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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Support Group in Manchester or North West

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Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 4:32 pm

Hi Ladies

Im new to here but have been suffering from Vulvodynia for a year now with my symptoms being bad since last August.

Ive been looking for support groups in the North West and cant find any active ones.

I for one have never met anyone with this condition and I know it would massively help me to meet other women and see how they deal with it.

Im just really trying to find out if there is anyone in the North West who would be interested me.

There may already be one set up I am unaware of I would love to join.

Thanks

Michele

xx

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hi

Post  helen4444 on Sun Feb 20, 2011 5:48 pm

Hi,
Just seen your post.I kept trying to find out when the group in Manchester/north East was meeting.Can't even remember who or what it was called got fed up seeing 'coming soon' for this group.Found this support group and secret facebook group which have been life savers!! Sebby ( admin on this site can get you on facebook group not sure if i can i am crap on computers etc) I live in Leeds How about you? Take care xxx

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Re: Support Group in Manchester or North West

Post  mblack on Sun Feb 20, 2011 6:21 pm

Hi Helen

Thanks for your reply.

I live in Manchester but am from Leeds originally. Do you see specialists in Leeds. Im looking to find someone in Leeds?

Ive just joined here and its seems like a life saver, I wish I had found it sooner!

Ive sent a request for the fb site so just waiting to hear back

Michele
xxx

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Re: Support Group in Manchester or North West

Post  CamperUK on Mon Feb 21, 2011 9:28 am

Hi Michelle
Welcome to the forum! I am very new here but I've already discovered lots of tips and advice, wish I had found it sooner, too. Take care x

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Hi

Post  helen4444 on Mon Feb 21, 2011 12:40 pm

Hi Michele, A bit complicated re: my gyno moving and the rest.Here is my e mail address so you can get in touch with me for more info helen.mcinnes@googlemail.com
Helen xxx

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Hello from near Mcr!

Post  Hoping23 on Thu Mar 10, 2011 11:30 pm

Hello,

Just to let you know i'm in East Manchester (near Saddleworth) if you're ever interested in having a meet up!

I admittedly feel like a bit of a fraud on this forum as my vulvodynia is nowhere near as bad as some on here, although it still seems bad to me, i do feel like a lucky one, even though this condition just came out of the blue and i was a perfectly normal sexually active 17 - 21/22 year old before it and sometimes i have felt like my life might as well be over because of it, i would give anything for a cure (not my husband or cats but almost anything else!! Definitely all the chocolate and sweets in the world!).

Get in touch if you want, either on here or email me, my address is hannah21n@hotmail.com.

Hannah x

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secret FB

Post  Hoping23 on Thu Mar 10, 2011 11:32 pm

P.S can someone help me get on the secret facebook?? i can pm my name etc.

Thanks x

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Re: Support Group in Manchester or North West

Post  Mouse on Fri Mar 11, 2011 2:31 am

Now listen very carefully.... you just email sebby who is the admin and in charge of all things secretive. Ask her what her hobby is. If that fails email Naomi.

See you on the other side.

Vicki

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Re: Support Group in Manchester or North West

Post  naomi on Fri Mar 11, 2011 1:07 pm

heheeee mouse u do crack me up....'see you on the other side' so cryptic Smile put a smile on my otherwise pissy looking face today Smile
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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:26 pm


haha! Vicki! you cant tell everyone my hobby! Embarassed

I have sent a friend request to hoping so we will see her soon *opens portal* (cue twilight zone music) Shocked




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Re: Support Group in Manchester or North West

Post  Sebby (Admin) on Sat Mar 12, 2011 5:37 pm


Oh and I wanted to add that no-one is a fraud on this site (well apart from the person trying to sell us handbags!)

This forum is for anyone with 'vulval pain' as this is what Vulvodynia means...from itching, to soreness to burning with or without provocation..mild or severe.. in other words if ya vulvar dont feel right then this is the site for you!


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Re: Support Group in Manchester or North West

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