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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

6 year sufferer but I’ve found some hope

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6 year sufferer but I’ve found some hope

Post  Npage14 on Wed Oct 10, 2018 1:33 am

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly find relief, going through my first couple years of high school was a nightmare as you can imagine. I would sit in class and feel the worst burning sensation and want to scream. At first I had no idea how to appease it, but a couple years in I went to a physical therapist and encountered some advice from a dermatologist as well. The physical therapist would Do this thing that was almost like a pressure point massage in my vagina, the first time it hurt so bad I could hardly stand it, but the more she did it the less it hurt and I found some relief. The pain didn’t go away, but she helped me realize I was clenching all the muscles down there because I was in pain, and relaxing them did a great deal for me. Beforehand I used to get what felt like pinched nerves, and I no longer get those since. My dermatologist recommended not wearing underwear at night, which I had heard before but that time it stuck and I started taking that advice. I chose to start wearing night gowns and I think by doing that it was getting rid of irritation, also healing me somewhat. If my clothing options allow me, I choose not to wear underwear as much as I’m able to. I used to avoid thongs, but I realized now that it actually allows more airflow and less back and forth friction since it stays in one place. Now here’s what has helped me the most, somewhere along the way I realized that it seems to be in direct relation with my body temperature,especially in my feet. If I am able to keep myself cool I feel for the most part pain free. Discovering this was key to coping. Minor wardrobe change and sleeping with airflow at night can really make a difference, ladies. Since discovering this, I have been able to go days forgetting there’s even something wrong with me and for some of you that might be huge. Of course there are some situations where it is inevitable like on hot days or if your without air, and that is still a struggle for me. It’s in those times I feel the most trapped. But if you find yourself in that situation I’ve noticed it helps to wear loose fitting shorts and no underwear with sandals. Another thing that has helped me is a product called dermoplast which my aunt first found out about when a doctor gave it to her after having a baby. It is a cooling and moisturizing spray which helps with the heat issue. I used to use lidocaine before that but this is much better and no prescription is necessary, you can buy it online at Walmart. I hope some of these things are helpful for some of you! For the most part I am now living a functional life, but as I plan on getting married within a couple years, and have still kept my virginity, I am worried that the feelings of being trapped with pain are going to come back again. If anyone has any tips or advice on what to expect for that I will gladly take them! I’m hoping to connect with some of you on here, I think the hardest part sometimes is that it’s so private for us that we have to suffer in silence. I’ve only chosen to share my pain with very few people in my life. I’m anxious to hear some of your stories!


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Join date : 2018-10-09

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