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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


FIRST CHIROPRACTIC APPOINTMENT GREATLY HELPED PAIN

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FIRST CHIROPRACTIC APPOINTMENT GREATLY HELPED PAIN

Post  ouch1234 on Thu Jun 07, 2018 10:29 pm

Hi!

I've had increasing vaginal burning/rawness for about a year and a half, and have been seen by a gyno, a GP, and a dermatologist, all to no luck. When I found you all by Googling, I assumed I'd found my issue.

I read your posts on chiropractors and yoga poses helping. I had low back pain problems starting around the same type as my vulvodynia problems (from doing a jump squat), so I called a chiropractor and started doing stretching exercises immediately.

The chiropractor was amazing (Dr. Matt Suntken at Quality of Life MN). He said he hadn't treated any patients with vulvodynia, but that he saw guys with painful testicles all the time and that at least in my case, it seemed like the same set of nerves. After the appointment, I was able to have penetrative sex for the first time in two months.

Other things I've done to help my low back this past week: slept on the floor. Stretching exercises including: the runner's stretch, that one where you lay down and hug your bent leg and bring it towards your chest, the one where you lay on the ground and raise your leg in a split as far as you can, the one where you twist your legs together while laying down and then move them to one side and then the other, touching my toes with straight legs, reaching opposite arm over towards opposite side and leaning, the stretch where you put one leg in front, bend the other horizontally, and lean forward. Given these pretty rough descriptions, I can go and find pictures online and link to them if anyone is curious about them.

A bunch of other information in case it's relevant to anyone else:
-My coccyx started hurting way before my lower back or vulvar region did and that might be in the same nerve path.
-My hips are uneven and that might be a contributor
-I tried steroid cream briefly as suggested by gynecologist; I switched to the SCD diet (which I love but didn't help); I took a ton of yeast infection medicine prescribed by my gynecologist and also stuff for BV which didn't help; I took probiotics recommended by my GP and that didn't help
-A analysis of a recent spine for my lower back pain xray said: Normal osseous mineralization. Mild thoracolumbar dextroscoliosis 
with apex at T12-L1. Vertebral body heights are preserved. No acute 
fracture identified. No significant listhesis. Mild disc space 
narrowing L5-S1 (ADDED NOTE: This comes up in one of the studies below as something leading to our type of pain). Posterior elements unremarkable. Trace lower lumbar 
facet arthropathy. Sacroiliac joints symmetric.

I'm going to post updates--not sure how much this will take my pain down from here, but I felt I owed it to you guys to post. You helped me so much!

Also, here's a link to a case study about a successful chiropractic intervention and about a different type of intervention (but that shows the issues are connected for at least some people):

[EDIT: I can't post links for seven days because I'm a new member, but if you google:


"Resolution of Vulvodynia Following Chiropractic Care Using Chiropractic Biophysics & Diversified Techniques: A Case Report" it's possible to find a PDF version of it without journal access.

and

If you google: "Pelvic Neuralgias by Neuro-Vascular Entrapment: Anatomical Findings in a Series of 97 Consecutive Patients Treated by Laparoscopic Nerve Decompression" you can find an abstract.

Thanks again everyone.

ouch1234

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Re: FIRST CHIROPRACTIC APPOINTMENT GREATLY HELPED PAIN

Post  fairlight10 on Sat Jun 23, 2018 6:17 pm

Very interested in your story keep us all posted. I have had some pain in my lower back recently due to gardening. Just getting over a flare up!

fairlight10

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Re: FIRST CHIROPRACTIC APPOINTMENT GREATLY HELPED PAIN

Post  ouch1234 on Mon Jun 25, 2018 5:09 pm

Hi fairlight10! Thanks for prompting an update--my back has continued to get better (through more chiropractor appointments, continued stretching, and continued sleeping on the floor) and my vulvodynia has continued to get much better too (I'm almost back to normal most days). Whenever my back hurts more (I lifted a few things I shouldn't have a couple days ago), the vulvodynia gets worse again--it has continued to be a very direct correlation. The chiropractor says he's going to teach me some "stabilizing back exercises" at our appointment this coming week.

ouch1234

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Re: FIRST CHIROPRACTIC APPOINTMENT GREATLY HELPED PAIN

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