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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Yesterday at 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
Tue Jul 10, 2018 12:27 am by srbry

» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Epiderm Cream

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Epiderm Cream

Post  Guest on Fri Feb 18, 2011 10:22 am

Has anyone been tried to try epiderm cream down there or to wash with E45 Wash?

Saw a dermatologist a week ago who told me to try using both! Think that would set off a case of thrush! Too scared to try anything anymore.

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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 10:28 am

Also has anyone tried Trimovate cream? Its a steroid, anti fungal and anti bacterial. Been using for just over a week and definitely think it has helped slightly, can only use it for a maximum of two weeks as it is strong. Couldnt tolerate any of the Steroid oinments as they left me really sticky and i think there is something in the greasiness that i couldnt tolerate. The cream has worked alot better for me. Can actually put it on without it burning like hell and running up to wash it off.

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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 5:29 pm

Take it back about the Trimovate cream, felt really irritated this afternoon! That is it, no more trying of any creams for me! Sad


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Re: Epiderm Cream

Post  Sarah001 on Fri Feb 18, 2011 6:30 pm

I've tried stacks of creams and ointments, in fact in the beginning I was convinced it was a skin problem but I know better now. I use aqueous cream to wash with as it's a soap free alternative and I have to use a little bit of vaseline or something similar during the day to prevent the inflamed skin from rubbing one side on the other but nothing I've applied topically has made any difference to the situation. They say it's a deep inflammation in true vulvodynia so topical creams don't get to it whereas if it's a surface skin problem obviously they help.
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Re: Epiderm Cream

Post  Guest on Fri Feb 18, 2011 6:42 pm

Will try the vaseline i think if i really need it but i am just going to leave all the rest now.

Thank you for the info! Have you tried coconut oil? So scared of anything now?


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Re: Epiderm Cream

Post  noni on Sat Feb 19, 2011 12:23 am

Wasted tons of money on creams...they dont help as far as I know

COCONUT OIL JUST LUBES YOU UP!!! No medicinal purpose as far as I know. Yes I have tried it.
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Re: Epiderm Cream

Post  Sebby (Admin) on Sun Feb 20, 2011 1:24 pm


I was trying vit E oil..wasnt 100% though had other oils in it DUH! silly me

I ended up red and inflammed. (well done sebby) Rolling Eyes

Aloe vera gel seems ok though. used it only a handful of times though so time will tell

Im too scared to put anything down there at the moment as having a horrible flare up so its just cool water for me.

I havent tried E45 for washing but it has been suggested. Im too scared as anything seems to set me off! Its a lot of experimentation with this condition!

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Re: Epiderm Cream

Post  Guest on Sun Feb 20, 2011 1:44 pm

Its so frustrating because i started getting a little better using nothing but water for about 2 months then i went to see a gyni who gave me yet another steroid cream which i just cant tolerate atall which made me swell again!

Ive just used aqueus cream to wash with just for a bit of moisture which feels kind of ok so far! We shall see! As for everything else i am too scared to try!

My doctor said that it has built up a sensitivity to anything and has gone on strike!

Think water is the way forward. It has been suggested that i might have allergic vaginitis from the tampon being left in but sure i will find out more from the vulval specialist in 2 weeks time.

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Re: Epiderm Cream

Post  CamperUK on Sun Feb 20, 2011 3:03 pm

I use Simple soap to wash and a bit of Vasline during the day to stop the rubbing. I just wish this would go away!

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Re: Epiderm Cream

Post  naomi on Mon Feb 21, 2011 9:09 pm

coconut oil has anti fungal and antibacterial properties aparently...i use it when im really itchy n its driving me up the wall.

Ive used predfoam, 1% clotrimazole cream, prednisolone, lotriderm, dakatort, gyno daktarin, vasaline, clindamycin to name a few

nothing worked...only made it worse. apart from coconut oil

xxx
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Re: Epiderm Cream

Post  noni on Mon Feb 21, 2011 9:24 pm

Naomi have u tried sea buckthorn oil

Its safe as far as I know....I use it sometimes
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Re: Epiderm Cream

Post  naomi on Mon Feb 21, 2011 9:29 pm

ahhh thanku! someone mentioned it to me a while ago and i couldnt rmember it then until now!... im going to buy some me thinks!
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Re: Epiderm Cream

Post  Mouse on Mon Feb 21, 2011 9:32 pm

I've been using coconut oil this week. I don't usually get inflammation inside but hey ho why not join in the fun? I don't know what set it off. I don't tend to follow the no soap etc criteria because my pain is on the outside generally. Should be fun for physio this afternoon!

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Re: Epiderm Cream

Post  noni on Mon Feb 21, 2011 10:23 pm

Naomi

I went seabuckthorn crazy a couple weeks ago...

got the tea, the oral capsules, and oil

Well...the teas healthy all on its own...good for your skin, so hey maybe my hoo ha hurts but my skin can be flawless...lol

Anyways...just not really sure at the moment if topical things can be of help to us...maybe soothe the discomfort...but I dunno...worth a go I say, ...it could help you
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Re: Epiderm Cream

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