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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Vulvar Vestibulitus Plus External Itching - Please Read!!

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Vulvar Vestibulitus Plus External Itching - Please Read!!

Post  punkerplus on Sat Jun 23, 2018 2:02 pm

Hello All,

I have suffered with symptoms of vulvodynia for about six years now, having just received a diagnosis in December. I was told that I have vulvar vestibulitus. It is clear, as the doctor showed me (with a mirror) that the vulvar vestibules are red and inflamed, he did the Q-Tip test where he poked me and I yelled out because it hurt, but the odd thing is that while I experience some minor irritation in that location during penetrative sex, I can generally have it and enjoy it as long as I'm not "excessive" (i.e. not every night).

My primary concern has been the external itching and burning that has driven me up a wall for years. Its generally around the "clitoral" area, inner lips, and it is HORRIBLE. Before I was diagnosed, doctors would just tell me to use this or use that or prescribe things to me, probably often falsely diagnosing me with yeast infections. Now, we have discovered that the thing that works is hydrocortisone creams or blends such as Pramosone. The problem is I've been using creams like this for years and the doctor says that this causes "thinning of the skin." If I so much as wash the cream off, however, I'm back to burning within a few hours, and its been like this ever since the burning started.

The doctor and I have tried all different things, such as Amitryptlene cream on the vulvar vestibules, gabapentin cream on the vulvar vestibules, and now he wants me to try taking gabapentin orally. Lidocaine solutions on the external itching did not work. The worst part is that as I have been told there is no certainty as to whether or not the vulvar vestibulitus and the external itching is connected in any way.

Has anyone had any experiences like this with severe external itching? Do you have any solutions for external itching that do not involve steroid solutions or lidocaine? I'm starting to become concerned that the doctor I am seeing is running out of ideas for how to solve the problem of the external itching so I am trying to think of ideas on my own as well to discuss with him.

I would really greatly appreciate any advice that you can give me. I realize that I am just at the beginning of figuring this out since I just have received a diagnosis about six months ago, but it took me a long time to get here.

I'm also willing to take suggestions for a second opinion. Live in New York and willing to travel. Thanks!!! Smile


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Boric Acid

Post  ruby on Mon Jun 25, 2018 5:18 pm

hi there! I also have bad external itching/rawness, and something that has helped is boric acid suppositories. I also suffered from several yeast infections, and was being treated for them without success until we realized there was no yeast at all. Boric acid is used to treat yeast infection, but it basically just resets the entire flora and balance of the vagina, and I have found great success in using it. I haven't experienced any negative side effects (no extra burning or pain), and it almost completely reduced my out itching for a few months before it came back. I just finished my second round of it last week and I'm itchless again! I still have my internal pain, but the itching is gone. I got a prescription from my gynecologist and got it ordered from a specialty pharmacy.

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Re: Vulvar Vestibulitus Plus External Itching - Please Read!!

Post  punkerplus on Tue Jun 26, 2018 2:55 am

ruby wrote:hi there! I also have bad external itching/rawness, and something that has helped is boric acid suppositories. I also suffered from several yeast infections, and was being treated for them without success until we realized there was no yeast at all. Boric acid is used to treat yeast infection, but it basically just resets the entire flora and balance of the vagina, and I have found great success in using it. I haven't experienced any negative side effects (no extra burning or pain), and it almost completely reduced my out itching for a few months before it came back. I just finished my second round of it last week and I'm itchless again! I still have my internal pain, but the itching is gone. I got a prescription from my gynecologist and got it ordered from a specialty pharmacy.

Thanks so much! I am going to look into this.

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Re: Vulvar Vestibulitus Plus External Itching - Please Read!!

Post  sarisbaris on Sun Jul 01, 2018 4:43 pm

I'm so sorry you're in pain! Yes I had itching too. I had so many symptoms. I had V for 15 years. I've been healed for 2. I followed the protocol by Anthony William. Here's my blog. I would also suggest you also join the Facebook group Vulva Warriors. Most of the women on there are following this protocol to heal their V. A handful of us who have already been healed are on there as well answering questions.
http://myvulvodyniacure.blogspot.com/2018/05/basics.html

First, you're fighting a virus the doctors can't detect right now.

These foods feed the virus so remove them: Dairy, eggs, corn, wheat, canola oil, natural flavorings (they tricked you, it’s MSG), aluminium (any food that has contact with this metal), only eat Himalayan salt for now (random salt was a huge trigger for my itching. Sigh)

These kill the virus:
1) Nettle leaf tincture (alcohol free) at least 3-5 times a day, 2 droppers. (great especially for itching)
https://www.amazon.com/gp/product/B000I4AEBI/ref=as_li_qf_sp_asin_il_tl?ie=UTF8&tag=wwwmedicalmed-20&camp=1789&creative=9325&linkCode=as2&creativeASIN=B000I4AEBI&linkId=04916ccf5d496631c562f5e3a92bbb92
2) Green juices: celery juice when you wake up and then 2 other green juices during the day if you're in pain (celery, cucumber, flat leaf parsley, cilantro. These are great for itching)
3) Smoothie: wild blueberry, banana, fresh oranges, and other fresh fruits
4) You should be on this zinc long term. 10 drops in glass of water 2-3x a day
https://www.amazon.com/gp/product/B00D0VI0A8/ref=as_li_qf_sp_asin_il_tl?ie=UTF8&tag=wwwmedicalmed-20&camp=1789&creative=9325&linkCode=as2&creativeASIN=B00D0VI0A8&linkId=ec2da5adb556972a4cb73ef3bf7565fd


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Re: Vulvar Vestibulitus Plus External Itching - Please Read!!

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