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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


New girl from US

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New girl from US

Post  shakerite11 on Tue Feb 22, 2011 1:19 am

Hi everybody!

I was just diagnosed with vulvar vestibulitis a few months ago and am super excited to have found a support group! I definitely need it! I'm 18, heading off to college next fall and it's been really hard for me to cope with the idea that I may never have a normal sex life :/ in fact, part of the reason I found out that I had VVS was that I was trying to work towards having intercourse for the first time with my boyfriend and realized how much the 'other stuff' hurt me and thought there was going to be no way for me to be able to actually have sex since those things hurt me so much. I'm one of the lucky ones and only experience pain when I attempt any sort of penetration (including tampons) but I've still been really depressed lately at the prospect of not really being able to enjoy sex ever in my life No anyone have any good advice on that?

Thanks so much for being here! You all seem like an amazing group! Smile

shakerite11

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Re: New girl from US

Post  Mouse on Tue Feb 22, 2011 3:31 am

Hi hon and welcome! It's completely shite to end up here but we're pretty nice Surprised) There are a few people your age.

How are you going for treatment? Do you have a PT? It really helps to get your pelvic floor assessed. I've just had mine today woooo!!! She gave me some acupuncture on my ass. That's going to leave a mark. I'm not sure how I'm going to sit down for the next few days.

If you email Sebby she can add you to our FB group if you like. It's completely private, none of it posts to your wall. It's nice to see peoples faces, we're all real =)

Try not to worry too much about this being your life. We're all hopeful and looking for answers. That's not to say we don't get frustrated and swear a bit as well. This is a safe place to do that. Having a therapist also helps a LOT!

Take care
Vicki

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Thanks Vicki :)

Post  shakerite11 on Tue Feb 22, 2011 4:15 am

@mouse I'm so excited to be in such a wonderful group of ladies. I will definitely see about joining the Facebook group Smile I only recently started thinking about seeing a PT. What will that visit likely entail? I'm a little intimidated haha

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Re: New girl from US

Post  CamperUK on Tue Feb 22, 2011 9:12 am

Welcome Shakerite11!
I'm new here myself but you will find very quickly that this is the best place on the net for advice and support. Take care!

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Re: New girl from US

Post  naomi on Tue Feb 22, 2011 1:45 pm

Hi Shakerite11!

Welcome to the forum that our Queen Sebby started Smile godsend that girl, I would have lost the plot (even more) if I hadnt have stumbled on this website!!

These girls are amazing so I hope you get the support u need! facebook group is ace too...we dont just talk about our Lady La-las all day Smile Smile

right, Ive got hair dye to wash off so catch up later on xxxx
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Re: New girl from US

Post  noni on Tue Feb 22, 2011 3:09 pm

Hey there

I second Naomis comment...Sebby is an angel !

This forum has saved us in our most darkest moments (for me, deff)

Anyways...this V stuff stinx! But we are all hopeful on here...lots of support and advice.


Take care
Noni
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Re: New girl from US

Post  Sebby (Admin) on Tue Feb 22, 2011 10:04 pm

Embarassed Thanks girls Im blushing! lol do I get a crown with chocolate orange segments in it! Wink

and welcome Shakerite11 I do hope you can feel supported with our lovely little community

Have a read around there are various treatments we are all trying and we are determined not to give up! we of course do have our down days but thats when we can turn to each other Very Happy

It does seem the treatments for VVS and Vulvodynia are similar from what I have read except that surgery is an option for those with VVS but usually a last resort

Physical therapy is deff worth a try especially to help with pelvic floor and vaginal tightness and spasms. Im soon to try bio-feedback home training via Vulvodynia.com (Dr Glazer's site)

Ive also started Pregabalin (anticonvulsant) for nerve pain (I have constant pain) dr said it may take a couple of months to really know if it is working

A number of us myself included are also trying anti-yeast/suger diets...from the candida theory by Dr Crandell I(I prob have not spelt her name right) Naomi our moderator is our guru on that one Wink

Im certainly taking a multi-disiplinary approach to it!

Beware of any drs telling you its in your head or because you are depressed or anxious. Yes stress can effect any chronic pain condition but research has shown this is NOT the cause of VVS or Vulvodynia.

Take care and my email seems to hate me at the moment so if you wish to join our secret facebook group inbox me on this site


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helllo

Post  shay on Wed Feb 23, 2011 9:16 pm

hi
Im shay and im 22 years old and in college so i know how it feels to be overwhelmed about being on your own and surrounded by young people all enjoying life and maybe sex sssssssssssssssh lol but do not let this madness stop you from enjoying the college experience

and you have come to the right place these lovely ladies our like god sent to me so you are blessed to be in the company of such wise and strong women

im also in the us so feel free to contact me

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Thanks ladies :)

Post  shakerite11 on Thu Feb 24, 2011 11:47 pm

Sebby, the ladies are right! you've created an amazing group Smile I feel really privileged to be a part of it!

@Naomi on a side note, I notice that your avatar is a boxer. Do you have a boxer? I absolutely love them and I have two at home. Their names are Lucilla an Max and they are my big babies haha I love you

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Re: New girl from US

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