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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Support Group in Manchester or North West

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Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 4:32 pm

Hi Ladies

Im new to here but have been suffering from Vulvodynia for a year now with my symptoms being bad since last August.

Ive been looking for support groups in the North West and cant find any active ones.

I for one have never met anyone with this condition and I know it would massively help me to meet other women and see how they deal with it.

Im just really trying to find out if there is anyone in the North West who would be interested me.

There may already be one set up I am unaware of I would love to join.

Thanks

Michele

xx

mblack

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hi

Post  helen4444 on Sun Feb 20, 2011 5:48 pm

Hi,
Just seen your post.I kept trying to find out when the group in Manchester/north East was meeting.Can't even remember who or what it was called got fed up seeing 'coming soon' for this group.Found this support group and secret facebook group which have been life savers!! Sebby ( admin on this site can get you on facebook group not sure if i can i am crap on computers etc) I live in Leeds How about you? Take care xxx

helen4444

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Re: Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 6:21 pm

Hi Helen

Thanks for your reply.

I live in Manchester but am from Leeds originally. Do you see specialists in Leeds. Im looking to find someone in Leeds?

Ive just joined here and its seems like a life saver, I wish I had found it sooner!

Ive sent a request for the fb site so just waiting to hear back

Michele
xxx

mblack

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Re: Support Group in Manchester or North West

Post  CamperUK on Mon Feb 21, 2011 9:28 am

Hi Michelle
Welcome to the forum! I am very new here but I've already discovered lots of tips and advice, wish I had found it sooner, too. Take care x

CamperUK

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Hi

Post  helen4444 on Mon Feb 21, 2011 12:40 pm

Hi Michele, A bit complicated re: my gyno moving and the rest.Here is my e mail address so you can get in touch with me for more info helen.mcinnes@googlemail.com
Helen xxx

helen4444

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Hello from near Mcr!

Post  Hoping23 on Thu Mar 10, 2011 11:30 pm

Hello,

Just to let you know i'm in East Manchester (near Saddleworth) if you're ever interested in having a meet up!

I admittedly feel like a bit of a fraud on this forum as my vulvodynia is nowhere near as bad as some on here, although it still seems bad to me, i do feel like a lucky one, even though this condition just came out of the blue and i was a perfectly normal sexually active 17 - 21/22 year old before it and sometimes i have felt like my life might as well be over because of it, i would give anything for a cure (not my husband or cats but almost anything else!! Definitely all the chocolate and sweets in the world!).

Get in touch if you want, either on here or email me, my address is hannah21n@hotmail.com.

Hannah x

Hoping23

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secret FB

Post  Hoping23 on Thu Mar 10, 2011 11:32 pm

P.S can someone help me get on the secret facebook?? i can pm my name etc.

Thanks x

Hoping23

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Re: Support Group in Manchester or North West

Post  Mouse on Fri Mar 11, 2011 2:31 am

Now listen very carefully.... you just email sebby who is the admin and in charge of all things secretive. Ask her what her hobby is. If that fails email Naomi.

See you on the other side.

Vicki

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Re: Support Group in Manchester or North West

Post  naomi on Fri Mar 11, 2011 1:07 pm

heheeee mouse u do crack me up....'see you on the other side' so cryptic Smile put a smile on my otherwise pissy looking face today Smile
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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:26 pm


haha! Vicki! you cant tell everyone my hobby! Embarassed

I have sent a friend request to hoping so we will see her soon *opens portal* (cue twilight zone music) Shocked




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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:37 pm


Oh and I wanted to add that no-one is a fraud on this site (well apart from the person trying to sell us handbags!)

This forum is for anyone with 'vulval pain' as this is what Vulvodynia means...from itching, to soreness to burning with or without provocation..mild or severe.. in other words if ya vulvar dont feel right then this is the site for you!


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Re: Support Group in Manchester or North West

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