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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

I’m back after 5.5 pain free years

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I’m back after 5.5 pain free years

Post  Aussie on Wed Jun 13, 2018 12:28 pm

I’m really not coping well, it’s been back with avengence for 7 days.

Started in 2010 was horrendous following a yeast infection. Constant pain, tried every conceivable option.progressed to IC and burning hands and feet... it was an appalling time.

Herbs got me to the point I could conceive then everything went away once I gave birth end of 2012. 2 healthy babies (5 and 3) vaginal water births with only 2 bladder flares in these years controlled with homeopathy. I promised myself I’d never ask for another thing - so thankful to be rid of this torture.

9 months ago I got Botox for wrinkles, horrible reaction....then periods went wonky then developed Hashimotos and fibrocystic breasts. Began seeing a naturopath for managemt of hormonal problems - supps caused minor yeast infection , (had worse over past few years) aa3 days later yeast was gone, Vulvodynia returned, then the burning hands and feet, then the clitoral and bladder pain (everything that took a year to develop in 2010 has returned within a week of the v pain coming back. I’m terrified and emotional, the whole area is buzzing, anal fissure (not had since v resolved) hands and feet burning again.

There do not seem to be many advancements in treatment and we have completed our family so another baby is not a suitable solution

Please help me gain perspective and control



Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

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No reply.....?? SOLUTION FOUND

Post  Aussie Yesterday at 4:17 am

I decided to come back and update everyone, surprised that i had no replies of support here. That is a shame.


After beginning paleo diet I was consuming in high quantities buckwheat, Quinoa, Spinach, tomato, tumeric, chia, kale, soy, gluten free grains, almond milk, rice milk, nuts and peanut butter on a daily basis. It is in a lot of foods you would not expect.

it seems I overloaded my system. Within 5 days the pain had resolved completely. The only accurate list of low oxalate foods and oxalate levels is in the "TLO" facebook group run by Susan Owens.  Learn all you can from that group.

There is a multitude of women on that group who have healed from VVD this way.  If i had known that all the information on the net that was not in this group was not accurate I wouldn't have thrown out the diet years ago and would have saved thousands.

ALSO Miracle 2 gel. Amazing for burning. Think what you want of it but i have put it on bites on green ant bites on the kids and myself to test placebo. It works.

Hope this helps someone.


Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

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