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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

Hi girls! New in this forum

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Hi girls! New in this forum

Post  Gaby on Fri Jul 13, 2018 2:31 pm

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and pills,( triconazol, fluconazol, and all the "azol's" you can imagine hehe)
In march the yeast infection went away but i kept the symptoms, (burning pain in all my vulva, and eventually also the area around my anus ), and I also notice i had a little ball on the left side of my vagina entrance, so i went back to my gyn and she said it was normal after all the medication i had, that eventually all the pain would go away and she gave me only a moisturizing cream. I used it for around 3 weeks but the pain did not go away, so i went to a dermatologist this time, she said that the PH on of vulva skin was affected and she gave a special cream ( to be prepared at the pharmacy). Since the main ingredient was corisone, it was not recommendable to be used longer than 3 weeks, I must say that it help for the skin around my anus but my vulva still burned a lot!.
So here i go again back to the gynecologist, she took a sample and sent it to the lab. All came back negative for infections, so she said to me that there was nothing to be done, that she couldnt do anything!! She had no clue what was going on!, So i started my search on the internet, and i found a post from a girl in the Netherlands ( i live in Belgium by the way) saying she got cured with PEA pills and cream, so i didnt doubt about it and order them. It did help to ease my pain, but then in may i went on holidays ( to the beach) and it was a hell!!!!!!!!!!!!!!. I got the yeast infection back and on top of that the little ball i had got swollen and it hurt as well, i could barely walk!, so i had to go to a gynecologist there.
She told me that my Bartholin gland (i didnt even know what that was) and my cervix were infected, thus i had to take again triconazol and clindamicine ( i dont know the commercial names in the US) for 15 days, also my poor boyfriend had to take them.

After these 15 days the pain was still there but it wasn't as bad as it was with the infection ,but i still had pain! Before this last yeast infection having sex was not painful but after it it is.
So back home after a few temps of painful sex i got an UTI Sad Sad ... since i had it before i knew which meds to take.
When i got the uti under control I went to see another gynecologist, she told me that my Bartholin gland was still swollen but not enough to do something about it, she also mentioned that the source of my pain was due to a chronic vv ( that is also why the after sex is so painful), she prescribe lydocaine to use before sex and another cream with corticoids (which i read are very bad on the long run), she took also a sample for yeast infections that came out negative but she didnt check my urine or anything related to it. She also told me there is no cure for this, that it goes away by itself but it can take months or even years!!! But how can you live like this, always in pain!.

I keep doing research and looking for a cure, i refuse to live like this, and that is how i found this forum, I've been reading it for a while and I saw a post about saginil gel, i've been using it for a week and i must say that my pain on the extern labia has decrease a lot! i almost dont feel it anymore, but i still have pain in the intern labia and on my urethra, I feel like if something is pushing on it all the time and after I pee i have bladder pain Sad Sad Sad Sad ................................ on top of it, I am 34 years old and the biological clock is starting to stress me, my boyfriend and i want to become parents somewhere in the near future but how if we cannot even have sex!!

At the end of this month i will be visiting a new gynecologist, someone specialist in vulvodynia and yeast infections, he is my last hope so we will see.

Has any of you got pregnant with this condition? Is it possible? Can you get pregnant and at the same time follow a treatment for vulvodynia? Any advise is welcome.

Thanks a lot and keep strong!! We'll be cured some day Smile.


Sorry for my bad english I am not an english native speaker.


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Re: Hi girls! New in this forum

Post  Taylor1 on Thu Aug 02, 2018 11:11 am

Hi something very similar happened to me, water infection, antibiotics, thrush and now this for me its been 3 months of pain some day are worse that others. I am just using coconut oil and lidocaine which helps when it is really bad it means I can cope with a day but I am single and desperately want to meet someone but who will want me with this...

I dont have any advice or anything that I can say that will help as I am new and struggling with this too.

I am tempted to try the saginil gel you have mentioned but unfortunately I do not have a lot of money

Good luck x


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