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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Support Group in Manchester or North West

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Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 4:32 pm

Hi Ladies

Im new to here but have been suffering from Vulvodynia for a year now with my symptoms being bad since last August.

Ive been looking for support groups in the North West and cant find any active ones.

I for one have never met anyone with this condition and I know it would massively help me to meet other women and see how they deal with it.

Im just really trying to find out if there is anyone in the North West who would be interested me.

There may already be one set up I am unaware of I would love to join.

Thanks

Michele

xx

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hi

Post  helen4444 on Sun Feb 20, 2011 5:48 pm

Hi,
Just seen your post.I kept trying to find out when the group in Manchester/north East was meeting.Can't even remember who or what it was called got fed up seeing 'coming soon' for this group.Found this support group and secret facebook group which have been life savers!! Sebby ( admin on this site can get you on facebook group not sure if i can i am crap on computers etc) I live in Leeds How about you? Take care xxx

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Re: Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 6:21 pm

Hi Helen

Thanks for your reply.

I live in Manchester but am from Leeds originally. Do you see specialists in Leeds. Im looking to find someone in Leeds?

Ive just joined here and its seems like a life saver, I wish I had found it sooner!

Ive sent a request for the fb site so just waiting to hear back

Michele
xxx

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Re: Support Group in Manchester or North West

Post  CamperUK on Mon Feb 21, 2011 9:28 am

Hi Michelle
Welcome to the forum! I am very new here but I've already discovered lots of tips and advice, wish I had found it sooner, too. Take care x

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Hi

Post  helen4444 on Mon Feb 21, 2011 12:40 pm

Hi Michele, A bit complicated re: my gyno moving and the rest.Here is my e mail address so you can get in touch with me for more info helen.mcinnes@googlemail.com
Helen xxx

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Hello from near Mcr!

Post  Hoping23 on Thu Mar 10, 2011 11:30 pm

Hello,

Just to let you know i'm in East Manchester (near Saddleworth) if you're ever interested in having a meet up!

I admittedly feel like a bit of a fraud on this forum as my vulvodynia is nowhere near as bad as some on here, although it still seems bad to me, i do feel like a lucky one, even though this condition just came out of the blue and i was a perfectly normal sexually active 17 - 21/22 year old before it and sometimes i have felt like my life might as well be over because of it, i would give anything for a cure (not my husband or cats but almost anything else!! Definitely all the chocolate and sweets in the world!).

Get in touch if you want, either on here or email me, my address is hannah21n@hotmail.com.

Hannah x

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secret FB

Post  Hoping23 on Thu Mar 10, 2011 11:32 pm

P.S can someone help me get on the secret facebook?? i can pm my name etc.

Thanks x

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Re: Support Group in Manchester or North West

Post  Mouse on Fri Mar 11, 2011 2:31 am

Now listen very carefully.... you just email sebby who is the admin and in charge of all things secretive. Ask her what her hobby is. If that fails email Naomi.

See you on the other side.

Vicki

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Re: Support Group in Manchester or North West

Post  naomi on Fri Mar 11, 2011 1:07 pm

heheeee mouse u do crack me up....'see you on the other side' so cryptic Smile put a smile on my otherwise pissy looking face today Smile
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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:26 pm


haha! Vicki! you cant tell everyone my hobby! Embarassed

I have sent a friend request to hoping so we will see her soon *opens portal* (cue twilight zone music) Shocked




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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:37 pm


Oh and I wanted to add that no-one is a fraud on this site (well apart from the person trying to sell us handbags!)

This forum is for anyone with 'vulval pain' as this is what Vulvodynia means...from itching, to soreness to burning with or without provocation..mild or severe.. in other words if ya vulvar dont feel right then this is the site for you!


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Re: Support Group in Manchester or North West

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