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» 7 months since the diagnosis
Yesterday at 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Question for those who use or have used Cymbalta/duloxetine

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Question for those who use or have used Cymbalta/duloxetine

Post  Aurora on Thu Jun 14, 2018 4:03 pm

Hello everyone,

First, I will go over my background, but you can skip the next paragraph if you just want to address the Cymbalta question.

Here is my story in a few words. Prior to October 2017, I never had any issues. Then, I got my first yeast infection, and it was pretty bad. Really painful, red, inflamed, lots of discharge, etc. It wasn't subtle. I treated it with a 1-day clotrimazole (canesten) pessary and thought it was fine after that. Only the next month, it came back. That time I used a fluconazole pill. Then it came back again the following month... I was prescribed fluconazole and was told to take it whenever it came back. Problem was, I never felt cured from that point on. I saw several doctors, I went to the emergency care, I had at least 5 cultures done, I was tested for everything and it came back negative every single time, even though they did see yeast under the microscope on one occasion, and also found leukocytes (white blood cells, usually indicative of an infection) on an other. They said this could be normal... However, they never cultured my samples longer than 24-36 hours. For a while I worried that this could be a candida glabrata infection, and that it didn't grow in that short time. No doctor ever took me seriously when I mentioned this, so I don't know. In addiction to clotrimazole and fluconazole, I used boric acid for a while. I had good days and bad days and don't know for sure whether it helped.

So, after living with burning pain for several months that couldn't be explained by any tests, a Dr. told me I have vulvodynia and put me on Cymbalta 30mg. I took that for about 6-7 weeks, and it did help. It did not eliminate the pain completely, but it enabled me to live more freely and not think about my pain 24/7. After my first follow up, my dose was increased to 60mg. So far I can't tell if it makes a difference in my pain levels, but I'm not sure I like how it affects me in terms of mood.

I've read a lot of horror stories about how hard it is to go off of Cymbalta (brain zaps, confusion, fatigue, etc.), and how the pain comes back stronger when you stop taking it. My question is this : has anyone had success with treating the pain with Cymbalta and was then able to stop taking it ? Or do you intend to keep taking it ? What's your long term strategy ?

Thank you!


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my experience with cymbalta

Post  punkerplus on Sat Jun 23, 2018 1:37 pm

I am not sure if this will be helpful to you or not, but I will let you know my experience.

I did take Cymbalta, but I was not being treated for Vulvodynia at the time. However, I clearly did have Vulvodynia and I was aware that something was wrong with me vaginally. I was being treated for chronic migraine, which I have now been told is a "comorbid" condition with vulvodynia. I had been switched from Nortryptilyene to Cymbalyta due to side effects in an effort to relieve my migraines, and at that time had unexplained vaginal symptoms for about five years which I discussed routinely with gynecologists with no answers.

Like yourself, I took 60 mgs per day of Cymbalta, however, this is what I started at (once I gradually increased of dose from weaning down off the other drug). I did not notice any difference in the Vulvodynia symptoms, but I was undiagnosed at the time, being provided only topical creams by gynecologists who did not know what they were doing plain and simple. I pushed my doctors to take me off the Cymbalta because I was suffering from extreme drowsiness (I was taking other medications causing drowsiness as well) and because on the time I was on the Nortriptylene and then the Cymbalta, I completely lost my ability to orgasm, which lasted approximately one year with the two drugs together. Once I was off the antidepressants, I felt much better and did not experience difficulty coming off of them (after about one year of taking them, one following the other). No difference in vaginal symptoms, but I substituted botox treatments for the migraines to mitigate the effects of this decision.

I hope this helps.


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Re: Question for those who use or have used Cymbalta/duloxetine

Post  Aurora on Fri Jun 29, 2018 5:21 pm

Thank you for your answer. I appreciate reading about your experience. I have been slowly reducing my dose of Cymbalta. Initially I thought it was helpful, but as time goes by, I'm starting to feel like it's not actually helping and like you, I'm dealing with some unpleasant side effects. Vulvodynia has been hard on my relationship and it saddens me that, on the few days where I feel good enough to actually want to have sex, I now struggle with an inability to reach orgasm.


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Re: Question for those who use or have used Cymbalta/duloxetine

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