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Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Pain Free Fashion

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Pain Free Fashion

Post  noni on Mon Feb 21, 2011 10:33 pm

Hey ladies

Im trying to brainstorm pain free outfits...

Any suggestions?

Thank you.
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Re: Pain Free Fashion

Post  naomi on Mon Feb 21, 2011 10:39 pm

i live in leggings! godsend!
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Re: Pain Free Fashion

Post  noni on Mon Feb 21, 2011 10:42 pm

Thx Naomi

Yes Sebby has mentioned leggings also...they are very comfy!

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Re: Pain Free Fashion

Post  CamperUK on Mon Feb 21, 2011 10:43 pm

Crotchless tights?

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Re: Pain Free Fashion

Post  Chinchilla on Wed Feb 23, 2011 1:23 am

Skirts & sundresses in nice weather, cuz you have to skip the hose/tights. Sometimes in cold weather I'll wear tights with a skirt until I get to someone's house and then I'll go to the bathroom and take them off and stuff them in my bag. Then put them on before I go outside again.
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Re: Pain Free Fashion

Post  Joolibee on Sat Mar 19, 2011 12:45 am

Skirts are obviously the most pain free option, though not always the most practical. For cold weather, I find Charnos modal tights to be the only ones I can stand to wear for any length of time. Also, Charnos do quite thick hold-ups in various colours. I have not previously been able to tolerate hold-ups, but find these quite comfy and the only thing that makes me feel remotely sexy or elegant. You can buy them on-line. Just Google 'Charnos'. For trousers, I find good old M & S to be the best place to shop. They do pull-on trousers in light, stretchy fabric (not the warmest, but you can wear leggings underneath). Mostly, they are not the most stylish and tend to sag at the knees after a while, but I find them comfy except on really bad days. I did find a rather more elegant pair in the per-una section. Obviously, it's best to get them a little on the large side. Recently, I bought a pair of what I can only describe as 'old women's' jeans. They are stretchy with an elasticated waist and far too big. Alone they look terrible, but with a long baggy shirt they actually look OK. The good thing is that the crotch is so low it doesn't touch me. Smile

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Re: Pain Free Fashion

Post  Sebby (Admin) on Sat Mar 19, 2011 9:01 pm


Instead of tights in warmer weather you can wear hold up stockings under a skirt. Get a good pair of stockings tho from a good shop no cheap ones as they fall down

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Re: Pain Free Fashion

Post  noni on Tue Mar 29, 2011 8:36 pm

Thanks ladies for the tips!

Much love,
noni Smile
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Re: Pain Free Fashion

Post  Aussie on Wed Mar 30, 2011 1:37 am

maxi dresses - no underwear is a plus Smile

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Re: Pain Free Fashion

Post  noni on Sat Apr 02, 2011 1:38 am

Hey aussie!

I took a look at the maxi dresses.....very cute!
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Re: Pain Free Fashion

Post  Aussie on Mon Apr 04, 2011 3:55 am

haha, yeah I wore one on christmas day I still felt somewhat attractive in it and I was as comfortable as possible. I think I may buy more.

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Re: Pain Free Fashion

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