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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Epiderm Cream

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Epiderm Cream

Post  Guest on Fri Feb 18, 2011 10:22 am

Has anyone been tried to try epiderm cream down there or to wash with E45 Wash?

Saw a dermatologist a week ago who told me to try using both! Think that would set off a case of thrush! Too scared to try anything anymore.

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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 10:28 am

Also has anyone tried Trimovate cream? Its a steroid, anti fungal and anti bacterial. Been using for just over a week and definitely think it has helped slightly, can only use it for a maximum of two weeks as it is strong. Couldnt tolerate any of the Steroid oinments as they left me really sticky and i think there is something in the greasiness that i couldnt tolerate. The cream has worked alot better for me. Can actually put it on without it burning like hell and running up to wash it off.

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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 5:29 pm

Take it back about the Trimovate cream, felt really irritated this afternoon! That is it, no more trying of any creams for me! Sad


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Re: Epiderm Cream

Post  Sarah001 on Fri Feb 18, 2011 6:30 pm

I've tried stacks of creams and ointments, in fact in the beginning I was convinced it was a skin problem but I know better now. I use aqueous cream to wash with as it's a soap free alternative and I have to use a little bit of vaseline or something similar during the day to prevent the inflamed skin from rubbing one side on the other but nothing I've applied topically has made any difference to the situation. They say it's a deep inflammation in true vulvodynia so topical creams don't get to it whereas if it's a surface skin problem obviously they help.
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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 6:42 pm

Will try the vaseline i think if i really need it but i am just going to leave all the rest now.

Thank you for the info! Have you tried coconut oil? So scared of anything now?


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Re: Epiderm Cream

Post  noni on Sat Feb 19, 2011 12:23 am

Wasted tons of money on creams...they dont help as far as I know

COCONUT OIL JUST LUBES YOU UP!!! No medicinal purpose as far as I know. Yes I have tried it.
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Re: Epiderm Cream

Post  Sebby (Admin) on Sun Feb 20, 2011 1:24 pm


I was trying vit E oil..wasnt 100% though had other oils in it DUH! silly me

I ended up red and inflammed. (well done sebby) Rolling Eyes

Aloe vera gel seems ok though. used it only a handful of times though so time will tell

Im too scared to put anything down there at the moment as having a horrible flare up so its just cool water for me.

I havent tried E45 for washing but it has been suggested. Im too scared as anything seems to set me off! Its a lot of experimentation with this condition!

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Re: Epiderm Cream

Post  Guest on Sun Feb 20, 2011 1:44 pm

Its so frustrating because i started getting a little better using nothing but water for about 2 months then i went to see a gyni who gave me yet another steroid cream which i just cant tolerate atall which made me swell again!

Ive just used aqueus cream to wash with just for a bit of moisture which feels kind of ok so far! We shall see! As for everything else i am too scared to try!

My doctor said that it has built up a sensitivity to anything and has gone on strike!

Think water is the way forward. It has been suggested that i might have allergic vaginitis from the tampon being left in but sure i will find out more from the vulval specialist in 2 weeks time.

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Re: Epiderm Cream

Post  CamperUK on Sun Feb 20, 2011 3:03 pm

I use Simple soap to wash and a bit of Vasline during the day to stop the rubbing. I just wish this would go away!

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Re: Epiderm Cream

Post  naomi on Mon Feb 21, 2011 9:09 pm

coconut oil has anti fungal and antibacterial properties aparently...i use it when im really itchy n its driving me up the wall.

Ive used predfoam, 1% clotrimazole cream, prednisolone, lotriderm, dakatort, gyno daktarin, vasaline, clindamycin to name a few

nothing worked...only made it worse. apart from coconut oil

xxx
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Re: Epiderm Cream

Post  noni on Mon Feb 21, 2011 9:24 pm

Naomi have u tried sea buckthorn oil

Its safe as far as I know....I use it sometimes
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Re: Epiderm Cream

Post  naomi on Mon Feb 21, 2011 9:29 pm

ahhh thanku! someone mentioned it to me a while ago and i couldnt rmember it then until now!... im going to buy some me thinks!
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Re: Epiderm Cream

Post  Mouse on Mon Feb 21, 2011 9:32 pm

I've been using coconut oil this week. I don't usually get inflammation inside but hey ho why not join in the fun? I don't know what set it off. I don't tend to follow the no soap etc criteria because my pain is on the outside generally. Should be fun for physio this afternoon!

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Re: Epiderm Cream

Post  noni on Mon Feb 21, 2011 10:23 pm

Naomi

I went seabuckthorn crazy a couple weeks ago...

got the tea, the oral capsules, and oil

Well...the teas healthy all on its own...good for your skin, so hey maybe my hoo ha hurts but my skin can be flawless...lol

Anyways...just not really sure at the moment if topical things can be of help to us...maybe soothe the discomfort...but I dunno...worth a go I say, ...it could help you
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Re: Epiderm Cream

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