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» UK Vulvodynia Clinics
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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Support Group in Manchester or North West

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Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 4:32 pm

Hi Ladies

Im new to here but have been suffering from Vulvodynia for a year now with my symptoms being bad since last August.

Ive been looking for support groups in the North West and cant find any active ones.

I for one have never met anyone with this condition and I know it would massively help me to meet other women and see how they deal with it.

Im just really trying to find out if there is anyone in the North West who would be interested me.

There may already be one set up I am unaware of I would love to join.

Thanks

Michele

xx

mblack

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hi

Post  helen4444 on Sun Feb 20, 2011 5:48 pm

Hi,
Just seen your post.I kept trying to find out when the group in Manchester/north East was meeting.Can't even remember who or what it was called got fed up seeing 'coming soon' for this group.Found this support group and secret facebook group which have been life savers!! Sebby ( admin on this site can get you on facebook group not sure if i can i am crap on computers etc) I live in Leeds How about you? Take care xxx

helen4444

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Re: Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 6:21 pm

Hi Helen

Thanks for your reply.

I live in Manchester but am from Leeds originally. Do you see specialists in Leeds. Im looking to find someone in Leeds?

Ive just joined here and its seems like a life saver, I wish I had found it sooner!

Ive sent a request for the fb site so just waiting to hear back

Michele
xxx

mblack

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Re: Support Group in Manchester or North West

Post  CamperUK on Mon Feb 21, 2011 9:28 am

Hi Michelle
Welcome to the forum! I am very new here but I've already discovered lots of tips and advice, wish I had found it sooner, too. Take care x

CamperUK

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Hi

Post  helen4444 on Mon Feb 21, 2011 12:40 pm

Hi Michele, A bit complicated re: my gyno moving and the rest.Here is my e mail address so you can get in touch with me for more info helen.mcinnes@googlemail.com
Helen xxx

helen4444

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Hello from near Mcr!

Post  Hoping23 on Thu Mar 10, 2011 11:30 pm

Hello,

Just to let you know i'm in East Manchester (near Saddleworth) if you're ever interested in having a meet up!

I admittedly feel like a bit of a fraud on this forum as my vulvodynia is nowhere near as bad as some on here, although it still seems bad to me, i do feel like a lucky one, even though this condition just came out of the blue and i was a perfectly normal sexually active 17 - 21/22 year old before it and sometimes i have felt like my life might as well be over because of it, i would give anything for a cure (not my husband or cats but almost anything else!! Definitely all the chocolate and sweets in the world!).

Get in touch if you want, either on here or email me, my address is hannah21n@hotmail.com.

Hannah x

Hoping23

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secret FB

Post  Hoping23 on Thu Mar 10, 2011 11:32 pm

P.S can someone help me get on the secret facebook?? i can pm my name etc.

Thanks x

Hoping23

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Re: Support Group in Manchester or North West

Post  Mouse on Fri Mar 11, 2011 2:31 am

Now listen very carefully.... you just email sebby who is the admin and in charge of all things secretive. Ask her what her hobby is. If that fails email Naomi.

See you on the other side.

Vicki

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Re: Support Group in Manchester or North West

Post  naomi on Fri Mar 11, 2011 1:07 pm

heheeee mouse u do crack me up....'see you on the other side' so cryptic Smile put a smile on my otherwise pissy looking face today Smile
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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:26 pm


haha! Vicki! you cant tell everyone my hobby! Embarassed

I have sent a friend request to hoping so we will see her soon *opens portal* (cue twilight zone music) Shocked




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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:37 pm


Oh and I wanted to add that no-one is a fraud on this site (well apart from the person trying to sell us handbags!)

This forum is for anyone with 'vulval pain' as this is what Vulvodynia means...from itching, to soreness to burning with or without provocation..mild or severe.. in other words if ya vulvar dont feel right then this is the site for you!


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Re: Support Group in Manchester or North West

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