Log in

I forgot my password

Latest topics
» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


New girl from US

Go down

New girl from US

Post  shakerite11 on Tue Feb 22, 2011 1:19 am

Hi everybody!

I was just diagnosed with vulvar vestibulitis a few months ago and am super excited to have found a support group! I definitely need it! I'm 18, heading off to college next fall and it's been really hard for me to cope with the idea that I may never have a normal sex life :/ in fact, part of the reason I found out that I had VVS was that I was trying to work towards having intercourse for the first time with my boyfriend and realized how much the 'other stuff' hurt me and thought there was going to be no way for me to be able to actually have sex since those things hurt me so much. I'm one of the lucky ones and only experience pain when I attempt any sort of penetration (including tampons) but I've still been really depressed lately at the prospect of not really being able to enjoy sex ever in my life No anyone have any good advice on that?

Thanks so much for being here! You all seem like an amazing group! Smile

shakerite11

Posts : 3
Join date : 2011-02-22
Age : 25

View user profile

Back to top Go down

Re: New girl from US

Post  Mouse on Tue Feb 22, 2011 3:31 am

Hi hon and welcome! It's completely shite to end up here but we're pretty nice Surprised) There are a few people your age.

How are you going for treatment? Do you have a PT? It really helps to get your pelvic floor assessed. I've just had mine today woooo!!! She gave me some acupuncture on my ass. That's going to leave a mark. I'm not sure how I'm going to sit down for the next few days.

If you email Sebby she can add you to our FB group if you like. It's completely private, none of it posts to your wall. It's nice to see peoples faces, we're all real =)

Try not to worry too much about this being your life. We're all hopeful and looking for answers. That's not to say we don't get frustrated and swear a bit as well. This is a safe place to do that. Having a therapist also helps a LOT!

Take care
Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Thanks Vicki :)

Post  shakerite11 on Tue Feb 22, 2011 4:15 am

@mouse I'm so excited to be in such a wonderful group of ladies. I will definitely see about joining the Facebook group Smile I only recently started thinking about seeing a PT. What will that visit likely entail? I'm a little intimidated haha

shakerite11

Posts : 3
Join date : 2011-02-22
Age : 25

View user profile

Back to top Go down

Re: New girl from US

Post  CamperUK on Tue Feb 22, 2011 9:12 am

Welcome Shakerite11!
I'm new here myself but you will find very quickly that this is the best place on the net for advice and support. Take care!

CamperUK

Posts : 15
Join date : 2011-02-15

View user profile

Back to top Go down

Re: New girl from US

Post  naomi on Tue Feb 22, 2011 1:45 pm

Hi Shakerite11!

Welcome to the forum that our Queen Sebby started Smile godsend that girl, I would have lost the plot (even more) if I hadnt have stumbled on this website!!

These girls are amazing so I hope you get the support u need! facebook group is ace too...we dont just talk about our Lady La-las all day Smile Smile

right, Ive got hair dye to wash off so catch up later on xxxx
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: New girl from US

Post  noni on Tue Feb 22, 2011 3:09 pm

Hey there

I second Naomis comment...Sebby is an angel !

This forum has saved us in our most darkest moments (for me, deff)

Anyways...this V stuff stinx! But we are all hopeful on here...lots of support and advice.


Take care
Noni
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: New girl from US

Post  Sebby (Admin) on Tue Feb 22, 2011 10:04 pm

Embarassed Thanks girls Im blushing! lol do I get a crown with chocolate orange segments in it! Wink

and welcome Shakerite11 I do hope you can feel supported with our lovely little community

Have a read around there are various treatments we are all trying and we are determined not to give up! we of course do have our down days but thats when we can turn to each other Very Happy

It does seem the treatments for VVS and Vulvodynia are similar from what I have read except that surgery is an option for those with VVS but usually a last resort

Physical therapy is deff worth a try especially to help with pelvic floor and vaginal tightness and spasms. Im soon to try bio-feedback home training via Vulvodynia.com (Dr Glazer's site)

Ive also started Pregabalin (anticonvulsant) for nerve pain (I have constant pain) dr said it may take a couple of months to really know if it is working

A number of us myself included are also trying anti-yeast/suger diets...from the candida theory by Dr Crandell I(I prob have not spelt her name right) Naomi our moderator is our guru on that one Wink

Im certainly taking a multi-disiplinary approach to it!

Beware of any drs telling you its in your head or because you are depressed or anxious. Yes stress can effect any chronic pain condition but research has shown this is NOT the cause of VVS or Vulvodynia.

Take care and my email seems to hate me at the moment so if you wish to join our secret facebook group inbox me on this site


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

helllo

Post  shay on Wed Feb 23, 2011 9:16 pm

hi
Im shay and im 22 years old and in college so i know how it feels to be overwhelmed about being on your own and surrounded by young people all enjoying life and maybe sex sssssssssssssssh lol but do not let this madness stop you from enjoying the college experience

and you have come to the right place these lovely ladies our like god sent to me so you are blessed to be in the company of such wise and strong women

im also in the us so feel free to contact me

shay

Posts : 7
Join date : 2010-12-30

View user profile

Back to top Go down

Thanks ladies :)

Post  shakerite11 on Thu Feb 24, 2011 11:47 pm

Sebby, the ladies are right! you've created an amazing group Smile I feel really privileged to be a part of it!

@Naomi on a side note, I notice that your avatar is a boxer. Do you have a boxer? I absolutely love them and I have two at home. Their names are Lucilla an Max and they are my big babies haha I love you

shakerite11

Posts : 3
Join date : 2011-02-22
Age : 25

View user profile

Back to top Go down

Re: New girl from US

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum