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» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

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Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

» Dose HAVING VULVODYNIA MEANS YOU HAVE LUPUS?? HELP IM FREAKING OUT!
Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Have you been treated for ureaplasma?

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Have you been treated for ureaplasma?

Post  flower74 on Fri Aug 24, 2018 3:10 pm

Hello Everyone,

I was hoping someone might have something to relate.

I'll keep this short. In December of 2017 I went to a GYN for a routine pap smear. There was nothing wrong with me and I had no complaints. 2 weeks later the office called and said I had BV and needed to take a course of anti-biotics. I rarely take medication and didn't think at the time that I had ever had a bad reaction to anything.

I started a 7 day course of oral Flagyl and immediately my vagina started burning, along with muscle stiffness and a feeling like my throat was closing. I googled the side-effects of Flagyl and vaginal burning/irritation was listed. I finished the course and a week later still had vaginal burning and irritation. I was retest and told I still had BV and put on another 5 day course of the gel Flagyl.

My vagina has continued to burn for 8 months. I have been tested repeatedly for BV, yeast, STDs, UTIs and everything comes back negative.

I finally called the GYNs office in June and they mentioned that my pap smear in December was positive for Ureaplasma and that might be cause all of my symptoms and they prescribed 1000 mg of Azithromycin. From what I have researched 70-80% of sexually active women will have ureaplasma on their pap smear.

I'm miserable but at the same time very hesitant to take another anti-biotic when I feel pretty convinced that is what has caused all of this chronic burning and irritation. I feel like I have a chemical burn that won't heal and gets irritated constantly. I have no symptoms of a ureaplasma infection. My gut tells me this isn't an infection but an allergic reaction of some kind.

Does anyone have any thoughts? I don't know what to do. I don't want to make this problem worse.

Thank you.

flower74

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Re: Have you been treated for ureaplasma?

Post  flower74 on Sun Aug 26, 2018 7:26 pm

I've been reading through old posts and it seems several people have been treated for ureaplasma and it didn't make a difference or made their symptoms worse. That was the info I needed. I think that tells me what I wanted to know.

flower74

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Re: Have you been treated for ureaplasma?

Post  emalita on Tue Aug 28, 2018 1:38 pm

Hi,

I'm on a vulvodynia Facebook group where this question has come up quite a bit, and the response is pretty much the same...it doesn't fix their pain (not the cause). From what I've researched, ureaplasma can be found in normal healthy flora...same with gardnerella, which is why a culture should never diagnose BV either.

emalita

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Re: Have you been treated for ureaplasma?

Post  ChrisB on Tue Aug 28, 2018 2:13 pm

I was treated for it and felt the same after as I did before. i was told by a few doctors that it is not considered a pathogen. I still opted for treatment and now that i have been testing negative for over a year, I do not feel any different. I did also have hip surgery so I have a lot of trauma to that area. A pelvic PT told me that i have severe pelvic floor dysfunction and that can be causing the weird feelings I get. I also did some research on my own and saw that a pinched nerve can cause the issue. It is called the pudendal nerve and if its entraped or pinched, it can cause issues. I am having some back problems so I am going to see a neurologist and include that in my visit.

ChrisB

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Re: Have you been treated for ureaplasma?

Post  flower74 on Wed Aug 29, 2018 11:15 am

Thank you both for your responses. I've been struggling for 2 months with whether or not to take more anti biotics and this has helped me to decide not to until I can get in to see a specialist.

flower74

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Re: Have you been treated for ureaplasma?

Post  ChrisB on Wed Aug 29, 2018 2:01 pm

I believe antibiotics can do more harm than good unless really necessary. I read all this info that ureaplasma is really hard to get rid of and people go on many rounds of antibiotics. Even my bf told me that this could be a long time treatment. I took one round of antibiotics, forgot which and for how long but nothing crazy. I was retested in a few weeks and it was gone and never came back. I once saw a gyno specialist who told me that if I ever use any kind of gels down there, it will make the situation worse and make the irritation feeling flare up more. I dont think anything external is causing my irritation because I eliminated anything that could cause it to flare. When this first started, I was convinced it was an allergic reaction because of how it felt but now im leaning towards severe pelvic floor dysfunction and a nerve issue in the area. Ill see what the neurologist says in a few weeks.
please keep me posted and I hope things get better for you.

ChrisB

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Re: Have you been treated for ureaplasma?

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