch but if I coat them HEAVILY in vitamin A & E or coconut oil or aloe vera, it is not as bad which had me thinking maybe it was an issue related to dryness.

But like you, I've tried everything left and right and the redness DOES not heal. There are just two spots that are bright red and cause ALL OF THE BURNING!!!!!! I read online that sometimes provoked vulvodynia has redness around the entrance, whether its all around, or just on the left or right side.

As of this week, my doctor has me on a homeopathic route - baking soda sitz or baths once daily for 10-15 minutes, and manual attempts to desensitize the nerve endings in the area with coconut oil.

I just want you to know that you're not alone and that you are the first person I've encountered in the last year who has the exact burning redness, and that alone is somewhat comforting.


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Re: Burning redness and vulvodynia

Post  Bluenuddle on Wed Jun 06, 2018 3:48 pm

Anikita. Thanks for your answer. I am sorry you are in the same situation. I wanted to let you know that something that seems to be helping is msm. Might be you want to check with your naturopath. For mine made a lot of sense since 'sulfur' is my constitution. I didn't have sulfur as homeophaty handy. So I'm using msm which seems to be working. Fingers crossed. Might be this is something that can help you too.


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Re: Burning redness and vulvodynia

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