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    » Had this for 5 years, looking for people who understand
    Sun Nov 18, 2018 11:22 pm by srbry

    Sun Nov 18, 2018 8:42 pm by srbry

    » Found relief after more than 15 years of pain!
    Thu Oct 25, 2018 4:29 pm by AlwaysInPain

    » Back pain, burning feet and vulvodynia....all related?
    Sat Oct 20, 2018 3:50 am by lindsey_taylor

    » Anyone have pain with urination?
    Thu Oct 18, 2018 9:55 am by Gaby

    » New member - just looking for feedback
    Mon Oct 15, 2018 5:40 pm by mertzwl

    » Will I ever be able to wear jeans?
    Sun Oct 14, 2018 4:14 pm by Npage14

    » Amitriptyline Success and new-found love
    Thu Oct 11, 2018 8:29 pm by megaanx

    » Diagnosed recently, looking for advice
    Wed Oct 10, 2018 2:30 pm by wuhujen

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3

    Anyone have pain with urination?

    Tue Oct 16, 2018 2:35 pm by mertzwl

    Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

    I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

    Comments: 6

    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 4

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 4

    6 year sufferer but I’ve found some hope

    Wed Oct 10, 2018 1:33 am by Npage14

    Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

    Comments: 0

    Hurting, Burning, Itching, and Worn Out

    Thu Aug 09, 2018 10:55 pm by donnambr

    This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

    Comments: 5

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 1

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 3

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 6

    Did going off antidepressants cause this?

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    Did going off antidepressants cause this?

    Post  ryn207 on Tue Jul 31, 2018 1:35 am


    For awhile I thought this was started after a yeast infection; however, I'm wondering if it was also a combination of a medication change. I couple months before this started I slowing began weaning myself off of my antidepressant. It was something that psychiatrist and I decided to try. It took a couple months to come completely off of it, but I was doing fine after so I stayed off of it. It wasn't until recently that one of the doctor's I am seeing brought it up. She believes it was some kind of a "perfect storm" of going off of my antidepressant, getting a yeast infection, and then the fact that I already had problems with my pelvic floor muscles being too tight.

    Quite the trifecta, right? Rolling Eyes

    My doctor has now suggested going on some sort of anti-anxiety/ antidepressant medication. Might just be helpful in general as it's hard not to feel hopeless after dealing with this for two years. She also wonders if it would help with my high tone pelvic tone dysfunction (currently in PT for that)

    Anyone else go off their antidepressant before this started?


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    Post  Nancylee on Wed Aug 08, 2018 7:30 pm

    I am a Sex Therapist in the Boston, specializing in vulvodynia. It probably depends on your med.
    I doubt an SSRI would have that effect, but Cymbalta is sometimes used for pain, so that could have an effect.


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    Re: Did going off antidepressants cause this?

    Post  ryn207 on Wed Aug 15, 2018 2:08 am

    I had been on Pristiq. Could that have been it?

    Also, now I'm intrigued you mentioned you're a Sex Therapist. Have you had patients with vulvodynia/pelvic floor pain come to you and have success? I considered going to a Sex Therapist before all of this started 2 years ago for another issue. I've been wondering more about it recently.



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    Re: Did going off antidepressants cause this?

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