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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


New girl from US

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New girl from US

Post  shakerite11 on Tue Feb 22, 2011 1:19 am

Hi everybody!

I was just diagnosed with vulvar vestibulitis a few months ago and am super excited to have found a support group! I definitely need it! I'm 18, heading off to college next fall and it's been really hard for me to cope with the idea that I may never have a normal sex life :/ in fact, part of the reason I found out that I had VVS was that I was trying to work towards having intercourse for the first time with my boyfriend and realized how much the 'other stuff' hurt me and thought there was going to be no way for me to be able to actually have sex since those things hurt me so much. I'm one of the lucky ones and only experience pain when I attempt any sort of penetration (including tampons) but I've still been really depressed lately at the prospect of not really being able to enjoy sex ever in my life No anyone have any good advice on that?

Thanks so much for being here! You all seem like an amazing group! Smile

shakerite11

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Re: New girl from US

Post  Mouse on Tue Feb 22, 2011 3:31 am

Hi hon and welcome! It's completely shite to end up here but we're pretty nice Surprised) There are a few people your age.

How are you going for treatment? Do you have a PT? It really helps to get your pelvic floor assessed. I've just had mine today woooo!!! She gave me some acupuncture on my ass. That's going to leave a mark. I'm not sure how I'm going to sit down for the next few days.

If you email Sebby she can add you to our FB group if you like. It's completely private, none of it posts to your wall. It's nice to see peoples faces, we're all real =)

Try not to worry too much about this being your life. We're all hopeful and looking for answers. That's not to say we don't get frustrated and swear a bit as well. This is a safe place to do that. Having a therapist also helps a LOT!

Take care
Vicki

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Thanks Vicki :)

Post  shakerite11 on Tue Feb 22, 2011 4:15 am

@mouse I'm so excited to be in such a wonderful group of ladies. I will definitely see about joining the Facebook group Smile I only recently started thinking about seeing a PT. What will that visit likely entail? I'm a little intimidated haha

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Re: New girl from US

Post  CamperUK on Tue Feb 22, 2011 9:12 am

Welcome Shakerite11!
I'm new here myself but you will find very quickly that this is the best place on the net for advice and support. Take care!

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Re: New girl from US

Post  naomi on Tue Feb 22, 2011 1:45 pm

Hi Shakerite11!

Welcome to the forum that our Queen Sebby started Smile godsend that girl, I would have lost the plot (even more) if I hadnt have stumbled on this website!!

These girls are amazing so I hope you get the support u need! facebook group is ace too...we dont just talk about our Lady La-las all day Smile Smile

right, Ive got hair dye to wash off so catch up later on xxxx
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Re: New girl from US

Post  noni on Tue Feb 22, 2011 3:09 pm

Hey there

I second Naomis comment...Sebby is an angel !

This forum has saved us in our most darkest moments (for me, deff)

Anyways...this V stuff stinx! But we are all hopeful on here...lots of support and advice.


Take care
Noni
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Re: New girl from US

Post  Sebby (Admin) on Tue Feb 22, 2011 10:04 pm

Embarassed Thanks girls Im blushing! lol do I get a crown with chocolate orange segments in it! Wink

and welcome Shakerite11 I do hope you can feel supported with our lovely little community

Have a read around there are various treatments we are all trying and we are determined not to give up! we of course do have our down days but thats when we can turn to each other Very Happy

It does seem the treatments for VVS and Vulvodynia are similar from what I have read except that surgery is an option for those with VVS but usually a last resort

Physical therapy is deff worth a try especially to help with pelvic floor and vaginal tightness and spasms. Im soon to try bio-feedback home training via Vulvodynia.com (Dr Glazer's site)

Ive also started Pregabalin (anticonvulsant) for nerve pain (I have constant pain) dr said it may take a couple of months to really know if it is working

A number of us myself included are also trying anti-yeast/suger diets...from the candida theory by Dr Crandell I(I prob have not spelt her name right) Naomi our moderator is our guru on that one Wink

Im certainly taking a multi-disiplinary approach to it!

Beware of any drs telling you its in your head or because you are depressed or anxious. Yes stress can effect any chronic pain condition but research has shown this is NOT the cause of VVS or Vulvodynia.

Take care and my email seems to hate me at the moment so if you wish to join our secret facebook group inbox me on this site


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helllo

Post  shay on Wed Feb 23, 2011 9:16 pm

hi
Im shay and im 22 years old and in college so i know how it feels to be overwhelmed about being on your own and surrounded by young people all enjoying life and maybe sex sssssssssssssssh lol but do not let this madness stop you from enjoying the college experience

and you have come to the right place these lovely ladies our like god sent to me so you are blessed to be in the company of such wise and strong women

im also in the us so feel free to contact me

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Thanks ladies :)

Post  shakerite11 on Thu Feb 24, 2011 11:47 pm

Sebby, the ladies are right! you've created an amazing group Smile I feel really privileged to be a part of it!

@Naomi on a side note, I notice that your avatar is a boxer. Do you have a boxer? I absolutely love them and I have two at home. Their names are Lucilla an Max and they are my big babies haha I love you

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Re: New girl from US

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