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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Question for those who use or have used Cymbalta/duloxetine

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Question for those who use or have used Cymbalta/duloxetine

Post  Aurora on Thu Jun 14, 2018 4:03 pm

Hello everyone,

First, I will go over my background, but you can skip the next paragraph if you just want to address the Cymbalta question.

Here is my story in a few words. Prior to October 2017, I never had any issues. Then, I got my first yeast infection, and it was pretty bad. Really painful, red, inflamed, lots of discharge, etc. It wasn't subtle. I treated it with a 1-day clotrimazole (canesten) pessary and thought it was fine after that. Only the next month, it came back. That time I used a fluconazole pill. Then it came back again the following month... I was prescribed fluconazole and was told to take it whenever it came back. Problem was, I never felt cured from that point on. I saw several doctors, I went to the emergency care, I had at least 5 cultures done, I was tested for everything and it came back negative every single time, even though they did see yeast under the microscope on one occasion, and also found leukocytes (white blood cells, usually indicative of an infection) on an other. They said this could be normal... However, they never cultured my samples longer than 24-36 hours. For a while I worried that this could be a candida glabrata infection, and that it didn't grow in that short time. No doctor ever took me seriously when I mentioned this, so I don't know. In addiction to clotrimazole and fluconazole, I used boric acid for a while. I had good days and bad days and don't know for sure whether it helped.

So, after living with burning pain for several months that couldn't be explained by any tests, a Dr. told me I have vulvodynia and put me on Cymbalta 30mg. I took that for about 6-7 weeks, and it did help. It did not eliminate the pain completely, but it enabled me to live more freely and not think about my pain 24/7. After my first follow up, my dose was increased to 60mg. So far I can't tell if it makes a difference in my pain levels, but I'm not sure I like how it affects me in terms of mood.

I've read a lot of horror stories about how hard it is to go off of Cymbalta (brain zaps, confusion, fatigue, etc.), and how the pain comes back stronger when you stop taking it. My question is this : has anyone had success with treating the pain with Cymbalta and was then able to stop taking it ? Or do you intend to keep taking it ? What's your long term strategy ?

Thank you!



Aurora

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my experience with cymbalta

Post  punkerplus on Sat Jun 23, 2018 1:37 pm

I am not sure if this will be helpful to you or not, but I will let you know my experience.

I did take Cymbalta, but I was not being treated for Vulvodynia at the time. However, I clearly did have Vulvodynia and I was aware that something was wrong with me vaginally. I was being treated for chronic migraine, which I have now been told is a "comorbid" condition with vulvodynia. I had been switched from Nortryptilyene to Cymbalyta due to side effects in an effort to relieve my migraines, and at that time had unexplained vaginal symptoms for about five years which I discussed routinely with gynecologists with no answers.

Like yourself, I took 60 mgs per day of Cymbalta, however, this is what I started at (once I gradually increased of dose from weaning down off the other drug). I did not notice any difference in the Vulvodynia symptoms, but I was undiagnosed at the time, being provided only topical creams by gynecologists who did not know what they were doing plain and simple. I pushed my doctors to take me off the Cymbalta because I was suffering from extreme drowsiness (I was taking other medications causing drowsiness as well) and because on the time I was on the Nortriptylene and then the Cymbalta, I completely lost my ability to orgasm, which lasted approximately one year with the two drugs together. Once I was off the antidepressants, I felt much better and did not experience difficulty coming off of them (after about one year of taking them, one following the other). No difference in vaginal symptoms, but I substituted botox treatments for the migraines to mitigate the effects of this decision.

I hope this helps.

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Re: Question for those who use or have used Cymbalta/duloxetine

Post  Aurora on Fri Jun 29, 2018 5:21 pm

Thank you for your answer. I appreciate reading about your experience. I have been slowly reducing my dose of Cymbalta. Initially I thought it was helpful, but as time goes by, I'm starting to feel like it's not actually helping and like you, I'm dealing with some unpleasant side effects. Vulvodynia has been hard on my relationship and it saddens me that, on the few days where I feel good enough to actually want to have sex, I now struggle with an inability to reach orgasm.

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Re: Question for those who use or have used Cymbalta/duloxetine

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