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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Help please!

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Help please!

Post  NicolaMc on Wed Aug 01, 2018 3:36 pm

I was diagnosed 5 years ago after several months of being prescribed treatments for thrush by different doctors.

The pain I experience is both provoked and unprovoked. It feels like burning or like a sharp needles stabbing into me. These pains happen regularly and sometimes simultaneously. I feel it in all parts of my vulva. It tends to be worse as the day goes on and around my menstrual cycle (getting worse the week before my period). Sex and arousal provokes it, orgasms are particularly painful.

I tried drugs- amitriptyline, pregabalin and gabapentin over the course of the two years following my diagnosis. None of them had any significant impact and the side effects were hard to cope with so I stopped taking any.

I have seen a physiotherapist, osteopath, chiropractor and two acupuncturists. I've tried various topical creams, use lidocaine, Epsom salt baths, Botox injections, adapted my lifestyle where possible (sit properly, avoid walking in the heat, wear cotton underpants, avoiding tampons), doing exercises every day, keeping a pain diary, using dilators, perennial massage, a variety of vitamin supplements, the low oxalate diet.

Here's what has a positive impact.
Lidocaine (relieves burning pain)
Distraction (TV)
Baths and showers (while in them)
Resting after exercise
Sleeping well

Other than that, it can vary in intensity but it's basically always there. If you are in a similar situation to this then I don't need to describe the impact that it has on your emotions, life, sex and relationships. I have a doctors appointment this week and I don't know what to ask for next. If your experience is similar to mine then please share any suggestions for what I can do.



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Re: Help please!

Post  emalita on Thu Aug 02, 2018 3:58 am

I'm so sorry to hear that you're in such pain.

I know you mentioned that you've followed a low oxalate diet, but have you done a true full blown elimination diet? I was convinced for years that my worst pain was at my vulva or vagina, but I now realize it was severe bladder irritation due to foods (oranges, orange juice, stimulants, etc.) and supplements (B6, D-Mannose, etc.).

The reason I ask is because you mention a sharp needle-like pain, and that is just like what my pain was. The bladder is literally right on top of the vagina, and the urethra is crammed right at the opening. The needle-like pain felt like it was all over my vestibule and deep in my vagina. Plus, my pain flared horribly before and during my periods.

This may not be your issue, but please consider it. I don't believe I have interstitial cystitis (but that's just another generic diagnosis saying "we don't know why you hurt"), but the IC community talks about a poking pain all the time. So clearly the bladder and urethra put out that type of pain signal.

I hope you find relief soon!


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Re: Help please!

Post  NicolaMc on Thu Aug 02, 2018 9:34 am

Thanks for your reply! That's a really helpful suggestion. Bladder problems are an area I've never looked into- like you, I've always thought it was all to do with my vuvla or even my pelvic bones and muscles. It's definitely another thing I can explore.
Thanks and take care.x


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Re: Help please!

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