Vulvodynia Support
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    » Hope to all my suffering ladies
    Ok in a really bad mood right now!!!  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    Ok in a really bad mood right now!!!  EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    Ok in a really bad mood right now!!!  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    Ok in a really bad mood right now!!!  EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    Ok in a really bad mood right now!!!  EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Ok in a really bad mood right now!!!  EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Ok in a really bad mood right now!!!  EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Ok in a really bad mood right now!!!  EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Ok in a really bad mood right now!!!  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Ok in a really bad mood right now!!!

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    Post  Louise Fri Mar 11, 2011 8:55 am

    Mad Where is this yeast free diet info on this site !! I think I have to jump on board!! FML!!

    Louise

    Posts : 10
    Join date : 2011-01-27

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    Post  naomi Fri Mar 11, 2011 11:57 am

    hello!

    Im currently on the Candida diet. If you google candida diet you will have about a million sites come up!!

    I found i got confued wading through all of these so i went on amazon and got a few books to help me and stuck with them. I'll send a few links to this in a bit if i can find them again.

    I saw a doctor about a month ago who straight away cut.....are you ready....SUGAR, YEAST, WHEAT, DAIRY, ALCOHOL, CAFFEINE out of my diet. Ok dont stress, there is actually a heck of a lot of food out there u can still eat...you just need to get thinking. I still eat citrus fruits too and love grapefruit.

    most importantly... booze. Vodka, gin and whisky are allowed but with soda water. I have loads of slices and squish them in my drink. Slim line tonic is ok too.

    I do slip up (had carrot cake in starbucks yday....didnt enjoy it as much as i usually would though as it was sickly sweet...oh my god, did i just say that?!!!) but as long as u dont pig out on crap then its ok.

    ive not seen any changes in my symptoms yet but its only been 3/4 weeks.

    Google 'Dr Marjorie Crandall Yeast consulting'...shes ace!! her theory is what im going to try and stick to, if i can find a willing doctor. I cant afford it at the mo so im starting off with the diet. Shes a lovely lady and have spoken a lot via email/phone in 2009...i had to go down the crappy NHS route for the best part of 18months to be able to claim housing benefitsetc. The NHS has got my no where so im back to Dr Crandall. She suffered with our very symptoms. I shall put a link onto here too in a mo xxxx

    oh the diet means u loose weight too!!

    naomi
    naomi
    Moderator

    Posts : 262
    Join date : 2010-04-09
    Location : Cheltenham

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    Post  naomi Fri Mar 11, 2011 1:05 pm

    Hiya!

    Ive put some links in the help and support section hun.

    Im in such a pissy mood as well since yday! Not as bad today but i think i suffer from low moods after my period...fuck being a woman grrrrrrrrr!!!

    Evil or Very Mad

    I will try to find some info on dr crandall too and put in the same section
    xxx
    naomi
    naomi
    Moderator

    Posts : 262
    Join date : 2010-04-09
    Location : Cheltenham

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