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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Epiderm Cream

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Epiderm Cream

Post  Guest on Fri Feb 18, 2011 10:22 am

Has anyone been tried to try epiderm cream down there or to wash with E45 Wash?

Saw a dermatologist a week ago who told me to try using both! Think that would set off a case of thrush! Too scared to try anything anymore.

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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 10:28 am

Also has anyone tried Trimovate cream? Its a steroid, anti fungal and anti bacterial. Been using for just over a week and definitely think it has helped slightly, can only use it for a maximum of two weeks as it is strong. Couldnt tolerate any of the Steroid oinments as they left me really sticky and i think there is something in the greasiness that i couldnt tolerate. The cream has worked alot better for me. Can actually put it on without it burning like hell and running up to wash it off.

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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 5:29 pm

Take it back about the Trimovate cream, felt really irritated this afternoon! That is it, no more trying of any creams for me! Sad


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Re: Epiderm Cream

Post  Sarah001 on Fri Feb 18, 2011 6:30 pm

I've tried stacks of creams and ointments, in fact in the beginning I was convinced it was a skin problem but I know better now. I use aqueous cream to wash with as it's a soap free alternative and I have to use a little bit of vaseline or something similar during the day to prevent the inflamed skin from rubbing one side on the other but nothing I've applied topically has made any difference to the situation. They say it's a deep inflammation in true vulvodynia so topical creams don't get to it whereas if it's a surface skin problem obviously they help.
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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 6:42 pm

Will try the vaseline i think if i really need it but i am just going to leave all the rest now.

Thank you for the info! Have you tried coconut oil? So scared of anything now?


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Re: Epiderm Cream

Post  noni on Sat Feb 19, 2011 12:23 am

Wasted tons of money on creams...they dont help as far as I know

COCONUT OIL JUST LUBES YOU UP!!! No medicinal purpose as far as I know. Yes I have tried it.
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Re: Epiderm Cream

Post  Sebby (Admin) on Sun Feb 20, 2011 1:24 pm


I was trying vit E oil..wasnt 100% though had other oils in it DUH! silly me

I ended up red and inflammed. (well done sebby) Rolling Eyes

Aloe vera gel seems ok though. used it only a handful of times though so time will tell

Im too scared to put anything down there at the moment as having a horrible flare up so its just cool water for me.

I havent tried E45 for washing but it has been suggested. Im too scared as anything seems to set me off! Its a lot of experimentation with this condition!

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Re: Epiderm Cream

Post  Guest on Sun Feb 20, 2011 1:44 pm

Its so frustrating because i started getting a little better using nothing but water for about 2 months then i went to see a gyni who gave me yet another steroid cream which i just cant tolerate atall which made me swell again!

Ive just used aqueus cream to wash with just for a bit of moisture which feels kind of ok so far! We shall see! As for everything else i am too scared to try!

My doctor said that it has built up a sensitivity to anything and has gone on strike!

Think water is the way forward. It has been suggested that i might have allergic vaginitis from the tampon being left in but sure i will find out more from the vulval specialist in 2 weeks time.

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Re: Epiderm Cream

Post  CamperUK on Sun Feb 20, 2011 3:03 pm

I use Simple soap to wash and a bit of Vasline during the day to stop the rubbing. I just wish this would go away!

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Re: Epiderm Cream

Post  naomi on Mon Feb 21, 2011 9:09 pm

coconut oil has anti fungal and antibacterial properties aparently...i use it when im really itchy n its driving me up the wall.

Ive used predfoam, 1% clotrimazole cream, prednisolone, lotriderm, dakatort, gyno daktarin, vasaline, clindamycin to name a few

nothing worked...only made it worse. apart from coconut oil

xxx
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Re: Epiderm Cream

Post  noni on Mon Feb 21, 2011 9:24 pm

Naomi have u tried sea buckthorn oil

Its safe as far as I know....I use it sometimes
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Re: Epiderm Cream

Post  naomi on Mon Feb 21, 2011 9:29 pm

ahhh thanku! someone mentioned it to me a while ago and i couldnt rmember it then until now!... im going to buy some me thinks!
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Re: Epiderm Cream

Post  Mouse on Mon Feb 21, 2011 9:32 pm

I've been using coconut oil this week. I don't usually get inflammation inside but hey ho why not join in the fun? I don't know what set it off. I don't tend to follow the no soap etc criteria because my pain is on the outside generally. Should be fun for physio this afternoon!

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Re: Epiderm Cream

Post  noni on Mon Feb 21, 2011 10:23 pm

Naomi

I went seabuckthorn crazy a couple weeks ago...

got the tea, the oral capsules, and oil

Well...the teas healthy all on its own...good for your skin, so hey maybe my hoo ha hurts but my skin can be flawless...lol

Anyways...just not really sure at the moment if topical things can be of help to us...maybe soothe the discomfort...but I dunno...worth a go I say, ...it could help you
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Re: Epiderm Cream

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