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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


My Pain in the .........

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My Pain in the .........

Post  Thinolgal on Tue Jun 26, 2018 11:05 am

OK, so I'm old(ish)....64. Unfortunately, pain isn't one of those faculties that you lose as you age.

So.....vulval varices on right during my second pregnancy nearly 30 years ago. They went away (pretty much) after delivery....didn't completely disappear, but they weren't painful.

Fast forward to 3 years ago and I developed pain and a little swelling in those veins....the overlying skin became extremely tender even making wearing underwear a real trial.So....vulvodynia....right side only, and only skin overlying the horrid varicose veins Gynae. referral....by the time I was seen, the pain had settled and the advice was USELESS...."If it happens again, get your feet up and rest"! bounce bounce The letter to my GP just told him I was very thin and maybe something else was wrong with me......Well, for starters, I ain't THAT thin, and all my family are, you guessed it, THIN.

So, no problems until autumn last year....the pain came back.....much worse and persistent this time. Offered all manner of really nasty pain killers from the family doctor and referred to (different) Gynae again. Give Lidocaine, too, which just burnt like fire. Amitryptyline......didn't help as far as I can see and may lead to dementia in oldies like me, so discontinued..Gynaecologist much more helpful this time......skin washes, topical estrogen, referral to vascular surgeon to get rid of veins. Vascular surgeon doesn't seem keen to do anything.....but awaiting 'imaging' Question Meanwhile the pain stops me doing many things. I've always been very active, but many activities are prevented by the searing pain where the sun don't shine.

This post is largely a typed moan.....but, as you ladies are all too painfully aware, this pain isn't one we want to discuss over the dinner table.

So, anybody had anything similar, and if so what did you do?

Thinolgal

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Re: My Pain in the .........

Post  emalita on Tue Jun 26, 2018 2:05 pm

Hi,

Have you tried seeing a pelvic floor physical therapist? They can work with nerve issues and hopefully prevent surgery.

emalita

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Re: My Pain in the .........

Post  Thinolgal on Wed Jun 27, 2018 4:58 am

Thanks for the suggestion. Unfortunately I don't think that the service exists anywhere near to where I am (remote rural location). I'll do my best to find out if there's anyone remotely local.



Thinolgal

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Re: My Pain in the .........

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