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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


My Pain in the .........

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My Pain in the .........

Post  Thinolgal on Tue Jun 26, 2018 11:05 am

OK, so I'm old(ish)....64. Unfortunately, pain isn't one of those faculties that you lose as you age.

So.....vulval varices on right during my second pregnancy nearly 30 years ago. They went away (pretty much) after delivery....didn't completely disappear, but they weren't painful.

Fast forward to 3 years ago and I developed pain and a little swelling in those veins....the overlying skin became extremely tender even making wearing underwear a real trial.So....vulvodynia....right side only, and only skin overlying the horrid varicose veins Gynae. referral....by the time I was seen, the pain had settled and the advice was USELESS...."If it happens again, get your feet up and rest"! bounce bounce The letter to my GP just told him I was very thin and maybe something else was wrong with me......Well, for starters, I ain't THAT thin, and all my family are, you guessed it, THIN.

So, no problems until autumn last year....the pain came back.....much worse and persistent this time. Offered all manner of really nasty pain killers from the family doctor and referred to (different) Gynae again. Give Lidocaine, too, which just burnt like fire. Amitryptyline......didn't help as far as I can see and may lead to dementia in oldies like me, so discontinued..Gynaecologist much more helpful this time......skin washes, topical estrogen, referral to vascular surgeon to get rid of veins. Vascular surgeon doesn't seem keen to do anything.....but awaiting 'imaging' Question Meanwhile the pain stops me doing many things. I've always been very active, but many activities are prevented by the searing pain where the sun don't shine.

This post is largely a typed moan.....but, as you ladies are all too painfully aware, this pain isn't one we want to discuss over the dinner table.

So, anybody had anything similar, and if so what did you do?

Thinolgal

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Re: My Pain in the .........

Post  emalita on Tue Jun 26, 2018 2:05 pm

Hi,

Have you tried seeing a pelvic floor physical therapist? They can work with nerve issues and hopefully prevent surgery.

emalita

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Location : USA

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Re: My Pain in the .........

Post  Thinolgal on Wed Jun 27, 2018 4:58 am

Thanks for the suggestion. Unfortunately I don't think that the service exists anywhere near to where I am (remote rural location). I'll do my best to find out if there's anyone remotely local.



Thinolgal

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Re: My Pain in the .........

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