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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


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Post  ouch1234 on Thu Jun 07, 2018 10:29 pm


I've had increasing vaginal burning/rawness for about a year and a half, and have been seen by a gyno, a GP, and a dermatologist, all to no luck. When I found you all by Googling, I assumed I'd found my issue.

I read your posts on chiropractors and yoga poses helping. I had low back pain problems starting around the same type as my vulvodynia problems (from doing a jump squat), so I called a chiropractor and started doing stretching exercises immediately.

The chiropractor was amazing (Dr. Matt Suntken at Quality of Life MN). He said he hadn't treated any patients with vulvodynia, but that he saw guys with painful testicles all the time and that at least in my case, it seemed like the same set of nerves. After the appointment, I was able to have penetrative sex for the first time in two months.

Other things I've done to help my low back this past week: slept on the floor. Stretching exercises including: the runner's stretch, that one where you lay down and hug your bent leg and bring it towards your chest, the one where you lay on the ground and raise your leg in a split as far as you can, the one where you twist your legs together while laying down and then move them to one side and then the other, touching my toes with straight legs, reaching opposite arm over towards opposite side and leaning, the stretch where you put one leg in front, bend the other horizontally, and lean forward. Given these pretty rough descriptions, I can go and find pictures online and link to them if anyone is curious about them.

A bunch of other information in case it's relevant to anyone else:
-My coccyx started hurting way before my lower back or vulvar region did and that might be in the same nerve path.
-My hips are uneven and that might be a contributor
-I tried steroid cream briefly as suggested by gynecologist; I switched to the SCD diet (which I love but didn't help); I took a ton of yeast infection medicine prescribed by my gynecologist and also stuff for BV which didn't help; I took probiotics recommended by my GP and that didn't help
-A analysis of a recent spine for my lower back pain xray said: Normal osseous mineralization. Mild thoracolumbar dextroscoliosis 
with apex at T12-L1. Vertebral body heights are preserved. No acute 
fracture identified. No significant listhesis. Mild disc space 
narrowing L5-S1 (ADDED NOTE: This comes up in one of the studies below as something leading to our type of pain). Posterior elements unremarkable. Trace lower lumbar 
facet arthropathy. Sacroiliac joints symmetric.

I'm going to post updates--not sure how much this will take my pain down from here, but I felt I owed it to you guys to post. You helped me so much!

Also, here's a link to a case study about a successful chiropractic intervention and about a different type of intervention (but that shows the issues are connected for at least some people):

[EDIT: I can't post links for seven days because I'm a new member, but if you google:

"Resolution of Vulvodynia Following Chiropractic Care Using Chiropractic Biophysics & Diversified Techniques: A Case Report" it's possible to find a PDF version of it without journal access.


If you google: "Pelvic Neuralgias by Neuro-Vascular Entrapment: Anatomical Findings in a Series of 97 Consecutive Patients Treated by Laparoscopic Nerve Decompression" you can find an abstract.

Thanks again everyone.


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Post  fairlight10 on Sat Jun 23, 2018 6:17 pm

Very interested in your story keep us all posted. I have had some pain in my lower back recently due to gardening. Just getting over a flare up!


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Post  ouch1234 on Mon Jun 25, 2018 5:09 pm

Hi fairlight10! Thanks for prompting an update--my back has continued to get better (through more chiropractor appointments, continued stretching, and continued sleeping on the floor) and my vulvodynia has continued to get much better too (I'm almost back to normal most days). Whenever my back hurts more (I lifted a few things I shouldn't have a couple days ago), the vulvodynia gets worse again--it has continued to be a very direct correlation. The chiropractor says he's going to teach me some "stabilizing back exercises" at our appointment this coming week.


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