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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Help please!

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Help please!

Post  NicolaMc on Wed Aug 01, 2018 3:36 pm

I was diagnosed 5 years ago after several months of being prescribed treatments for thrush by different doctors.

The pain I experience is both provoked and unprovoked. It feels like burning or like a sharp needles stabbing into me. These pains happen regularly and sometimes simultaneously. I feel it in all parts of my vulva. It tends to be worse as the day goes on and around my menstrual cycle (getting worse the week before my period). Sex and arousal provokes it, orgasms are particularly painful.

I tried drugs- amitriptyline, pregabalin and gabapentin over the course of the two years following my diagnosis. None of them had any significant impact and the side effects were hard to cope with so I stopped taking any.

I have seen a physiotherapist, osteopath, chiropractor and two acupuncturists. I've tried various topical creams, use lidocaine, Epsom salt baths, Botox injections, adapted my lifestyle where possible (sit properly, avoid walking in the heat, wear cotton underpants, avoiding tampons), doing exercises every day, keeping a pain diary, using dilators, perennial massage, a variety of vitamin supplements, the low oxalate diet.

Here's what has a positive impact.
Lidocaine (relieves burning pain)
Distraction (TV)
Baths and showers (while in them)
Resting after exercise
Sleeping well

Other than that, it can vary in intensity but it's basically always there. If you are in a similar situation to this then I don't need to describe the impact that it has on your emotions, life, sex and relationships. I have a doctors appointment this week and I don't know what to ask for next. If your experience is similar to mine then please share any suggestions for what I can do.



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Re: Help please!

Post  emalita on Thu Aug 02, 2018 3:58 am

I'm so sorry to hear that you're in such pain.

I know you mentioned that you've followed a low oxalate diet, but have you done a true full blown elimination diet? I was convinced for years that my worst pain was at my vulva or vagina, but I now realize it was severe bladder irritation due to foods (oranges, orange juice, stimulants, etc.) and supplements (B6, D-Mannose, etc.).

The reason I ask is because you mention a sharp needle-like pain, and that is just like what my pain was. The bladder is literally right on top of the vagina, and the urethra is crammed right at the opening. The needle-like pain felt like it was all over my vestibule and deep in my vagina. Plus, my pain flared horribly before and during my periods.

This may not be your issue, but please consider it. I don't believe I have interstitial cystitis (but that's just another generic diagnosis saying "we don't know why you hurt"), but the IC community talks about a poking pain all the time. So clearly the bladder and urethra put out that type of pain signal.

I hope you find relief soon!


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Re: Help please!

Post  NicolaMc on Thu Aug 02, 2018 9:34 am

Thanks for your reply! That's a really helpful suggestion. Bladder problems are an area I've never looked into- like you, I've always thought it was all to do with my vuvla or even my pelvic bones and muscles. It's definitely another thing I can explore.
Thanks and take care.x


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Re: Help please!

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