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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

I'm struggling

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I'm struggling

Post  criv01 on Thu Jun 21, 2018 3:02 pm

Long story short, I've been in pain for 6 months, after giving birth to my beautiful baby boy. After many, many appointments, prescriptions and such...i was directed to a specialist that said I have vulvodynia. At first, I was happy as it seemed to match what I was feeling...and then, I began reading and feel beyond helpless....especially as I woke up at 5 this morning with burning pain around my clitorisis. At this point, I've been prescribed a lidocaine cream...which isn't really helping....just shifts the pain to mostly burning and turns down the intensity by one....and I've done two sessions of pt for my pelvic floor.

I'm struggling mentally A LOT. To be honest, I'm crying and ahhhhhhhhhh! Why did this have to happen?????? I am surrounded by a simple, but good life and I am consumed with my thoughts of pain. I'm trying to tell myself this is the beginning...there are options, but I'm having trouble actually believing this pain can change....I'm fried and just want some relief!! Ugh, I don't know if I'm mentally strong enough for this all right now.

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Re: I'm struggling

Post  fairlight10 on Sat Jun 23, 2018 6:04 pm

I am sorry you are suffering this horrible condition as we all are on this forum. Also,at a time that should be special with your new baby. I can recommend one of the tryclic antidepressants. Nortriptyline taken at a low dose of 20mgs can calm down the nerve pain you are experiencing. I have been on it for more than 6years now.It took many months to work but within 2 weeks I knew it was changing the pain signals.After 4months l felt ready to go back to work.I still have flare ups but nothing like it was at the beginning.l have read all the stories on this site and many women have found relief with these medications. It may make you sleepy for awhile but this wears off when you get used to the drug.Hope this helps.


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Re: I'm struggling

Post  Thinolgal on Wed Jun 27, 2018 5:09 am

I also got severe burning pain from lidocaine......it stimulated rather than deadened the nerve endings.....no idea how, but the pain felt like a scald.

I'm new on here, so sorry if I'm covering old ground (I've read some of the posts, but far from all). Are you washing too often? I say this as I became a bit obsessed by trying to make myself too clean, and it makes matters worse. Secondly....cool plain live yoghourt after washing and left on the skin helps me, it may help you. Messy, but really soothing. Wipe off with very soft toilet tissue.....don't rub as the toilet tissue often contains chemicals which will irritate the skin.


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Re: I'm struggling

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