Vulvodynia Support
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» Hope to all my suffering ladies
Pain Free Fashion EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pain Free Fashion EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pain Free Fashion EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pain Free Fashion EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pain Free Fashion EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pain Free Fashion EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pain Free Fashion EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pain Free Fashion EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pain Free Fashion EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pain Free Fashion

+3
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Pain Free Fashion Empty Pain Free Fashion

Post  noni Mon Feb 21, 2011 10:33 pm

Hey ladies

Im trying to brainstorm pain free outfits...

Any suggestions?

Thank you.
noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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Pain Free Fashion Empty Re: Pain Free Fashion

Post  naomi Mon Feb 21, 2011 10:39 pm

i live in leggings! godsend!
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Pain Free Fashion Empty Re: Pain Free Fashion

Post  noni Mon Feb 21, 2011 10:42 pm

Thx Naomi

Yes Sebby has mentioned leggings also...they are very comfy!

noni
noni

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Pain Free Fashion Empty Re: Pain Free Fashion

Post  CamperUK Mon Feb 21, 2011 10:43 pm

Crotchless tights?

CamperUK

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Pain Free Fashion Empty Re: Pain Free Fashion

Post  Chinchilla Wed Feb 23, 2011 1:23 am

Skirts & sundresses in nice weather, cuz you have to skip the hose/tights. Sometimes in cold weather I'll wear tights with a skirt until I get to someone's house and then I'll go to the bathroom and take them off and stuff them in my bag. Then put them on before I go outside again.
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Pain Free Fashion Empty Re: Pain Free Fashion

Post  Joolibee Sat Mar 19, 2011 12:45 am

Skirts are obviously the most pain free option, though not always the most practical. For cold weather, I find Charnos modal tights to be the only ones I can stand to wear for any length of time. Also, Charnos do quite thick hold-ups in various colours. I have not previously been able to tolerate hold-ups, but find these quite comfy and the only thing that makes me feel remotely sexy or elegant. You can buy them on-line. Just Google 'Charnos'. For trousers, I find good old M & S to be the best place to shop. They do pull-on trousers in light, stretchy fabric (not the warmest, but you can wear leggings underneath). Mostly, they are not the most stylish and tend to sag at the knees after a while, but I find them comfy except on really bad days. I did find a rather more elegant pair in the per-una section. Obviously, it's best to get them a little on the large side. Recently, I bought a pair of what I can only describe as 'old women's' jeans. They are stretchy with an elasticated waist and far too big. Alone they look terrible, but with a long baggy shirt they actually look OK. The good thing is that the crotch is so low it doesn't touch me. Smile

Joolibee

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Pain Free Fashion Empty Re: Pain Free Fashion

Post  Sebby (Admin) Sat Mar 19, 2011 9:01 pm


Instead of tights in warmer weather you can wear hold up stockings under a skirt. Get a good pair of stockings tho from a good shop no cheap ones as they fall down
Sebby (Admin)
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https://vulvodyniasupport.forumotion.net

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Pain Free Fashion Empty Re: Pain Free Fashion

Post  noni Tue Mar 29, 2011 8:36 pm

Thanks ladies for the tips!

Much love,
noni Smile
noni
noni

Posts : 242
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Pain Free Fashion Empty Re: Pain Free Fashion

Post  Aussie Wed Mar 30, 2011 1:37 am

maxi dresses - no underwear is a plus Smile

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Pain Free Fashion Empty Re: Pain Free Fashion

Post  noni Sat Apr 02, 2011 1:38 am

Hey aussie!

I took a look at the maxi dresses.....very cute!
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Post  Aussie Mon Apr 04, 2011 3:55 am

haha, yeah I wore one on christmas day I still felt somewhat attractive in it and I was as comfortable as possible. I think I may buy more.

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