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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New girl from US

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New girl from US

Post  shakerite11 on Tue Feb 22, 2011 1:19 am

Hi everybody!

I was just diagnosed with vulvar vestibulitis a few months ago and am super excited to have found a support group! I definitely need it! I'm 18, heading off to college next fall and it's been really hard for me to cope with the idea that I may never have a normal sex life :/ in fact, part of the reason I found out that I had VVS was that I was trying to work towards having intercourse for the first time with my boyfriend and realized how much the 'other stuff' hurt me and thought there was going to be no way for me to be able to actually have sex since those things hurt me so much. I'm one of the lucky ones and only experience pain when I attempt any sort of penetration (including tampons) but I've still been really depressed lately at the prospect of not really being able to enjoy sex ever in my life No anyone have any good advice on that?

Thanks so much for being here! You all seem like an amazing group! Smile

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Re: New girl from US

Post  Mouse on Tue Feb 22, 2011 3:31 am

Hi hon and welcome! It's completely shite to end up here but we're pretty nice Surprised) There are a few people your age.

How are you going for treatment? Do you have a PT? It really helps to get your pelvic floor assessed. I've just had mine today woooo!!! She gave me some acupuncture on my ass. That's going to leave a mark. I'm not sure how I'm going to sit down for the next few days.

If you email Sebby she can add you to our FB group if you like. It's completely private, none of it posts to your wall. It's nice to see peoples faces, we're all real =)

Try not to worry too much about this being your life. We're all hopeful and looking for answers. That's not to say we don't get frustrated and swear a bit as well. This is a safe place to do that. Having a therapist also helps a LOT!

Take care
Vicki

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Thanks Vicki :)

Post  shakerite11 on Tue Feb 22, 2011 4:15 am

@mouse I'm so excited to be in such a wonderful group of ladies. I will definitely see about joining the Facebook group Smile I only recently started thinking about seeing a PT. What will that visit likely entail? I'm a little intimidated haha

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Re: New girl from US

Post  CamperUK on Tue Feb 22, 2011 9:12 am

Welcome Shakerite11!
I'm new here myself but you will find very quickly that this is the best place on the net for advice and support. Take care!

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Re: New girl from US

Post  naomi on Tue Feb 22, 2011 1:45 pm

Hi Shakerite11!

Welcome to the forum that our Queen Sebby started Smile godsend that girl, I would have lost the plot (even more) if I hadnt have stumbled on this website!!

These girls are amazing so I hope you get the support u need! facebook group is ace too...we dont just talk about our Lady La-las all day Smile Smile

right, Ive got hair dye to wash off so catch up later on xxxx
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Re: New girl from US

Post  noni on Tue Feb 22, 2011 3:09 pm

Hey there

I second Naomis comment...Sebby is an angel !

This forum has saved us in our most darkest moments (for me, deff)

Anyways...this V stuff stinx! But we are all hopeful on here...lots of support and advice.


Take care
Noni
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Re: New girl from US

Post  Sebby (Admin) on Tue Feb 22, 2011 10:04 pm

Embarassed Thanks girls Im blushing! lol do I get a crown with chocolate orange segments in it! Wink

and welcome Shakerite11 I do hope you can feel supported with our lovely little community

Have a read around there are various treatments we are all trying and we are determined not to give up! we of course do have our down days but thats when we can turn to each other Very Happy

It does seem the treatments for VVS and Vulvodynia are similar from what I have read except that surgery is an option for those with VVS but usually a last resort

Physical therapy is deff worth a try especially to help with pelvic floor and vaginal tightness and spasms. Im soon to try bio-feedback home training via Vulvodynia.com (Dr Glazer's site)

Ive also started Pregabalin (anticonvulsant) for nerve pain (I have constant pain) dr said it may take a couple of months to really know if it is working

A number of us myself included are also trying anti-yeast/suger diets...from the candida theory by Dr Crandell I(I prob have not spelt her name right) Naomi our moderator is our guru on that one Wink

Im certainly taking a multi-disiplinary approach to it!

Beware of any drs telling you its in your head or because you are depressed or anxious. Yes stress can effect any chronic pain condition but research has shown this is NOT the cause of VVS or Vulvodynia.

Take care and my email seems to hate me at the moment so if you wish to join our secret facebook group inbox me on this site


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helllo

Post  shay on Wed Feb 23, 2011 9:16 pm

hi
Im shay and im 22 years old and in college so i know how it feels to be overwhelmed about being on your own and surrounded by young people all enjoying life and maybe sex sssssssssssssssh lol but do not let this madness stop you from enjoying the college experience

and you have come to the right place these lovely ladies our like god sent to me so you are blessed to be in the company of such wise and strong women

im also in the us so feel free to contact me

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Thanks ladies :)

Post  shakerite11 on Thu Feb 24, 2011 11:47 pm

Sebby, the ladies are right! you've created an amazing group Smile I feel really privileged to be a part of it!

@Naomi on a side note, I notice that your avatar is a boxer. Do you have a boxer? I absolutely love them and I have two at home. Their names are Lucilla an Max and they are my big babies haha I love you

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Re: New girl from US

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