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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Pain Free Fashion

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Pain Free Fashion

Post  noni on Mon Feb 21, 2011 10:33 pm

Hey ladies

Im trying to brainstorm pain free outfits...

Any suggestions?

Thank you.
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Re: Pain Free Fashion

Post  naomi on Mon Feb 21, 2011 10:39 pm

i live in leggings! godsend!
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Re: Pain Free Fashion

Post  noni on Mon Feb 21, 2011 10:42 pm

Thx Naomi

Yes Sebby has mentioned leggings also...they are very comfy!

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Re: Pain Free Fashion

Post  CamperUK on Mon Feb 21, 2011 10:43 pm

Crotchless tights?

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Re: Pain Free Fashion

Post  Chinchilla on Wed Feb 23, 2011 1:23 am

Skirts & sundresses in nice weather, cuz you have to skip the hose/tights. Sometimes in cold weather I'll wear tights with a skirt until I get to someone's house and then I'll go to the bathroom and take them off and stuff them in my bag. Then put them on before I go outside again.
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Re: Pain Free Fashion

Post  Joolibee on Sat Mar 19, 2011 12:45 am

Skirts are obviously the most pain free option, though not always the most practical. For cold weather, I find Charnos modal tights to be the only ones I can stand to wear for any length of time. Also, Charnos do quite thick hold-ups in various colours. I have not previously been able to tolerate hold-ups, but find these quite comfy and the only thing that makes me feel remotely sexy or elegant. You can buy them on-line. Just Google 'Charnos'. For trousers, I find good old M & S to be the best place to shop. They do pull-on trousers in light, stretchy fabric (not the warmest, but you can wear leggings underneath). Mostly, they are not the most stylish and tend to sag at the knees after a while, but I find them comfy except on really bad days. I did find a rather more elegant pair in the per-una section. Obviously, it's best to get them a little on the large side. Recently, I bought a pair of what I can only describe as 'old women's' jeans. They are stretchy with an elasticated waist and far too big. Alone they look terrible, but with a long baggy shirt they actually look OK. The good thing is that the crotch is so low it doesn't touch me. Smile

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Re: Pain Free Fashion

Post  Sebby (Admin) on Sat Mar 19, 2011 9:01 pm


Instead of tights in warmer weather you can wear hold up stockings under a skirt. Get a good pair of stockings tho from a good shop no cheap ones as they fall down

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Re: Pain Free Fashion

Post  noni on Tue Mar 29, 2011 8:36 pm

Thanks ladies for the tips!

Much love,
noni Smile
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Re: Pain Free Fashion

Post  Aussie on Wed Mar 30, 2011 1:37 am

maxi dresses - no underwear is a plus Smile

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Re: Pain Free Fashion

Post  noni on Sat Apr 02, 2011 1:38 am

Hey aussie!

I took a look at the maxi dresses.....very cute!
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Re: Pain Free Fashion

Post  Aussie on Mon Apr 04, 2011 3:55 am

haha, yeah I wore one on christmas day I still felt somewhat attractive in it and I was as comfortable as possible. I think I may buy more.

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Re: Pain Free Fashion

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