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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Post  rockylife on Mon Sep 03, 2018 6:25 am

I have read on Google that “ Vulvar vestibulitis syndrome and vulvodynia occur more frequently in women with two autoimmune conditions, Sjogren's Syndrome and lupus erythematosus. Fibromyalgia, which many researchers also believe is an autoimmune disease, may also be associated with vulvodynia and VVS.”

What dose that mean? Does having vulvodynia means you have lupus??
Omg I dont know How to calm myself. Please someone explain it to me.


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Post  aspaceodyssey on Tue Sep 04, 2018 8:33 pm

Autoimmunity is a fairly common underlying factor in these conditions and can be a cause but it's not ALWAYS a cause, so no need to panic. FWIW, I have autoimmunity and it is an underlying cause for me but I do not have lupus, I have other conditions (vitiligo, lichen sclerosus) and now that I understand what I'm working with and have cleaned up my lifestyle considerably, all is pretty under control and manageable. I do have a subconscious fear of more and more conditions emerging as life goes on so I understand your panic in that sense, it does suck to have to carry that worry, but I like to think it's irrational and if anything, use it as motivation to take good care of my body to do my best to ensure that that doesn't happen!


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No, having vulvodynia does not mean you have lupus

Post  Lemonary on Wed Oct 10, 2018 6:54 am


I've had vulvodynia for 6 years and chronic pain for 10. I don't have any autoimmune diseases and trust me, I've been tested for them all. If you're really concerned about having autoimmune diseases, ask your doctor to test for them by name. Vulvodynia is more likely to occur in people with these conditions, but that doesn't mean that everyone who has vulvodynia has them. I'd not worry about it until I talked to my doctor and got tested.

Good luck with your journey


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it can be true what you read

Post  pussycat on Wed Oct 10, 2018 2:01 pm

Hi rockylife,

it can be true, what you read. Autoimmune conditions are very tricky by nature, they can appear later in life and are not very easy treat them. I am not trying to scare you, but i am saying looking at my own life honestly! I had V. in a past and fortunately it went away, not without me trying.  I have have been absolutely fine for some good years since then and did not have any serious flare ups. But after that and now i have very strange, devastating and isolating symptoms, which can be described as autoimmune condition as my body, my brain attacks me. Often times i thought about V in a past and this disorder, that i have now are coming from same something. May be that's why i have this condition? Doctors do not know why i have it and what to do about it, just like in a past with V.. I can not work, can not go to shops without feeling very sick there and afterwards, can not be in most places, can not be around most people.

Again i say it not to scare you, but just being honest.


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