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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Pain Free Fashion

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Pain Free Fashion

Post  noni on Mon Feb 21, 2011 10:33 pm

Hey ladies

Im trying to brainstorm pain free outfits...

Any suggestions?

Thank you.
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Re: Pain Free Fashion

Post  naomi on Mon Feb 21, 2011 10:39 pm

i live in leggings! godsend!
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Re: Pain Free Fashion

Post  noni on Mon Feb 21, 2011 10:42 pm

Thx Naomi

Yes Sebby has mentioned leggings also...they are very comfy!

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Re: Pain Free Fashion

Post  CamperUK on Mon Feb 21, 2011 10:43 pm

Crotchless tights?

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Re: Pain Free Fashion

Post  Chinchilla on Wed Feb 23, 2011 1:23 am

Skirts & sundresses in nice weather, cuz you have to skip the hose/tights. Sometimes in cold weather I'll wear tights with a skirt until I get to someone's house and then I'll go to the bathroom and take them off and stuff them in my bag. Then put them on before I go outside again.
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Re: Pain Free Fashion

Post  Joolibee on Sat Mar 19, 2011 12:45 am

Skirts are obviously the most pain free option, though not always the most practical. For cold weather, I find Charnos modal tights to be the only ones I can stand to wear for any length of time. Also, Charnos do quite thick hold-ups in various colours. I have not previously been able to tolerate hold-ups, but find these quite comfy and the only thing that makes me feel remotely sexy or elegant. You can buy them on-line. Just Google 'Charnos'. For trousers, I find good old M & S to be the best place to shop. They do pull-on trousers in light, stretchy fabric (not the warmest, but you can wear leggings underneath). Mostly, they are not the most stylish and tend to sag at the knees after a while, but I find them comfy except on really bad days. I did find a rather more elegant pair in the per-una section. Obviously, it's best to get them a little on the large side. Recently, I bought a pair of what I can only describe as 'old women's' jeans. They are stretchy with an elasticated waist and far too big. Alone they look terrible, but with a long baggy shirt they actually look OK. The good thing is that the crotch is so low it doesn't touch me. Smile

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Re: Pain Free Fashion

Post  Sebby (Admin) on Sat Mar 19, 2011 9:01 pm


Instead of tights in warmer weather you can wear hold up stockings under a skirt. Get a good pair of stockings tho from a good shop no cheap ones as they fall down

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Re: Pain Free Fashion

Post  noni on Tue Mar 29, 2011 8:36 pm

Thanks ladies for the tips!

Much love,
noni Smile
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Re: Pain Free Fashion

Post  Aussie on Wed Mar 30, 2011 1:37 am

maxi dresses - no underwear is a plus Smile

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Re: Pain Free Fashion

Post  noni on Sat Apr 02, 2011 1:38 am

Hey aussie!

I took a look at the maxi dresses.....very cute!
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Re: Pain Free Fashion

Post  Aussie on Mon Apr 04, 2011 3:55 am

haha, yeah I wore one on christmas day I still felt somewhat attractive in it and I was as comfortable as possible. I think I may buy more.

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Re: Pain Free Fashion

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