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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Burning redness and vulvodynia

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Burning redness and vulvodynia

Post  Bluenuddle on Mon May 28, 2018 11:34 am

Hi. I am looking to see if someone can give me hope or advice. I have self diagnosed vulvodynia. Doctors here do not have a clue. I been feeling it all my life but was mostly for a couple of days specially after peeing in the morning. I always thought is was an uti coming and going but I always tested negative for utis. About 2 months ago I had a flare that doesn't want to leave. You all know the misery and discomfort. The thing is for the first time it occurred me to look down there. I have an irritation in the vulva it is red just on one side. It burns like hell. Pee is my number one trigger. I don't have yeast or infection as I had tests done. I had antibiotics vaginal, creams, cortisone... You name it... nothing seems to help. The redness doesn't heal. Did anyone else had red add burning irritation? As i read vulvodynia is an inexplicable pain. The reason of my pain is the irritation... I guess. Thanks for taking the time to read my post. Very depressed...

Last edited by Bluenuddle on Wed May 30, 2018 8:31 am; edited 1 time in total


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I'm in the same boat as you!

Post  anikita on Wed May 30, 2018 6:46 am


I wish I could give you an answer to your problem but I just wanted to reach out and say that I'm in the same exact boat as you. I used to always have this burning pain during intercourse - burns but was manageable until one point (in August, it wasn't). Switched doctors two times until one tested me positive for Ureaplasma - YAY, I thought. Everything will be solved. Things were better for a month. I would burn VERY slightly at the start of intercourse but with a great amount of lube, I would become desensitized to the pain and all was well.

I started burning again a month ago and now the idea of sex is just awful. Like you, I decided to take a look and realized that I have these red spots around the entrance. They BURN to the touch but if I coat them HEAVILY in vitamin A & E or coconut oil or aloe vera, it is not as bad which had me thinking maybe it was an issue related to dryness.

But like you, I've tried everything left and right and the redness DOES not heal. There are just two spots that are bright red and cause ALL OF THE BURNING!!!!!! I read online that sometimes provoked vulvodynia has redness around the entrance, whether its all around, or just on the left or right side.

As of this week, my doctor has me on a homeopathic route - baking soda sitz or baths once daily for 10-15 minutes, and manual attempts to desensitize the nerve endings in the area with coconut oil.

I just want you to know that you're not alone and that you are the first person I've encountered in the last year who has the exact burning redness, and that alone is somewhat comforting.


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Re: Burning redness and vulvodynia

Post  Bluenuddle on Wed Jun 06, 2018 3:48 pm

Anikita. Thanks for your answer. I am sorry you are in the same situation. I wanted to let you know that something that seems to be helping is msm. Might be you want to check with your naturopath. For mine made a lot of sense since 'sulfur' is my constitution. I didn't have sulfur as homeophaty handy. So I'm using msm which seems to be working. Fingers crossed. Might be this is something that can help you too.


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Re: Burning redness and vulvodynia

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