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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Question for those who use or have used Cymbalta/duloxetine

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Question for those who use or have used Cymbalta/duloxetine

Post  Aurora on Thu Jun 14, 2018 4:03 pm

Hello everyone,

First, I will go over my background, but you can skip the next paragraph if you just want to address the Cymbalta question.

Here is my story in a few words. Prior to October 2017, I never had any issues. Then, I got my first yeast infection, and it was pretty bad. Really painful, red, inflamed, lots of discharge, etc. It wasn't subtle. I treated it with a 1-day clotrimazole (canesten) pessary and thought it was fine after that. Only the next month, it came back. That time I used a fluconazole pill. Then it came back again the following month... I was prescribed fluconazole and was told to take it whenever it came back. Problem was, I never felt cured from that point on. I saw several doctors, I went to the emergency care, I had at least 5 cultures done, I was tested for everything and it came back negative every single time, even though they did see yeast under the microscope on one occasion, and also found leukocytes (white blood cells, usually indicative of an infection) on an other. They said this could be normal... However, they never cultured my samples longer than 24-36 hours. For a while I worried that this could be a candida glabrata infection, and that it didn't grow in that short time. No doctor ever took me seriously when I mentioned this, so I don't know. In addiction to clotrimazole and fluconazole, I used boric acid for a while. I had good days and bad days and don't know for sure whether it helped.

So, after living with burning pain for several months that couldn't be explained by any tests, a Dr. told me I have vulvodynia and put me on Cymbalta 30mg. I took that for about 6-7 weeks, and it did help. It did not eliminate the pain completely, but it enabled me to live more freely and not think about my pain 24/7. After my first follow up, my dose was increased to 60mg. So far I can't tell if it makes a difference in my pain levels, but I'm not sure I like how it affects me in terms of mood.

I've read a lot of horror stories about how hard it is to go off of Cymbalta (brain zaps, confusion, fatigue, etc.), and how the pain comes back stronger when you stop taking it. My question is this : has anyone had success with treating the pain with Cymbalta and was then able to stop taking it ? Or do you intend to keep taking it ? What's your long term strategy ?

Thank you!



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my experience with cymbalta

Post  punkerplus on Sat Jun 23, 2018 1:37 pm

I am not sure if this will be helpful to you or not, but I will let you know my experience.

I did take Cymbalta, but I was not being treated for Vulvodynia at the time. However, I clearly did have Vulvodynia and I was aware that something was wrong with me vaginally. I was being treated for chronic migraine, which I have now been told is a "comorbid" condition with vulvodynia. I had been switched from Nortryptilyene to Cymbalyta due to side effects in an effort to relieve my migraines, and at that time had unexplained vaginal symptoms for about five years which I discussed routinely with gynecologists with no answers.

Like yourself, I took 60 mgs per day of Cymbalta, however, this is what I started at (once I gradually increased of dose from weaning down off the other drug). I did not notice any difference in the Vulvodynia symptoms, but I was undiagnosed at the time, being provided only topical creams by gynecologists who did not know what they were doing plain and simple. I pushed my doctors to take me off the Cymbalta because I was suffering from extreme drowsiness (I was taking other medications causing drowsiness as well) and because on the time I was on the Nortriptylene and then the Cymbalta, I completely lost my ability to orgasm, which lasted approximately one year with the two drugs together. Once I was off the antidepressants, I felt much better and did not experience difficulty coming off of them (after about one year of taking them, one following the other). No difference in vaginal symptoms, but I substituted botox treatments for the migraines to mitigate the effects of this decision.

I hope this helps.

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Re: Question for those who use or have used Cymbalta/duloxetine

Post  Aurora on Fri Jun 29, 2018 5:21 pm

Thank you for your answer. I appreciate reading about your experience. I have been slowly reducing my dose of Cymbalta. Initially I thought it was helpful, but as time goes by, I'm starting to feel like it's not actually helping and like you, I'm dealing with some unpleasant side effects. Vulvodynia has been hard on my relationship and it saddens me that, on the few days where I feel good enough to actually want to have sex, I now struggle with an inability to reach orgasm.

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Re: Question for those who use or have used Cymbalta/duloxetine

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